Question:

Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking. any other thoughts would be appreciated. Fox

– Hide quoted text — Show quoted text – Hi hope you can help a newbie here. After finally giving up smoking (3 months) after years of mild asthma suddenly over this last week my asthma has got worse. It feels like the bottom end of my lungs are no longer in use and the classic "breathing out against a brick wall.." has been exaggerated. I was told that my lung function would improve after giving up smoking but the opposite seems to have happened! I was wondering if anyone else had had experiences of this post smoking and whether I will in time get my previous better (if not perfect) lung function back. I know its stupid but at the moment it seems I was better off smoking!! Fox

Response:

Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts?

One can’t make a diagnosis at this distance, but what you describe is characteristic of hyperventilation syndrome. Try Googling that condition; I’m sure you will read of that set of symptoms.     Larry

Response:

I had hyperventilation syndrome.  I felt as if I couldn’t breath, but when I tried I really could.  It turned out that I was breathing "wrong".  I always thought that hyperventilation meant not being able to catch your breath – sort of gasping, until you breathed into a paper bag.  But it can occur as a result of stress, of if you breath too shallowly, and Carbon Dioxide builds up in your blood, which causes a change in blood ph and decreased oxygen carrying capacity. So you feel as if you aren’t breathing enough, but the problem is oxygen delivery, not lung capacity.   The doctor told me to 1) be sure I always exhale completely 2) breath through 1 nostril, pressing the other closed, to alter my breathing when I was having an attack. It does help.  Good Luck. BTW, the increase in lung function after you quit smoking takes time. 3 months isn’t that long compared to how long you smoked.  Good luck.   Diane M.   – Hide quoted text — Show quoted text – Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? One can’t make a diagnosis at this distance, but what you describe is characteristic of hyperventilation syndrome. Try Googling that condition; I’m sure you will read of that set of symptoms.     Larry

Response:

writes Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking. any other thoughts would be appreciated.

Visit your doctor, if only for peace of mind. Do you have a peak flow meter?  If so, do you use it?  It may be your asthma medication needs further adjustment. – Hide quoted text — Show quoted text -Fox Hi hope you can help a newbie here. After finally giving up smoking (3 months) after years of mild asthma suddenly over this last week my asthma has got worse. It feels like the bottom end of my lungs are no longer in use and the classic "breathing out against a brick wall.." has been exaggerated. I was told that my lung function would improve after giving up smoking but the opposite seems to have happened! I was wondering if anyone else had had experiences of this post smoking and whether I will in time get my previous better (if not perfect) lung function back. I know its stupid but at the moment it seems I was better off smoking!! Fox

– Five Cats

Response:

Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking.

It’s the cilia in your bronchial tubes you have to worry about.  Smoking paralyzes them and if you smoked for a very long time they die and will not regrow. So, if they’re only paralyzed they will revive but if they’re dead there’s no bringing them back. – Hide quoted text — Show quoted text – any other thoughts would be appreciated. Fox Hi hope you can help a newbie here. After finally giving up smoking (3 months) after years of mild asthma suddenly over this last week my asthma has got worse. It feels like the bottom end of my lungs are no longer in use and the classic "breathing out against a brick wall.." has been exaggerated. I was told that my lung function would improve after giving up smoking but the opposite seems to have happened! I was wondering if anyone else had had experiences of this post smoking and whether I will in time get my previous better (if not perfect) lung function back. I know its stupid but at the moment it seems I was better off smoking!! Fox

Response:

I know I’m cross posting, and I apologize in advance, but the cilia do regrow.  Here is a link from the University of Michigan.  Check out the 1 to 9 months section.  I know I’ve read it elsewhere, but this is the first link I found … the body does undo most of the damage from smoking in time. Not all, but most.   Quitting is VERY worth it.  :-) http://www.med.umich.edu/1libr/subabuse/tobacc09.htm BTW, when I was diagnosed with hyperventilation, the doctor did 1) a simple finger prick blood test for oxygen levels (which were normal) 2) a lab blood test for CO2 levels and blood pH and 3) a chest x-ray (which was clean).  It is frightening to feel as if you can’t breath, and if I were you I would talk to a doctor to rule out a serious disorder, just so that you can ease your mind and focus on treating this, and just in case.  Meanwhile, look diaphragmatic breathing on Google.  It might help.  It has helped me a LOT.  up Good Luck.   Diane M. /back to NOT cross posting – Hide quoted text — Show quoted text – Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking. It’s the cilia in your bronchial tubes you have to worry about.  Smoking paralyzes them and if you smoked for a very long time they die and will not regrow. So, if they’re only paralyzed they will revive but if they’re dead there’s no bringing them back. any other thoughts would be appreciated. Fox

Response:

Top posting and not cross posting.  Thanks Diane, for posting this.  I knew I had either heard or read that somewhere but wasn’t sure.  Glad to hear my cilia will try to grow back.  In fact I swear I feel them doing just that. Kim

– Hide quoted text — Show quoted text – I know I’m cross posting, and I apologize in advance, but the cilia do regrow.  Here is a link from the University of Michigan.  Check out the 1 to 9 months section.  I know I’ve read it elsewhere, but this is the first link I found … the body does undo most of the damage from smoking in time. Not all, but most.   Quitting is VERY worth it.  :-) http://www.med.umich.edu/1libr/subabuse/tobacc09.htm BTW, when I was diagnosed with hyperventilation, the doctor did 1) a simple finger prick blood test for oxygen levels (which were normal) 2) a lab blood test for CO2 levels and blood pH and 3) a chest x-ray (which was clean).  It is frightening to feel as if you can’t breath, and if I were you I would talk to a doctor to rule out a serious disorder, just so that you can ease your mind and focus on treating this, and just in case.  Meanwhile, look diaphragmatic breathing on Google.  It might help.  It has helped me a LOT.  up Good Luck. Diane M. /back to NOT cross posting Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking. It’s the cilia in your bronchial tubes you have to worry about.  Smoking paralyzes them and if you smoked for a very long time they die and will not regrow. So, if they’re only paralyzed they will revive but if they’re dead there’s no bringing them back. any other thoughts would be appreciated. Fox

Response:

How long is long?  I smoked for at least 10 years and I have asthma and I almost have a year now, and I still have trouble breathing when I walk long distances.  I’m also in high altitude. Debbie f3as3 Eleven months, two weeks, 16 hours, 0 minutes and 34 seconds. 10460 cigarettes not smoked, saving $1,569.00. Life saved: 5 weeks, 1 day, 7 hours, 40 minutes.

– Hide quoted text — Show quoted text – Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking. It’s the cilia in your bronchial tubes you have to worry about.  Smoking paralyzes them and if you smoked for a very long time they die and will not regrow. So, if they’re only paralyzed they will revive but if they’re dead there’s no bringing them back. any other thoughts would be appreciated. Fox Hi hope you can help a newbie here. After finally giving up smoking (3 months) after years of mild asthma suddenly over this last week my asthma has got worse. It feels like the bottom end of my lungs are no longer in use and the classic "breathing out against a brick wall.." has been exaggerated. I was told that my lung function would improve after giving up smoking but the opposite seems to have happened! I was wondering if anyone else had had experiences of this post smoking and whether I will in time get my previous better (if not perfect) lung function back. I know its stupid but at the moment it seems I was better off smoking!! Fox

Response:

me too!  Thanks. Debbie f3as3 Eleven months, two weeks, 16 hours, 20 minutes and 45 seconds. 10460 cigarettes not smoked, saving $1,569.06. Life saved: 5 weeks, 1 day, 7 hours, 40 minutes.

– Hide quoted text — Show quoted text – Top posting and not cross posting.  Thanks Diane, for posting this.  I knew I had either heard or read that somewhere but wasn’t sure.  Glad to hear my cilia will try to grow back.  In fact I swear I feel them doing just that. Kim I know I’m cross posting, and I apologize in advance, but the cilia do regrow.  Here is a link from the University of Michigan.  Check out the 1 to 9 months section.  I know I’ve read it elsewhere, but this is the first link I found … the body does undo most of the damage from smoking in time. Not all, but most.   Quitting is VERY worth it.  :-) http://www.med.umich.edu/1libr/subabuse/tobacc09.htm BTW, when I was diagnosed with hyperventilation, the doctor did 1) a simple finger prick blood test for oxygen levels (which were normal) 2) a lab blood test for CO2 levels and blood pH and 3) a chest x-ray (which was clean).  It is frightening to feel as if you can’t breath, and if I were you I would talk to a doctor to rule out a serious disorder, just so that you can ease your mind and focus on treating this, and just in case.  Meanwhile, look diaphragmatic breathing on Google.  It might help.  It has helped me a LOT.  up Good Luck. Diane M. /back to NOT cross posting Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking. It’s the cilia in your bronchial tubes you have to worry about. Smoking paralyzes them and if you smoked for a very long time they die and will not regrow. So, if they’re only paralyzed they will revive but if they’re dead there’s no bringing them back. any other thoughts would be appreciated. Fox

Response:

High altitude could be adding a lot to your problems.  UM MOM Susan

– Hide quoted text — Show quoted text – How long is long?  I smoked for at least 10 years and I have asthma and I almost have a year now, and I still have trouble breathing when I walk long distances.  I’m also in high altitude. Debbie f3as3 Eleven months, two weeks, 16 hours, 0 minutes and 34 seconds. 10460 cigarettes not smoked, saving $1,569.00. Life saved: 5 weeks, 1 day, 7 hours, 40 minutes. Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking. It’s the cilia in your bronchial tubes you have to worry about.  Smoking paralyzes them and if you smoked for a very long time they die and will not regrow. So, if they’re only paralyzed they will revive but if they’re dead there’s no bringing them back. any other thoughts would be appreciated. Fox Hi hope you can help a newbie here. After finally giving up smoking (3 months) after years of mild asthma suddenly over this last week my asthma has got worse. It feels like the bottom end of my lungs are no longer in use and the classic "breathing out against a brick wall.." has been exaggerated. I was told that my lung function would improve after giving up smoking but the opposite seems to have happened! I was wondering if anyone else had had experiences of this post smoking and whether I will in time get my previous better (if not perfect) lung function back. I know its stupid but at the moment it seems I was better off smoking!! Fox

Response:

High altitude could be adding a lot to your problems.  UM MOM Susan

Susan, please try to bottom-post–It takes a while to get a handle on the thread when it gets so cluttered.

Response:

As a side note: This was posted to 2 other newsgroups.  We at AS3 don’t give a horse’s patooty how you post as long as you post when you need to post. Carry on, Kim not cross posting but definately top posting

– Hide quoted text — Show quoted text – High altitude could be adding a lot to your problems.  UM MOM Susan Susan, please try to bottom-post–It takes a while to get a handle on the thread when it gets so cluttered.

Response:

When does the cila (sp?)

Cilium singular, cilia plural (usual).

Response:

So how long do they take to regrow – anyone know? Fox QOF —

– Hide quoted text — Show quoted text – I know I’m cross posting, and I apologize in advance, but the cilia do regrow.  Here is a link from the University of Michigan.  Check out the 1 to 9 months section.  I know I’ve read it elsewhere, but this is the first link I found … the body does undo most of the damage from smoking in time. Not all, but most.   Quitting is VERY worth it.  :-) http://www.med.umich.edu/1libr/subabuse/tobacc09.htm BTW, when I was diagnosed with hyperventilation, the doctor did 1) a simple finger prick blood test for oxygen levels (which were normal) 2) a lab blood test for CO2 levels and blood pH and 3) a chest x-ray (which was clean).  It is frightening to feel as if you can’t breath, and if I were you I would talk to a doctor to rule out a serious disorder, just so that you can ease your mind and focus on treating this, and just in case.  Meanwhile, look diaphragmatic breathing on Google.  It might help.  It has helped me a LOT.  up Good Luck. Diane M. /back to NOT cross posting Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking. It’s the cilia in your bronchial tubes you have to worry about.  Smoking paralyzes them and if you smoked for a very long time they die and will not regrow. So, if they’re only paralyzed they will revive but if they’re dead there’s no bringing them back. any other thoughts would be appreciated. Fox

Response:

If you had kept smoking you might now be carrying Oxygen around all day. – Hide quoted text — Show quoted text – How long is long?  I smoked for at least 10 years and I have asthma and I almost have a year now, and I still have trouble breathing when I walk long distances.  I’m also in high altitude. Debbie f3as3 Eleven months, two weeks, 16 hours, 0 minutes and 34 seconds. 10460 cigarettes not smoked, saving $1,569.00. Life saved: 5 weeks, 1 day, 7 hours, 40 minutes. Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking. It’s the cilia in your bronchial tubes you have to worry about.  Smoking paralyzes them and if you smoked for a very long time they die and will not regrow. So, if they’re only paralyzed they will revive but if they’re dead there’s no bringing them back. any other thoughts would be appreciated. Fox Hi hope you can help a newbie here. After finally giving up smoking (3 months) after years of mild asthma suddenly over this last week my asthma has got worse. It feels like the bottom end of my lungs are no longer in use and the classic "breathing out against a brick wall.." has been exaggerated. I was told that my lung function would improve after giving up smoking but the opposite seems to have happened! I was wondering if anyone else had had experiences of this post smoking and whether I will in time get my previous better (if not perfect) lung function back. I know its stupid but at the moment it seems I was better off smoking!! Fox

– Amazing Grace’s Eclectic Quotation Collection *93,000 quotations, proverbs, by people of all philosophies, ages and cultures. For more info. or free sample of one category, send a personal  . . . Grace McGarvie . . .  . . Plymouth,Mn.  55447 U.S.A.

Response:

That is exactly what my doctor told me.  Thanks. Debbie f3as3 Eleven months, two weeks, two days, 21 hours, 22 minutes and 12 seconds. 10526 cigarettes not smoked, saving $1,579.01. Life saved: 5 weeks, 1 day, 13 hours, 10 minutes.

– Hide quoted text — Show quoted text – If you had kept smoking you might now be carrying Oxygen around all day. How long is long?  I smoked for at least 10 years and I have asthma and I almost have a year now, and I still have trouble breathing when I walk long distances.  I’m also in high altitude. Debbie f3as3 Eleven months, two weeks, 16 hours, 0 minutes and 34 seconds. 10460 cigarettes not smoked, saving $1,569.00. Life saved: 5 weeks, 1 day, 7 hours, 40 minutes. Thank you for your replies, the symptoms have changed slightly over the last week with now often feeling like there is just not enough oxygen in the air ie mild suffocation. My chest and tubes feel free and normal but im just getting this craving for oxygen. Its not all the time but im getting daily attacks. Any other thoughts? When does the cila (sp?) in your lungs start to regrow, could it be the start of this process? or should this be complete at 3 months? Im not sure that this thread is really relative to this newsgroup but ill copy it to support.stop.smoking. It’s the cilia in your bronchial tubes you have to worry about. Smoking paralyzes them and if you smoked for a very long time they die and will not regrow. So, if they’re only paralyzed they will revive but if they’re dead there’s no bringing them back. any other thoughts would be appreciated. Fox Hi hope you can help a newbie here. After finally giving up smoking (3 months) after years of mild asthma suddenly over this last week my asthma has got worse. It feels like the bottom end of my lungs are no longer in use and the classic "breathing out against a brick wall.." has been exaggerated. I was told that my lung function would improve after giving up smoking but the opposite seems to have happened! I was wondering if anyone else had had experiences of this post smoking and whether I will in time get my previous better (if not perfect) lung function back. I know its stupid but at the moment it seems I was better off smoking!! Fox — Amazing Grace’s Eclectic Quotation Collection *93,000 quotations, proverbs, by people of all philosophies, ages and cultures. For more info. or free sample of one category, send a personal  . . . Grace McGarvie . . .  . . Plymouth,Mn.  55447 U.S.A.

Response:

Question:

Hey all, Some of you might know that I had an emergency lap on Tuesday for some pelvic pain with fever I had for a couple of weeks.  The surgery was a rough one for me, infact, it damn near killed me.  The ob/gyn I have now is a very caring woman who is trying her best but I think my case is out of her rhelm of expertise.  I really need a doctor who can treat sever endo in the Salt Lake area.  Does anyone know of such a doctor around here?  I am due for my 3rd Lupron shot in a week and my endo still keeps growing, I also have an infected left ovary and tube.  My doctor doesn’t give me much hope in being able to concieve and I don’t want to give up.  I feel that with the right doctor my chances will be better.  The doctor I have now doesn’t feel comfortable removing the endo from my cul-de-sac or from my bowels.  I need a doctor who will remove all of it if I am going to have a decent chance of getting pregnant.  I also have a tough time with anistedic (sp?) It seems that each time I am put out it becomes a life threatening situation.  With my first lap last march my heart starting throwing pvc’s, this time I had respitory failure due to asthma and smoking, and each time I am put out my blood pressure drops to a very crittical level.  Tuesday night the nurse didn’t leave my bedside all night until my blood pressure came back up. (wow this is getting long isn’t it?  I am sorry) Anyhow, my husband and I are scared to death at the thought of more surgeries for me.  But as you all know surgeries come with this terrible disease.  So if I have to have another surgery I want to make it count with a really good doctor.  I am even willing to travel out of state if I need to. Please let me know if any of you can suggest someone for me.  Thankyou for reading my very long post, pain meds make me chatty I guess *grin*. Annette

Response:

Most of the gals here rave about Dr Redwine in Bend, OR.  I’m sorry I don’t know his web addy (and I should I guess cuz I live in Oregon!).  He’s supposed to be one of the best.  

Hey, I wouldn’t concider that too far if he could help me.  I would love more info about him, or anyone else you guys could suggest. Annette

Response:

Annette, I’m sure someone else will suggest this but I’ll put it in anyway.  Most of the gals here rave about Dr Redwine in Bend, OR.  I’m sorry I don’t know his web addy (and I should I guess cuz I live in Oregon!).  He’s supposed to be one of the best.  If he’s too far away, maybe they can refer you to someone closer?  Worth a try perhaps. I hope you’re having a good day today, less pain & all of that Hugs, Karyl

Response:

Most of the gals here rave about Dr Redwine in Bend, OR.  I’m sorry I don’t know his web addy (and I should I guess cuz I live in Oregon!).  He’s supposed to be one of the best.   Hey, I wouldn’t concider that too far if he could help me.  I would love more info about him, or anyone else you guys could suggest.

Dr. David Redwine has some articles on the web page for St. Charles Medical Center, where he does surgery.  He has specialized in endo since at least 1987, and does scissor excision through the laparoscope.  He looks through a microscope to find microscopic endo, and I believe he has treated more patients with diaphragm endo than any other doctor anywhere. He’s probably the closest of the Big Name endo doctors to where you live. It takes a while to get in; once you send in your medical records with the fee for evaluation ($100 last I looked), it takes a month for him to get back to you and then probably another month or so to get a surgery date. He doesn’t take insurance directly (but he will arrange time payments). He’s not cheap but no surgery is cheap and very often his patients don’t need any more surgery because he really tries hard to get it all. If your endo is mostly in the cul-de-sac and you can travel farther, Dr. Harry Reich in NYC has specialized in cul-de-sac endo removal, but I don’t know that he is necessarily much better than Dr. Redwine.  (I haven’t been to either of them.) From an old list of doctors (no guarantees): Utah: Univ Utah Med. Ctr: Matthew Peterson Or you might want to try some of the other methods – at least one woman reported she had great relief from doing _all_ the New Age methods at once, from homeopathic medicine to special diet to special baths.  Several have said Chinese medicine helped them.  With your special difficulties, it might be worth a try to avoid surgery if at all possible. Painfree wishes, =Tamar

Response:

Tamar, Thanks for the info.  I wrote down Mathew Peterson’s name to look him up in the book in the morning.  I will let you know how it goes. As far as the whole herb thing goes, I think it’s great if it works for people but I have always been a believer in regular medicine.  I would love to avoid surgery if I could, but if I am ever going to get pregnant I need to get this stuff removed surgically.  Sometimes I feel like the Endo is taking over my body, and I have had two laps in 6 months and I am half way through the Lupron ride. The side effects from Lupron haven’t been so bad, I take my calcium and I seem to be doing alright on it except that the Endo is still growing like weeds.  I thought Lupron was supposed to shrink it away even if it was temporary. Annette

Response:

[...] The side effects from Lupron haven’t been so bad, I take my calcium and I seem to be doing alright on it except that the Endo is still growing like weeds.  I thought Lupron was supposed to shrink it away even if it was temporary.

Hi, Annette.   Everyone’s body is different.  Some women find that Lupron doesn’t work for them.   Lupron usually stops endo growth _but_ it does it by suppressing all estrogen.  The first month, Lupron stimulates estrogen because the body tries to compensate for it; the second month it usually stops estrogen production, but not always.  And some endo seems to be able to grow even when all estrogen is stopped.  Endo can vary – most endo cells have receptors for estrogen, some have receptors for other hormones and maybe that’s the kind you have more of.   I hope the Ut doc is still there and good; if not, Dr. Redwine has the best reputation. Best wishes for the results you want, =Tamar

Response:

I know of a good docyor at the University of Utah.  His name is Raymond Doucette and he specializes in these surgeries.

Response:

Hey, I wouldn’t concider that too far if he could help me.  I would love more info about him, or anyone else you guys could suggest. Annette

Hello Ladies, I have posted this before, but don’t really know if anyone reads my posts.  Here goes: From personal experience, I believe the only way to get over this endo is to find an excellent surgeon.  I spent months researching looking for someone competent to remove my endo.  Dr. Redwine was my third surgeon and absolutely the best in my opinion.   My only advice to those looking for help is to find the most competent surgeon who specializes in endo.  You don’t have to take my word for it, but please read the entire website (address below).  It has very good information and will introduce you to Dr. Redwine and his Endo Treatment Program. http://www.scmc.org/endo.html Dr. Redwine of St. Charles Medical Center Take Care, Theresa in California

Response:

Thankyou Smallrsae, I will look him up, I appriciate it. Annette

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