Posts belonging to Category 'Asthma Association'

Big Whine

Question:

Oh, Liz, I am so sorry.  You can whine hear any old time.  My husband doesn’t get the odor thing either and that would be just the thing he would do.  He’s always trying to kill the old smell in our older car because I won’t ride in it.  I cannot even imagine doing that for 100 miles…I think I would have had a towel over my face the whole time. Did you bundle your husband in the behavioral appointment ;-) Michelle

– Hide quoted text — Show quoted text – Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong.  I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong.  I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country?  I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

I had to tell my husband your story today…as we drove (in the stinky car) in the Dallas snow to go feed my feral kitty.  I also told him what Teri suggested as a solution ;-) Oh, I have a schizo kitty who is scared of practically his shadow. My other three are pretty much okay.  But this kitty was a feral kitten, so I’m not too surprised.  We’ve had our oldest cat to numerous docs for his spraying problem.  I solved it by giving him Bach’s Rescue Remedy (mixed with some yogurt) tamed his anxiety way down and he’s just about fine now. If you don’t find relief you might try the Rescue Remedy…you’ll find it in normal health food stores (people take it too).. Michelle

– Hide quoted text — Show quoted text – Thanks…thanks….thanks….. I knew you guys would understand! His nose is dead, Teri.  A couple of years ago I detected a STRONG odor of skunk.  My old dog (literally!) was outside and I didn’t want him to get involved.  So I sent the big guy out to bring the dog in.  I think you know the rest of the story..  He NEVER noticed that the DOG had been the target of the skunk!!  Brought all that smell in the house…. took a very long time to get THAT out, I’ll tell you.  I’ve learned NOT to trust him when it comes to the schnozzola. Michelle.. I should have gotten a two-fer with puppy AND husband!!  This behaviorist was $180.00 per hour!!!  I was so happy to breathe through my nose again that I completely forget to mention that… I bet he would have had some good ideas!! Ginnie… you know, that’s a hell of an idea!!  Sharper Image sell smaller versions of those ozone generators — whadya think?  I must admit I could have lived with the puppy barf smell easier than the 6,000 square foot odor bomb!!!! Psycho puppy, barfing bowser!! That’s him to a "T"!!  Actually, he’s a wonderful puppy at home with us, but is WAY too shy when it comes to other people.  I’m afraid that it will translate into aggression when he gets older — hence the behaviorist.  If you want to see the behaviorist’s site he’s at www.sitandstay.com. MUCH MUCH better today…. but I’m not getting into that truck again until it passes the sniff test.  Thanks you guys, for your thoughts!! (smooch!!) Liz Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong. I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

Eewwww! Ex for the smell, ew for the ride, ew everything! You might call an air quality company and get someone to run an ozone generator inside that truck (and Michelle, inside your old car). That’ll get rid of – neutralize – any odors in there, providing your hubby did as thorough a cleaning job as possible. The ozone will take care of what you can’t clean away. It’s a little device about the size of a carry-on that hotels use to get rid of cigarette and musty odors in guest rooms. Home air environmental companies and flood restoration companies usually have them. Ginnie – Hide quoted text — Show quoted text – Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong.  I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country?  I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

Kadee, that’s good to know…never heard of it.  Who is the manufacturer…is it one of those canister things or containers you open up??? Michelle

– Hide quoted text — Show quoted text – So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it? ((((((((((Liz)))))))))) You have my sympathy. I can not tolerate most carpet fresheners, deodorizers etc. We took the car I drive in for service. Usually they wash it as part of the service if they have time. This time, they vacuumed inside but also sprayed something. Hubby took one whiff and told me to drive the other car home. He has allergies but doesn’t get migraines. He felt he could tolerate it better than I could as one whiff would have me with a serius migraine and still have to drive home in the dark with headlights hitting me in the face. Hubby had me drive the other car when I needed during the next few weeks as we aired it out. I have no idea why they would do that though I am sure they thought they were doing us a service. The guys there are always super and helpful. There is something called an air sponge which may help soak up the odour. It was apparently used after the Oklahoma bombing to get the smells out. I can open that for a while in a room or have used it in the car when they was a funny smell. Do NOT get the pet one. I think that one smells. Baking soda is one of my staples for cleaning too. Hope you are feeling better. I am feeling nauseous just thinking about it. You poor dear. Definitely, it will be on your clothes and in your hair. Hope you can tolerate a shower or a soak. It will likely be inside you too. Hope you don’t taste it. Gentle hugs, Kadee

Response:

Bach’s Rescue Remedy is great! I was so impressed with it that I bought a set of flower essences and a book so I can blend my own dosing bottles for various uses. Teri

– Hide quoted text — Show quoted text – I had to tell my husband your story today…as we drove (in the stinky car) in the Dallas snow to go feed my feral kitty.  I also told him what Teri suggested as a solution ;-) Oh, I have a schizo kitty who is scared of practically his shadow. My other three are pretty much okay.  But this kitty was a feral kitten, so I’m not too surprised.  We’ve had our oldest cat to numerous docs for his spraying problem.  I solved it by giving him Bach’s Rescue Remedy (mixed with some yogurt) tamed his anxiety way down and he’s just about fine now.

Response:

Oh, wow, Liz! That IS a dead nose. Absolutely stay out of that truck until all the various odors are gone. Hang in there, Teri

– Hide quoted text — Show quoted text – Thanks…thanks….thanks….. I knew you guys would understand! His nose is dead, Teri.  A couple of years ago I detected a STRONG odor of skunk.  My old dog (literally!) was outside and I didn’t want him to get involved.  So I sent the big guy out to bring the dog in.  I think you know the rest of the story..  He NEVER noticed that the DOG had been the

Response:

It really is.  My homeopathic vet suggested it about a year ago.  She said all the anxiety drugs in the world won’t calm my kitty down and keep him from feeling territorial…they are only drugs.  She suggested this and I use it faithfully every day. It even made him stop being so skittish and cleaning himself all the time.  Wonderful stuff. Michelle

– Hide quoted text — Show quoted text – Bach’s Rescue Remedy is great! I was so impressed with it that I bought a set of flower essences and a book so I can blend my own dosing bottles for various uses. Teri I had to tell my husband your story today…as we drove (in the stinky car) in the Dallas snow to go feed my feral kitty.  I also told him what Teri suggested as a solution ;-) Oh, I have a schizo kitty who is scared of practically his shadow. My other three are pretty much okay.  But this kitty was a feral kitten, so I’m not too surprised.  We’ve had our oldest cat to numerous docs for his spraying problem.  I solved it by giving him Bach’s Rescue Remedy (mixed with some yogurt) tamed his anxiety way down and he’s just about fine now.

Response:

Teri, what’s Rescue Remedy? Is it something that you take? Or are you dosing a pooch? If you’re taking it, is it safe on top of Rx drugs? What is it useful for? Ginnie – Hide quoted text — Show quoted text – Bach’s Rescue Remedy is great! I was so impressed with it that I bought a set of flower essences and a book so I can blend my own dosing bottles for various uses. Teri I had to tell my husband your story today…as we drove (in the stinky car) in the Dallas snow to go feed my feral kitty.  I also told him what Teri suggested as a solution ;-) Oh, I have a schizo kitty who is scared of practically his shadow. My other three are pretty much okay.  But this kitty was a feral kitten, so I’m not too surprised.  We’ve had our oldest cat to numerous docs for his spraying problem.  I solved it by giving him Bach’s Rescue Remedy (mixed with some yogurt) tamed his anxiety way down and he’s just about fine now.

Response:

Oh, how awful.  I would have added my own puke to the upholstery LOL Hugs, Jasmine

– Hide quoted text — Show quoted text – Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong.  I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

Thanks…thanks….thanks….. I knew you guys would understand! His nose is dead, Teri.  A couple of years ago I detected a STRONG odor of skunk.  My old dog (literally!) was outside and I didn’t want him to get involved.  So I sent the big guy out to bring the dog in.  I think you know the rest of the story..  He NEVER noticed that the DOG had been the target of the skunk!!  Brought all that smell in the house…. took a very long time to get THAT out, I’ll tell you.  I’ve learned NOT to trust him when it comes to the schnozzola. Michelle.. I should have gotten a two-fer with puppy AND husband!!  This behaviorist was $180.00 per hour!!!  I was so happy to breathe through my nose again that I completely forget to mention that… I bet he would have had some good ideas!! Ginnie… you know, that’s a hell of an idea!!  Sharper Image sell smaller versions of those ozone generators — whadya think?  I must admit I could have lived with the puppy barf smell easier than the 6,000 square foot odor bomb!!!! Psycho puppy, barfing bowser!! That’s him to a "T"!!  Actually, he’s a wonderful puppy at home with us, but is WAY too shy when it comes to other people.  I’m afraid that it will translate into aggression when he gets older — hence the behaviorist.  If you want to see the behaviorist’s site he’s at www.sitandstay.com. MUCH MUCH better today…. but I’m not getting into that truck again until it passes the sniff test.  Thanks you guys, for your thoughts!! (smooch!!) Liz

– Hide quoted text — Show quoted text – Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong.  I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

Oh, Liz…..poor dear!  Then, on top of the dog barf, is the stuff you’ve tried to kill it….baking soda…vinegar, all those smells  And your hubby counter-terrorizes you with the car deoderizer thingee!  And you have a phsycho puppy…a barfing bowzer….. (((((((((((((Liz)))))))))))))))) I’m there with ya, dearest! Deep peace, Lamonster – Hide quoted text — Show quoted text – Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong.  I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

Awwwwwwwwww, Lizz. Tell you what — get a true menthol crystal, pour boiling water into a SMALL bowl, sit your husband down with his face over the bowl and a towel "tent," then drop in the entire menthol crystal. Unless his nose is truly dead, it won’t hurt him, but WILL send him reeling and coughing. THEN he might understand a little bit about what odors can do to you. <eg Teri

– Hide quoted text — Show quoted text – Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong.  I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

Liz: My mom just brought a used car and the other owner had bought an air Ionizer for the car. It fits on top of the dashboard and is plugs into the cigarette lighter. We haven’t used it yet, but the lady who sold us the car was the original owner and got the Ionizer separately. Try to find one of those and see if that helps the car odor. Barbara Booth

Response:

Ginnie, Rescue Remedy is a combination of five flower essences. I use it and various other flower essences. My doc says it’s fine. Here’s an article on Rescue Remedy: * Five Flower Rescue Remedy This first aid formula of flowering herbs was originally combined through the studies of Dr. Edward Bach, a homeopathic practitioner who pioneered working with subtle flower energies. http://healing.about.com/library/weekly/aa000811a.htm Here’s a page listing articles and links about Flower Essence Therapy: * Flower remedies are not addictive or dangerous and can easily be taken inconjunction with other types of treatments. They are especially helpful for treating mental and emotional problems. They are suitable/safe for all ages including children, pregnant women and animals. Links here are to pages of instruction for use, preparation of tinctures, history of Bach remedies, and individual flower indexing. http://healing.about.com/cs/floweressences/index.htm Teri

– Hide quoted text — Show quoted text – Teri, what’s Rescue Remedy? Is it something that you take? Or are you dosing a pooch? If you’re taking it, is it safe on top of Rx drugs? What is it useful for? Ginnie

Response:

Ginnie, although I use it for my cat, I guess people use it for calming themselves.  I worked with a woman who used it for that…kind of like St. Johns Wort I think. Michelle

– Hide quoted text — Show quoted text – Teri, what’s Rescue Remedy? Is it something that you take? Or are you dosing a pooch? If you’re taking it, is it safe on top of Rx drugs? What is it useful for? Ginnie Bach’s Rescue Remedy is great! I was so impressed with it that I bought a set of flower essences and a book so I can blend my own dosing bottles for various uses. Teri I had to tell my husband your story today…as we drove (in the stinky car) in the Dallas snow to go feed my feral kitty.  I also told him what Teri suggested as a solution ;-) Oh, I have a schizo kitty who is scared of practically his shadow. My other three are pretty much okay.  But this kitty was a feral kitten, so I’m not too surprised.  We’ve had our oldest cat to numerous docs for his spraying problem.  I solved it by giving him Bach’s Rescue Remedy (mixed with some yogurt) tamed his anxiety way down and he’s just about fine now.

Response:

That’s why were here (I wanted to insert  - to serve and protect -) but just to offer compassion and sometimes a good idea or two :-) Michelle

– Hide quoted text — Show quoted text – DUH!   I’m beginning to scare myself.  I HAVE Rescue Remedy for my other PWD who is deathly afraid of thunderstorms.   Another holistic way of treating his shyness is to limit his protein to less than 18 % and give him 5HTP….. starting at 1/2 dose and ramping up to 2x’s the adult dose.  I think he said that the 5HTP is triptophan – another calming agent.  I’m writing the behaviorist an email – I forgot why we needed to limit his protein. I’m telling you this is SO ironic!!  I have always said that if we had a family crest, it would have the yellow, happy smiling face on it due to EVERYONE in the family being on one type of antidepressant or other.  Now even the damn dog has brain chemistry problems….  It MUST be contagious! Thanks for all your support… Liz I had to tell my husband your story today…as we drove (in the stinky car) in the Dallas snow to go feed my feral kitty.  I also told him what Teri suggested as a solution ;-) Oh, I have a schizo kitty who is scared of practically his shadow. My other three are pretty much okay.  But this kitty was a feral kitten, so I’m not too surprised.  We’ve had our oldest cat to numerous docs for his spraying problem.  I solved it by giving him Bach’s Rescue Remedy (mixed with some yogurt) tamed his anxiety way down and he’s just about fine now. If you don’t find relief you might try the Rescue Remedy…you’ll find it in normal health food stores (people take it too).. Michelle Thanks…thanks….thanks….. I knew you guys would understand! His nose is dead, Teri.  A couple of years ago I detected a STRONG odor of skunk.  My old dog (literally!) was outside and I didn’t want him to get involved.  So I sent the big guy out to bring the dog in.  I think you know the rest of the story..  He NEVER noticed that the DOG had been the target of the skunk!!  Brought all that smell in the house…. took a very long time to get THAT out, I’ll tell you.  I’ve learned NOT to trust him when it comes to the schnozzola. Michelle.. I should have gotten a two-fer with puppy AND husband!! This behaviorist was $180.00 per hour!!!  I was so happy to breathe through my nose again that I completely forget to mention that… I bet he would have had some good ideas!! Ginnie… you know, that’s a hell of an idea!!  Sharper Image sell smaller versions of those ozone generators — whadya think?  I must admit I could have lived with the puppy barf smell easier than the 6,000 square foot odor bomb!!!! Psycho puppy, barfing bowser!! That’s him to a "T"!!  Actually, he’s a wonderful puppy at home with us, but is WAY too shy when it comes to other people.  I’m afraid that it will translate into aggression when he gets older — hence the behaviorist.  If you want to see the behaviorist’s site he’s at www.sitandstay.com. MUCH MUCH better today…. but I’m not getting into that truck again until it passes the sniff test.  Thanks you guys, for your thoughts!! (smooch!!) Liz Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong. I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

Liz, would it help to get one of those swimmer’s nose plugs and use that when you hafta use that truck?  I know that some odors have such fumes that get past that, but i dunno if you’d tried it yet. smooch to your Tasmanian puppy, Lavonster

– Hide quoted text — Show quoted text – Oh, how awful.  I would have added my own puke to the upholstery LOL Hugs, Jasmine Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong. I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

BWA HA HA!!!  Can you imagine me in a noseclip???  Hubby may just get the hint, huh?   Maybe I could use jello to slick my hair down like they do for synchronized swimming!!! Big lick back from the EXPENSIVE  Tasmanian puppy!! Liz – Hide quoted text — Show quoted text – Liz, would it help to get one of those swimmer’s nose plugs and use that when you hafta use that truck?  I know that some odors have such fumes that get past that, but i dunno if you’d tried it yet. smooch to your Tasmanian puppy, Lavonster Oh, how awful.  I would have added my own puke to the upholstery LOL Hugs, Jasmine Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong. I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

No, I think you should try a flowered swimming cap :-) Michelle

– Hide quoted text — Show quoted text – BWA HA HA!!!  Can you imagine me in a noseclip???  Hubby may just get the hint, huh?   Maybe I could use jello to slick my hair down like they do for synchronized swimming!!! Big lick back from the EXPENSIVE  Tasmanian puppy!! Liz Liz, would it help to get one of those swimmer’s nose plugs and use that when you hafta use that truck?  I know that some odors have such fumes that get past that, but i dunno if you’d tried it yet. smooch to your Tasmanian puppy, Lavonster Oh, how awful.  I would have added my own puke to the upholstery LOL Hugs, Jasmine Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong. I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

My husband thanks you, my dogs thank you and I thank you!!!  I’m going to order a couple of them today!!  Does anyone remember the Seinfeld episode about George’s smelly car?  I’ve been referring to it all week!  Had to send my clothes to the cleaners to get the smell of that "odor bomb" off them!! Stay warm, all you Northeasters!! Liz

– Hide quoted text — Show quoted text – Kadee, that’s good to know…never heard of it.  Who is the manufacturer…is it one of those canister things or containers you open up??? Michelle It looks like a margarine tub. I know Ronnie said it is available in U.S. too. I found some links. I will paste them here just for the info,  not as advertising for these sites as I just pick them up in the grocery store. They are in all the grocery stores as well as most department stores. I make sure I get one without odour. It is like a sponge but shrinks as it absorbs the odours. You just remove the lid for a while and then close up to use again. I would be afraid to try the spray version and I am pretty sure the pet version mentions fragrance. I found this site though it looks like a different brand. http://www.battyshopper.net/airsponge.html If it mentions "pleasant fragrance" etc. avoid it. I know some products try to cover up with what they think are pleasing fragrances. This might be the one we have here http://www.jdpharmacy.com/products/airsponge.stm http://www.afmpag.com/130s2.html http://www.afmpag.com/131s2.html This one has Asthma Association of Canada listed on the ad. http://preview.officedepot.com/ddSKU.do?level=SK&id=349485 http://www.colehardware.com/hotline/98/10/sponge.htm     Environmental Air Sponge is a safe, reliable antidote to any type of odor. This product has been used for over 20 years to eliminate odors and pollutants from indoor environments — from air and carpet dust, to solvent, paint and print fumes, to skunk, cooking, smoke, mildew and tobacco odors. Applications include hospitals, sewer gas treatment facilities, locker rooms, rail passenger cars, and fire and disaster restorations.     Environmental Air Sponge contains a solid soap gel coated with activated charcoal. These two components work together to both eliminate odors and absorb pollutants. All you have to do is remove the lid and place the container 4 to 6 feet high in the room. Most odors should be eliminated within a few hours. – Hardware Hotline  October, 1998 http://www.contractorszone.com/AirSponge/ Kadee

Response:

Wow, lot’s of links :-)  Thanks!!  I’ll check it out.  Have you seen the dingbat baby toys in the stores…I happened to be with a pregnant friend and they had these "environmentally" smelling toys.  They had this gross sweet smell…made me sick. Thanks for the info. Michelle

– Hide quoted text — Show quoted text – Kadee, that’s good to know…never heard of it.  Who is the manufacturer…is it one of those canister things or containers you open up??? Michelle It looks like a margarine tub. I know Ronnie said it is available in U.S. too. I found some links. I will paste them here just for the info,  not as advertising for these sites as I just pick them up in the grocery store. They are in all the grocery stores as well as most department stores. I make sure I get one without odour. It is like a sponge but shrinks as it absorbs the odours. You just remove the lid for a while and then close up to use again. I would be afraid to try the spray version and I am pretty sure the pet version mentions fragrance. I found this site though it looks like a different brand. http://www.battyshopper.net/airsponge.html If it mentions "pleasant fragrance" etc. avoid it. I know some products try to cover up with what they think are pleasing fragrances. This might be the one we have here http://www.jdpharmacy.com/products/airsponge.stm http://www.afmpag.com/130s2.html http://www.afmpag.com/131s2.html This one has Asthma Association of Canada listed on the ad. http://preview.officedepot.com/ddSKU.do?level=SK&id=349485 http://www.colehardware.com/hotline/98/10/sponge.htm     Environmental Air Sponge is a safe, reliable antidote to any type of odor. This product has been used for over 20 years to eliminate odors and pollutants from indoor environments — from air and carpet dust, to solvent, paint and print fumes, to skunk, cooking, smoke, mildew and tobacco odors. Applications include hospitals, sewer gas treatment facilities, locker rooms, rail passenger cars, and fire and disaster restorations.     Environmental Air Sponge contains a solid soap gel coated with activated charcoal. These two components work together to both eliminate odors and absorb pollutants. All you have to do is remove the lid and place the container 4 to 6 feet high in the room. Most odors should be eliminated within a few hours. – Hardware Hotline  October, 1998 http://www.contractorszone.com/AirSponge/ Kadee

Response:

You know, I had quite a few of those!!  I liked the ones that were covered all over with some rubber "spaghetti" looking stuff.  I thought I looked "groovy"!! L.

– Hide quoted text — Show quoted text – No, I think you should try a flowered swimming cap :-) Michelle BWA HA HA!!!  Can you imagine me in a noseclip???  Hubby may just get the hint, huh?   Maybe I could use jello to slick my hair down like they do for synchronized swimming!!! Big lick back from the EXPENSIVE  Tasmanian puppy!! Liz Liz, would it help to get one of those swimmer’s nose plugs and use that when you hafta use that truck?  I know that some odors have such fumes that get past that, but i dunno if you’d tried it yet. smooch to your Tasmanian puppy, Lavonster Oh, how awful.  I would have added my own puke to the upholstery LOL Hugs, Jasmine Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong. I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

DUH!   I’m beginning to scare myself.  I HAVE Rescue Remedy for my other PWD who is deathly afraid of thunderstorms.   Another holistic way of treating his shyness is to limit his protein to less than 18 % and give him 5HTP….. starting at 1/2 dose and ramping up to 2x’s the adult dose.  I think he said that the 5HTP is triptophan – another calming agent.  I’m writing the behaviorist an email – I forgot why we needed to limit his protein. I’m telling you this is SO ironic!!  I have always said that if we had a family crest, it would have the yellow, happy smiling face on it due to EVERYONE in the family being on one type of antidepressant or other.  Now even the damn dog has brain chemistry problems….  It MUST be contagious! Thanks for all your support… Liz

– Hide quoted text — Show quoted text – I had to tell my husband your story today…as we drove (in the stinky car) in the Dallas snow to go feed my feral kitty.  I also told him what Teri suggested as a solution ;-) Oh, I have a schizo kitty who is scared of practically his shadow. My other three are pretty much okay.  But this kitty was a feral kitten, so I’m not too surprised.  We’ve had our oldest cat to numerous docs for his spraying problem.  I solved it by giving him Bach’s Rescue Remedy (mixed with some yogurt) tamed his anxiety way down and he’s just about fine now. If you don’t find relief you might try the Rescue Remedy…you’ll find it in normal health food stores (people take it too).. Michelle Thanks…thanks….thanks….. I knew you guys would understand! His nose is dead, Teri.  A couple of years ago I detected a STRONG odor of skunk.  My old dog (literally!) was outside and I didn’t want him to get involved.  So I sent the big guy out to bring the dog in.  I think you know the rest of the story..  He NEVER noticed that the DOG had been the target of the skunk!!  Brought all that smell in the house…. took a very long time to get THAT out, I’ll tell you.  I’ve learned NOT to trust him when it comes to the schnozzola. Michelle.. I should have gotten a two-fer with puppy AND husband!!  This behaviorist was $180.00 per hour!!!  I was so happy to breathe through my nose again that I completely forget to mention that… I bet he would have had some good ideas!! Ginnie… you know, that’s a hell of an idea!!  Sharper Image sell smaller versions of those ozone generators — whadya think?  I must admit I could have lived with the puppy barf smell easier than the 6,000 square foot odor bomb!!!! Psycho puppy, barfing bowser!! That’s him to a "T"!!  Actually, he’s a wonderful puppy at home with us, but is WAY too shy when it comes to other people.  I’m afraid that it will translate into aggression when he gets older — hence the behaviorist.  If you want to see the behaviorist’s site he’s at www.sitandstay.com. MUCH MUCH better today…. but I’m not getting into that truck again until it passes the sniff test.  Thanks you guys, for your thoughts!! (smooch!!) Liz Now you guys know I don’t whine a whole lot here…..I generally feel that I’m better off than most ("I cried because I had no shoes, until I met a man who had no feet." — Mom said that at LEAST once a week. Anyway — Talk about fragrances!!!  My dog puked in my husband’s truck a couple of months ago… I knew better than to let him clean it up, but I figured "How tough is that?".  I don’t know what he did but the truck really smelled bad!  I told him to clean it again, making sure to get in the crevices, and put open, flat pans of baking soda in the cab and leave it there to absorb the smell. So to the gist of my whine…. today we had to take our puppy to a BEHAVIORAL THERAPIST (don’t EVEN go there….) — it’s an hour ride into Boston.  I got into the truck and couldn’t even take a deep breath… he had set off an "odor bomb" that was guarantee to kill any odors (can said it works on 6000 damn square feet!!!).  Have you ever ridden in a car that has a car freshener in it?  This was 100 times worse.  I had no choice but to go… I had to breath through my mouth the whole trip… thank goodness I couldn’t taste it.  Every once in a while I’d take a test sniff — we had the windows wide open (24 degrees out) and it was still just as strong. I couldn’t even imagine what the poor puppy was enduring with his sensitive nose. To add to that, my son, the mechanic, had elevated the truck to make it look "cool" but ride like a bucking bronco.  So between the smell, the bumps and a drooling dog hanging over my shoulder …..  I’ve got a whopper!! Can I get a breath of fresh air from some of you in fresh air country? I’m still smelling it and I figure it’s on my clothes — going to change now…..  If you read of some husband abuse in Massachusetts tonight, please understand (that’s a joke, y’know!!) Liz (I’m so lucky to have a group that understands how awful this is…. hubby’s nose is dead and he couldn’t see what all the fuss was about!!)

Response:

They used to sell them at Costco…my husband was going to pick one up. Michelle

– Hide quoted text — Show quoted text – Liz: My mom just brought a used car and the other owner had bought an air Ionizer for the car. It fits on top of the dashboard and is plugs into the cigarette lighter. We haven’t used it yet, but the lady who sold us the car was the original owner and got the Ionizer separately. Try to find one of those and see if that helps the car odor. Barbara Booth

Response:

frustrated and venting…

Question:

Hey y’all.  I wonder sometimes if the docs ever really got their act together if we could then get diagnosed and treated a lot faster.  I got my summery report back from Mayo yesterday and guess what they thought I had?? Not dystonia, that was a side line consideration and ‘worthy of a trial of Sinemet’, but instead a conversion disorder!  I don’t know about you, but I’ve been through this before.  My symptoms don’t seem to be like what they expect to find and then I’m automatically hysterical??  I get sssssssoooo mad!  I made sure I called them to tell them the Sinemet worked and they were all wrong! I’m better now with the medication, and I finally do have a neuro diagnosis by virtue of the fact that the medication was effective, but every day I get up I have to go through the transition and I still have problems that I’m going to need their help with.  I’m just so tired of sharing my experience, my symptoms, my body, my pain and vulnerability with them to find out that they weren’t listening, watching, feeling and sometimes I wonder if they were thinking at all!  It’s like a betrayal of my humility. Maybe I’m not being fair here, but is it fair to us who have an unusual, difficult problem to be dismissed as a psych case every time they don’t understand? I dealt with this disease for five years, probably more. All they can come up with is that it’s some sort of strange neuro problem vs. conversion disorder. There is no way that I could make all of this happen, and there is no reason that I would want to.  I’ve always known that, but somehow it didn’t matter. I have a doctor now who I trust.  She trusts me as well, which is what has been lacking in so many of the relationships with specialists I had seen before.  It’s a sad thing that the patients experience and account is rated so low on the scale of factors that determine illness.  I just want to be well and it scares me to think that even at Mayo this happened again. I’m just letting out steam here, I actually should get a response from the docs at Mayo early next week.  I wrote them with news of my improvement and a few questions regarding course and the possibility of more kids.   On getting the bill, I found out that they didn’t order the genetic testing that they indicated they would, so now I’ll have to justify that with insurance so I can have me and my daughter definitively diagnosed.  They should have done it while I was there. Anyway, thanks for listening.  Maybe someday they’ll start to really listen to us, who we are and what we’ve been through? Ya think? Meanwhile, we need to learn and inform ourselves, bringing awareness to the forefront so that others can find relief. Jennie Bogard

Response:

Hi!  I’m still lurking here. I went to Mayo two years ago (mainly for ataxia, no dystonia).  I saw a doctor who was clearly NOT an expert.  He insisted that we redo all the tests I had here.  So I waited around there for a week redoing my tests.  They came out the same.  Then he looked blank, said he didn’t know what was wrong, and maybe I should try to go to Movement Disorders;  otherwise he couldn’t find anything.  I left and decided to try U. of Minnesota instead.  I’d already been diagnosed with dystonia, but the rest was puzzling.  Between U. of Minnesota (excellent neuro. clinic) and a very expert neuroophthalmologist here (Madison, WI), I managed to get a diagnosis (ataxia, plus dystonia).  I think I saw the WRONG person at Mayo, and should have waited for an appointment to open up with the person my neuro. here told me to see. Instead, I took the first open appointment, and he was a disaster.  His report to my doctors here basically only said that he couldn’t find anything (except for some obvious difficulties with tremor, eyes, etc.).  My doctors here thought the letter was quite a hoot.  Good luck.  Jeanne Swack

Response:

Dear Jennie, I went through the same thing at Mayo when I went there in 88′.  I thought and had heard things were better since they have a movement disorder clinic now. Your story sounds alot like my experience.  We spent one week up there with various testing being done, came home for the weekend and back up there again. Its like a City within a city.  They told me you could ony get dystonia in your head neck area and no where else in the body, the problems with my arms and legs were stress! Yea, right!  We didn’t stay the full week and came home! They asked questions but if you asked them something or made a comment, no response.  I had better luck with my regular Dr at home, at least as you wrote also,  he listened and believed in me, rather than being thought of or treated as some head case!  And their report was even better, (not)!  Things went along fine here until my Dr. left the area.  But I have things set up OK now with a Dr who gives me my medicine, listens even if he doesn’t have an answer, and a neuro. who is nice, after seeing about all of them in town :) Its the Dr’s that make you become so verbal sometimes <g. Having dystonia teaches you to stick up for yourself, get informed and weed out the bad from the good. Good Luck! Cathy

Response:

Hey y’all.  I wonder sometimes if the docs ever really got their act together if we could then get diagnosed and treated a lot faster.  I got my summery report back from Mayo yesterday and guess what they thought I had?? Not dystonia, that was a side line consideration and ‘worthy of a trial of Sinemet’, but instead a conversion disorder!  I don’t know about you, but I’ve been through this before.  My symptoms don’t seem to be like what they expect to find and then I’m automatically hysterical??  I get sssssssoooo mad!  I made sure I called them to tell them the Sinemet worked and they were all wrong! Jennie Bogard

You know Jennie, I suspect many (if not most) of us who have Dystonia had similar experiences.  But this ethos is not restricted to Dystonia.  My wife is chronically  asthmatic, and she was also treated in the above manner.  You  won’t find a more creditable person than she is.     The Asthma Association is slowly making progress with their efforts to educate professionals and laymen. For  sufferers, amelioration is slow and  it is most  frustrating for them.  Her  attacks are severe, so much so she could die from  flare ups.   Yet, she was treated by doctors who smoked  and puff smoke in her face.  To add insult they would write  to our family doctor contemptuous letters  stating they felt her symtoms were  exaggerated. When  admitted into the hospital for attacks, patients in her room  smoked  and it just make matters worst… We have a file stored away in a safe place with  all of this information  for future use, following the advise of a lawyer. New legislations  are  favoring  casualties of these syndromes are enacted.  I think  its an avenue,  a  way to exhort  respect,  if not anything else… Gene

Response:

Jennie,  Vent away kiddo!!!! I don’t have a lot to add here but I wanted you to know that your not alone!!! And to add that your doctor can order the genetic test … I know for a fact that the DYT1 test is a kit and I’m pretty sure the one testing for DRD is too.  We ordered the kit and had the lab here draw the blood then we fedX’d it to Katherine S. (the address was inside the kit along with explaintory(sp?) papers on what to expect and what not to expect).  As far as testing fees go these were very reasonable compaired to some we’ve had done. Unfortunately Dystonia isn’t the only disorder/disease that tends to collect these type of "dx’s" … MS, Mito, just about anything that doesn’t fall under the "chicken pox"taletell symptoms … you know what I mean. Doesn’t make it right but does make it frustrating!! Hang in there Girl … we’re here for ya. Take care and best wishes from an Elf iN Tn… Romona Elf, wife to Tony (my hero), and mom to Tori (age 10, nda), Zach (age 8, multichallenged), Cory (age 6, multichallenged). http://members.aol.com/elf808/index.html

Response:

<<Hey y’all.  I wonder sometimes if the docs ever really got their act together if we could then get diagnosed and treated a lot faster.  I got my summery report back from Mayo yesterday and guess what they thought I had?? Not dystonia, that was a side line consideration and ‘worthy of a trial of Sinemet’, but instead a conversion disorder!  I don’t know about you, but I’ve been through this before.  My symptoms don’t seem to be like what they expect to find and then I’m automatically hysterical??  I get sssssssoooo mad!  I made sure I called them to tell them the Sinemet worked and they were all wrong! Dear Jennie, I have no idea what a conversion disorder is. Does it mean psychosomatic?  I went to a clinic a few times and felt as if I was a part on an asssembly line rather than a real person because they had a set time to talk to each patient and such a long line waiting.  The only advantage seemed to be that my insurance paid as if I’d been in hospital which was better coverage.   It does not really matter what caused a short circuit or malfunction in your nervous system really though does it? It mostly matters that they come up with something to help. If this means they think you are hysterical don’t they wonder how you could live all this time being that way without going completely crazy? I think one of the problems is the time available to some doctors to examine a person often does not allow tham to make a good judgement. Hang in there, I hope you get it sorted out and feel better. Rosemary

Response: