Posts belonging to Category 'Asthma Center'

Hi :-)

Question:

Jennifer wrote:

I don’t know about ultrasonic, but DD’s is really light and easy to use! It’s noisy, though, but perhaps not compared to your 15-year-old one.  ;-) I have no idea how much the nebulizer cost, but DH only had to pay $30.  Not bad!  :-) Jennifer

I don’t remember what I paid, insurance paid for all but 20% if I recall. The funny thing about my old noisy one is that one of my cats (the shy fraidy cat) would come running when she heard me turn it on and curl up in my lap (and this thing was noisier than a vacuum cleaner). The only thing I can figure is that she knew I was going to sit still for a while. I tap the side to nebulize as much as I can, and then don’t worry about the rest. I’ve never been able to get it all. If you really want to "use" more then use the function that nebulizes only when breathing in (probably not possible with a 5 year old, perhaps that’s why she’s using it so often). Julie

Response:

On Wed, 24 Sep 2003 00:41:44 -0400, "Jennifer" <JenPam2…@yahoo.com

wrote:

If anyone has any experience to relate about this and any pulmonary issues you’ve had with your own kids, I’d love to hear what you have to say.  You can e-mail me privately if you like.  For the time being we’re just getting DD through this particular situation and hoping she returns to kindergarten on Monday.  :-)  Then we’ll be looking into other tests, more obscure ones than we ran through before.  But we’re hoping this is just a case of two isolated and unrelated pulmonary issues.

I’d get that pulmonary specialist rescheduled.  If she’s got a hanging-around cough for that kind of length of time, she might be best off being on Singulair, Advair or one of the other asthma maintenance meds (I think those are the right names).

By the way, how *do* you get the last few drops of albuterol to be nebulized??  I’ve tried that tapping thing on the mask and cup, but I keep feeling like I’m throwing away important medicine.

You can’t get the last few drops, so don’t worry about it :) . (Currently being treated for an asthma flare-up.)

Response:

"Me" <w…@doyouwant.com

wrote in message

news:3F706FD0.9020006@doyouwant.com…

Jennifer wrote: We’ll just have to take her back to her doctor tomorrow & keep her on various meds, including a portable nebulizer, for a while. Good luck to your DD! After a few trips to the ER my health plan finally bought me a nebulizer about 15 years ago (big old noisy thing). Haven’t been back to ER since. Now I’ve got a nice little ultrasonic one that I can watch TV the same time I’m using it! It’s a godsend when I get a bad cold and/or bronchitis.

I don’t know about ultrasonic, but DD’s is really light and easy to use! It’s noisy, though, but perhaps not compared to your 15-year-old one.  ;-) I have no idea how much the nebulizer cost, but DH only had to pay $30.  Not bad!  :-) Jennifer

Response:

"Wendy" <we…@hundredakerwood.freeserve.co.uk

wrote in message

news:bkq0ma$hkm$1@newsg2.svr.pol.co.uk… > "Me" <w…@doyouwant.com

wrote in message

> news:3F706FD0.9020006@doyouwant.com… > > Good luck to your DD! After a few trips to the ER my health plan finally > > bought me a nebulizer about 15 years ago (big old noisy thing). Haven’t > > been back to ER since. Now I’ve got a nice little ultrasonic one that I > > can watch TV the same time I’m using it! It’s a godsend when I get a bad > > cold and/or bronchitis. > My lungs are scarred from pneumonia when I was  young, so Jennifer your > daughter may have to be extra specially careful.  When I had pneumonia last,

they gave me a vaccination for it the following year which lasts 7 years. I’d find out about it.  Hope she recovers soon.

Thanks, Wendy.  Why were your lungs scarred?  Did you have pneumonia a lot, or did you just have a bad case that wasn’t treated?  What does it mean to have scarred lungs…are your activities curtailed?  I feel good that they were right on it.  She got a cold on Wednesday, got sicker on Thursday, and on Friday morning we brought her to the ER b/c of wheezing.

PS OD and her boyfriend are out in the kitchen cooking supper tonight, and YD says she’s going to do the dishes.  Barclay got the groceries and is

out

pumping up one of my rear tyres.  I feel so spoiled and after the day I’ve had I really need this.  My cast comes off on Tuesday.  I can’t wait.

That should feel great!  Finally you can itch.  ;-) Jennifer

Response:

"Jennaii" <jenn…@aol.comnojunk

wrote in message

news:20030923133559.06792.00000049@mb-m20.aol.com…

The nurses think it’s funny that I’m on this thing in the kids’ playroom!  ;-) Jennifer (and DD5, who’s humming) Glad to hear your daughter’s feeling better.  (You can ignore my email

when you

get it!) I’m sure they don’t mind you playing with the kid’s toys as long as you remember to SHARE :)

ROFL…DD and I did so many puzzles.  The only problem is, they were mostly Pokemon and Power-Puff Girls.  :-) Jennifer

Response:

"Deborah M Riel" <dr…@wpi.edu

wrote in message

news:bkq1ao$1lin$1@bigboote.WPI.EDU…

In article <3462f37d.0309230742.4271d…@posting.google.com, I’m so glad she’s feeling better!  She must’ve had a bad case–when my son was 4 he had pneumonia and no one could even tell.  He was just as hyper and unstoppable as ever.  Different strains of the same thing, maybe?

It turns out there is so much to pneumonia…and a lot, they just don’t know.  For instance, even though DD had chest X-rays and certain presentations, the doctor still couldn’t say for certain if she had a bacterial or viral infection (though she guessed viral).  What follows is a long description of "walking pneumonia," which is probably what your son had.  :-) Incidentally, we lost a *TON* of ice cream.  Grrrrrrrrrr!!! The pneumonias Pneumonias are infections of the lungs, in which the offending organism (i.e. bacteria, viruses, molds or other micro-organisms) trigger a substantial defense response. This defensive response , called inflammation, mobilizes to the infected organ , millions of microscopic fighters ( white blood cells) that attack and actually swallow the foreign invaders. The trouble is that like in real wars, even friendly armies can create problems, and in the case of the pulmonary infections, the inflammatory cells may either: 1. Fill and clog the airways and the airchambers and prevent access of the inflowing air and/or interfere with the exchange of gases or 2. Infiltrate the walls of the airchambers, and form a barrier interfering with the diffusion of gases between the air within the lungs’ chambers and the circulating blood in the thin blood vessels of the walls. Bacterial pneumonias, including the common bronchopneumonia, are usually associated with clogging of airways and air chambers by acute inflammatory cells ("pus cells"). Viral infections on the other hand, are generally associated with invasion of the walls of the alveoli by a different type of inflammatory cells and these cause the so called interstitial (in between tissue) pneumonia. The severity of pneumonia depends on a number of factors including how dangerous is the infecting organism, the closeness and amount of exposure and the health condition of the patient. The "walking pneumonia" Walking or atypical pneumonias are pneumonias that are caused by less common micro-organisms, and most of them are caused by Mycoplasma, an extremely tiny microscopic organism related to bacteria. The pneumonia is called "walking pneumonia" because in most cases the disease is not severe enough to confine the patient to bed or to warrant hospitalization. Mycoplasma pneumonia affects primarily adults below 40 years of age and children. Mycoplasma infections occur year round but are more common in late summer and fall. Mycoplasma pneumonia is infectious and is spread through contact with droplets expelled from the nose and throat of affected people when they sneeze or cough. Generally the transmission of the disease requires a relatively prolonged close contact with an infected person, and most transmissions occur within families. However, every four to eight years, Mycoplasma pneumonia epidemics may occur and involve as many as 50% of all pneumonias. Symptoms begin about 15-25 days after being exposed to an infected person, and develop gradually over the next two to four days. Typical symptoms may include fever, chills, excessive sweating, sore throat, a cough that may or may not be productive, malaise and occasional chest pain.Symptoms may persist for a few days to more than a month. Occasionally, the Mycoplasma pneumonia may be associated with a painful ear infection, anemia or skin rashes. The disease is usually relatively mild, but occasionally individual symptoms may be quite distressing with the patients feeling generally much worse than they look. Diagnostic tests may reveal increased concentrations of certain immune substances (cold agglutininns) but a definite diagnosis of Mycoplasma infection, requires more complicated serological tests which are not usually done unless they are part of a research protocol or for diagnostic purposes of suspected epidemics. The outlook for most treated patients is excellent as the infection responds well to Erythromycin and Tetracyclines. (Tetracyclines are usually not recommended in patients under 7 years of age, because it may cause yellowing of the permanent teeth.) An untreated Mycoplasma pneumonia, in most cases will resolve spontaneously, but may easily drag on over a couple of months or more. Immunity after mycoplasma infections does occur but it is not life long and its exact duration is unknown. Recurrent infections are usually much milder than the original episode. Currently there are no vaccines for the prevention of Mycoplasma infection and the only way of averting the associated walking pneumonia is to avoid being exposed to the sneezing or coughing of infected patients.

Response:

"Pat" <blindl…@NOSPAMtriton.net

wrote in message

news:3f7078f6$0$8925$9bdb89d3@newsa…

That’s awesome!  I hope everything goes great today and dd can go

home!!!!!

Pat

Thanks, Pat!  She did!!!!!  :-) Jennifer

Response:

"Kathy Cole" <ka…@scconsult.com

wrote in message

news:rib1nvgfcvk2rsukt2tedcik4pnsoen71l@4ax.com…

On 23 Sep 2003 08:42:19 -0700, JenPam2…@yahoo.com (Jennifer) wrote: I’m glad you’re posting good news (pretty cool you can post from the hospital); I know how terrifying it is to have a kid sick enough for hospitalization. (Congrats on having the power back, too.)

Thanks, Kathy.  :-)  We didn’t know how terrifying it was, so we were lucky. I guess with enough kids, you eventually end up at the hospital with something, right? I *so* appreciate the power now, lol.  DH went out last night and bought new "perishables" for our house.  Such a luxury to drink milk.  :-) Jennifer

Response:

"Kathleen" <lovebirds1…@hotmail.com

wrote in message

news:bkqsuk$4ui3r$1@ID-108718.news.uni-berlin.de…

That’s wonderful news, Jennifer!  I have *SO* been thinking about y’all! Hugs, Kathleen

Hugs back to you, Kathleen!  We’re feeling very good right now, and I’m just glad to get a chance to go online…though there’s no chance in heck I’m going to wade through 500 posts tonight.  :-) Jennifer

Response:

: By the way, how *do* you get the last few drops of albuterol to be : nebulized??  I’ve tried that tapping thing on the mask and cup, but I keep : feeling like I’m throwing away important medicine. : : Jennifer You just throw it away, Jennifer! We have 3 types of albuterol around here, the drops that I mix myself with the bronchial saline, the little metered out plastic thingies that you just pour into the cup, and the inhaler.  I always have a full bottle of *all* her meds because I am awful about refilling on demand – so I keep a refill in the medicine basket and when she starts using it I order another. Stevie went in 3 years ago on Mother’s day – it started out like any other asthma thing, with a cough that got worse and albuterol didn’t seem to be helping.  It was midnight Friday night when I decided I didn’t feel like worrying all night and weekend to see if she was going to be OK (those sleepless nights really get me) so I took her in and it turns out that one of her lungs was collapsing.  She had pnuemonia and we stayed for 31/2 days.  After that, they gave her the Advair disk and I think that has really improved things. I hope Katie doesn’t have asthma!  Are you getting some sleep now? With hope and heart, Kathleen

Response:

After having the neb for a while, the noise puts us to sleep. LOL One of my friends gave me ours, and it has been a lifesaver too.  Our insurance had bought it for her. With hope and heart, Kathleen — In belaboring the sins of some religious people, we could feel superior to all of them.  Moreover, we could avoid looking at some of our own shortcomings.  Self-righteousness, the very thing that we had contemptuously condemned in others, was our own besetting evil. ~ Twelve Steps and Twelve Traditions :

Jennifer wrote:

:

We’ll just have to take her back

:

to her doctor tomorrow & keep her on various meds, including a

:

portable nebulizer, for a while.

:

:

:

Good luck to your DD! After a few trips to the ER my health plan

finally :

bought me a nebulizer about 15 years ago (big old noisy thing).

Haven’t :

been back to ER since. Now I’ve got a nice little ultrasonic one

that I :

can watch TV the same time I’m using it! It’s a godsend when I get

a bad :

cold and/or bronchitis.

: : I don’t know about ultrasonic, but DD’s is really light and easy to use! : It’s noisy, though, but perhaps not compared to your 15-year-old one.  ;-) : I have no idea how much the nebulizer cost, but DH only had to pay $30.  Not : bad!  :-) : : Jennifer : :

Response:

"Karen" <katr…@newsguy.com

wrote in message

news:bkpqlf0303o@enews1.newsguy.com… > "Jennifer" <JenPam2…@yahoo.com

wrote in message

> news:3462f37d.0309230742.4271dc07@posting.google.com… > > Anyway, keep your > > fingers crossed, because DD5 has done *really* well today and might go > > home tonight! > > Jennifer (and DD5, who’s humming) > Jennifer, I’m so glad she’s doing better and she might be home tonight.  I > can’t imagine how hard the experience must have been.

Thanks, Karen…it was very scary b/c she’s the first of our kids ever to be in the hospital for an illness.  Still, I have friends whose kids have serious health problems (e.g., brain cancer, juvenile diabetes), so I felt really weird even relating my situation to them.  They really stepped up and helped me out, though, and it was so gratifying for me to feel how supportive a community can be…I usually don’t like to be the one doing the taking, you know.  :-) We’re very relieved to have both DD and electricity back together.  :-) Jennifer

Response:

On 23 Sep 2003 08:42:19 -0700, JenPam2…@yahoo.com (Jennifer) wrote:

Hi!  I’m posting from Holy Cross Hospital…lol…everyone’s been so nice here.  

I’m glad you’re posting good news (pretty cool you can post from the hospital); I know how terrifying it is to have a kid sick enough for hospitalization. (Congrats on having the power back, too.)

Response:

That’s wonderful news, Jennifer!  I have *SO* been thinking about y’all! Hugs, Kathleen — In belaboring the sins of some religious people, we could feel superior to all of them.  Moreover, we could avoid looking at some of our own shortcomings.  Self-righteousness, the very thing that we had contemptuously condemned in others, was our own besetting evil. ~ Twelve Steps and Twelve Traditions : Hi!  I’m posting from Holy Cross Hospital…lol…everyone’s been so : nice here.  Geri, you have an awesome profession.  Anyway, keep your : fingers crossed, because DD5 has done *really* well today and might go : home tonight!  She’s breathing room air, and her lungs sound much : better than they have.  If she continues to do well, then probably at : 8 p.m. DH and I can take her home.  We’ll just have to take her back : to her doctor tomorrow & keep her on various meds, including a : portable nebulizer, for a while. : : I haven’t had the chance to read or post forever, BUT my power came : back on yesterday afternoon.  I can’t wait until things are settled : enough that I can relax, sit in front of my electric computer, and : just enjoy reading what’s been going on.  :-)  That’s it from : Rockville, Maryland.  The nurses think it’s funny that I’m on this : thing in the kids’ playroom!  ;-) : : Jennifer (and DD5, who’s humming)

Response:

"The Watsons" <warpedsyst…@earthlink.net

wrote in message

news:ZUZbb.1459$La.182@fed1read02…

*snickers* tell ‘em you need your internet fix….;) glad to hear from ya, and nice to know she’s doing better…:)

Thanks, Jess.  :-)  They don’t have a regular ‘net there, just the "play" computer for the kids.  When I asked last night to go online, there was no way b/c the playroom was locked at night.  The lady asked me if I needed to get on the computer for work, and I just couldn’t lie to her.  ;-) Jennifer

Response:

"Geri and sometimes Brian" <gplen…@aol.commotion

wrote in message

news:20030923114519.04565.00000050@mb-m23.aol.com…

DD5 has done *really* well today and might go home tonight! Yay! We’ll just have to take her back to her doctor tomorrow & keep her on various meds, including a portable nebulizer, for a while. What is she taking and what are they giving you for the nebulizer?

She was discharged tonight!!!  :-D At the hospital, she took Zithromax for 5 days in case it was atypical pneumonia, though it was probably viral in nature.  She took a dose of Prelone the first day, then she was on two steroids–Solumedrol through the IV every 6 hours and Pulmicort through the nebulizer twice a day.  She also was on Albuterol through the nebulizer every 2 hours until the last day, when she stretched to 3 and then 4 hours.  Also, she took Terbutaline once on Friday evening and took Zantac regularly via IV for the stomach upset from the steroids.  She was on oxygen (mask and later canula) for every day until Monday evening, when she went 5 hours on room air.  Even though she needed a bit of oxygen last night, she was breathing on her own all day today and never went back on, and she kept her sats at 95-99.  :-) Her regimen at home is Albuterol through the nebulizer every 4 hours for 3 days and then as needed, Pulmicort through the nebulizer twice a day until told otherwise by her doctor (she’s got an appointment Wed. & Fri.), and that nasty Prelone on a tapering schedule (6 ml. by mouth 2x/day for 2 days, then 6 ml. by mouth 1x/day for 3 days, and finally 3 ml. by mouth 1x/day for 2 days).  The nebulizer brand is "Pulmo-Aide"…it’s pretty cool–very portable and light.  I just plugged it in by her bedside and used the face masks provided by the respiratory therapist to attach to the tubing. The main concern is that DD5 had this unexplained but persistent cough issue for 8 months this past year, and we went through a lot of testing…sinus CT scan, chest X-rays, allergy testing, asthma tests, etc.  In every way tested, DD appeared healthy and normal–only a slight allergy to timothy grass, healthy lungs, no obstructions.  Yet she continued with the coughing. After 8 months of tests and different thoughts, the coughing *finally* seemed to resolve itself after three weeks of Augmentin (and I am typically very anti-antibiotic, lol, but the thought was that there was a persistent sinus infection).  I ended up canceling my appointment with a specialist at a pediatric pulmonary and asthma center, but now two months later she gets a case of pneumonia that really sticks around. If anyone has any experience to relate about this and any pulmonary issues you’ve had with your own kids, I’d love to hear what you have to say.  You can e-mail me privately if you like.  For the time being we’re just getting DD through this particular situation and hoping she returns to kindergarten on Monday.  :-)  Then we’ll be looking into other tests, more obscure ones than we ran through before.  But we’re hoping this is just a case of two isolated and unrelated pulmonary issues. By the way, how *do* you get the last few drops of albuterol to be nebulized??  I’ve tried that tapping thing on the mask and cup, but I keep feeling like I’m throwing away important medicine. Jennifer

Response:

"Jennifer" <JenPam2…@yahoo.com

wrote in message

news:3462f37d.0309230742.4271dc07@posting.google.com… DD5 has done *really* well today and might go home tonight!  She’s breathing room air, and her lungs sound much better than they have.  If she continues to do well, then probably at 8 p.m. DH and I can take her home.  We’ll just have to take her back to her doctor tomorrow & keep her on various meds, including a portable nebulizer, for a while. Jennifer, That’s awesome!  I hope everything goes great today and dd can go home!!!!! Pat

Response:

The nurses think it’s funny that I’m on this thing in the kids’ playroom!  ;-) Jennifer (and DD5, who’s humming)

Glad to hear your daughter’s feeling better.  (You can ignore my email when you get it!) I’m sure they don’t mind you playing with the kid’s toys as long as you remember to SHARE :) "This time: gonna do it RIGHT!" — Bob Seger Jennaii

Response:

"Me" <w…@doyouwant.com

wrote in message

news:3F706FD0.9020006@doyouwant.com…

Good luck to your DD! After a few trips to the ER my health plan finally bought me a nebulizer about 15 years ago (big old noisy thing). Haven’t been back to ER since. Now I’ve got a nice little ultrasonic one that I can watch TV the same time I’m using it! It’s a godsend when I get a bad cold and/or bronchitis.

My lungs are scarred from pneumonia when I was  young, so Jennifer your daughter may have to be extra specially careful.  When I had pneumonia last, they gave me a vaccination for it the following year which lasts 7 years. I’d find out about it.  Hope she recovers soon. Wendy PS OD and her boyfriend are out in the kitchen cooking supper tonight, and YD says she’s going to do the dishes.  Barclay got the groceries and is out pumping up one of my rear tyres.  I feel so spoiled and after the day I’ve had I really need this.  My cast comes off on Tuesday.  I can’t wait.

Response:

In article <3462f37d.0309230742.4271d…@posting.google.com

,

Jennifer <JenPam2…@yahoo.com

wrote: Hi!  I’m posting from Holy Cross Hospital…lol…everyone’s been so nice here.  Geri, you have an awesome profession.  Anyway, keep your fingers crossed, because DD5 has done *really* well today and might go home tonight!  She’s breathing room air, and her lungs sound much better than they have.  If she continues to do well, then probably at 8 p.m. DH and I can take her home.  We’ll just have to take her back to her doctor tomorrow & keep her on various meds, including a portable nebulizer, for a while. Jennifer (and DD5, who’s humming)

I’m so glad she’s feeling better!  She must’ve had a bad case–when my son was 4 he had pneumonia and no one could even tell.  He was just as hyper and unstoppable as ever.  Different strains of the same thing, maybe? I shudder to think of what 4 days of no power would do to the contents of my big freezer in the basement…  It would ruin my food budget for months since I’m a compulsive "buy-one-get-two-free" shopper! Good luck with all of it! Deb R.

Response:

Hi!  I’m posting from Holy Cross Hospital…lol…everyone’s been so nice here.  Geri, you have an awesome profession.  Anyway, keep your fingers crossed, because DD5 has done *really* well today and might go home tonight!  She’s breathing room air, and her lungs sound much better than they have.  If she continues to do well, then probably at 8 p.m. DH and I can take her home.  We’ll just have to take her back to her doctor tomorrow & keep her on various meds, including a portable nebulizer, for a while. I haven’t had the chance to read or post forever, BUT my power came back on yesterday afternoon.  I can’t wait until things are settled enough that I can relax, sit in front of my electric computer, and just enjoy reading what’s been going on.  :-)  That’s it from Rockville, Maryland.  The nurses think it’s funny that I’m on this thing in the kids’ playroom!  ;-) Jennifer (and DD5, who’s humming)

Response:

"Jennifer" <JenPam2…@yahoo.com

wrote in message

news:3462f37d.0309230742.4271dc07@posting.google.com…

Hi!  I’m posting from Holy Cross Hospital…lol…everyone’s been so nice here.

i like that white coat of yours….;) Geri, you have an awesome profession.  Anyway, keep your

fingers crossed, because DD5 has done *really* well today and might go home tonight!  She’s breathing room air, and her lungs sound much better than they have.  If she continues to do well, then probably at 8 p.m. DH and I can take her home.  We’ll just have to take her back to her doctor tomorrow & keep her on various meds, including a portable nebulizer, for a while.

wonderful…:)

I haven’t had the chance to read or post forever, BUT my power came back on yesterday afternoon.  I can’t wait until things are settled enough that I can relax, sit in front of my electric computer, and just enjoy reading what’s been going on.  :-)  That’s it from Rockville, Maryland.  The nurses think it’s funny that I’m on this thing in the kids’ playroom!  ;-)

*snickers* tell ‘em you need your internet fix….;) glad to hear from ya, and nice to know she’s doing better…:) Jess

Response:

DD5 has done *really* well today and might go home tonight!

Yay!

We’ll just have to take her back to her doctor tomorrow & keep her on various meds, including a portable nebulizer, for a while.

What is she taking and what are they giving you for the nebulizer? ~~Geri~~ "It’s Football Saturday at Memorial Stadium and ‘There’s No Place Like Nebraska!!’"

Response:

Jennifer wrote:

We’ll just have to take her back to her doctor tomorrow & keep her on various meds, including a portable nebulizer, for a while.

Good luck to your DD! After a few trips to the ER my health plan finally bought me a nebulizer about 15 years ago (big old noisy thing). Haven’t been back to ER since. Now I’ve got a nice little ultrasonic one that I can watch TV the same time I’m using it! It’s a godsend when I get a bad cold and/or bronchitis. Julie

Response:

"Jennifer" <JenPam2…@yahoo.com

wrote in message

news:3462f37d.0309230742.4271dc07@posting.google.com…

Anyway, keep your fingers crossed, because DD5 has done *really* well today and might go home tonight! Jennifer (and DD5, who’s humming)

Jennifer, I’m so glad she’s doing better and she might be home tonight.  I can’t imagine how hard the experience must have been. Karen

Response:

New here

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Hi,  I really don’t know what to say. I have a hard time expressing myself. I am hoping that this news group can help me in that way and much more.  I have recently been put on Risperdal and was wondering if anyone had some expereince with this drug and could give me some insight on how this may effect me. Thank you,

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Hi,  I really don’t know what to say. I have a hard time expressing myself. I am hoping that this news group can help me in that way and much more.  I have recently been put on Risperdal and was wondering if anyone had some expereince with this drug and could give me some insight on how this may effect me. Thank you,

I did real well on Risp, very few side effects, the only reason I stopped was monetary reasons. I switched to Zyprexa cause I can get it at the local clinic for free. "It’s a good day to start a reign of terror." The Alcalde, in "Zorro The Gay Blade". —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 80,000 Newsgroups – 16 Different Servers! =—–

Response:

Hi,  I really don’t know what to say. I have a hard time expressing myself. I am hoping that this news group can help me in that way and much more.  I have recently been put on Risperdal and was wondering if anyone had some expereince with this drug and could give me some insight on how this may effect me. Thank you,

Hi sin&jim… it’s quite possible that the newsgroup can help you in expressing yourself… there’s certainly a lot of self-expression that goes on here!  Don’t be perturbed by the somewhat wild nature of the place ~ ignore posters whose posts you don’t like (I shalln’t be offended if that turns out to include me), and join in discussions with people that you think you’d like to communicate with.  You certainly don’t need to worry about offending/upsetting/shocking anybody here with anything you want to post – you’ll probably soon work out that we’ve all developed pretty high tolerances to such things :-) I’m afraid I can’t help on the Risperdal – not my disorder I’m afraid, but there’s plenty of people here that have experience which could be of help to you.

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Hi all, Just discovered this group and I wish I had found it earlier. I have suffered from diabetic neuropathy in my feet and lower legs for about 5 years now. I am currently in the screening phase of a nuerostimulator and so far I am very happy with the results. If all continues to go well I will go in on the 30th to have the controller unit implanted in my abdomen.  Last night was the first time in about 3 years that I slept for more than 4 hours at a stretch without the aid of medication and it felt sooooooo good!!!! Anyway, I’m wondering if anyone here has had any experience with a stimulator and could tell me what the future holds as far as the pain meds?  Were you able to discontinue them on a daily basis and only use them for breakthrough pain? Did you still need them daily? Reduced dosages? Less potent meds? Any experiences would be helpful. As I said, I’m happy as hell with my stimulator. I’m just curious what the future may hold as far as medications are concerned. I know everybody’s different, just trying to get an idea. Thanks! Scott

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– Hide quoted text — Show quoted text – Hi all, Just discovered this group and I wish I had found it earlier. I have suffered from diabetic neuropathy in my feet and lower legs for about 5 years now. I am currently in the screening phase of a nuerostimulator and so far I am very happy with the results. If all continues to go well I will go in on the 30th to have the controller unit implanted in my abdomen.  Last night was the first time in about 3 years that I slept for more than 4 hours at a stretch without the aid of medication and it felt sooooooo good!!!! Anyway, I’m wondering if anyone here has had any experience with a stimulator and could tell me what the future holds as far as the pain meds?  Were you able to discontinue them on a daily basis and only use them for breakthrough pain? Did you still need them daily? Reduced dosages? Less potent meds? Any experiences would be helpful. As I said, I’m happy as hell with my stimulator. I’m just curious what the future may hold as far as medications are concerned. I know everybody’s different, just trying to get an idea. Thanks! Scott

Remember the more you use it the shorter the battery life. I am on my 3rd battery and replacement is a slight pain in the butt. After a long time with

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I used to think the same way. Then we had a long talk and I was suprised as to what she understood. I guess dhe sort of quietly supports me. If that makes any sense. But getting it out in the wide open sure was the right thing to do. But I agree, most people I work with– If they don’t see anything external— then theres no pain.  Thats why I try to hide it as much as I can.. Jim Koch – Hide quoted text — Show quoted text – I’m new here, have been lurking for about a month or so, and decided to post my gripe. If you’re not interested in reading it, skip this message. Was diagnosed around 9 years ago with DDD, Spinal Stenosis, and 3 buldging discs(L3,L4,L5, I believe). Have sciatica(pain & numbness in right, left, and sometimes both legs), back pain, and all the mental responses you’d expect(bouts of depression, fatigue, sleep problems, et al). My problem was complicated in the same year as I was diagnosed and pulled permenantly out of work by the fact that my GP decided to leave private practice and go into research. Following quite a few therapy tries with this physician(Phys. Therapy, NSAID’s, antidepressants, TENS unit, etc, but no surgery because I wasn’t a great candidate(though two surgeons said they’d do it if I wanted to I declined due to fear of surgery, and more importantly, fear of making matters worse)), I responded to narcotics. They provided around 75% relief and made my life tolerable. As some of you probablly know, once your left without a doctor who’s known you for some time, getting narcotics becomes impossible(this is how I first became aquainted with the term "drug seeking"). It became impossible to get relief, and impossible to function, so I became more or less suicidal(more, actually…). The suicide thing didn’t take, so I’m still more or less here. Anyway, following another bout of major depression, watching my life collapse(lost the following: Housing(had to move back home), bank account, car, self-esteem, job, etc. Gained the following: debts), I decided to go back to school to see if I couldn’t learn something new that I was able to do. It took almost five years to earn two years worth of credits even though I was going full time due to missed classes(which would then mean I had to withdraw from them or get a failing grade), and still no degree. Ok, that didn’t work. My wife(who I met shortly after I started school), has turned unpleasant when regarding my problems. She’s never come out and said it in so many words, but she seems to think I’m either faking or making mountains out of mole-hills. After all, it’s not like my leg is dangling by a tendon, so how much pain could I possibly be in. She has come out and called me lazy(which is why I’ve been using a cane recently I suppose… It’s less work than using your foot for stepping. I hope to move up to one of those motorized wheelchairs soon so I can scoot around effort free…). I guess I can’t really expect much, as she does have to do a lot for us.  We have young children, whom I watch while she goes to school and works. This is why I’m posting here, I guess. Just to complain, which I try to NEVER do normally, as it just seems to piss people off. I’ve learned to answer "fine" when asked how I am, and to make other -non-back related- excuses for not doing things that would hurt. After four years of not seeing doctors, I’ve made an appointment for next week with someplace I picked at random. I’m wasn’t prompted to do this by any shred of hope for pain relief, but because I’ve been having pain in my arms that’s sinkingly similar what I get in my legs and I just want some tests so that I know what’s going on and what to expect. I still haven’t told my wife why I’m going though. It’s sad, but I feel it’s none of her business. Hi Shere. Welcome to ASCP. Why would you not share with your wife? She cannot be there for you and offer support if she does not know what is going on. — Hi, and thanks. To answer your question, I no longer feel comfortable sharing with her because she’s not very understanding. I suppose she’d be happier if I was writhing in pain 24/7. At least then she could see an effect. As it is, I just tend to get quieter as the pain increases for the most part. I’ve told her this, and even tell her when it’s happening, but it never seems to sink in. She views no external evidence of pain as no pain.

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shere, sorry you needed us, but i am glad to welcome you to ASCP with a great big OUCH. welcome! jim Mas rapido!

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As it is, I just tend to get quieter as the pain increases for the most part. I’ve told her this, and even tell her when it’s happening, but it never seems to sink in. She views no external evidence of pain as no pain.

You have my sympathies Shere Khan.  Unfortunately alot of people view pain that way!  It’s another "fun" aspect of dealing with the effects of chronic, intractable pain. Will hope and pray that your wife begins to have an understanding for what you are going through! HUGS, Kat – Hide quoted text — Show quoted text –

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Shere: Yes, there is an injection given several hours prior to a bone scan. Terri

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(Shere Khan) writes: s it is, I just tend to get quieter as the pain increases for the most part. I’ve told her this, and even tell her when it’s happening, but it never seems to sink in. She views no external evidence of pain as no pain.

I do the same thing…and my husband always felt left out, like i was ignoring him… when in actuality I was concentrating on managing my pain…We just had our 25th anniversary…and even after all these years together…we had a lot of new stuff to learn when chronic pain entered the picture….Thru the pain management clinic, we hooked up with a support group…for the spouses only….Was a tremendous help for him…and for me too! And he did not feel alone in this anymore…. Am glad you are here….and you are not alone… Rae

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any one of us could have written your story, it’s that familiar. welcome to the group.  people who have known me for years will still ask me when they haven’t seen me for a while "how’s the back, getting any better? you look like things are better for you."   i’d like to say something witty, but you know how it goes. you just mumble about "feeling fine" and go on about your business.  i guess they mean well. phil

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Hi Shere. Welcome to ASCP. Why would you not share with your wife? She cannot be there for you and offer support if she does not know what is going on. — that has said it’s prayers"

Sandy, Even the wife doesn’t get it after a while. She gets the same treatment everyone else gets.  "I’m fine, honey.  I’ll clean out those gutters just as soon as I take my meds."    Yeah, right! Phil

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Today is my first time here too.  I was in an auto accident 3 years ago and experience pain daily as well. (Bulging discs c5-7, TMJD, thoracic outlet, several muscle syndromes.) I also have 2 children, 5 and 9.  I understand what you are going through.  The pain is distracting and interferes with your life every second.  This seems to help me- just think: I’m proud of myself for getting through each day with the pain I endure.  I am raising my children, which is the most important job anyone can do.  (I always worked outside the home until I got hit from behind while waiting at a red light) The accident happened while I was working (outside sales) so I have had to deal with Workers Comp too.  Talk about giving someone low self esteem?  Let their "quack" Dr.s perform their IME’s on you and tear you apart!!! Bottom line:  Your not the only one who can feel your pain.  God can.  In my most lonely moment of dispair I remember that I am not alone, he’s there and will help you get through it.  I wasn’t a real "prayer" person until recently, but it has helped me.  My prayers are with you.  

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I’m new here, have been lurking for about a month or so, and decided to post my gripe. If you’re not interested in reading it, skip this message. Was diagnosed around 9 years ago with DDD, Spinal Stenosis, and 3 buldging discs(L3,L4,L5, I believe). Have sciatica(pain & numbness in right, left, and sometimes both legs), back pain, and all the mental responses you’d expect(bouts of depression, fatigue, sleep problems, et al). My problem was complicated in the same year as I was diagnosed and pulled permenantly out of work by the fact that my GP decided to leave private practice and go into research. Following quite a few therapy tries with this physician(Phys. Therapy, NSAID’s, antidepressants, TENS unit, etc, but no surgery because I wasn’t a great candidate(though two surgeons said they’d do it if I wanted to I declined due to fear of surgery, and more importantly, fear of making matters worse)), I responded to narcotics. They provided around 75% relief and made my life tolerable. As some of you probablly know, once your left without a doctor who’s known you for some time, getting narcotics becomes impossible(this is how I first became aquainted with the term "drug seeking"). It became impossible to get relief, and impossible to function, so I became more or less suicidal(more, actually…). The suicide thing didn’t take, so I’m still more or less here. Anyway, following another bout of major depression, watching my life collapse(lost the following: Housing(had to move back home), bank account, car, self-esteem, job, etc. Gained the following: debts), I decided to go back to school to see if I couldn’t learn something new that I was able to do. It took almost five years to earn two years worth of credits even though I was going full time due to missed classes(which would then mean I had to withdraw from them or get a failing grade), and still no degree. Ok, that didn’t work. My wife(who I met shortly after I started school), has turned unpleasant when regarding my problems. She’s never come out and said it in so many words, but she seems to think I’m either faking or making mountains out of mole-hills. After all, it’s not like my leg is dangling by a tendon, so how much pain could I possibly be in. She has come out and called me lazy(which is why I’ve been using a cane recently I suppose… It’s less work than using your foot for stepping. I hope to move up to one of those motorized wheelchairs soon so I can scoot around effort free…). I guess I can’t really expect much, as she does have to do a lot for us.  We have young children, whom I watch while she goes to school and works. This is why I’m posting here, I guess. Just to complain, which I try to NEVER do normally, as it just seems to piss people off. I’ve learned to answer "fine" when asked how I am, and to make other -non-back related- excuses for not doing things that would hurt. After four years of not seeing doctors, I’ve made an appointment for next week with someplace I picked at random. I’m wasn’t prompted to do this by any shred of hope for pain relief, but because I’ve been having pain in my arms that’s sinkingly similar what I get in my legs and I just want some tests so that I know what’s going on and what to expect. I still haven’t told my wife why I’m going though. It’s sad, but I feel it’s none of her business.

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– Hide quoted text — Show quoted text – I’m new here, have been lurking for about a month or so, and decided to post my gripe. If you’re not interested in reading it, skip this message. Was diagnosed around 9 years ago with DDD, Spinal Stenosis, and 3 buldging discs(L3,L4,L5, I believe). Have sciatica(pain & numbness in right, left, and sometimes both legs), back pain, and all the mental responses you’d expect(bouts of depression, fatigue, sleep problems, et al). My problem was complicated in the same year as I was diagnosed and pulled permenantly out of work by the fact that my GP decided to leave private practice and go into research. Following quite a few therapy tries with this physician(Phys. Therapy, NSAID’s, antidepressants, TENS unit, etc, but no surgery because I wasn’t a great candidate(though two surgeons said they’d do it if I wanted to I declined due to fear of surgery, and more importantly, fear of making matters worse)), I responded to narcotics. They provided around 75% relief and made my life tolerable. As some of you probablly know, once your left without a doctor who’s known you for some time, getting narcotics becomes impossible(this is how I first became aquainted with the term "drug seeking"). It became impossible to get relief, and impossible to function, so I became more or less suicidal(more, actually…). The suicide thing didn’t take, so I’m still more or less here. Anyway, following another bout of major depression, watching my life collapse(lost the following: Housing(had to move back home), bank account, car, self-esteem, job, etc. Gained the following: debts), I decided to go back to school to see if I couldn’t learn something new that I was able to do. It took almost five years to earn two years worth of credits even though I was going full time due to missed classes(which would then mean I had to withdraw from them or get a failing grade), and still no degree. Ok, that didn’t work. My wife(who I met shortly after I started school), has turned unpleasant when regarding my problems. She’s never come out and said it in so many words, but she seems to think I’m either faking or making mountains out of mole-hills. After all, it’s not like my leg is dangling by a tendon, so how much pain could I possibly be in. She has come out and called me lazy(which is why I’ve been using a cane recently I suppose… It’s less work than using your foot for stepping. I hope to move up to one of those motorized wheelchairs soon so I can scoot around effort free…). I guess I can’t really expect much, as she does have to do a lot for us.  We have young children, whom I watch while she goes to school and works. This is why I’m posting here, I guess. Just to complain, which I try to NEVER do normally, as it just seems to piss people off. I’ve learned to answer "fine" when asked how I am, and to make other -non-back related- excuses for not doing things that would hurt. After four years of not seeing doctors, I’ve made an appointment for next week with someplace I picked at random. I’m wasn’t prompted to do this by any shred of hope for pain relief, but because I’ve been having pain in my arms that’s sinkingly similar what I get in my legs and I just want some tests so that I know what’s going on and what to expect. I still haven’t told my wife why I’m going though. It’s sad, but I feel it’s none of her business.

Hi Shere. Welcome to ASCP. Why would you not share with your wife? She cannot be there for you and offer support if she does not know what is going on. — prayers"

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Welcome to the group. Sorry that you needed to find us, but I am sure you will find some help. and you definitely will find support. If you’re not interested in reading it, skip this message.

Your message could have been written by dozens of people in this newsgroup. You are not alone .my GP decided to leave private practice and go into research.

Did he sell his practice? Would your medical records still be in his former office? Are you able to contact him? It is possible that he could refer you to a good GP, or if he still has your records, he could at least write a letter for you to take to your new doctor. Also, there are several online resources for finding paindocs and gps who are comfortable in providing adequate medications for chronic pain patients. Unfortunately I cannot find these online resources at the present time, but you can rest assured that someone on this great group will fine the references. Once again, welcome and stay tuned for further updates. Terri

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Shere, I’m sorry that you have the need to be here but welcome. You will find that there is a great deal of information, support, encouragement, and empathy for each other on this newsgroup. Feel free to whine, complain, scream or whatever you need to do to help you feel better. We don’t mind. We’ve all been there at one time or another. Annie B. I’m new here, have been lurking for about a month or so, and decided to post my gripe. If you’re not interested in reading it, skip this message.

<<snipped

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– Hide quoted text — Show quoted text -Welcome to the group. Sorry that you needed to find us, but I am sure you will find some help. and you definitely will find support. If you’re not interested in reading it, skip this message. Your message could have been written by dozens of people in this newsgroup. You are not alone .my GP decided to leave private practice and go into research. Did he sell his practice? Would your medical records still be in his former office? Are you able to contact him? It is possible that he could refer you to a good GP, or if he still has your records, he could at least write a letter for you to take to your new doctor. Also, there are several online resources for finding paindocs and gps who are comfortable in providing adequate medications for chronic pain patients. Unfortunately I cannot find these online resources at the present time, but you can rest assured that someone on this great group will fine the references. Once again, welcome and stay tuned for further updates. Terri

Hi, I’m not sure what happened to his practice. I’ll find out if it’s not a moot point following my upcoming doctors appointment. As I said, I need tests to find out what’s going on currently. If I can’t find him and it turns out I do need the old test results, I suppose that I can request them from where I got the tests done. I know hospitals keep records, but does anyone know if an MRI office does(I think it was private, and not affiliated with a hospital, but that’s a guess)? Also, I remember the MRI as being non-dangerous, with no shots, but can’t recall if the Bone Scan was. I think it may have required an injection prior to it, but then again it’s been like 8 years and I can only clearly remember being in the scanner itself. Can anyone help with that?(the shot question, not my memory…) I KNOW the mylogram was invasive, as I can recall every detail of that damned test. Actually, it wound up being a comedy of errors, so I’m not sure what a normal test is like.

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- Hide quoted text — Show quoted text – I’m new here, have been lurking for about a month or so, and decided to post my gripe. If you’re not interested in reading it, skip this message. Was diagnosed around 9 years ago with DDD, Spinal Stenosis, and 3 buldging discs(L3,L4,L5, I believe). Have sciatica(pain & numbness in right, left, and sometimes both legs), back pain, and all the mental responses you’d expect(bouts of depression, fatigue, sleep problems, et al). My problem was complicated in the same year as I was diagnosed and pulled permenantly out of work by the fact that my GP decided to leave private practice and go into research. Following quite a few therapy tries with this physician(Phys. Therapy, NSAID’s, antidepressants, TENS unit, etc, but no surgery because I wasn’t a great candidate(though two surgeons said they’d do it if I wanted to I declined due to fear of surgery, and more importantly, fear of making matters worse)), I responded to narcotics. They provided around 75% relief and made my life tolerable. As some of you probablly know, once your left without a doctor who’s known you for some time, getting narcotics becomes impossible(this is how I first became aquainted with the term "drug seeking"). It became impossible to get relief, and impossible to function, so I became more or less suicidal(more, actually…). The suicide thing didn’t take, so I’m still more or less here. Anyway, following another bout of major depression, watching my life collapse(lost the following: Housing(had to move back home), bank account, car, self-esteem, job, etc. Gained the following: debts), I decided to go back to school to see if I couldn’t learn something new that I was able to do. It took almost five years to earn two years worth of credits even though I was going full time due to missed classes(which would then mean I had to withdraw from them or get a failing grade), and still no degree. Ok, that didn’t work. My wife(who I met shortly after I started school), has turned unpleasant when regarding my problems. She’s never come out and said it in so many words, but she seems to think I’m either faking or making mountains out of mole-hills. After all, it’s not like my leg is dangling by a tendon, so how much pain could I possibly be in. She has come out and called me lazy(which is why I’ve been using a cane recently I suppose… It’s less work than using your foot for stepping. I hope to move up to one of those motorized wheelchairs soon so I can scoot around effort free…). I guess I can’t really expect much, as she does have to do a lot for us.  We have young children, whom I watch while she goes to school and works. This is why I’m posting here, I guess. Just to complain, which I try to NEVER do normally, as it just seems to piss people off. I’ve learned to answer "fine" when asked how I am, and to make other -non-back related- excuses for not doing things that would hurt. After four years of not seeing doctors, I’ve made an appointment for next week with someplace I picked at random. I’m wasn’t prompted to do this by any shred of hope for pain relief, but because I’ve been having pain in my arms that’s sinkingly similar what I get in my legs and I just want some tests so that I know what’s going on and what to expect. I still haven’t told my wife why I’m going though. It’s sad, but I feel it’s none of her business. Hi Shere. Welcome to ASCP. Why would you not share with your wife? She cannot be there for you and offer support if she does not know what is going on. —

Hi, and thanks. To answer your question, I no longer feel comfortable sharing with her because she’s not very understanding. I suppose she’d be happier if I was writhing in pain 24/7. At least then she could see an effect. As it is, I just tend to get quieter as the pain increases for the most part. I’ve told her this, and even tell her when it’s happening, but it never seems to sink in. She views no external evidence of pain as no pain.

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– Hide quoted text — Show quoted text – Hi… just subscribed here.  Have a family hx of asthma.  I have had some interesting sx since I was much younger that have gotten worse in years. (I’m now 37).   I have this inability to catch my breath or breath deeply. It seems to come and go.  I feel like I’m suddenly unable to pull it in and while it doesn’t feel like I’m totally out of air I feel stressed and need to keep trying to draw in air until it comes.  Sometimes I get this plerisy (sp.) in higher elevations.  It’s weird.  I went to a doc once and he dx mild asthma but got mad at me for being unwilling to use medication (which didn’t work anyhow) I’m totally frustrated because I seem to fall in the cracks with this… It’s not totally asthma like people refer to (life threatening)  but it is bothering me. Any ever heard of this. Anni Sounds more like the beginnings of emphysema rather than asthma, although it’s rather common for both to exist simultaneously in individuals your age. Do you now or have you ever smoked tobacco, any occupational exposures to dusts and/or vapors?  Have you been allergy tested?  Do you experience bouts of excessive and/or thickened mucous, if so could be indicative of some bronchitis. From the symptoms you’ve described I would strongly suggest a visit with a Pulmonologist to be evaluated before taking any medications… if need be get a second opinion… not everyone who’s been told they have asthma and has been treated for asthma and for many years and believes and is convinced that they have asthma actually has asthma.  In fact many, many do not, they’ve simply fallen or more likely been pushed by medical quacks into those convenient asthma cracks of which you speak. Sheldon "Life would be devoid of all meaning were it without tribulation."

I smoked very little… couldn’t handle it.  My father smoked alot and I’ve been exposed to smokers at times much thick smoke.  This all started when I was about 12.  No mucous.  I can’t get the air in.  This comes and goes almost seasonally.  I just notice it now again.  Sometimes it goes away for months.  The anxiety does make it worse! Because I’m stressed by this.  I notice the more I try to relax that it gets better.   I went to the doc  when I was about 18 and I’m not one to like docs anyways.  I may however go to visit one in time for this. Anni… thanks for the help

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Hi… just subscribed here.  Have a family hx of asthma.  I have had some interesting sx since I was much younger that have gotten worse in years. (I’m now 37).   I have this inability to catch my breath or breath deeply. It seems to come and go.  I feel like I’m suddenly unable to pull it in and while it doesn’t feel like I’m totally out of air I feel stressed and need to keep trying to draw in air until it comes.  Sometimes I get this plerisy (sp.) in higher elevations.  It’s weird.  I went to a doc once and he dx mild asthma but got mad at me for being unwilling to use medication (which didn’t work anyhow) I’m totally frustrated because I seem to fall in the cracks with this… It’s not totally asthma like people refer to (life threatening)  but it is bothering me. Any ever heard of this. Anni

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Hi… just subscribed here.  Have a family hx of asthma.  I have had some interesting sx since I was much younger that have gotten worse in years. (I’m now 37).   I have this inability to catch my breath or breath deeply. It seems to come and go.  I feel like I’m suddenly unable to pull it in and while it doesn’t feel like I’m totally out of air I feel stressed and need to keep trying to draw in air until it comes.  Sometimes I get this plerisy (sp.) in higher elevations.  It’s weird.  I went to a doc once and he dx mild asthma but got mad at me for being unwilling to use medication (which didn’t work anyhow) I’m totally frustrated because I seem to fall in the cracks with this… It’s not totally asthma like people refer to (life threatening)  but it is bothering me. Any ever heard of this. Anni

Asthma has difficulty getting air _out_ of the lungs. An intermittant sensation of not being able to get enough air into the lungs is one of the most common anxiety symptoms seen in doctors’ offices. The patient is often seen to take deep breaths in a "cogwheel’ fashion. It is not surprising that asthma medicine did not work for you. It of course does necesarily indicate an anxiety state, and your level of concern certainly merits a visit to a pulmonary medicine specialist so that you can get an expert evaluation of the state of your lungs and their function.     Larry

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– Hide quoted text — Show quoted text – Hi… just subscribed here.  Have a family hx of asthma.  I have had some interesting sx since I was much younger that have gotten worse in years. (I’m now 37).   I have this inability to catch my breath or breath deeply. It seems to come and go.  I feel like I’m suddenly unable to pull it in and while it doesn’t feel like I’m totally out of air I feel stressed and need to keep trying to draw in air until it comes.  Sometimes I get this plerisy (sp.) in higher elevations.  It’s weird.  I went to a doc once and he dx mild asthma but got mad at me for being unwilling to use medication (which didn’t work anyhow) I’m totally frustrated because I seem to fall in the cracks with this… It’s not totally asthma like people refer to (life threatening)  but it is bothering me. Any ever heard of this. Anni Asthma has difficulty getting air _out_ of the lungs. An intermittant sensation of not being able to get enough air into the lungs is one of the most common anxiety symptoms seen in doctors’ offices.

Chest tightness is also a classic symptom of asthma. The "pleurisy" (sharp chest pains with inspiration) is also a classic symptom of asthma and probably relates to uveruse of the muscles of the chest wall (and not the pleura). Of course, it could also be due to anxiety. This would account for the medications not working. The patient is often seen to take deep breaths in a "cogwheel’ fashion. It is not surprising that asthma medicine did not work for you. It of course does necesarily indicate an anxiety state, and your level of concern certainly merits a visit to a pulmonary medicine specialist so that you can get an expert evaluation of the state of your lungs and their function.

I agree that more testing and possibly a trial of more intensive therapy would be advisable. — CBI, MD

Response:

There are lots of things to try. If you are truly steroid resistant lidocaine nebs and Methotrexate have been shown to work. To tell the truth, you do not sound like you are steroid resistant but steroid dependent. I have seen many people who have been on steroids for various illnesses who had trouble getting below a certain threshold without relapse. The key to getting them off is two fold: 1) taper excruciatingly slowly — like go down 1mg per month. 2) add a different anti-inflammatory (like Methotrexate) to help keep inflammation down while your adrenals kick back in. They are probably depressed after the prolonged periods of steroid supplementation. The other advice about avoiding triggers is always sound no matter how mild or severe the asthma is. — Good Luck, CBI, M.D.

– Hide quoted text — Show quoted text -Hi! I am 19 years old and have had asthma my whole life. I became steroid dependent in 1992. I am presently on: Uniphyl 400mg at night Claritin 10 mg in the a.m. Zyrtec 10 mg in the p.m Serevent Diskus 1 inhalation twice a day Pulmicort Inhaler 2 inhalations twice a day Singulair 10 mg at bedtime I use Ventolin  as needed I am also taking 8 mg of Medrol every other day. I also use Tornalate 1.25cc and atrovent in a nebulizer as needed Everytime I am taken of of medrol i am fine for a couple of days and then i am back in the emergency room it seems like i will never get off them I’d appreciate any suggestions

Response:

Hi! I am 19 years old and have had asthma my whole life. I became steroid dependent in 1992. I am presently on: Uniphyl 400mg at night Claritin 10 mg in the a.m. Zyrtec 10 mg in the p.m Serevent Diskus 1 inhalation twice a day Pulmicort Inhaler 2 inhalations twice a day Singulair 10 mg at bedtime I use Ventolin  as needed I am also taking 8 mg of Medrol every other day. I also use Tornalate 1.25cc and atrovent in a nebulizer as needed Everytime I am taken of of medrol i am fine for a couple of days and then i am back in the emergency room it seems like i will never get off them I’d appreciate any suggestions

Response:

I am 19 years old and have had asthma my whole life.

 I became steroid dependent in 1992. I am presently on: Uniphyl 400mg at night Claritin 10 mg in the a.m. Zyrtec 10 mg in the p.m Serevent Diskus 1 inhalation twice a day Pulmicort Inhaler 2 inhalations twice a day Singulair 10 mg at bedtime I use Ventolin  as needed I am also taking 8 mg of Medrol every other day. I also use Tornalate 1.25cc and atrovent in a nebulizer as needed Everytime I am taken of of medrol i am fine for a couple of days  and then i am back in the emergency room it seems like i will never get off them I’d appreciate any suggestions

It looks like you are on a maximum dose of asthma drugs. Have you had your asthma triggers evaluated by an allergist: irritants like smoke, smog, dust, etc and and allergens, if allergic, like pollen, dust mites, mold? And taken steps to minimize environmental exposure to them? Sometimes a HEPA air filter, can help, or getting rid of a gas stove, or encasing bedding in hypoallergenic covers. Have you been evaluated for Sinusitis and GERD (reflux) either of which can exacerbate asthma? I would recommend an evaluation at National Jewish C. in Denver, top asthma center in the US. 1-800-222-LUNG   www.njc.org It is the place to go for Severe cases of asthma like yours. You might benefit from attending an asthma support group; the American Lung Assoc. sponsors these in some areas. Ellis

Response:

Hi everyone. I just started lurking here a few days ago, but found myself relating to you all so well, I decided to post. I’ve gone through the chronic pain thing for the past 7 years due to a ruptured L5-S1 disc.  My situation is not nearly as severe as probably most of you, but enough that I have gone through all the stages.  I was a bicycle racer at the onset of the problem (at 27 yrs old) and was riding and racing 200+ miles/week and was about as fit as you could get.  Plus my lifestyle revolved around the sport entirely.  I kept trying to race after the condition surfaced, and even after unsuccessful surgery 6 years ago.  It was pathetic, but it was that difficult for me to give it up.  There were some additional problems with my life that this situation was also forcing me to deal with, so this added stress as well. Of course "lifestyle modification" eventually was achieved, and has been ongoing.  This has helped me lead a reasonably normal life, although too much of it revolves around my "condition".  But you know all about that. Anyway, the situation is getting worse.  I moved into a new house at the beginning of November and due to the mental/physical stress, ended up incapacitated for 4 weeks (during the move – how convenient!), and on much stronger painkillers than ever before (including Ultram). Doctors who have said "no" to more surgery are now saying "yes", which scares the hell out of me.  BUT naprosyn got me on my feet again, for the time being at least. I am taking 500mg of enteric coated twice a day.  My current doctor says this is the "cure", at least until it stops working!  All things considered, I’m OK with this.  But what is the long term risk?  My md has not gone into this with me. I am also concerned to make a plan for what to do if/when the NSAIDs stop working, since my rationality is not to be relied upon when in pain!  Any recommendations for an outstanding back surgeon in the Baltimore/DC area who specializes in failed cases?  I am currently seeing a Dr. Bhatnagar, from Johns-Hopkins.  As I mentioned, further messing around back there scares me spitless, because I have experienced enough to be able to conceive of how bad it can get, and how hopeless it can be once you’re there. Well anyway, thanks for listening.  I will continue to lurk.  Good luck to all of you. Mike Spirawk

Response:

- Hide quoted text — Show quoted text – Hi everyone. I just started lurking here a few days ago, but found myself relating to you all so well, I decided to post. I’ve gone through the chronic pain thing for the past 7 years due to a ruptured L5-S1 disc.  My situation is not nearly as severe as probably most of you, but enough that I have gone through all the stages.  I was a bicycle racer at the onset of the problem (at 27 yrs old) and was riding and racing 200+ miles/week and was about as fit as you could get.  Plus my lifestyle revolved around the sport entirely.  I kept trying to race after the condition surfaced, and even after unsuccessful surgery 6 years ago.  It was pathetic, but it was that difficult for me to give it up.  There were some additional problems with my life that this situation was also forcing me to deal with, so this added stress as well. Of course "lifestyle modification" eventually was achieved, and has been ongoing.  This has helped me lead a reasonably normal life, although too much of it revolves around my "condition".  But you know all about that. Anyway, the situation is getting worse.  I moved into a new house at the beginning of November and due to the mental/physical stress, ended up incapacitated for 4 weeks (during the move – how convenient!), and on much stronger painkillers than ever before (including Ultram). Doctors who have said "no" to more surgery are now saying "yes", which scares the hell out of me.  BUT naprosyn got me on my feet again, for the time being at least. I am taking 500mg of enteric coated twice a day.  My current doctor says this is the "cure", at least until it stops working!  All things considered, I’m OK with this.  But what is the long term risk?  My md has not gone into this with me. I am also concerned to make a plan for what to do if/when the NSAIDs stop working, since my rationality is not to be relied upon when in pain!  Any recommendations for an outstanding back surgeon in the Baltimore/DC area who specializes in failed cases?  I am currently seeing a Dr. Bhatnagar, from Johns-Hopkins.  As I mentioned, further messing around back there scares me spitless, because I have experienced enough to be able to conceive of how bad it can get, and how hopeless it can be once you’re there. Well anyway, thanks for listening.  I will continue to lurk.  Good luck to all of you. Mike Spirawk

Hello, Mike, my name’s Patti, and sounds like we have more in common than bad backs, as I just moved in early November also, and like you, managed to "overdue" things to the point of my body shortly thereafter extracting an excruciating price.  But that happens from time to time, at least with me it does, as I’m still "re-learning" how to live basically with each passing day. the procedure offer you any relief and, if so, for how long?  What are the doctors saying now (that wasn’t said when they suggested medication) that supports further surgical intervention? another(11/87;12/88;12/89).  Following that, I was talked into having a diskectomy and fusion (same level of L5-S1) with implantation of pedicle screws (or "rogo rods" as they’re commonly called) in 2/93.  My life has <never been the same since that surgical procedure; rather than helping me, my condition worsened and continues to deteriorate.  By 12/94, I was experiencing so many medical problems other than just lower back and leg pain (bladder surgeries: 6/94 & 10/94, plus problems with my colon, certain female organs, abdominal cavity, etc.) that the neurosurgeon had pedicle screws removed immediately  (12/94).  He said "They are interfering with the normal electrical impulses of your body.", and that’s a <direct quote. To make a long story (sorry!), I progressively deteriorated over the next seven months that by the end of July ‘95, I became totally incapacitated due to relentless and intractable pain and could no longer work.  Nothing, and I do mean <NOTHING further should have been done on my back, but I was "determined" to become productive once more and return to work!  I eventually found a doctor near Tampa, Fl who performed arthroscopic laser lumbar surgical procedures.  I mailed him all my films and medical records with a letter explaining the various diagnoses for my condition (at that time): disk compression (caused by cysts, disk material and scar tissue), degenerative disckitis, and a failed lumbar fusion.  He said his new surgical technique could eliminate "most" of the pain, so I allowed him to do 2 surgical procedures in 11/95 (L5-S1; L4-L5)and 1 in 2/96 (L3-L4).  That’s a total of <EIGHT surgeries, and does not include the countless epidural injections and/or catheters I’ve had since 9/95.  When this doctor was unable to surgically correct my problem or as a minimum restore some quality to my life, I refused to have him do any more surgeries (as that is what he wanted to do after his 3rd attempt!), and finally decided to "accept" my condition and learn to <LIVE with my disability. Since August of last year, I started seeing a pain management clinic; it is not an actual multi-disciplinary pain management clinic, but comes fairly close to operating within a similar infrastructure: anesthesiology; physical therapy; psychological therapy; neurology; orthopaedics, primary care, and massage therapy.  Since moving back to Florida early November, I’ve become established with a similar pain management clinic, so was relieved for that (:D.  There is nothing that can be done for me other than prescribe strong narcotics; however, there is a great deal I can do for myself! My advice to you is <don’t allow them to perform any further surgical intervention at your L5-S1 level (or any level for that matter!).  I was so desperate to get "fixed" that I actually wound up in an overall worse condition!  I’ve had three additional diagnoses to tack on to those noted above:  failed back syndrome; chronic pain disorder; and arachnoiditis.  So take your pick  (:D. I wish you a safe "journey" no matter which route you choose.  I ended up down the wrong path because I trusted doctors 110% and didn’t feel "right" questioning them – Phooey! — Patti Patti & Ron Doolittle Always remember… Yesterday is history, tomorrow is a mystery, today is a gift; that’s why we call it the ‘present’!

Response:

Hi everyone, sorry it’s taken me so long to get round to introducing myself so here goes!! As you can see, I live in the UK. I am 39 and have one daughter who is 17. I am divorced and living in Bristol (south west England) with my partner, daughter, 5 cats and a black Labrador. My partner has a daughter 22 and a son 20 who both live in their own pads! I have had pain in my hips now for nearly 5 years. I have had xrays that show nothing but wear and tear. I’ve had psyio and been to a chiropracter which made them worse. My GP’s surgery is fund holding so would not refer me to any specialists a) because the xrays showed nothing to be concerned about and b) it was too expensive!! I did have quite a good relationship with my dr and he was prepared to help and finally put me on Amitriptyline starting at 25mg increasing to 100mg which is where I am now. It has been keeping the pain at a bearable level but recently the pain is much more severe and it has spread to my hands especially my knuckles. The palm of my hand go bright red and burn terribly sometimes and at night I get woken up because I can’t feel them at all and can’t move them. When they eventually begin to have feeling my finger knucles click badly on bending. I also now have pain in both my knees, constant headaches, TMJ and pain in my shoulders. I find it very hard to grip anything and can hardly write using a pen. In August my dr left the practice and as a parting jesture referred me to the orthopeadic specialist in Bath and I can’t thank him enough for that! I saw the ortho in Oct and he was lovely. I had my doubts when I first saw him as he was an older man and I thought that he would be of the old school. He wasn’t and he really listened to me, he didn’t pull me about, just believed me about the amount of pain I’m in. He ordered a body scan which I had a couple of weeks ago and I see him again in Jan. He also said that if it wasn’t conclusive then he wanted me to see a Rheumy, I believe that I might just be going in the right direction. I also suffer from an eating disorder and have already put on 10lbs since starting Amitriptyline and am petrified of putting on any more. My new dr told me the last time I saw her that the pain killer Tylex (contains 500mg paracetamol+30mg codeine) that I take 4hrly is one of the strongest pain killers around. I am concerned having read the damage that can be done to the liver if too much paracetamol is taken over a long period. I wouldn’t mind but this stuff doesn’t even touch the pain but that’s all she would give me. Was wondering if anyone had any advice? I’m scared to lower or come off the Amitriptyline incase the pain increases even more but I am actually get really depressed because of the side effect. It gives me such a craving for sweet things which plays havoc with my ED. Also the dry mouth is unbearable. My tongue actually sticks to the roof of my mouth making me unable to carry on a long conversation and leaves an awful taste and a feeling of my mouth being so dirty, I use mouth wash constantly, chew gum constanly but nothing helps. I also have really bad dizzy spells too. Sooooo I am a bit low at the moment, haven’t even got the energy to catch up with all the mail that needs answers:-( Well, now that I’ve bored you all to tears and appologise for such a long messages. This is a lovely NG and I really glad to have found you. Big gentle hugs to one and all. Laura — Laura Bristol England

Response:

Welcome, Laura. Annie B. Hi everyone, sorry it’s taken me so long to get round to introducing myself so here goes!!

<<snipped

Response:

Laura – Sorry to hear about all of your problems, but glad to have you here.  I’m not familiar with Tylex, (it’s not Tylox, is it?) but there are certainly stronger narcotics out there than codeine.  Sounds like you need a long-acting narcotic such as ms-contin or oxycontin.  I’m on oxycontin with roxicodone for breakthrough pain.  Let us know how you’re getting along. Tracy L. – Hide quoted text — Show quoted text – Hi everyone, sorry it’s taken me so long to get round to introducing myself so here goes!! As you can see, I live in the UK. I am 39 and have one daughter who is 17. I am divorced and living in Bristol (south west England) with my partner, daughter, 5 cats and a black Labrador. My partner has a daughter 22 and a son 20 who both live in their own pads! I have had pain in my hips now for nearly 5 years. I have had xrays that show nothing but wear and tear. I’ve had psyio and been to a chiropracter which made them worse. My GP’s surgery is fund holding so would not refer me to any specialists a) because the xrays showed nothing to be concerned about and b) it was too expensive!! I did have quite a good relationship with my dr and he was prepared to help and finally put me on Amitriptyline starting at 25mg increasing to 100mg which is where I am now. It has been keeping the pain at a bearable level but recently the pain is much more severe and it has spread to my hands especially my knuckles. The palm of my hand go bright red and burn terribly sometimes and at night I get woken up because I can’t feel them at all and can’t move them. When they eventually begin to have feeling my finger knucles click badly on bending. I also now have pain in both my knees, constant headaches, TMJ and pain in my shoulders. I find it very hard to grip anything and can hardly write using a pen. In August my dr left the practice and as a parting jesture referred me to the orthopeadic specialist in Bath and I can’t thank him enough for that! I saw the ortho in Oct and he was lovely. I had my doubts when I first saw him as he was an older man and I thought that he would be of the old school. He wasn’t and he really listened to me, he didn’t pull me about, just believed me about the amount of pain I’m in. He ordered a body scan which I had a couple of weeks ago and I see him again in Jan. He also said that if it wasn’t conclusive then he wanted me to see a Rheumy, I believe that I might just be going in the right direction. I also suffer from an eating disorder and have already put on 10lbs since starting Amitriptyline and am petrified of putting on any more. My new dr told me the last time I saw her that the pain killer Tylex (contains 500mg paracetamol+30mg codeine) that I take 4hrly is one of the strongest pain killers around. I am concerned having read the damage that can be done to the liver if too much paracetamol is taken over a long period. I wouldn’t mind but this stuff doesn’t even touch the pain but that’s all she would give me. Was wondering if anyone had any advice? I’m scared to lower or come off the Amitriptyline incase the pain increases even more but I am actually get really depressed because of the side effect. It gives me such a craving for sweet things which plays havoc with my ED. Also the dry mouth is unbearable. My tongue actually sticks to the roof of my mouth making me unable to carry on a long conversation and leaves an awful taste and a feeling of my mouth being so dirty, I use mouth wash constantly, chew gum constanly but nothing helps. I also have really bad dizzy spells too. Sooooo I am a bit low at the moment, haven’t even got the energy to catch up with all the mail that needs answers:-( Well, now that I’ve bored you all to tears and appologise for such a long messages. This is a lovely NG and I really glad to have found you. Big gentle hugs to one and all. Laura — Laura Bristol England

Response:

<snipped for brevity  This is a lovely NG and I really glad to have found you. Big gentle hugs to one and all. Laura — Laura Bristol England

I’m glad you found us, too! I missed you! E-mail me, ok? I love you, woman! — -Sandy Please visit my homepage at http://www.geocities.com/HotSprings/Falls/1006/

Response:

I agree that a referral to a rheumatologist is a great idea. If the codeine isn’t working, I certainly wouldn’t take it. To take a drug because its all you have is not good if it doesn’t help at all. The Amitriptyline will cause weight gain, that’s a side effect many must deal with when taking the drug, may be if you express your concern about it in relation to your eating disorder  your doctor  may find an alternative. Dry mouth is a side effect of many drugs but many people are not warned about it causing dental decay. Make sure you use fluoride as directed to protect your teeth. In the U.S. fluoride is a prescription drug, I don’t know about the UK but Im sure your doctor wouldn’t object to writing you a Rx for it. Good luck.

Response:

My name is Joani…".the Magic Bubble marker"  I’ll send one to the UK just for you. Mike is right. You do need a rheumy.! He is always a good source of post. We have all learned a lot from him! sorry that you need us, but glad you found us!  This group is a great source on info. and it is wonderful for a bit of humor…something we all need!So, welcome aboard, it gets bumpy once in awhile but like all god friends it is okey to really vent….that is what friends are for, right, Charlie! {{ Peace  }}}  Joani – Hide quoted text — Show quoted text – I agree that a referral to a rheumatologist is a great idea. If the codeine isn’t working, I certainly wouldn’t take it. To take a drug because its all you have is not good if it doesn’t help at all. The Amitriptyline will cause weight gain, that’s a side effect many must deal with when taking the drug, may be if you express your concern about it in relation to your eating disorder  your doctor  may find an alternative. Dry mouth is a side effect of many drugs but many people are not warned about it causing dental decay. Make sure you use fluoride as directed to protect your teeth. In the U.S. fluoride is a prescription drug, I don’t know about the UK but Im sure your doctor wouldn’t object to writing you a Rx for it. Good luck.

Response:

Welcome Laura– Care for some tea at 4pm:) Jefe – Hide quoted text — Show quoted text – Hi everyone, sorry it’s taken me so long to get round to introducing myself so here goes!! As you can see, I live in the UK. I am 39 and have one daughter who is 17. I am divorced and living in Bristol (south west England) with my partner, daughter, 5 cats and a black Labrador. My partner has a daughter 22 and a son 20 who both live in their own pads! I have had pain in my hips now for nearly 5 years. I have had xrays that show nothing but wear and tear. I’ve had psyio and been to a chiropracter which made them worse. My GP’s surgery is fund holding so would not refer me to any specialists a) because the xrays showed nothing to be concerned about and b) it was too expensive!! I did have quite a good relationship with my dr and he was prepared to help and finally put me on Amitriptyline starting at 25mg increasing to 100mg which is where I am now. It has been keeping the pain at a bearable level but recently the pain is much more severe and it has spread to my hands especially my knuckles. The palm of my hand go bright red and burn terribly sometimes and at night I get woken up because I can’t feel them at all and can’t move them. When they eventually begin to have feeling my finger knucles click badly on bending. I also now have pain in both my knees, constant headaches, TMJ and pain in my shoulders. I find it very hard to grip anything and can hardly write using a pen. In August my dr left the practice and as a parting jesture referred me to the orthopeadic specialist in Bath and I can’t thank him enough for that! I saw the ortho in Oct and he was lovely. I had my doubts when I first saw him as he was an older man and I thought that he would be of the old school. He wasn’t and he really listened to me, he didn’t pull me about, just believed me about the amount of pain I’m in. He ordered a body scan which I had a couple of weeks ago and I see him again in Jan. He also said that if it wasn’t conclusive then he wanted me to see a Rheumy, I believe that I might just be going in the right direction. I also suffer from an eating disorder and have already put on 10lbs since starting Amitriptyline and am petrified of putting on any more. My new dr told me the last time I saw her that the pain killer Tylex (contains 500mg paracetamol+30mg codeine) that I take 4hrly is one of the strongest pain killers around. I am concerned having read the damage that can be done to the liver if too much paracetamol is taken over a long period. I wouldn’t mind but this stuff doesn’t even touch the pain but that’s all she would give me. Was wondering if anyone had any advice? I’m scared to lower or come off the Amitriptyline incase the pain increases even more but I am actually get really depressed because of the side effect. It gives me such a craving for sweet things which plays havoc with my ED. Also the dry mouth is unbearable. My tongue actually sticks to the roof of my mouth making me unable to carry on a long conversation and leaves an awful taste and a feeling of my mouth being so dirty, I use mouth wash constantly, chew gum constanly but nothing helps. I also have really bad dizzy spells too. Sooooo I am a bit low at the moment, haven’t even got the energy to catch up with all the mail that needs answers:-( Well, now that I’ve bored you all to tears and appologise for such a long messages. This is a lovely NG and I really glad to have found you. Big gentle hugs to one and all. Laura — Laura Bristol England

Response:

Welcome Laura, sorry you thought you needed to be here, but we are glad you found us. Just a thought, have you seen a neurologist or rheumatologist? If you can get to the source of the problem it is easier to treat the pain. If you can find the right diagnostician it can be the key. Jim Mas rapido!

Response:

Laura, your introductory post is interesting and exceptionally well written!  Welcome to ASCP, and may you find comfort and knowledge here. Welcome Laura Miller!!!! Charlie Tuna

Thanks Charlie for the welcome. Actually I have been slowly writing a book and although my friends have said that I write well I’ve always thought they were just being nice LOL, so thanks for saying that it might just get me motivated to continue :-) Laura — Laura Bristol England

Response:

I agree that a referral to a rheumatologist is a great idea. If the codeine isn’t working, I certainly wouldn’t take it. To take a drug because its all you have is not good if it doesn’t help at all. The Amitriptyline will cause weight gain, that’s a side effect many must deal with when taking the drug, may be if you express your concern about it in relation to your eating disorder  your doctor  may find an alternative. Dry mouth is a side effect of many drugs but many people are not warned about it causing dental decay. Make sure you use fluoride as directed to protect your teeth. In the U.S. fluoride is a prescription drug, I don’t know about the UK but Im sure your doctor wouldn’t object to writing you a Rx for it. Good luck.

Hi Mike, my doc today is writing to the rheumy although there is quite some waiting list apparantly. She also changed my pain killer to Diclofenac which is an anti-inflamatory which I don’t believe will do much but I can try. She has also put me on Trazadone starting tonight so I’m hoping desperately that I will do better re the side effects with this drug, time will tell, HeHe! Thanks for taking the time to write me and I wasn’t aware of the problems with dental decay. Fluoride is actually added to our drinking water here in the UK and I do use a fluoride mouth wash and toothpaste. Laura — Laura Bristol England

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Welcome, Laura. Annie B.

Thanks Annie B, this is certainly a nice comfy place to be and I look forward to getting to know you all. Laura — Laura Bristol England

Response:

I’m glad you found us, too! I missed you! E-mail me, ok? I love you, woman! — -Sandy Please visit my homepage at http://www.geocities.com/HotSprings/Falls/1006/

Will email you Sandy, promise, could even be this evening if I can remember how to spell LOL Don’t you just love this brain fog?????? Love ya Laura — Laura Bristol England

Response:

Laura – Sorry to hear about all of your problems, but glad to have you here.  I’m not familiar with Tylex, (it’s not Tylox, is it?) but there are certainly stronger narcotics out there than codeine.  Sounds like you need a long-acting narcotic such as ms-contin or oxycontin.  I’m on oxycontin with roxicodone for breakthrough pain.  Let us know how you’re getting along. Tracy L.

Thanks Tracy, it’s good to be here. My dr has today started me on Diclofenac, an anti inflammatory although I don’t believe it will do much good:-( I was really taken aback, she actually asked me what I would like to try. I have never ever been asked that before and ofcourse couldn’t think of any of the meds that I’ve read about here, typical LOL At least now I know that she is willing to listen to me and values the fact that I have researched on the web and is willing to learn too. Gosh that feels *so* good. There’s hope for me yet!! Laura — Laura Bristol England

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Welcome Laura– Care for some tea at 4pm:) Jefe

Well if you mean tea and a scone with cream and jam (jelly) then we’re on LOL. Thanks for the welcome and I alway read what you have to say as it is always good adivce. Laura — Laura Bristol England

Response:

Welcome Laura, sorry you thought you needed to be here, but we are glad you found us. Just a thought, have you seen a neurologist or rheumatologist? If you can get to the source of the problem it is easier to treat the pain. If you can find the right diagnostician it can be the key. Jim

Thanks Jim, my doc today is writing to the rheumatologist but apparantly the waiting list is quite long. I get the results of my body scan on Jan 26th so depending on what the find or not find, I’ll talk to them about a neurologist. It’s good to be here. Laura — Laura Bristol England

Response:

I did a semester of college as an exchange program in London and lived in the South Kensington area, not far from Hyde Park. Are you familiar with that area?  It is lovely Jefe – Hide quoted text — Show quoted text – Welcome Laura– Care for some tea at 4pm:) Jefe Well if you mean tea and a scone with cream and jam (jelly) then we’re on LOL. Thanks for the welcome and I alway read what you have to say as it is always good adivce. Laura — Laura Bristol England

Response:

Welcome Laura, sorry you have to be here but glad you found it.  Fatron & PJ

Response:

She sounds like a good doctor to me Laura,there is nothing like being listened to.It gives you confidence that you are in the hands of someone who will treat you as a whole person. aussie annieb

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I did a semester of college as an exchange program in London and lived in the South Kensington area, not far from Hyde Park. Are you familiar with that area?  It is lovely Jefe

Hi jefe, Actually the last time I went up to Kensington was just after the death of Diana, Princess of Wales. Yes it is certainly a lovely part of London and such an unbelievable site to see so much of it covered in beautiful flower, the aroma of which I have never smelt before. Million and millions of flowers, it was heady stuff, and something that I shall never ever forget. Glad you liked it Jefe, tis a busy old place though isn’t it…LOL Laura — Laura Bristol England

Response:

Welcome Laura, sorry you have to be here but glad you found it.  Fatron & PJ

Thanks for the welcome, I’m really beginning to like this place. Lots of good advice, support and wonderful humor :-) Laura — Laura Bristol England

Response:

She sounds like a good doctor to me Laura,there is nothing like being listened to.It gives you confidence that you are in the hands of someone who will treat you as a whole person. aussie annieb

This has never happened to me before and I came away feeling so good and full of confidence in her. Looks like a good start for me :-) Laura — Laura Bristol England

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Actually Laura, I walked by a speciality toy store every day on my way to class that Princess Diana frequented in her jaguar.  One day, as I was walking don the sidewalk, a car pulled out from the toy store lot and ontoe the sidewalk to turn onto the road, but the car had to wait for traffic, and I stopped because the car was blocking the sidewalk–it was Princess Diana with both children.  I was so close, has she has her window down, I could have reached out and touched her.  She was beautiful.  I was very sad when she died. The toy store she went to was in the South Kensington area, but I don’t recall the name of the street–but I do remember that across the street and up just a little ways, Actor Dustin Hoffman had quite a large flat, several floors in the building.  Come to think of it, I think the whole building was his.  I ask his chauffeur one day if I could met Dustin Hoffman and tell him what a big fan of his I am, but the chaffeur graciously declined my offer. London is one of the most wonderful cities in the world.  I hope to return one day for a lengthy stay. Jefe – Hide quoted text — Show quoted text – I did a semester of college as an exchange program in London and lived in the South Kensington area, not far from Hyde Park. Are you familiar with that area?  It is lovely Jefe Hi jefe, Actually the last time I went up to Kensington was just after the death of Diana, Princess of Wales. Yes it is certainly a lovely part of London and such an unbelievable site to see so much of it covered in beautiful flower, the aroma of which I have never smelt before. Million and millions of flowers, it was heady stuff, and something that I shall never ever forget. Glad you liked it Jefe, tis a busy old place though isn’t it…LOL Laura — Laura Bristol England

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Welcome to the group. Yes, there is a lot to learn and it is overwhelming, but in time you’ll find out what works for you and what doesn’t. Jennifer’s advice can’t be beat for starters. I’m looking forward to your posts. Cheri

– Hide quoted text — Show quoted text -I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night… ) I’ve been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I’m feeling really overwhelmed. I think I’ll be hanging out here a lot.

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I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night… ) I’ve been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I’m feeling really overwhelmed. I think I’ll be hanging out here a lot.

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I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night… ) I’ve been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I’m feeling really overwhelmed. I think I’ll be hanging out here a lot.

Welcome!  It will probably be tough at first, but stick around and you’ll get lots of good answers here. — Type 2 http://www.redshift.com/~juliebove/ Julie Bove, posting from new account

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This post not CC’d by email I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night… ) I’ve been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I’m feeling really overwhelmed. I think I’ll be hanging out here a lot.

G’day G’day Lina,  OK.  I have got to ask.        How DO you pronounce your cyber name?   When someone comes to the group I try to get some mental picture of what it is that brings passion into their lives.  That passion is their motivation and that is what ultimately will give them the strength to improve their health and live better. Many people are surprised to find their health improves following a T2 diagnosis.   It give tangible goals to be achieved and focuses the mind most wonderfully.  Often peoples cyber nom speaks volumes about their persona and the passion that drives them.  Whatever. Welcome to the support group.  You’ll find a heap of supportive people here … each with their own skills and their own way of contributing. Don’t be shy about asking questions.  Each time a question is asked the circumstances are a bit different and we all learn something from the answering. Best wishes, — Quentin Grady       ^  ^  / New Zealand,       #,#< [                     / /     "... and the blind dog was leading." http://homepages.paradise.net.nz/quentin

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I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night... ) I've been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I'm feeling really overwhelmed. I think I'll be hanging out here a lot. G'day G'day Lina,  OK.  I have got to ask.    How DO you pronounce your cyber name?

LEE-nah  :) I'm originally a Jen, but my middle name becomes Lina, so there you go. :) When someone comes to the group I try to get some mental picture of what it is that brings passion into their lives.  That passion is their motivation and that is what ultimately will give them the strength to improve their health and live better. Many people are surprised to find their health improves following a T2 diagnosis.

I'm thinking that a lot of my problems might be from this. I'm always getting sick and I'm always really tired. It give tangible goals to be achieved and focuses the mind most wonderfully.  Often peoples cyber nom speaks volumes about their persona and the passion that drives them.  Whatever. Welcome to the support group.  You'll find a heap of supportive people here ... each with their own skills and their own way of contributing.

I'm really glad to know that. I have a million questions to ask. - Hide quoted text -- Show quoted text - Don't be shy about asking questions.  Each time a question is asked the circumstances are a bit different and we all learn something from the answering. Best wishes, -- Quentin Grady       ^  ^  / New Zealand,       #,#< [                     / / "... and the blind dog was leading." http://homepages.paradise.net.nz/quentin

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I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night... ) I've been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I'm feeling really overwhelmed. I think I'll be hanging out here a lot.

Welcome to the group nobody wants to be in, Lina! That said, for many diabetics, diagnosis was a blessing in disguise.  It forces you to make many healthy changes.  I know I'm healthier now than I was at diagnosis, because I'm eating better and exercising.  It's good you realize that you have to change your ways...that will be the key to your success. Try to learn as much as you can, and there's a lot to learn.  This newgroup is an excellent resource.  Also, go to the public library and check out every book you can find about diabetes that was written in the last 2-3 years.  There are a lot of books out there and you could run up a huge bill if you bought them all.  If you find any you like or any that are useful, buy them.  Two that I especially liked were Gretchen Becker's The First Year Type 2 Diabetes (which I purchased) and Diabetes for Dummies. There's a lot to learn, so don't let yourself be overwhelmed.  Ask any questions you may have.  There are a lot of good and knowledgeable folks here who are ready to help.  Good luck. -- Best wishes Louise Type 2, controlling by diet and exercise Remove oldglory for email.

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Hi Lina... It IS overwhelming.  But I promise you, it will get better.  We've all been there, and we're still here! There is so much to absorb... you don't have to rush into anything.  Begin by using your best weapon in this war, your meter.   You won't keel over today, you have time to experiment, test, learn, test and figure out just how your body and this disease are getting along.  The most important thing you can do to learn about yourself and diabetes is test test  test. What you are looking to discover is how different foods affect you.  As I'm sure you've read, carbohydrates (sugars, wheat, rice... the things our Grandmas called "starches") raise blood sugars the most rapidly.  Protein and fat do raise them, but not as high and much more slowly... so if you're a T2, generally the insulin your body still makes may take care of the rise. You might want to try some  experiments. First:  Eat whatever you've been currently eating... but write it all down. Test yourself at the following times: Upon waking (fasting) 1 hour after each meal 2 hours after each meal At bedtime That means 8 x each day.  What you will discover by this is how long after a meal your highest reading comes... and how fast you return to "normal".  Also, you may see that a meal that included bread, fruit or other carbs gives you a higher reading. Then for the next few days, try to curb your carbs.  Eliminate breads, cereals, rices, beans, any wheat products, potato, corn, fruit... get all your carbs from veggies.  Test at the same schedule above. If you try this for a few days, you may find some pretty damn good readings.  It's worth a few days to discover. Eventually you can slowly add back carbs until you see them affecting your meter. The thing about this disease... though we share much in common and we need to follow certain guidelines... in the end, each of our bodies dictate our treatment and our success. The closer we get to non-diabetic numbers, the greater chance we have of avoiding horrible complications.  The key here is AIM... I know that everyone is at a different point in their disease... and it is progressive. But, if we aim for the best numbers and do our best, we give ourselves the best shot at heath we've got. That's all we can do. Here's my opinion on what numbers to aim for, they are non-diabetic numbers. FBG                         under 110 One hour after meals       under 140 Two hours after meals     under 120 Recent studies have indicated that the most important numbers are your "after meal" numbers. They may be the most indicative of future complications, especially heart problems. Listen to your doctor, but you are the leader of your diabetic care team.  While his /her advice is learned, it is not absolute.   You will end up knowing much more about your body and how it's handling diabetes than your doctor will.   Your meter is your best weapon. Just remember, we're not in a race or a competition with anyone but ourselves... Play around with your food plan... TEST TEST TEST.  Learn what foods cause spikes, what foods cause cravings... Use your body as a science experiment. You'll read about a lot of different ways people use to control their diabetes... Many are diametrically opposed. After awhile you'll learn that there is no one size fits all around here.  Take some time to experiment and you'll soon discover the plan that works for you. Best of luck! Jennifer - Hide quoted text -- Show quoted text - I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night... ) I've been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I'm feeling really overwhelmed. I think I'll be hanging out here a lot.

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This post not CC'd by email - Hide quoted text -- Show quoted text - I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night... ) I've been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I'm feeling really overwhelmed. I think I'll be hanging out here a lot. G'day G'day Lina,  OK.  I have got to ask.    How DO you pronounce your cyber name? LEE-nah  :) I'm originally a Jen, but my middle name becomes Lina, so there you go. :)

Thanks.  I wondered if it rhymed with tin or Tina.   Of course the Australians would sound the "i" in tin the same as they would the "i" in Tina.  Whatever. Lina is one hell of an inspirational name to have. Don't be surprised if some of  us are envious already.   <grin When someone comes to the group I try to get some mental picture of what it is that brings passion into their lives.  That passion is their motivation and that is what ultimately will give them the strength to improve their health and live better. Many people are surprised to find their health improves following a T2 diagnosis. I'm thinking that a lot of my problems might be from this. I'm always getting sick and I'm always really tired.

That is not uncommon and thankfully it may well be about to change for the better.  Most people have metabolic problems for a half dozen years before diagnosis.  When the underlying issues are dealt as they must be with T2s a lot of that stuff becomes a distant memory. It gives tangible goals to be achieved and focuses the mind most wonderfully.  Often peoples cyber nom speaks volumes about their persona and the passion that drives them.  Whatever. Welcome to the support group.  You'll find a heap of supportive people here ... each with their own skills and their own way of contributing. I'm really glad to know that. I have a million questions to ask.

That's cool. Different people will be better able to answer different questions and provide support in different ways. I'll leave 999,800 to the rest of the support group. Don't be shy about asking questions.  Each time a question is asked the circumstances are a bit different and we all learn something from the answering. Best wishes,

-- Quentin Grady       ^  ^  / New Zealand,       #,#< [                     / /     "... and the blind dog was leading." http://homepages.paradise.net.nz/quentin

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welcome....... sorry you qualify to join us i notice rogers is your ISP..... where in Canada are you?? oh...... you may want to mangle your name for news posts...... just a heads up - Hide quoted text -- Show quoted text - I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night... ) I've been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I'm feeling really overwhelmed. I think I'll be hanging out here a lot.

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I'm in Newmarket Ontario. :) How do I mangle my name? Lina

- Hide quoted text -- Show quoted text - welcome....... sorry you qualify to join us i notice rogers is your ISP..... where in Canada are you?? oh...... you may want to mangle your name for news posts...... just a heads up I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night... ) I've been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I'm feeling really overwhelmed. I think I'll be hanging out here a lot.

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I'm in Newmarket Ontario. :) How do I mangle my name? Lina

Hi and welcome from Gatineau, QC. Usenet is a spam magnet. Add something removable to your address or get a throwaway account with Netscape or Hotmail or Yahoo. then just 'take out the garbage' to reply. Vicki

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I'm in Newmarket Ontario. :)

Ottawa here, Lina.  Welcome to the group. ;) mmm --  I do not receive mail here - please use mmm7atrogersdotcom  Books just wanna be FREE!  See what I mean at http://www.bookcrossing.com/friend/mmm7  "You cannot change what you are willing to tolerate."

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If you are using Outlook Express, Click on the Tools menu option, should be on the top line.  Choose Accounts, then click on the News tab.  Make sure the newsgroup name is highlighted (click on it if it is not) then click on Properties.  On the first page, you will see a line for Email address and a line for Reply-to.  I mangle (or munge) both of them.  And I also use a throw-away account for my newsgroup posting.  Yahoo will let you have more than one email account.  Usually at the bottom of your posts in your signature area, you tell people how to un-munge your address if they The reason for munging your address is some spammers have programs that search the messages in newsgroups looking for valid email addresses.  So you want to make sure that the ones they pick up that way don't work.  It isn't foolproof, some spammers are sophisticated enough to run the email addresses through a program to catch some of the common munging (such as saying JaneDoeATyahoo.com Cynthia

- Hide quoted text -- Show quoted text - I'm in Newmarket Ontario. :) How do I mangle my name? Lina

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I just wanted to say hi, and introduce myself. I was just diagnosed with Type II diabetes (last night... ) I've been thrown a lot of information in a short ammount of time. My diet has to completely change, and so do my exercise habits. I'm feeling really overwhelmed. I think I'll be hanging out here a lot.

Welcome to the group Lina. Jennifer will be along with her advice, please listen to her. I think this group has done more for my health than anything else. I learned more here and have found this group to be a great source of advice and wisdom. You will find that each of us differs a bit on what we do, and what you need to do is find out what works for you. Eat to your meter, as they say. It has worked for me. Take care and good luck. As always YMMV and this is JMO Jeanne Type 2  Diagnosed 05/28/02 189/164/120

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Thanks everyone. I changed it up so that you just have to remove WENCHESHATESPAM for it to work. :)

- Hide quoted text -- Show quoted text - If you are using Outlook Express, Click on the Tools menu option, should be on the top line.  Choose Accounts, then click on the News tab.  Make sure the newsgroup name is highlighted (click on it if it is not) then click on Properties.  On the first page, you will see a line for Email address and a line for Reply-to.  I mangle (or munge) both of them.  And I also use a throw-away account for my newsgroup posting. Yahoo will let you have more than one email account.  Usually at the bottom of your posts in your signature area, you tell people how to un-munge your address if they want to email you.  For example on mine, I would say "Remove shoes to reply". The reason for munging your address is some spammers have programs that search the messages in newsgroups looking for valid email addresses.  So you want to make sure that the ones they pick up that way don't work.  It isn't foolproof, some spammers are sophisticated enough to run the email addresses through a program to catch some of the common munging (such as saying JaneDoeATyahoo.com Cynthia I'm in Newmarket Ontario. :) How do I mangle my name? Lina

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-----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 I'm in Newmarket Ontario. :) How do I mangle my name?

In addition to what others suggested, you'll be more in compliance with Usenet standards if you also tack ".invalid" onto the end of the email preferable because technically it's a no-no to post with a "domain name" ".invalid" domain is set up so that *anything* within it is considered a real domain name.  Thus, adding .invalid to the end changes the address from naughty to acceptable without making it any easier for spammers to harvest. That being said, most people who are anti-spamming their addresses don't know about this, and most ISPs aren't enforcing the rules requiring a valid domain name, so you can readily get away with leaving out this step.  I'd still encourage you to do it, if only to be a "good citizen" of Usenet, and because it doesn't cost you anything more to do it. -----BEGIN PGP SIGNATURE----- Version: PGP 7.0.4 Comment: Public key at http://hawthorn.mystarband.net/f-pgp.txt iQA/AwUBPcHrJKbqL6lCLyfTEQJmtACdHetNwGKwx9ybYicIv7qpfkPn5M0Anjuo Djbj0Uzf6xqwl8IKyF4S/yYk =dKwj -----END PGP SIGNATURE----- -- "It is more uplifting to find the beauty, wonder, spirituality, and reverence in what we can see, than to imagine they only exist in what we                    [[ Type 2, diagnosed 2002-10-04 ]]

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That being said, most people who are anti-spamming their addresses don’t know about this, and most ISPs aren’t enforcing the rules requiring a valid domain name

AOL has a junk block option for newsgroups. It only adds the extra letters after the aol.com…..like in my email where it says nolard ;-) Wendy   Peace and Carrots Farm Vermont   http://www.homestead.com/peaceandcarrots/ http://www.heathershikinghiatus.homestead.com/

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Thanks for posting this.  I have been in IT for (mumble, mumble, lot of years) and never heard of the invalid tack-on.  I did know that if you munge you should (which I just realized that I do incorrectly myself).  Off to re-munge. Cynthia

– Hide quoted text — Show quoted text – —–BEGIN PGP SIGNED MESSAGE—– Hash: SHA1 I’m in Newmarket Ontario. :) How do I mangle my name? In addition to what others suggested, you’ll be more in compliance with Usenet standards if you also tack ".invalid" onto the end of the email preferable because technically it’s a no-no to post with a "domain name" ".invalid" domain is set up so that *anything* within it is considered a real domain name.  Thus, adding .invalid to the end changes the address from naughty to acceptable without making it any easier for spammers to harvest. That being said, most people who are anti-spamming their addresses don’t know about this, and most ISPs aren’t enforcing the rules requiring a valid domain name, so you can readily get away with leaving out this step.  I’d still encourage you to do it, if only to be a "good citizen" of Usenet, and because it doesn’t cost you anything more to do it. —–BEGIN PGP SIGNATURE—– Version: PGP 7.0.4 Comment: Public key at http://hawthorn.mystarband.net/f-pgp.txt iQA/AwUBPcHrJKbqL6lCLyfTEQJmtACdHetNwGKwx9ybYicIv7qpfkPn5M0Anjuo Djbj0Uzf6xqwl8IKyF4S/yYk =dKwj —–END PGP SIGNATURE—– — "It is more uplifting to find the beauty, wonder, spirituality, and reverence in what we can see, than to imagine they only exist in what we                    [[ Type 2, diagnosed 2002-10-04 ]]

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- Hide quoted text — Show quoted text – —–BEGIN PGP SIGNED MESSAGE—– Hash: SHA1 I’m in Newmarket Ontario. :) How do I mangle my name? In addition to what others suggested, you’ll be more in compliance with Usenet standards if you also tack ".invalid" onto the end of the email preferable because technically it’s a no-no to post with a "domain name" ".invalid" domain is set up so that *anything* within it is considered a real domain name.  Thus, adding .invalid to the end changes the address from naughty to acceptable without making it any easier for spammers to harvest. That being said, most people who are anti-spamming their addresses don’t know about this, and most ISPs aren’t enforcing the rules requiring a valid domain name, so you can readily get away with leaving out this step.  I’d still encourage you to do it, if only to be a "good citizen" of Usenet, and because it doesn’t cost you anything more to do it.

Cox communications ( 1,000,000 + subscribers) does and will not accept or deliver mail with an invalid ( no DNS  record ) domain. — Rob "Never ascribe to malice that which can be adequately explained by stupidity"

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Cox communications ( 1,000,000 + subscribers) does and will not accept or deliver mail with an invalid ( no DNS  record ) domain.

How about Usenet posts (what this thread is about)? — "It is more uplifting to find the beauty, wonder, spirituality, and reverence in what we can see, than to imagine they only exist in what we                    [[ Type 2, diagnosed 2002-10-04 ]]

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Cox communications ( 1,000,000 + subscribers) does and will not accept or deliver mail with an invalid ( no DNS  record ) domain. How about Usenet posts (what this thread is about)?

same thing — Rob "Never ascribe to malice that which can be adequately explained by stupidity"

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It’s not starch you need to watch its carbohydrates.

Starch and carbohydrates are the same thing. <snip — Type 2 http://www.redshift.com/~juliebove/

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writes: According to ADA materials on the subject, stress is indeed a contributor to elevated bg levels, and stress alone can create a hyperglycemic episode

I’m back down to a high (for me) but reasonably normal level right now. I got some bad news yesterday and I have been unable to keep my level down since then even though my diet, meds etc are exactly as usual. Debra

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Starch and carbohydrates are the same thing.

I think you have that backwards. All starch is a carbohydrate but not all carbohydrates are a starch. Milk, onions, carrots etc have carbs but I wouldn’t class them as a starch. Webster’s defines carbohydrate (taken right from the online dictionary) as any of various neutral compounds of carbon, hydrogen, and oxygen (as sugars, starches, and celluloses) most of which are formed by green plants and which constitute a major class of animal foods. So starch is just one of the forms of carbohydrates.   She stated she was not eating starchy foods yet listed cereal, milk and toast I think she thought of starches kind of like I do, as things like potatoes, noodles, rice. The kinds of stuff you can see the starch wash out of when you rinse them.  

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Greetings all.  My name is Gerry.  I have been a T2 diabetic for 7 years.  It started with a sudden weight loss and an uncontrolable thirst.  My wife, who is a T1, made an appointment for me to have a physical.  Within a week after my appointment the doctor called and told me to get in ASAP.  My B/G was over 400.  He put me on Glybride (1 pill in the morning) and told me to come back in a week.  To make a long story short, after 6 months, I was taking one pill in the morning and one at night, walking 2 miles a day and eating much better than I ever did in the past.  I even got my wife to walk with me in the evenings.  She just didn’t want to get up at 4:00AM to walk with me. Oh well… After a year or so, we began to get lazy about walking and finally quit altogether.  Too bad for us!!  We just were too tired after getting up at 5:00AM traveling 25 miles to and from work and working 8-10 hours a day.  I know it’s no excuse but that’s all we thought at the time. I finally got stablized on 1/2 pill in the morning and one pill at night.  During the past 6 years I’ve had ups and downs with my B/G.  I went through a whole year when it never got over 140 but that was 3 years ago.  Now I average between 100 and 155.  It’s a never-ending battle with diet and exercise.  I finally made my mind up and have decided to start walking again.  I know I’ll feel better and my B/G will benefit too. Well, that’s enough for now.  I’m glad to find this group and know that I will feel at home here. GerryB

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– Hide quoted text — Show quoted text – Starch and carbohydrates are the same thing. I think you have that backwards. All starch is a carbohydrate but not all carbohydrates are a starch. Milk, onions, carrots etc have carbs but I wouldn’t class them as a starch. Webster’s defines carbohydrate (taken right from the online dictionary) as any of various neutral compounds of carbon, hydrogen, and oxygen (as sugars, starches, and celluloses) most of which are formed by green plants and which constitute a major class of animal foods. So starch is just one of the forms of carbohydrates. She stated she was not eating starchy foods yet listed cereal, milk and toast I think she thought of starches kind of like I do, as things like potatoes, noodles, rice. The kinds of stuff you can see the starch wash out of when you rinse them.

In terms of diabetes, they are the same.  At least I think so.  Would you not call gravy a starch?  It contains flour or cornstarch.  And yet you wouldn’t see the starch wash out if you tried to wash it. — Type 2 http://www.redshift.com/~juliebove/

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Angie welcome to our group.  Unfortuntely we are a people that want things done yesterday  but things dont happen that way.  As you get in tune with your way of eating (seeing a dietician will definitely be a good idea) you will notice that your numbers will steadily decline We have a website where Jennifer has an article for Newbies.  I suggest you go to www.diabeticnet.net and read through her article and famiiarize yourself with us Any questions, pleae do not hesitate to ask.  We are here to advise and support you Loretta In tribute to the United States of America and the State of Israel, two bastions of strength in a world filled with strife and terrorism.

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Sorry, I disagree, with respect to the common, ordinary uses of the two terms.  Ask yourself the questions:  Are all starches carbohydrates?  I think we would agree the answer is, "yes".  Now ask, are all carbohydrates starches?  I think we would mostly want to say no to that.  That being the case, they are not the same thing. – Hide quoted text — Show quoted text – It’s not starch you need to watch its carbohydrates. Starch and carbohydrates are the same thing. <snip — Type 2 http://www.redshift.com/~juliebove/

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Welcome, Gerry! Richard – Hide quoted text — Show quoted text – Greetings all.  My name is Gerry.  I have been a T2 diabetic for 7 years.  It started with a sudden weight loss and an uncontrolable thirst.  My wife, who is a T1, made an appointment for me to have a physical.  Within a week after my appointment the doctor called and told me to get in ASAP.  My B/G was over 400.  He put me on Glybride (1 pill in the morning) and told me to come back in a week.  To make a long story short, after 6 months, I was taking one pill in the morning and one at night, walking 2 miles a day and eating much better than I ever did in the past.  I even got my wife to walk with me in the evenings.  She just didn’t want to get up at 4:00AM to walk with me. Oh well… After a year or so, we began to get lazy about walking and finally quit altogether.  Too bad for us!!  We just were too tired after getting up at 5:00AM traveling 25 miles to and from work and working 8-10 hours a day.  I know it’s no excuse but that’s all we thought at the time. I finally got stablized on 1/2 pill in the morning and one pill at night.  During the past 6 years I’ve had ups and downs with my B/G.  I went through a whole year when it never got over 140 but that was 3 years ago.  Now I average between 100 and 155.  It’s a never-ending battle with diet and exercise.  I finally made my mind up and have decided to start walking again.  I know I’ll feel better and my B/G will benefit too. Well, that’s enough for now.  I’m glad to find this group and know that I will feel at home here. GerryB

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- Hide quoted text — Show quoted text – Starch and carbohydrates are the same thing. I think you have that backwards. All starch is a carbohydrate but not all carbohydrates are a starch. Milk, onions, carrots etc have carbs but I wouldn’t class them as a starch. Webster’s defines carbohydrate (taken right from the online dictionary) as any of various neutral compounds of carbon, hydrogen, and oxygen (as sugars, starches, and celluloses) most of which are formed by green plants and which constitute a major class of animal foods. So starch is just one of the forms of carbohydrates. She stated she was not eating starchy foods yet listed cereal, milk and toast I think she thought of starches kind of like I do, as things like potatoes, noodles, rice. The kinds of stuff you can see the starch wash out of when you rinse them. In terms of diabetes, they are the same.  At least I think so.  Would you not call gravy a starch?  It contains flour or cornstarch.  And yet you wouldn’t see the starch wash out if you tried to wash it.

Huh?  Gravy is gravy, and one of its ingredients is a starchy carbohydrate.  It also may contain fat.  Is there anyone here who washes their gravy? R.

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Huh?  Gravy is gravy, and one of its ingredients is a starchy carbohydrate.  It also may contain fat.  Is there anyone here who washes their gravy? R.

Just off my shirt. Jim

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Well welcome Gerry.. We’re very glad you found us also. We also have a chatroom, your welcomed to join us in there also (software is in my tagline) — RK [T1 that was smarter then her previous Doctors!][dx'd 5/00][Lantus Lover w/Novolog] http://www.zerolimit.net/files/zl-mirc.exe (#diabeticnet chatroom software)

– Hide quoted text — Show quoted text – Greetings all.  My name is Gerry.  I have been a T2 diabetic for 7 years.  It started with a sudden weight loss and an uncontrolable thirst.  My wife, who is a T1, made an appointment for me to have a physical.  Within a week after my appointment the doctor called and told me to get in ASAP.  My B/G was over 400.  He put me on Glybride (1 pill in the morning) and told me to come back in a week.  To make a long story short, after 6 months, I was taking one pill in the morning and one at night, walking 2 miles a day and eating much better than I ever did in the past.  I even got my wife to walk with me in the evenings.  She just didn’t want to get up at 4:00AM to walk with me. Oh well… After a year or so, we began to get lazy about walking and finally quit altogether.  Too bad for us!!  We just were too tired after getting up at 5:00AM traveling 25 miles to and from work and working 8-10 hours a day.  I know it’s no excuse but that’s all we thought at the time. I finally got stablized on 1/2 pill in the morning and one pill at night.  During the past 6 years I’ve had ups and downs with my B/G.  I went through a whole year when it never got over 140 but that was 3 years ago.  Now I average between 100 and 155.  It’s a never-ending battle with diet and exercise.  I finally made my mind up and have decided to start walking again.  I know I’ll feel better and my B/G will benefit too. Well, that’s enough for now.  I’m glad to find this group and know that I will feel at home here. GerryB

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Hello all: and eating healthy foods. Nothing sweet!! or starchy.  I’ve started eating wheat toast (plain) (one per day) and this morning I had a bowl of Special K cereal w/ 2% milk.  I checked my sugar when I came in to work and it was 334.  I’ve called my dr. and told him what I’ve eaten and what my results were before and after.  I’m awaiting a phone call from him now. Needless to say, I feel LOUSY!!  No energy..restless, headaches, etc.  you know the routine. I’m glad to have found this newsgroup and hope to learn a lot from each of you.  Thank you for your time. Angie in North Carolina

Welcome Angie, sorry you have to join us, but you’ll get some good info here. Mainly you need to know what to eat and what not to eat, and that you need to get up and move your bod. You’ll find that for type 2s, morning carbs are the hardest to deal with (for most) YMMV (your mileage may vary).. I can’t tolerate cereal (or milk) myself, so I either have Oatmeal (the fully cooked type) with a small amount of 2% milk, or eggs and bacon or sausage. I eat more eggs now than I ever had and my cholesteral is not affected apparently. Learn to use your meter. When learning, it’s best to know what your bg is fasting (1st thing in the morning), before a meal, and 2 hrs PP (post-prandial). When you get those numbers to where you want them by knowing what certain foods do to you, then you can slack off a bit. Good luck, keep reading and you’ll get it. — Dave – 1:25:21 PM T2 – 8/98 Glucophage, U & H A 4th generation Diabetic –   Davors Daily Aphorism: I do a lot of thinking in the john. Says a lot for my thoughts. — —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 80,000 Newsgroups – 16 Different Servers! =—–

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Hi Angie.  I was diagnosed on Oct 24th of this year myself…I found out I cant handle the milk and sugar route in morns..so its eggs or fish or anything high protein for me in morns..then i get some "good" carbs at lunch either a chef salad  with basalmic vinegar and oil dressing or something along that line for lunch.  with a light snack mid morn and another light snack mid afternoon and it doesnt seem to affect my bg to bad one way or other..plus keeps me from starving til supper…Im on Glucophage 500 2x a day and I really need the snacks…if I dont it really drops my BG low fast especially if I go work out.  By the way…I think Collards are ok…and i use Texas Petes on my eggs in morn. hehehe.  For those of you not from North Carolina ..its like tobasco sauce thats been blessed by angels.. hehe give me a holler if  you need some hints that have helped me although you can never know to much about this condition and what affects me may not work for you..but its worth a shot.. )

– Hide quoted text — Show quoted text – Hello all: My name is Angie.  I was diagnosed with T2 diabetes this past Monday.  I haven’t been bothered with this since 1993 when I was carrying my son. (gestational diabetes).  After delivery, it went away and I wasnt bothered anymore…or so I thought.  I’ve recently found out that diabetes runs in my family.  I am an overweight person….when I went to my primary care dr. on Tuesday..I had lost 8 pounds (I havent been on a diet).  Anyway, my blood sugar on Monday (initially went to dr. for kidney infection)…was 295. They decided to check it because they found sugar in my urine. Anyway, my dr. put me on Glucophage XR once a day (for the first week) and then I go to 2 a day.  I have been checking my blood sugar since yesterday and it’s been ranging from 159-334.  I’ve been drinking nothing but water and eating healthy foods. Nothing sweet!! or starchy.  I’ve started eating wheat toast (plain) (one per day) and this morning I had a bowl of Special K cereal w/ 2% milk.  I checked my sugar when I came in to work and it was 334.  I’ve called my dr. and told him what I’ve eaten and what my results were before and after.  I’m awaiting a phone call from him now. Needless to say, I feel LOUSY!!  No energy..restless, headaches, etc.  you know the routine. I’m glad to have found this newsgroup and hope to learn a lot from each of you.  Thank you for your time. Angie in North Carolina

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Hello all: My name is Angie.  I was diagnosed with T2 diabetes this past Monday.  I haven’t been bothered with this since 1993 when I was carrying my son. (gestational diabetes).  After delivery, it went away and I wasnt bothered anymore…or so I thought.  I’ve recently found out that diabetes runs in my family.  I am an overweight person….when I went to my primary care dr. on Tuesday..I had lost 8 pounds (I havent been on a diet).  Anyway, my blood sugar on Monday (initially went to dr. for kidney infection)…was 295. They decided to check it because they found sugar in my urine. Anyway, my dr. put me on Glucophage XR once a day (for the first week) and then I go to 2 a day.

Sorry to hear of your diagnosis.  I have been checking my blood sugar since yesterday and it’s been ranging from 159-334.

Those numbers are still high, but it takes a couple of weeks for the meds to kick in. I’ve been drinking nothing but water and eating healthy foods. Nothing sweet!! or starchy.  I’ve started eating wheat toast (plain) (one per day) and this morning I had a bowl of Special K cereal w/ 2% milk.

Uh…  I am confused.  You just said nothing starchy and then you said you are eating toast and Special K.  Both are starches.  As is milk!  If you haven’t seen a dietician, you need to do it ASAP.  He or she will devise an eating plan for you.  You may have had one with the GD, but the diet you need to eat now won’t be quite the same because you are no longer pregnant. And things have changed since then in the way they think diabetics should eat.  Sugar is no longer a no-no and can be worked into the diet occasionally.  Some studies have even shown that it is better for diabetics to eat some sugar in limited amounts. I checked my sugar when I came in to work and it was 334.  I’ve called my dr. and told him what I’ve eaten and what my results were before and after.  I’m awaiting a phone call from him now. Needless to say, I feel LOUSY!!  No energy..restless, headaches, etc.  you know the routine.

Could be that you need a larger dose of meds or something else on top of it. Hope you feel better soon! I’m glad to have found this newsgroup and hope to learn a lot from each of you.  Thank you for your time.

Stick around.  You’ll find lots of good information here. — Type 2 http://www.redshift.com/~juliebove/

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Hi Angie… Welcome. Sorry you had to join. Since you were just dx’d Monday, don’t look for big changes yet.  It does take a week or two to see consistent normal readings.  You’re doing fine. Here’s the advice I give all newbies: Sounds like you’re planning a move to take control of your diabetes… good for you. There is so much to absorb… you don’t have to rush into anything.  Begin by using your best weapon in this war, your meter.   The most important thing you can do to learn about yourself and diabetes is test test  test. What you are looking to discover is how different foods affect you.  As I’m sure you’ve read, carbohydrates (sugars, wheat, rice… the things our Grandmas called "starches") raise blood sugars the most rapidly.  Protein and fat do raise them, but not as high and much more slowly… so if you’re a T2, generally the insulin your body still makes may take care of the rise. You might want to try some  experiments. First:  Day one:  eat whatever you’ve been currently eating… but write it down. Test yourself at the following times: Upon waking (fasting) 1 hour after each meal 2 hours after each meal At bedtime That means 8 x for that day.  What you will discover by this is how long after a meal your highest reading comes… and how fast you return to "normal".  Also, you may see that a meal that included bread, fruit or other carbs gives you a higher reading. Then for the next few days, try to curb your carbs.  Eliminate breads, cereals, rices, beans, any wheat products, potato, corn, fruit… get all your carbs from veggies.  Test at the same schedule above. If you try this for a few days, you may find some pretty damn good readings.  It’s worth a few days to discover. That’s the thing about this disease… we share much in common… we need to follow certain guidelines… but in the end, our bodies dictate our treatment and our success. The closer we get to non-diabetic numbers, the greater chance we have of avoiding horrible complications.  The key here is AIM… I know that everyone is at a different point in their disease… and it is progressive. But, if we aim for the best numbers and do our best, that’s all we can do. Here’s my opinion on what numbers to aim for, they are non-diabetic numbers. FBG                         under 110 One hour after meals       under 140 Two hours after meals     under 120 Recent studies have indicated that the most important numbers are your "after meal" numbers. They may be the most indicative of future complications, especially heart problems. Listen to your doctor, but you are the leader of your diabetic care team.  While his /her advice is learned, it is not absolute.   You will end up knowing much more about your body and how it’s handling diabetes than your doctor will.   The meter is our best weapon. Just remember, we’re not in a race or a competition with anyone but ourselves… Play around with your food plan… TEST TEST TEST.  Learn what foods cause spikes, what foods cause cravings… Use your body as a science experiment. Best of luck! Jennifer – Hide quoted text — Show quoted text – Hello all: My name is Angie.  I was diagnosed with T2 diabetes this past Monday.  I haven’t been bothered with this since 1993 when I was carrying my son. (gestational diabetes).  After delivery, it went away and I wasnt bothered anymore…or so I thought.  I’ve recently found out that diabetes runs in my family.  I am an overweight person….when I went to my primary care dr. on Tuesday..I had lost 8 pounds (I havent been on a diet).  Anyway, my blood sugar on Monday (initially went to dr. for kidney infection)…was 295. They decided to check it because they found sugar in my urine. Anyway, my dr. put me on Glucophage XR once a day (for the first week) and then I go to 2 a day.  I have been checking my blood sugar since yesterday and it’s been ranging from 159-334.  I’ve been drinking nothing but water and eating healthy foods. Nothing sweet!! or starchy.  I’ve started eating wheat toast (plain) (one per day) and this morning I had a bowl of Special K cereal w/ 2% milk.  I checked my sugar when I came in to work and it was 334.  I’ve called my dr. and told him what I’ve eaten and what my results were before and after.  I’m awaiting a phone call from him now. Needless to say, I feel LOUSY!!  No energy..restless, headaches, etc.  you know the routine. I’m glad to have found this newsgroup and hope to learn a lot from each of you.  Thank you for your time. Angie in North Carolina

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- Hide quoted text — Show quoted text – Hello all: My name is Angie.  I was diagnosed with T2 diabetes this past Monday.  I haven’t been bothered with this since 1993 when I was carrying my son. (gestational diabetes).  After delivery, it went away and I wasnt bothered anymore…or so I thought.  I’ve recently found out that diabetes runs in my family.  I am an overweight person….when I went to my primary care dr. on Tuesday..I had lost 8 pounds (I havent been on a diet).  Anyway, my blood sugar on Monday (initially went to dr. for kidney infection)…was 295. They decided to check it because they found sugar in my urine. Anyway, my dr. put me on Glucophage XR once a day (for the first week) and then I go to 2 a day.  I have been checking my blood sugar since yesterday and it’s been ranging from 159-334.  I’ve been drinking nothing but water and eating healthy foods. Nothing sweet!! or starchy.  I’ve started eating wheat toast (plain) (one per day) and this morning I had a bowl of Special K cereal w/ 2% milk.  I checked my sugar when I came in to work and it was 334.  I’ve called my dr. and told him what I’ve eaten and what my results were before and after.  I’m awaiting a phone call from him now. Needless to say, I feel LOUSY!!  No energy..restless, headaches, etc.  you know the routine. I’m glad to have found this newsgroup and hope to learn a lot from each of you.  Thank you for your time. Angie in North Carolina

  We ration our carbohydrates and try to avoid "fast" carbs. . . carbs which digest rapidly and make our blood sugar (bG) spike. Milk, many breads, most cereals contain fast carbs.   The rule of thumb is ‘how fast they digest’.  Lumpy, chunky   really chewy foods tend to digest slowly.  Low gluten breads,  common breakfast cereals, and of course dissolved carbo like the milk sugar in milk, digest fast and spike bG.  Take a look  at the Mendosa site and its discussion of Glycemic Index for a  guide to help you get started: http://www.mendosa.com/gilists.htm  The U.S. govt site will talk about total carbs in many foods.   We also ration total carbs, no matter how "slow" they may be http://www.nal.usda.gov/fnic/cgi-bin/nut_search.pl  Newly diagnosed diabetics often suffer from a problem called "Glucose Toxicity".  The high bG they have had in the  weeks before diagnosis fouls up their normal glucose metabolisms.   If they can get into the normal range for a while,  the condition goes away and they have their normal (but diabetic  and thus impaired) glucose metabolism.  I "forced" mine down by just not eating anything for 5 days.  I  don’t recommend it.  If you can’t get yours down by controlling  your carbs, keep pestering your doc.  He can temporarily put  you on stronger meds to "force" you down.  Keep coming back and reading the stuff on the two diabetes newsgroups.  Reading these posts every night has resulted in  significant improvements in my health and quality of life.  Regards Old Al (T1 since ‘94, 38 units H + U via 4 injections daily)   A retired engineer who shares his experiences

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Angie.. Welcome to our humble home here on the net.. I’m sorry you’ve had to join us.. but i’m sure you’ll see we’re all in the same boat.. I’m sure theres many that can relate to how lousy you feel right about now, but once your in control you’ll feel 100% better, just takes time to get the bod back to normal (well semi-normal). Feel free to come and visit us in the Chatroom also, we have many different topics nightly.. Nothing is moderated and its a come as you are type party. :-) You can grab the software to connect to us in my tagline. But sounds as though your on the right track in eating right.. and talking with your doc, please keep us informed as to how your doing.. and if you have any questions, we’ll do our best to try to help you out. — RK [T1 that was smarter then her previous Doctors!][dx'd 5/00][Lantus Lover w/Novolog] http://www.zerolimit.net/files/zl-mirc.exe (#diabeticnet chatroom software)

– Hide quoted text — Show quoted text – Hello all: My name is Angie.  I was diagnosed with T2 diabetes this past Monday.  I haven’t been bothered with this since 1993 when I was carrying my son. (gestational diabetes).  After delivery, it went away and I wasnt bothered anymore…or so I thought.  I’ve recently found out that diabetes runs in my family.  I am an overweight person….when I went to my primary care dr. on Tuesday..I had lost 8 pounds (I havent been on a diet).  Anyway, my blood sugar on Monday (initially went to dr. for kidney infection)…was 295. They decided to check it because they found sugar in my urine. Anyway, my dr. put me on Glucophage XR once a day (for the first week) and then I go to 2 a day.  I have been checking my blood sugar since yesterday and it’s been ranging from 159-334.  I’ve been drinking nothing but water and eating healthy foods. Nothing sweet!! or starchy.  I’ve started eating wheat toast (plain) (one per day) and this morning I had a bowl of Special K cereal w/ 2% milk.  I checked my sugar when I came in to work and it was 334.  I’ve called my dr. and told him what I’ve eaten and what my results were before and after.  I’m awaiting a phone call from him now. Needless to say, I feel LOUSY!!  No energy..restless, headaches, etc.  you know the routine. I’m glad to have found this newsgroup and hope to learn a lot from each of you.  Thank you for your time. Angie in North Carolina

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Angie, sorry to hear of your problem. It does take time to get your BG (blood glucose) down. I had a major problem getting mine under control and did not do so until after seeing a registered dietitian and finding out just what I should and should no eat. After that visit I started keeping track of everything I eat and drink and live within the limits set by the dietitian. I can’t stress enough the importance of nutritional control (diet). Don’t get discouraged thing will get better with time and careful control. dean

– Hide quoted text — Show quoted text – Hello all: My name is Angie.  I was diagnosed with T2 diabetes this past Monday.  I haven’t been bothered with this since 1993 when I was carrying my son. (gestational diabetes).  After delivery, it went away and I wasnt bothered anymore…or so I thought.  I’ve recently found out that diabetes runs in my family.  I am an overweight person….when I went to my primary care dr. on Tuesday..I had lost 8 pounds (I havent been on a diet).  Anyway, my blood sugar on Monday (initially went to dr. for kidney infection)…was 295. They decided to check it because they found sugar in my urine. Anyway, my dr. put me on Glucophage XR once a day (for the first week) and then I go to 2 a day.  I have been checking my blood sugar since yesterday and it’s been ranging from 159-334.  I’ve been drinking nothing but water and eating healthy foods. Nothing sweet!! or starchy.  I’ve started eating wheat toast (plain) (one per day) and this morning I had a bowl of Special K cereal w/ 2% milk.  I checked my sugar when I came in to work and it was 334.  I’ve called my dr. and told him what I’ve eaten and what my results were before and after.  I’m awaiting a phone call from him now. Needless to say, I feel LOUSY!!  No energy..restless, headaches, etc.  you know the routine. I’m glad to have found this newsgroup and hope to learn a lot from each of you.  Thank you for your time. Angie in North Carolina

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It’s not starch you need to watch its carbohydrates.  Milk, cereal, bread are all full of carbs.  You either need to do a lot of reading or a visit to a diabetes educator. They teach you about diabetes, the medicines you take and the right way to eat etc. My Doctor gave me a choice of attending the classes or reading on my own. I’m a reader so I choose to research it myself.  With a lot of help from newsgroups, mailing lists and web pages I learned a lot.  Then I found a book just for the first year after diagnosis and that has been my guide every since. My BG now runs between 80 and 120 most of the time. I have recently had a couple of spikes around 150 but I think they are due to a family crisis we are having now.  In fact currently I am trying to learn more about the effect of stress on BG levels.   Debra

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It’s not starch you need to watch its carbohydrates.  Milk, cereal, bread are all full of carbs.  You either need to do a lot of reading or a visit to a diabetes educator. They teach you about diabetes, the medicines you take and the right way to eat etc. My Doctor gave me a choice of attending the classes or reading on my own. I’m a reader so I choose to research it myself.  With a lot of help from newsgroups, mailing lists and web pages I learned a lot.  Then I found a book just for the first year after diagnosis and that has been my guide every since. My BG now runs between 80 and 120 most of the time. I have recently had a couple of spikes around 150 but I think they are due to a family crisis we are having now.  In fact currently I am trying to learn more about the effect of stress on BG levels. Debra

According to ADA materials on the subject, stress is indeed a contributor to elevated bg levels, and stress alone can create a hyperglycemic episode.  Most of us are aware of the body’s "flight or fight" response to the stress of a perceived threat.  It is not just adrenaline that gets pumped up … it is also bg levels so that you have the energy to fight or flee!  And of course, we diabetic types can’t summon the additional spike of insulin so that we can metabolize that jolt of energy. So, in addition to diet, exercise and medication, stress control is the fourth factor in diabetes management (and one that tends to get overlooked, imnsho). R.

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Angie, welcome to the club no one wants to be a member of! I am t2, diagnosed March 27, 2001. If your experience is like mine, you will probably find that it will take several weeks to bring your blood glucose levels down, and you want them to come down slowly as your body has become accustomed to the higher levels.  Bringing them down too quickly is not good for you … you can experience symptoms of hypoglycemia. I found out fairly quickly that a bowl of cereal in the morning is no longer a part of my diet!  Cereal is typically pretty highly processed carbohydrate, and the milk has sugar in it (lactose).  So I gave it up. Your mileage may vary. The other symptoms that you describe all come with the territory, and will likely go away as your bring your bg levels into control.  Jennifer will post some information for you about testing and diet, soon, I betcha.  Other than that, just ask questions … there are lots of folks here who have good answers! Richard – Hide quoted text — Show quoted text – Hello all: My name is Angie.  I was diagnosed with T2 diabetes this past Monday.  I haven’t been bothered with this since 1993 when I was carrying my son. (gestational diabetes).  After delivery, it went away and I wasnt bothered anymore…or so I thought.  I’ve recently found out that diabetes runs in my family.  I am an overweight person….when I went to my primary care dr. on Tuesday..I had lost 8 pounds (I havent been on a diet).  Anyway, my blood sugar on Monday (initially went to dr. for kidney infection)…was 295. They decided to check it because they found sugar in my urine. Anyway, my dr. put me on Glucophage XR once a day (for the first week) and then I go to 2 a day.  I have been checking my blood sugar since yesterday and it’s been ranging from 159-334.  I’ve been drinking nothing but water and eating healthy foods. Nothing sweet!! or starchy.  I’ve started eating wheat toast (plain) (one per day) and this morning I had a bowl of Special K cereal w/ 2% milk.  I checked my sugar when I came in to work and it was 334.  I’ve called my dr. and told him what I’ve eaten and what my results were before and after.  I’m awaiting a phone call from him now. Needless to say, I feel LOUSY!!  No energy..restless, headaches, etc.  you know the routine. I’m glad to have found this newsgroup and hope to learn a lot from each of you.  Thank you for your time. Angie in North Carolina

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Hello all: My name is Angie.  I was diagnosed with T2 diabetes this past Monday.  I haven’t been bothered with this since 1993 when I was carrying my son. (gestational diabetes).  After delivery, it went away and I wasnt bothered anymore…or so I thought.  I’ve recently found out that diabetes runs in my family.  I am an overweight person….when I went to my primary care dr. on Tuesday..I had lost 8 pounds (I havent been on a diet).  Anyway, my blood sugar on Monday (initially went to dr. for kidney infection)…was 295. They decided to check it because they found sugar in my urine. Anyway, my dr. put me on Glucophage XR once a day (for the first week) and then I go to 2 a day.  I have been checking my blood sugar since yesterday and it’s been ranging from 159-334.  I’ve been drinking nothing but water and eating healthy foods. Nothing sweet!! or starchy.  I’ve started eating wheat toast (plain) (one per day) and this morning I had a bowl of Special K cereal w/ 2% milk.  I checked my sugar when I came in to work and it was 334.  I’ve called my dr. and told him what I’ve eaten and what my results were before and after.  I’m awaiting a phone call from him now. Needless to say, I feel LOUSY!!  No energy..restless, headaches, etc.  you know the routine. I’m glad to have found this newsgroup and hope to learn a lot from each of you.  Thank you for your time. Angie in North Carolina

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Hi, I am new here.  I was diagnosed in July of 1993, shortly after my son was born.  I was told I had gestational diabetes, but after my reading were normal for a few weeks, the doctors changed their minds and said I was fine and could stop testing.  My labor was induced two weeks early and a healty boy was born weighing in at 8 pounds 6 ounces.  In July I was admitted to the Intensive Care Unit with a reading of 550.  Now I take insulin twice a day.I now have 3 children.  My 6 year old son and 2 girls.  3 and 4 weeks.
I am intested to talk to you all and share information.
Kim    -**** Posted from RemarQ, http://www.remarq.com/?b ****-  Real Discussions for Real People

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Hi, I am new here.  I was diagnosed in July of 1993, shortly after my son was born.  I was told I had gestational diabetes, but after my reading were normal for a few weeks, the doctors changed their minds and said I was fine and could stop testing.  My labor was induced two weeks early and a healty boy was born weighing in at 8 pounds 6 ounces.  In July I was admitted to the Intensive Care Unit with a reading of 550.  Now I take insulin twice a day.I now have 3 children.  My 6 year old son and 2 girls.  3 and 4 weeks. I am intested to talk to you all and share information. Kim

Hi Kim! I am glad you found our newsgroup.  I’m just sorry you need it.  Besides your insulin, have you changed your eating patterns or exercise?  (I guess you get pretty much exercise anyway with three small kids!) All the best to you. Jude —         Crouch Enterprises – Telecom, Internet & Unix Consulting       Oak Park, IL  708-848-0134  URL: http://www.pobox.com/~jcrouch

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Jude,
Yes, I have changed my eating habits (although I do cheat from time to time), but the excercise is something I need to get motivated to do more.  I am interested in the pump.  Anyone have any yeahs or nay about it??
Kim    -**** Posted from RemarQ, http://www.remarq.com/?b ****-  Real Discussions for Real People

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Do intensive excercise about half an hour a day (if you can – see your doctor first), or even just go for a brisk half hour walk. It has quite a dramatic effect on bg, lowering it both immdeiately and in the long term. It is also beneficial for your heart and general well-being. Hemyd Australia – Hide quoted text — Show quoted text – Jude, Yes, I have changed my eating habits (although I do cheat from time to time), but the excercise is something I need to get motivated to do more.  I am interested in the pump.  Anyone have any yeahs or nay about it?? Kim    -**** Posted from RemarQ, http://www.remarq.com/?b ****-  Real Discussions for Real People

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Hi there Im new here, but diabetic for many years. Im concerned about diabetic neuropathy. Ive read lots of articles on it, but I’d like to here real life experience. thanks sunny

Response:

Hi there Im new here, but diabetic for many years. Im concerned about diabetic neuropathy. Ive read lots of articles on it, but I’d like to here real life experience. thanks sunny

Hi, Sunni12.  I’m a type 1.5 (losing my insulin making ability slowly) currently taking Neurontin (gabapentin) for my neuropathy.  I have sometimes debilitating pain in both feet/ankles/legs.  I still have sensations and I am hopeful that these sensations signal a healing process; but it may be years before I know for sure. Two books I found out about via this group are: "The Uncomplicated Guide to Diabetes Complications" (ISBN 0-945448-87-2) and "Numb Toes and Aching Soles: Coping with Peripheral Neuropathy" (ISBN 0-9671107-1-8).  Any librarian can help you find them with those ISBN numbers and any Web search engine can help you find them on the Net. For my most recent "real life experience" see an earlier post (today) of mine.  Ouchies! D "anything" J "specific" F "you wanna know?" — "There has been some talk about you having an attitude problem. I’ve asked you to be here, in order to remedy this situation. Do you have any suggestions?" ‘don’t listen to idiots.’                        -kevbob on t.b

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Hi Sunny, and welcome. I have had diabetes now for nine years. I take insulin to help control the BG’s. About a year ago I started getting a "sun burn" type of feeling in my legs. I ignored it for about five months and then started getting very sharp shooting pains in my feet, but only at night while trying to go to sleep. Needless to say my sleeping became very little. I went to my Endo, and he put me on Elavil for a few weeks. It seemed to help just a little. He then referred me to a Neurologist. The Neurologist put me on Neurontin for the "sun burn" and Vicodin ES for the feet. This combination of drugs has helped greatly. I hope this information is helpful. Good luck. Bob

– Hide quoted text — Show quoted text – Hi there Im new here, but diabetic for many years. Im concerned about diabetic neuropathy. Ive read lots of articles on it, but I’d like to here real life experience. thanks sunny

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Hey, not to butt in or anything, but what’s with this D, J, F, stuff?  Are you just waiting for someone to ask or is this a trademark?  Not complaining, just wondering. Bonita

– Hide quoted text — Show quoted text – Hi there Im new here, but diabetic for many years. Im concerned about diabetic neuropathy. Ive read lots of articles on it, but I’d like to here real life experience. thanks sunny Hi, Sunni12.  I’m a type 1.5 (losing my insulin making ability slowly) currently taking Neurontin (gabapentin) for my neuropathy.  I have sometimes debilitating pain in both feet/ankles/legs.  I still have sensations and I am hopeful that these sensations signal a healing process; but it may be years before I know for sure. Two books I found out about via this group are: "The Uncomplicated Guide to Diabetes Complications" (ISBN 0-945448-87-2) and "Numb Toes and Aching Soles: Coping with Peripheral Neuropathy" (ISBN 0-9671107-1-8).  Any librarian can help you find them with those ISBN numbers and any Web search engine can help you find them on the Net. For my most recent "real life experience" see an earlier post (today) of mine.  Ouchies! D "anything" J "specific" F "you wanna know?" — "There has been some talk about you having an attitude problem. I’ve asked you to be here, in order to remedy this situation. Do you have any suggestions?" ‘don’t listen to idiots.’                        -kevbob on t.b

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BOB I read your post with interest about the medication elavil.  In l979 I was given elavil for depressioln and it is a mood elevator.  I dint think that it was even still on the market with the advent of all new anti depressant drugs.  It is like out of the dark ages. but if it works for you I guess a good drug is a good drug. Enjoy your bialys from your inlaws.  I dont know what you mean the ones in LA are different. Loretta

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Hi there Im new here, but diabetic for many years. Im concerned about diabetic neuropathy. Ive read lots of articles on it, but I’d like to here real life experience. thanks sunny

Hi Sunny,  Welcome aboard!! I don’t know if I can help you, but it would help the rest of the group help you if we knew more specifics. How long have you been Diabetic? t1 or2? What meds? Do you monitor your BGs and what kind of control do you have? What sort of symptoms of neuropothy are you getting? I know this makes me sound nosey, but I believe that the more we know, the more we can discuss and answer any questions you may have. You wil find that the people here are some of the friendliest and most helpful people around usenet. Again, welcome. — *Wolf* (Too Sweet For My Own Good) Before you buy.

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 And it’s probably not carpal tunnel, that doesn’t happen symetrically.  It’s neuropathy.  I’ve got it too.

REALLY???  They’ve been telling me for several years now that I have carpal tunnel syndrome in both wrists.  (and remember, I’m still just IGT, not officially diabetic).  I haven’t made any moves toward surgery.  I’ve got braces I sleep in when numbness is really bothering me.  I’ll have problems occasionally when using a fork or chopsticks, and occasionally when "keyboarding" for a long time, but the primary time they bother me is at night…I wake up with my entire hand numb… I’m glad you are doing some exercise.  I just want you to understand that bicycling is pretty passive most of the time.  You might do better with twenty minutes of walking than 30 cycling.  I could do hours of casual cycling without a sweat.  And I don’t exercise that much.  I’ll talk a bit more about walking later in the week.

Jude, are you meaning ANY bicycling?  Or primarily outside biking where one peddles for a while and coasts for a while?  I know that I sweat a lot when riding my stationary bike for half an hour.  In fact, I’ve had a fan set up so that I can have it blowing on me and cooling me as I "peddle my ass off."  Granted, it’s NOT weight bearing activity because I’m not moving my body along…however, with the adjustable load, I can increase my workout without having to increase the time it takes. Now…walking has the definite advantage of being something one can do virtually anywhere…when traveling, one CAN walk the halls of the hotel if nothing else.  My biggest problem with walking (other than the constraints weather sometimes places on it) is that about the time I get to feeling good about getting out and walking and am doing it regularly, I manage to find an irregular place in the pavement and sprain my ankle, which then puts me on the sidelines for several weeks.  On my stationary bike, even if I’ve sprained my ankle, I can be back to biking within a couple of days, generally. HOWEVER, to use a stationary bike effectively, one has to get a GOOD bike that has a smooth enough ride that it doesn’t CAUSE knee problems. I have a Tunturi that I love (well…as much as one can love ANY exercise equipment).  My brother has a Schwinn Air-Dyne that gives his arms a workout as well as his legs and has the added benefit of providing its own breeze!  I don’t how often his bike has been put in the background and become "a clothes hanger."  That’s happened to mine a few times…notably in the last 6 years when I was away from home more than I was home, but I’ve NEVER considered getting rid of it and have "rolled it over" [the odometer] once and am on the way to a second time…it’s at about 2500 now.   Carol P. <—getting back into the cycling again…

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 And it’s probably not carpal tunnel, that doesn’t happen symetrically.  It’s neuropathy.  I’ve got it too. REALLY???  They’ve been telling me for several years now that I have carpal tunnel syndrome in both wrists.  (and remember, I’m still just IGT, not officially diabetic).  I haven’t made any moves toward surgery.  I’ve got braces I sleep in when numbness is really bothering me.  I’ll have problems occasionally when using a fork or chopsticks, and occasionally when "keyboarding" for a long time, but the primary time they bother me is at night…I wake up with my entire hand numb…

I missed that one the first time through…I have a friend at work who’s got carpal tunnel in both wrists. She just had surgery on her right wrist a few months ago, which has resulted in great improvement, and will have surgery on the other hand later on. She’s most definitely *not* diabetic (when she was hospitalized a few years ago with a massive infection, the hospital staff kept testing her, because they couldn’t believe she wasn’t; despite the infection, her blood sugar was totally within normal range). — Alice F posting from a new account

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- Hide quoted text — Show quoted text – Hi there Im new here, but diabetic for many years. Im concerned about diabetic neuropathy. Ive read lots of articles on it, but I’d like to here real life experience. thanks sunny Hi Sunny,  Welcome aboard!! I don’t know if I can help you, but it would help the rest of the group help you if we knew more specifics. How long have you been Diabetic? t1 or2? What meds? Do you monitor your BGs and what kind of control do you have? What sort of symptoms of neuropothy are you getting? I know this makes me sound nosey, but I believe that the more we know, the more we can discuss and answer any questions you may have. You wil find that the people here are some of the friendliest and most helpful people around usenet. Again, welcome. — *Wolf*

Thanks for the welcome, and I dont think you are at all nosey. I’m type 2, and have been diagnosed for about 4 years now. The 1st year I did really well controlling it with diet and exercise. I lost 70 lbs, and my BG stayed very steady between 100-110. Then life hit some major bumps and I ignored the diabetes completly including gaining back most of the weight. Before anyone yells at me, I have just started being good again. I’m biking 30 minutes per day, and counting the carbs. I will start checking the glucose as soon as I get new batteries for my monitor. Anyway, Im having alot of pain and numbness in my feet, and joints. Im seeing an orthopedic and neurologists. So far, I know I have carpal tunnel in both wrists. I’m concerned that letting the diabetes go for a couple of years has caused diabetic neuropathy. I cant go back and change anything, but Im trying to take care of me now. (I have also asked hubby to stop bringing me home M&M’s) -sunny

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Thanks for the welcome, and I dont think you are at all nosey. I’m type 2, and have been diagnosed for about 4 years now. The 1st year I did really well controlling it with diet and exercise. I lost 70 lbs, and my BG stayed very steady between 100-110. Then life hit some major bumps and I ignored the diabetes completly including gaining back most of the weight.

You learned that you can’t do that again?  You can have a lot of years ahead of you, but you can’t back-slide. Before anyone yells at me, I have just started being good again. I’m biking 30 minutes per day, and counting the carbs. I will start checking the glucose as soon as I get new batteries for my monitor.

Call the meter rep and tell him/her that you need batteries. Anyway, Im having alot of pain and numbness in my feet, and joints. Im seeing an orthopedic and neurologists. So far, I know I have carpal tunnel in both wrists. I’m concerned that letting the diabetes go for a couple of years has caused diabetic neuropathy.

Yep.  That’s the bad news.  And it’s probably not carpal tunnel, that doesn’t happen symetrically.  It’s neuropathy.  I’ve got it too. I cant go back and change anything, but Im trying to take care of me now. (I have also asked hubby to stop bringing me home M&M’s)

You almost have to start from the beginning.  Testing so that you know how *each* meal effects you.  Analyzing your bG readings in relation to the ingredients in your meal.  Keeping a journal so that you can see your progress and your failures. If you are motivated now, don’t delay.  You’ll need those batteries and you’ll have to buy strips to get this working again.  It is worth the money, so beg, borrow or steal to get them.  *Everything* else is more expensive both monetarily and health-wise. I’m glad you are doing some exercise.  I just want you to understand that bicycling is pretty passive most of the time.  You might do better with twenty minutes of walking than 30 cycling.  I could do hours of casual cycling without a sweat.  And I don’t exercise that much.  I’ll talk a bit more about walking later in the week. All my best to you, don’t get discouraged.  As long as you are trying you will succeed.  It will be a bit more difficult now as you have those complications. Jude —                  - Coming Soon –  BestOrgs.NET         Oak Park, IL  708-848-0134  URL: http://www.pobox.com/~jcrouch

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Thanks for the welcome, and I dont think you are at all nosey. I’m type 2, and have been diagnosed for about 4 years now. I will start checking the glucose as soon as I get new batteries for my monitor. -sunny

have a 4 yr old monitor and the batteries are gonners…… bet your test strips are also out of date so, flip your meter over….. look for the 1-800 number and call your meter rep… your ultimate goal, replacement strips, new batteries and perhaps a new meter?…… at no cost!….. free is best been with our reps, and our sweet nature! — k t1 13 yr

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 And it’s probably not carpal tunnel, that doesn’t happen symetrically.  It’s neuropathy.  I’ve got it too. REALLY???  They’ve been telling me for several years now that I have carpal tunnel syndrome in both wrists.  (and remember, I’m still just IGT, not officially diabetic).  I haven’t made any moves toward surgery.  I’ve got braces I sleep in when numbness is really bothering me.  I’ll have problems occasionally when using a fork or chopsticks, and occasionally when "keyboarding" for a long time, but the primary time they bother me is at night…I wake up with my entire hand numb…

Carpal tunnel is from repetitive motions.  Generally it is *not* symetric, since we do things more with one hand than the other, such as using the mouse with a keyboard.  Have the braces helped?  I also have big problems at night, unless I sleep in my chair, the feelings in my hands, shoulders and legs wake me up.  I have to toss every fifteen minutes or so.  This is all from not being diagnosed early enough, I am sure. I’m glad you are doing some exercise.  I just want you to understand that bicycling is pretty passive most of the time.  You might do better with twenty minutes of walking than 30 cycling.  I could do hours of casual cycling without a sweat.  And I don’t exercise that much.  I’ll talk a bit more about walking later in the week. Jude, are you meaning ANY bicycling?  Or primarily outside biking where one peddles for a while and coasts for a while?  

That’s the one I was speaking of.  Where you have a 256 speed bike that requires alomost no pedaling at all, mostly coasting.  I may have misunderstood the original poster, I don’t have the mindset for a stationary bike. – Hide quoted text — Show quoted text – I know that I sweat a lot when riding my stationary bike for half an hour.  In fact, I’ve had a fan set up so that I can have it blowing on me and cooling me as I "peddle my ass off."  Granted, it’s NOT weight bearing activity because I’m not moving my body along…however, with the adjustable load, I can increase my workout without having to increase the time it takes. Now…walking has the definite advantage of being something one can do virtually anywhere…when traveling, one CAN walk the halls of the hotel if nothing else.  My biggest problem with walking (other than the constraints weather sometimes places on it) is that about the time I get to feeling good about getting out and walking and am doing it regularly, I manage to find an irregular place in the pavement and sprain my ankle, which then puts me on the sidelines for several weeks.  On my stationary bike, even if I’ve sprained my ankle, I can be back to biking within a couple of days, generally. HOWEVER, to use a stationary bike effectively, one has to get a GOOD bike that has a smooth enough ride that it doesn’t CAUSE knee problems. I have a Tunturi that I love (well…as much as one can love ANY exercise equipment).  My brother has a Schwinn Air-Dyne that gives his arms a workout as well as his legs and has the added benefit of providing its own breeze!  I don’t how often his bike has been put in the background and become "a clothes hanger."  That’s happened to mine a few times…notably in the last 6 years when I was away from home more than I was home, but I’ve NEVER considered getting rid of it and have "rolled it over" [the odometer] once and am on the way to a second time…it’s at about 2500 now.   Carol P. <—getting back into the cycling again…

Sounds like a great workout.  BTW, anyone wanting to buy exercise equipment BUY IT USED.  There’s always lots of folks who bought it but didn’t use it.  Check the want-ads, garage sales and flea mearkets. Best to all, Jude —                  - Coming Soon –  BestOrgs.NET         Oak Park, IL  708-848-0134  URL: http://www.pobox.com/~jcrouch

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- Hide quoted text — Show quoted text –  And it’s probably not carpal tunnel, that doesn’t happen symetrically.  It’s neuropathy.  I’ve got it too. REALLY???  They’ve been telling me for several years now that I have carpal tunnel syndrome in both wrists.  (and remember, I’m still just IGT, not officially diabetic).  I haven’t made any moves toward surgery.  I’ve got braces I sleep in when numbness is really bothering me.  I’ll have problems occasionally when using a fork or chopsticks, and occasionally when "keyboarding" for a long time, but the primary time they bother me is at night…I wake up with my entire hand numb… I missed that one the first time through…I have a friend at work who’s got carpal tunnel in both wrists. She just had surgery on her right wrist a few months ago, which has resulted in great improvement, and will have surgery on the other hand later on. She’s most definitely *not* diabetic (when she was hospitalized a few years ago with a massive infection, the hospital staff kept testing her, because they couldn’t believe she wasn’t; despite the infection, her blood sugar was totally within normal range).

Sure, it can happen in both hands, and obviously if someone has been checked and diabetes ruled out, CTS would be the likely culprit.   That would go for the pains preceding a diagnosis if the tests for diabetes were consistently negative. Working safe is important, so I’ll repeat this from my message in March: "For Repetitive Stress Syndrome, the most common therapy is "Don’t do that anymore", but of course, we often don’t have a choice not to do the things that cause it.  So we have to work better.  Posture is very important and excess weight tends to discourage good posture." "If you are working on a computer, be sure the keyboard and monitor are the appropriate height.  The keyboard should allow you to type without bending your wrists.  Wrist rests are for resting, not typing, you shouldn’t type with your wrists on the rest.  Mouse usage is very repetitive, so a track ball is a better choice — you can use any part of your hand or arm to manipulate the ball.  There are even voice-recognition systems that can take full control of your computer." "Other work-related habits are important.  Take a break at least every 60 minutes, even if it just to get up and ask someone else a question. Be sure to stretch your back and neck.  While you are up, stretch your eyes by looking at something far in the distance." Best health to all. Jude —                  - Coming Soon –  BestOrgs.NET         Oak Park, IL  708-848-0134  URL: http://www.pobox.com/~jcrouch

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I’m glad you are doing some exercise.  I just want you to understand that bicycling is pretty passive most of the time.  You might do better with twenty minutes of walking than 30 cycling.  I could do hours of casual cycling without a sweat.  And I don’t exercise that much.  I’ll talk a bit more about walking later in the week.

Strange as it seems, walking bothers my back and legs (bulging discs) to the point that I can stroll, but cant walk briskly enough to be beneficial. The bike I have is a stationary recombant so it is easy on my back. I also have nerve damage in my left arm (from birth – not diabetes related) that causes me to have for all practicall purposes – a dead arm. Any exersise ideas are appreciated. Then life hit some major bumps and I ignored the diabetes completly including gaining back most of the weight. You learned that you can’t do that again?  You can have a lot of years ahead of you, but you can’t back-slide.

I was pretty bad off emotionally – might have been a latent death wish – but THATS all over now. I’m only 39, and I have a 11 year old son. Lots of reasons to live and be healthy now. Im seeing an orthopedic and neurologists. So far, I know I have carpal tunnel in both wrists. I’m concerned that letting the diabetes go for a couple of years has caused diabetic neuropathy. Yep.  That’s the bad news.  And it’s probably not carpal tunnel, that doesn’t happen symetrically.  It’s neuropathy.  I’ve got it too.

Neurologist dx’d carpal tunnel by EMG – could that be wrong? -sunny really worrying now

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have a 4 yr old monitor and the batteries are gonners…… bet your test strips are also out of date so, flip your meter over….. look for the 1-800 number and call your meter rep… your ultimate goal, replacement strips, new batteries and perhaps a new meter?…… at no cost!….. free is best been with our reps, and our sweet nature! — k t1 13 yr

My monitor is 1 1/2 years old. I knew batteries ran out, but i had no clue that monitors do also. I’ll check it all out today. -sunny

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I’m glad you are doing some exercise.  I just want you to understand that bicycling is pretty passive most of the time.  You might do better with twenty minutes of walking than 30 cycling.  I could do hours of casual cycling without a sweat.  And I don’t exercise that much.  I’ll talk a bit more about walking later in the week. Strange as it seems, walking bothers my back and legs (bulging discs) to the point that I can stroll, but cant walk briskly enough to be beneficial. The bike I have is a stationary recombant so it is easy on my back. I also have nerve damage in my left arm (from birth – not diabetes related) that causes me to have for all practicall purposes – a dead arm.

The stationary bike sounds good.  I was mistaken that it was an outside bike.  Early responses are always based on sketchy information!  I’m glad you shared more with us, it helps us to give better advice.  Do you do any water exercises? Jude – Hide quoted text — Show quoted text – Then life hit some major bumps and I ignored the diabetes completly including gaining back most of the weight. You learned that you can’t do that again?  You can have a lot of years ahead of you, but you can’t back-slide. I was pretty bad off emotionally – might have been a latent death wish – but THATS all over now. I’m only 39, and I have a 11 year old son. Lots of reasons to live and be healthy now. Im seeing an orthopedic and neurologists. So far, I know I have carpal tunnel in both wrists. I’m concerned that letting the diabetes go for a couple of years has caused diabetic neuropathy. Yep.  That’s the bad news.  And it’s probably not carpal tunnel, that doesn’t happen symetrically.  It’s neuropathy.  I’ve got it too. Neurologist dx’d carpal tunnel by EMG – could that be wrong? -sunny really worrying now

–                  - Coming Soon –  BestOrgs.NET         Oak Park, IL  708-848-0134  URL: http://www.pobox.com/~jcrouch

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- Hide quoted text — Show quoted text – have a 4 yr old monitor and the batteries are gonners…… bet your test strips are also out of date so, flip your meter over….. look for the 1-800 number and call your meter rep… your ultimate goal, replacement strips, new batteries and perhaps a new meter?…… at no cost!….. free is best been with our reps, and our sweet nature! — k t1 13 yr My monitor is 1 1/2 years old. I knew batteries ran out, but i had no clue that monitors do also. I’ll check it all out today.

Monitors improve.  Just in the past 12-18 months, Accu-check went from expensive hearing aid-type batteries to AAA batteries you can buy at any local store for much less money.  Strips have changed from the type where you have a hanging drop to the type which suck the blood into the strip, needing less blood.  BTW, if your strips have expired, ask them to replace them. Jude —                  - Coming Soon –  BestOrgs.NET         Oak Park, IL  708-848-0134  URL: http://www.pobox.com/~jcrouch

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My monitor is 1 1/2 years old. I knew batteries ran out, but i had no clue that monitors do also. I’ll check it all out today. -sunny

oh, your monitor is just fine……. for myself, i find that every 3 or 4 years the technology moves up a step, and the manufacturer will trade in the old meter… it was only by sheer luck that i found out they would replace the batteries too!! — k t1 13 yr

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Sunny, If you lived where I live (in the Blue Ridge Mtns), you would seldom have a passive moment of bicycling.  But even in flat terrain, if you keep up a pace that makes it where you’re breathing hard & can’t comfortably hold a conversation aloud (try talking, even to yourself), then you’re doing your cycling well enough to be worth it.  If you have hills, all the better!  I’m glad you’re in the group.  I need someone like yourself & another newbie here (who backslid 6 years, he said) to remind me why I’ve got to get serious about it.  (Newly diagnosed as of 3/3/00, Type II… no meds, no insulin, just diet for now) Krin

– Hide quoted text — Show quoted text – Thanks for the welcome, and I dont think you are at all nosey. I’m type 2, and have been diagnosed for about 4 years now. The 1st year I did really well controlling it with diet and exercise. I lost 70 lbs, and my BG stayed very steady between 100-110. Then life hit some major bumps and I ignored the diabetes completly including gaining back most of the weight. You learned that you can’t do that again?  You can have a lot of years ahead of you, but you can’t back-slide. Before anyone yells at me, I have just started being good again. I’m biking 30 minutes per day, and counting the carbs. I will start checking the glucose as soon as I get new batteries for my monitor. Call the meter rep and tell him/her that you need batteries. Anyway, Im having alot of pain and numbness in my feet, and joints. Im seeing an orthopedic and neurologists. So far, I know I have carpal tunnel in both wrists. I’m concerned that letting the diabetes go for a couple of years has caused diabetic neuropathy. Yep.  That’s the bad news.  And it’s probably not carpal tunnel, that doesn’t happen symetrically.  It’s neuropathy.  I’ve got it too. I cant go back and change anything, but Im trying to take care of me now. (I have also asked hubby to stop bringing me home M&M’s) You almost have to start from the beginning.  Testing so that you know how *each* meal effects you.  Analyzing your bG readings in relation to the ingredients in your meal.  Keeping a journal so that you can see your progress and your failures. If you are motivated now, don’t delay.  You’ll need those batteries and you’ll have to buy strips to get this working again.  It is worth the money, so beg, borrow or steal to get them.  *Everything* else is more expensive both monetarily and health-wise. I’m glad you are doing some exercise.  I just want you to understand that bicycling is pretty passive most of the time.  You might do better with twenty minutes of walking than 30 cycling.  I could do hours of casual cycling without a sweat.  And I don’t exercise that much.  I’ll talk a bit more about walking later in the week. All my best to you, don’t get discouraged.  As long as you are trying you will succeed.  It will be a bit more difficult now as you have those complications. Jude —                  - Coming Soon –  BestOrgs.NET       Oak Park, IL  708-848-0134  URL: http://www.pobox.com/~jcrouch

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I had to cut a bit of her hair in order to free her from the rope as i couldn`t untwist it. Then afterwards it seemed like handfuls of long hair was falling out from the roots.  She is fine now thanks, though I had to give her some Calpol for the headache!   Bee.

– Hide quoted text — Show quoted text – I remember that vividly as I was a youngster swinging in the backyard on a tire swing. I got my hair twisted in the ropes myself. Oh, the pain. Hope your little girl is all right. Did you have to cut her hair, or did it untwist? Sue B.

Response:

Welcome! SheLion

– Hide quoted text — Show quoted text – Hello everyone.I`ve never posted to a ng before so i hope you will bear with me.  I have a girl 8 & a 2.5 boy. My daughter was playing on her swing in the garden as she has done so for years.  She was twisting the seat around whilst still sitting on it, to make it higher.  She has long hair tied back , but as she twisted the swing her hair got all caught up in the ropes. The swing had got tighter & tighter the more she went round until it was nearly up to her neck.     Luckily i was within earshot of her screams, as she could not move until we cut a large chunk of her hair, & untwisted her.  It really frightened both of us. I dread to think what might have happened if i had been in the house & not able to hear her screaming!

Response:

I remember that vividly as I was a youngster swinging in the backyard on a tire swing. I got my hair twisted in the ropes myself. Oh, the pain. Hope your little girl is all right. Did you have to cut her hair, or did it untwist? Sue B.

Response:

Hello everyone.I`ve never posted to a ng before so i hope you will bear with me.  I have a girl 8 & a 2.5 boy. My daughter was playing on her swing in the garden as she has done so for years.  She was twisting the seat around whilst still sitting on it, to make it higher.  She has long hair tied back , but as she twisted the swing her hair got all caught up in the ropes. The swing had got tighter & tighter the more she went round until it was nearly up to her neck.     Luckily i was within earshot of her screams, as she could not move until we cut a large chunk of her hair, & untwisted her.  It really frightened both of us. I dread to think what might have happened if i had been in the house & not able to hear her screaming!

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Take a look at this site. http://www.webcom.com/poolpond/ Good luck Alan            You have to have a sense of humor to get by……                   http://www.netdepot.com/~afarmer/

Response:

Lori,     I have a friend who bought a commercial sized hot-tub.  With some mortared up rock for a waterfall, it made a great "pond".  I guess if you can use a hottub, you should be able to use a swimming pool <g. Mike

– Hide quoted text — Show quoted text – I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

The website to see for a pool to pond transformation is: http://www.kilk.com/~erik/erik/pond.html When you look at his pond you’ll wonder where the pool was. He shows the step by step pictures and the veggie filter he made for it. Most pool filters will not filter a pond. Pool filters depend on all those chemicals to help them keep the water clean. Not to mention pool pumps are over sized and use a lot of electricity. ~ jan See my ponds thru the seasons: http://home.earthlink.net/~alanjordan1/jjspond/index.html         ~Keep ‘em Wet!~      Tri-Cities WA    Zone 7a          Remove Z to E-mail

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it.

Yes! Just don’t treat the water the way you did when you swam in it. Filter system is great as it is…..just let iut filter a week or two to clear out chemicals before adding fish. I envy you! :) Lori

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

<< I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Yup! somebody will post the webpage….. I seem to have lost it. Using sandbags the pool owners were able to build shelves so the marginal plants had a place to sit. They usually like to be 2 to 12 inches under water. Some lilies can reach the surface from 5 feet under. Here are a few webpages to start reading to get the general feel of ponding. BASIC INFORMATION  http://w3.one.net/~rzutt/index.html – internet ponder  http://www.primenet.com/~jvc/hbpond.html – small ponds http://members.home.net/crush11  - good construction info and lots of links to see other ponds  http://www.daydreamergardens.com/ – good articles for plant care, algae and other pondkeeping information http://www.pondguy.com – pond construction http://www.awebplace.com/theplantplace/index.htm  - great information site http://www.urdls.com/j/pondcalc.htm –  how big a liner needed calculator site http://www.aquaticeco.com/techtalk/tt/conversions.htm – calculator site  http://homearts.com/depts/garden/00zonef1.htm – zone info FISH http://puregold.aquaria.net/  - fish care info  http://www.goldfishconnection.com – goldfish info  http://www.kencofish.com – great fish source http://www.koiusa.com – KOIUSA magazine site for serious koi keepers.  http://www.koiusa.com/question.htm – great for koi and sick fish http://www.koivet.com – another great site for sick koi and all around koi keeping  http://www.waterscapes.com – Brett’s Fish Farm PLANTS http://www.daydreamergardens.com/ –  plants http://www.theplantplace.com/index.htm -plants http://www.paradisewatergardens.com  - plants http://www.koivet.com/plants/tropical.htm – winterizing a tropical lily CATALOGS and SOURCES   http://www.aqua-mart.com – great catalog  http://www.lilyponds.com – lovely catalog http://www.aquaticeco.com – huge wonderful catalog  http://www.anjonproducts.com/Pondliners.htm – liner source   http://www.empnet.com/bendtarp/ – for big liners http://www.pondguy.com – sludge eater info http://www.gardenhaus.com – filtering with a rock pond (kits available) FILTERING http://www.theplantplace.com/ourfilter.htm  http://nrgy.com/pondlink.htm – filter links http://www.skippysstuff.com/biofiltr.htm – rubbermaid stock tank filter http://www.arborman.com – info on Springflow filtering media ~k30~ and the watergardening labradors see the girls at http://www.daydreamergardens.com/2_level/articles/dog_how_to.htm http://www.daydreamergardens.com/2_level/articles/dog_tips.htm

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Take a look at this site. http://www.webcom.com/poolpond/ Good luck Alan            You have to have a sense of humor to get by……                   http://www.netdepot.com/~afarmer/

Response:

Lori,     I have a friend who bought a commercial sized hot-tub.  With some mortared up rock for a waterfall, it made a great "pond".  I guess if you can use a hottub, you should be able to use a swimming pool <g. Mike

– Hide quoted text — Show quoted text – I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

The website to see for a pool to pond transformation is: http://www.kilk.com/~erik/erik/pond.html When you look at his pond you’ll wonder where the pool was. He shows the step by step pictures and the veggie filter he made for it. Most pool filters will not filter a pond. Pool filters depend on all those chemicals to help them keep the water clean. Not to mention pool pumps are over sized and use a lot of electricity. ~ jan See my ponds thru the seasons: http://home.earthlink.net/~alanjordan1/jjspond/index.html         ~Keep ‘em Wet!~      Tri-Cities WA    Zone 7a          Remove Z to E-mail

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it.

Yes! Just don’t treat the water the way you did when you swam in it. Filter system is great as it is…..just let iut filter a week or two to clear out chemicals before adding fish. I envy you! :) Lori

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

<< I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Yup! somebody will post the webpage….. I seem to have lost it. Using sandbags the pool owners were able to build shelves so the marginal plants had a place to sit. They usually like to be 2 to 12 inches under water. Some lilies can reach the surface from 5 feet under. Here are a few webpages to start reading to get the general feel of ponding. BASIC INFORMATION  http://w3.one.net/~rzutt/index.html – internet ponder  http://www.primenet.com/~jvc/hbpond.html – small ponds http://members.home.net/crush11  - good construction info and lots of links to see other ponds  http://www.daydreamergardens.com/ – good articles for plant care, algae and other pondkeeping information http://www.pondguy.com – pond construction http://www.awebplace.com/theplantplace/index.htm  - great information site http://www.urdls.com/j/pondcalc.htm –  how big a liner needed calculator site http://www.aquaticeco.com/techtalk/tt/conversions.htm – calculator site  http://homearts.com/depts/garden/00zonef1.htm – zone info FISH http://puregold.aquaria.net/  - fish care info  http://www.goldfishconnection.com – goldfish info  http://www.kencofish.com – great fish source http://www.koiusa.com – KOIUSA magazine site for serious koi keepers.  http://www.koiusa.com/question.htm – great for koi and sick fish http://www.koivet.com – another great site for sick koi and all around koi keeping  http://www.waterscapes.com – Brett’s Fish Farm PLANTS http://www.daydreamergardens.com/ –  plants http://www.theplantplace.com/index.htm -plants http://www.paradisewatergardens.com  - plants http://www.koivet.com/plants/tropical.htm – winterizing a tropical lily CATALOGS and SOURCES   http://www.aqua-mart.com – great catalog  http://www.lilyponds.com – lovely catalog http://www.aquaticeco.com – huge wonderful catalog  http://www.anjonproducts.com/Pondliners.htm – liner source   http://www.empnet.com/bendtarp/ – for big liners http://www.pondguy.com – sludge eater info http://www.gardenhaus.com – filtering with a rock pond (kits available) FILTERING http://www.theplantplace.com/ourfilter.htm  http://nrgy.com/pondlink.htm – filter links http://www.skippysstuff.com/biofiltr.htm – rubbermaid stock tank filter http://www.arborman.com – info on Springflow filtering media ~k30~ and the watergardening labradors see the girls at http://www.daydreamergardens.com/2_level/articles/dog_how_to.htm http://www.daydreamergardens.com/2_level/articles/dog_tips.htm

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Take a look at this site. http://www.webcom.com/poolpond/ Good luck Alan            You have to have a sense of humor to get by……                   http://www.netdepot.com/~afarmer/

Response:

Lori,     I have a friend who bought a commercial sized hot-tub.  With some mortared up rock for a waterfall, it made a great "pond".  I guess if you can use a hottub, you should be able to use a swimming pool <g. Mike

– Hide quoted text — Show quoted text – I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

The website to see for a pool to pond transformation is: http://www.kilk.com/~erik/erik/pond.html When you look at his pond you’ll wonder where the pool was. He shows the step by step pictures and the veggie filter he made for it. Most pool filters will not filter a pond. Pool filters depend on all those chemicals to help them keep the water clean. Not to mention pool pumps are over sized and use a lot of electricity. ~ jan See my ponds thru the seasons: http://home.earthlink.net/~alanjordan1/jjspond/index.html         ~Keep ‘em Wet!~      Tri-Cities WA    Zone 7a          Remove Z to E-mail

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it.

Yes! Just don’t treat the water the way you did when you swam in it. Filter system is great as it is…..just let iut filter a week or two to clear out chemicals before adding fish. I envy you! :) Lori

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

<< I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Yup! somebody will post the webpage….. I seem to have lost it. Using sandbags the pool owners were able to build shelves so the marginal plants had a place to sit. They usually like to be 2 to 12 inches under water. Some lilies can reach the surface from 5 feet under. Here are a few webpages to start reading to get the general feel of ponding. BASIC INFORMATION  http://w3.one.net/~rzutt/index.html – internet ponder  http://www.primenet.com/~jvc/hbpond.html – small ponds http://members.home.net/crush11  - good construction info and lots of links to see other ponds  http://www.daydreamergardens.com/ – good articles for plant care, algae and other pondkeeping information http://www.pondguy.com – pond construction http://www.awebplace.com/theplantplace/index.htm  - great information site http://www.urdls.com/j/pondcalc.htm –  how big a liner needed calculator site http://www.aquaticeco.com/techtalk/tt/conversions.htm – calculator site  http://homearts.com/depts/garden/00zonef1.htm – zone info FISH http://puregold.aquaria.net/  - fish care info  http://www.goldfishconnection.com – goldfish info  http://www.kencofish.com – great fish source http://www.koiusa.com – KOIUSA magazine site for serious koi keepers.  http://www.koiusa.com/question.htm – great for koi and sick fish http://www.koivet.com – another great site for sick koi and all around koi keeping  http://www.waterscapes.com – Brett’s Fish Farm PLANTS http://www.daydreamergardens.com/ –  plants http://www.theplantplace.com/index.htm -plants http://www.paradisewatergardens.com  - plants http://www.koivet.com/plants/tropical.htm – winterizing a tropical lily CATALOGS and SOURCES   http://www.aqua-mart.com – great catalog  http://www.lilyponds.com – lovely catalog http://www.aquaticeco.com – huge wonderful catalog  http://www.anjonproducts.com/Pondliners.htm – liner source   http://www.empnet.com/bendtarp/ – for big liners http://www.pondguy.com – sludge eater info http://www.gardenhaus.com – filtering with a rock pond (kits available) FILTERING http://www.theplantplace.com/ourfilter.htm  http://nrgy.com/pondlink.htm – filter links http://www.skippysstuff.com/biofiltr.htm – rubbermaid stock tank filter http://www.arborman.com – info on Springflow filtering media ~k30~ and the watergardening labradors see the girls at http://www.daydreamergardens.com/2_level/articles/dog_how_to.htm http://www.daydreamergardens.com/2_level/articles/dog_tips.htm

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Take a look at this site. http://www.webcom.com/poolpond/ Good luck Alan            You have to have a sense of humor to get by……                   http://www.netdepot.com/~afarmer/

Response:

Lori,     I have a friend who bought a commercial sized hot-tub.  With some mortared up rock for a waterfall, it made a great "pond".  I guess if you can use a hottub, you should be able to use a swimming pool <g. Mike

– Hide quoted text — Show quoted text – I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

The website to see for a pool to pond transformation is: http://www.kilk.com/~erik/erik/pond.html When you look at his pond you’ll wonder where the pool was. He shows the step by step pictures and the veggie filter he made for it. Most pool filters will not filter a pond. Pool filters depend on all those chemicals to help them keep the water clean. Not to mention pool pumps are over sized and use a lot of electricity. ~ jan See my ponds thru the seasons: http://home.earthlink.net/~alanjordan1/jjspond/index.html         ~Keep ‘em Wet!~      Tri-Cities WA    Zone 7a          Remove Z to E-mail

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it.

Yes! Just don’t treat the water the way you did when you swam in it. Filter system is great as it is…..just let iut filter a week or two to clear out chemicals before adding fish. I envy you! :) Lori

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

<< I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Yup! somebody will post the webpage….. I seem to have lost it. Using sandbags the pool owners were able to build shelves so the marginal plants had a place to sit. They usually like to be 2 to 12 inches under water. Some lilies can reach the surface from 5 feet under. Here are a few webpages to start reading to get the general feel of ponding. BASIC INFORMATION  http://w3.one.net/~rzutt/index.html – internet ponder  http://www.primenet.com/~jvc/hbpond.html – small ponds http://members.home.net/crush11  - good construction info and lots of links to see other ponds  http://www.daydreamergardens.com/ – good articles for plant care, algae and other pondkeeping information http://www.pondguy.com – pond construction http://www.awebplace.com/theplantplace/index.htm  - great information site http://www.urdls.com/j/pondcalc.htm –  how big a liner needed calculator site http://www.aquaticeco.com/techtalk/tt/conversions.htm – calculator site  http://homearts.com/depts/garden/00zonef1.htm – zone info FISH http://puregold.aquaria.net/  - fish care info  http://www.goldfishconnection.com – goldfish info  http://www.kencofish.com – great fish source http://www.koiusa.com – KOIUSA magazine site for serious koi keepers.  http://www.koiusa.com/question.htm – great for koi and sick fish http://www.koivet.com – another great site for sick koi and all around koi keeping  http://www.waterscapes.com – Brett’s Fish Farm PLANTS http://www.daydreamergardens.com/ –  plants http://www.theplantplace.com/index.htm -plants http://www.paradisewatergardens.com  - plants http://www.koivet.com/plants/tropical.htm – winterizing a tropical lily CATALOGS and SOURCES   http://www.aqua-mart.com – great catalog  http://www.lilyponds.com – lovely catalog http://www.aquaticeco.com – huge wonderful catalog  http://www.anjonproducts.com/Pondliners.htm – liner source   http://www.empnet.com/bendtarp/ – for big liners http://www.pondguy.com – sludge eater info http://www.gardenhaus.com – filtering with a rock pond (kits available) FILTERING http://www.theplantplace.com/ourfilter.htm  http://nrgy.com/pondlink.htm – filter links http://www.skippysstuff.com/biofiltr.htm – rubbermaid stock tank filter http://www.arborman.com – info on Springflow filtering media ~k30~ and the watergardening labradors see the girls at http://www.daydreamergardens.com/2_level/articles/dog_how_to.htm http://www.daydreamergardens.com/2_level/articles/dog_tips.htm

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Take a look at this site. http://www.webcom.com/poolpond/ Good luck Alan            You have to have a sense of humor to get by……                   http://www.netdepot.com/~afarmer/

Response:

Lori,     I have a friend who bought a commercial sized hot-tub.  With some mortared up rock for a waterfall, it made a great "pond".  I guess if you can use a hottub, you should be able to use a swimming pool <g. Mike

– Hide quoted text — Show quoted text – I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

The website to see for a pool to pond transformation is: http://www.kilk.com/~erik/erik/pond.html When you look at his pond you’ll wonder where the pool was. He shows the step by step pictures and the veggie filter he made for it. Most pool filters will not filter a pond. Pool filters depend on all those chemicals to help them keep the water clean. Not to mention pool pumps are over sized and use a lot of electricity. ~ jan See my ponds thru the seasons: http://home.earthlink.net/~alanjordan1/jjspond/index.html         ~Keep ‘em Wet!~      Tri-Cities WA    Zone 7a          Remove Z to E-mail

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it.

Yes! Just don’t treat the water the way you did when you swam in it. Filter system is great as it is…..just let iut filter a week or two to clear out chemicals before adding fish. I envy you! :) Lori

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

<< I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Yup! somebody will post the webpage….. I seem to have lost it. Using sandbags the pool owners were able to build shelves so the marginal plants had a place to sit. They usually like to be 2 to 12 inches under water. Some lilies can reach the surface from 5 feet under. Here are a few webpages to start reading to get the general feel of ponding. BASIC INFORMATION  http://w3.one.net/~rzutt/index.html – internet ponder  http://www.primenet.com/~jvc/hbpond.html – small ponds http://members.home.net/crush11  - good construction info and lots of links to see other ponds  http://www.daydreamergardens.com/ – good articles for plant care, algae and other pondkeeping information http://www.pondguy.com – pond construction http://www.awebplace.com/theplantplace/index.htm  - great information site http://www.urdls.com/j/pondcalc.htm –  how big a liner needed calculator site http://www.aquaticeco.com/techtalk/tt/conversions.htm – calculator site  http://homearts.com/depts/garden/00zonef1.htm – zone info FISH http://puregold.aquaria.net/  - fish care info  http://www.goldfishconnection.com – goldfish info  http://www.kencofish.com – great fish source http://www.koiusa.com – KOIUSA magazine site for serious koi keepers.  http://www.koiusa.com/question.htm – great for koi and sick fish http://www.koivet.com – another great site for sick koi and all around koi keeping  http://www.waterscapes.com – Brett’s Fish Farm PLANTS http://www.daydreamergardens.com/ –  plants http://www.theplantplace.com/index.htm -plants http://www.paradisewatergardens.com  - plants http://www.koivet.com/plants/tropical.htm – winterizing a tropical lily CATALOGS and SOURCES   http://www.aqua-mart.com – great catalog  http://www.lilyponds.com – lovely catalog http://www.aquaticeco.com – huge wonderful catalog  http://www.anjonproducts.com/Pondliners.htm – liner source   http://www.empnet.com/bendtarp/ – for big liners http://www.pondguy.com – sludge eater info http://www.gardenhaus.com – filtering with a rock pond (kits available) FILTERING http://www.theplantplace.com/ourfilter.htm  http://nrgy.com/pondlink.htm – filter links http://www.skippysstuff.com/biofiltr.htm – rubbermaid stock tank filter http://www.arborman.com – info on Springflow filtering media ~k30~ and the watergardening labradors see the girls at http://www.daydreamergardens.com/2_level/articles/dog_how_to.htm http://www.daydreamergardens.com/2_level/articles/dog_tips.htm

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Take a look at this site. http://www.webcom.com/poolpond/ Good luck Alan            You have to have a sense of humor to get by……                   http://www.netdepot.com/~afarmer/

Response:

Lori,     I have a friend who bought a commercial sized hot-tub.  With some mortared up rock for a waterfall, it made a great "pond".  I guess if you can use a hottub, you should be able to use a swimming pool <g. Mike

– Hide quoted text — Show quoted text – I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

The website to see for a pool to pond transformation is: http://www.kilk.com/~erik/erik/pond.html When you look at his pond you’ll wonder where the pool was. He shows the step by step pictures and the veggie filter he made for it. Most pool filters will not filter a pond. Pool filters depend on all those chemicals to help them keep the water clean. Not to mention pool pumps are over sized and use a lot of electricity. ~ jan See my ponds thru the seasons: http://home.earthlink.net/~alanjordan1/jjspond/index.html         ~Keep ‘em Wet!~      Tri-Cities WA    Zone 7a          Remove Z to E-mail

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it.

Yes! Just don’t treat the water the way you did when you swam in it. Filter system is great as it is…..just let iut filter a week or two to clear out chemicals before adding fish. I envy you! :) Lori

Response:

I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

<< I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Yup! somebody will post the webpage….. I seem to have lost it. Using sandbags the pool owners were able to build shelves so the marginal plants had a place to sit. They usually like to be 2 to 12 inches under water. Some lilies can reach the surface from 5 feet under. Here are a few webpages to start reading to get the general feel of ponding. BASIC INFORMATION  http://w3.one.net/~rzutt/index.html – internet ponder  http://www.primenet.com/~jvc/hbpond.html – small ponds http://members.home.net/crush11  - good construction info and lots of links to see other ponds  http://www.daydreamergardens.com/ – good articles for plant care, algae and other pondkeeping information http://www.pondguy.com – pond construction http://www.awebplace.com/theplantplace/index.htm  - great information site http://www.urdls.com/j/pondcalc.htm –  how big a liner needed calculator site http://www.aquaticeco.com/techtalk/tt/conversions.htm – calculator site  http://homearts.com/depts/garden/00zonef1.htm – zone info FISH http://puregold.aquaria.net/  - fish care info  http://www.goldfishconnection.com – goldfish info  http://www.kencofish.com – great fish source http://www.koiusa.com – KOIUSA magazine site for serious koi keepers.  http://www.koiusa.com/question.htm – great for koi and sick fish http://www.koivet.com – another great site for sick koi and all around koi keeping  http://www.waterscapes.com – Brett’s Fish Farm PLANTS http://www.daydreamergardens.com/ –  plants http://www.theplantplace.com/index.htm -plants http://www.paradisewatergardens.com  - plants http://www.koivet.com/plants/tropical.htm – winterizing a tropical lily CATALOGS and SOURCES   http://www.aqua-mart.com – great catalog  http://www.lilyponds.com – lovely catalog http://www.aquaticeco.com – huge wonderful catalog  http://www.anjonproducts.com/Pondliners.htm – liner source   http://www.empnet.com/bendtarp/ – for big liners http://www.pondguy.com – sludge eater info http://www.gardenhaus.com – filtering with a rock pond (kits available) FILTERING http://www.theplantplace.com/ourfilter.htm  http://nrgy.com/pondlink.htm – filter links http://www.skippysstuff.com/biofiltr.htm – rubbermaid stock tank filter http://www.arborman.com – info on Springflow filtering media ~k30~ and the watergardening labradors see the girls at http://www.daydreamergardens.com/2_level/articles/dog_how_to.htm http://www.daydreamergardens.com/2_level/articles/dog_tips.htm

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Welcome Jackie, You don’t want to housesit my dog, she has a fascination with birds.  She tries to catch them. But since I don’t live in NY..guess it won’t be happening.

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Hello. I am new on this group. My name is Jackie. I turned 14 years old on November 2. I am EXTREMELY into dogs. I don’t own any. I am not allowed to, because our landlord doesn’t allow them. I own 2 birds tho, they are cockatiels. My favorite dog is the Siberian Husky. Here’s the things I do in dedication of dogs, since I can’t have one. PET SIT~ I babysit dogs & other pets. I live in NY if you ever need me. It costs only $5 a day. I can’t babysit cats unless you can prove to me they wont harm my birds. DOG WALK~ I also walk dogs. That costs only $1 per walk per dog. SHELTER VOLUNTEER~ I am not a shelter volunteer yet, but since I just turned 14, I am now eligible for a part time job. I am going to look into different shelters to work for. NEWSLETTER EDITOR~ I created a dog newsletter called Barks *n* Bites which needs subscribers. The people who read it think its wonderful. Here’s the site: http://www.angelfire.com/ny4/BarksNBites MESSAGE BOARD OWNER~ I own a dog discussion board called Dogs Are Cool!!! You may visit it @ http://members.boardhost.com/dogsarecool MY FUTURE~ I plan to be a Veteranarian and breed Siberian Huskies. Well, thats all I can think of now. Thats how much I love dogs. http://www.geocities.com/borisnatashatiels – Jackie – P.S. PLEASE VOTE FOR JINX, THE ENGLISH SPRINGER SPANIEL I BABYSIT IN A PHOTO CONTEST. GO HERE TO VOTE = http://promotees.com/mysurvey/world.php3?&version=B

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I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Take a look at this site. http://www.webcom.com/poolpond/ Good luck Alan            You have to have a sense of humor to get by……                   http://www.netdepot.com/~afarmer/

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Lori,     I have a friend who bought a commercial sized hot-tub.  With some mortared up rock for a waterfall, it made a great "pond".  I guess if you can use a hottub, you should be able to use a swimming pool <g. Mike

– Hide quoted text — Show quoted text – I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

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The website to see for a pool to pond transformation is: http://www.kilk.com/~erik/erik/pond.html When you look at his pond you’ll wonder where the pool was. He shows the step by step pictures and the veggie filter he made for it. Most pool filters will not filter a pond. Pool filters depend on all those chemicals to help them keep the water clean. Not to mention pool pumps are over sized and use a lot of electricity. ~ jan See my ponds thru the seasons: http://home.earthlink.net/~alanjordan1/jjspond/index.html         ~Keep ‘em Wet!~      Tri-Cities WA    Zone 7a          Remove Z to E-mail

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I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it.

Yes! Just don’t treat the water the way you did when you swam in it. Filter system is great as it is…..just let iut filter a week or two to clear out chemicals before adding fish. I envy you! :) Lori

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I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

<< I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Yup! somebody will post the webpage….. I seem to have lost it. Using sandbags the pool owners were able to build shelves so the marginal plants had a place to sit. They usually like to be 2 to 12 inches under water. Some lilies can reach the surface from 5 feet under. Here are a few webpages to start reading to get the general feel of ponding. BASIC INFORMATION  http://w3.one.net/~rzutt/index.html – internet ponder  http://www.primenet.com/~jvc/hbpond.html – small ponds http://members.home.net/crush11  - good construction info and lots of links to see other ponds  http://www.daydreamergardens.com/ – good articles for plant care, algae and other pondkeeping information http://www.pondguy.com – pond construction http://www.awebplace.com/theplantplace/index.htm  - great information site http://www.urdls.com/j/pondcalc.htm –  how big a liner needed calculator site http://www.aquaticeco.com/techtalk/tt/conversions.htm – calculator site  http://homearts.com/depts/garden/00zonef1.htm – zone info FISH http://puregold.aquaria.net/  - fish care info  http://www.goldfishconnection.com – goldfish info  http://www.kencofish.com – great fish source http://www.koiusa.com – KOIUSA magazine site for serious koi keepers.  http://www.koiusa.com/question.htm – great for koi and sick fish http://www.koivet.com – another great site for sick koi and all around koi keeping  http://www.waterscapes.com – Brett’s Fish Farm PLANTS http://www.daydreamergardens.com/ –  plants http://www.theplantplace.com/index.htm -plants http://www.paradisewatergardens.com  - plants http://www.koivet.com/plants/tropical.htm – winterizing a tropical lily CATALOGS and SOURCES   http://www.aqua-mart.com – great catalog  http://www.lilyponds.com – lovely catalog http://www.aquaticeco.com – huge wonderful catalog  http://www.anjonproducts.com/Pondliners.htm – liner source   http://www.empnet.com/bendtarp/ – for big liners http://www.pondguy.com – sludge eater info http://www.gardenhaus.com – filtering with a rock pond (kits available) FILTERING http://www.theplantplace.com/ourfilter.htm  http://nrgy.com/pondlink.htm – filter links http://www.skippysstuff.com/biofiltr.htm – rubbermaid stock tank filter http://www.arborman.com – info on Springflow filtering media ~k30~ and the watergardening labradors see the girls at http://www.daydreamergardens.com/2_level/articles/dog_how_to.htm http://www.daydreamergardens.com/2_level/articles/dog_tips.htm

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My husband has had psoriasis since he was a sophomore in high school.  It is really bad right now.  He is currently 28.  He works a lot and probably the flare up has to do with stress.  We live in the Indianapolis area and I think that he needs to try a different doc.  Anyone in this area have a good referral?  He has been using temovate ointment since we’ve been together and that is going on 8 years now…I’ve been reading some of your posts and it looks as if there are other alternatives out there.  Anyone with any information, please let me know.  I know how terrible this makes him feel and I just want to help him find some other way to go about treating it.  Thanks in advance!

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Try www.aad.org. That’s the website for the "American Academy of Dermatoligsts". They have a locator search by state that is currently listing about 40 derms for Indy. Another good site for more information about psoriasis is the "National Psoriasis Foundation" site at www.psoriasis.org. I’ve found both to be very helpful… Janet

– Hide quoted text — Show quoted text – My husband has had psoriasis since he was a sophomore in high school.  It is really bad right now.  He is currently 28.  He works a lot and probably the flare up has to do with stress.  We live in the Indianapolis area and I think that he needs to try a different doc.  Anyone in this area have a good referral?  He has been using temovate ointment since we’ve been together and that is going on 8 years now…I’ve been reading some of your posts and it looks as if there are other alternatives out there.  Anyone with any information, please let me know.  I know how terrible this makes him feel and I just want to help him find some other way to go about treating it.  Thanks in advance!

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Hi, TKGraham… and to hubby too!  Welcome to the group!  Afraid I am not from your part of the country, so do not have any referral to offer, although personally I have always found my best referrals to have been from other physicians. In any case, I did want to say hello and hope both you and your husband will keep visiting here.  As to finding something that will help more than the temovate ointment that he has been using for 8 years or so, most of us find that switching treatments around periodically is more effective than sticking to any one treatment for long periods of time.  It seems our skin sort of gets used to a treatment and it loses effectiveness. In any case, the following two excellent websites will give you and your husband a lot more information than I can ever pack into a single post.  Just click on the links to get there.   http://www.psoriasis.org/    (Nat’l Psoriasis Foundation… very comprehensive, searchable) http://w1.2380.telia.com/~u238000263/flaker/docs/ (Aase Marit’s homepage, a great young lady who sometimes participates in the group.  Her personal experiences with psoriasis give her a good background in what works and the many topicals around… she is in Norway) Best regards,

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"Joseph Christie remove no.spam. to In some ways it truly is a blessing. Some people tend to judge others on superficial, surface characteristics and it frequently takes the investment of some time to get to know others well enough to tell this about them (if they’re not totally jerks when you first meet them). You have been given a built in "sensitivity test". Some people will take the effort to get to know after "noticing" and some will recoil and go away. Some of the ones who stick around will become good friends and you’re better off without the ones who don’t. You will have to spend a lot less time to find this out about other people than many "normal" folks. Hi Stacy: I too have been blesshed with psoriasis.

Sigh. I’m sure you both mean well and maybe even are entirely sincere about what you say rather than just putting the best face on a bad situation. But sorry, not enough martyr in me to even remotely consider the P a blessing, whatever good may bave come from it. That good could have come without it and without a lot of other hassle and misery.  I’m really not jumping on you both, but this seems to be the flip side of the P as punishment for your sins post that got everyone up in arms a ways back. And just about as unrealistic. It’s not a punishment, it’s not a blessing, it’s a disease. A messy, frustrating, expensive and permanent one, that’s simply part of our everyday reality. No more and no less.  Am I whining and moaning and screaming "why me?" about that fact or by saying it’s not a blessing? Nope. And if thinking of it as a blessing helps you deal better with that reality, then more power to you. So long as you are dealing with reality. But all you have to do is listen to the amount of psychic pain in the small sample of sufferers here on the ng to know it’s not really a blessing. Do you really think you’d be happier without having ever been so blessed? How happy we all would be to never have to deal with it again? And no one on the ng who finds it impossible to think of it as one should feel the slightest guilt or shame for that (having noticed that, as a group, we P sufferers tend to be particularly good at self flagellating guilt and shame <rueful grin). -Kim "From far, from eve and morning  And yon twelve winded sky  The stuff of life to knit me  Blew hither, here am I"      -A. E. Housman

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Hi Stacy: I too have been blesshed with psoriasis.And I a lot older then you. Proud to be 49.. The best thing that you can do for yourself and your psoriasis is to talk to your parents about your feelings. Be open with them. And the second best thing to do is not to worry so much about what other people think. You are the most important thing, how you feel about yourself at this time is going to greatly improve your condition. I heard once that people who are blesshed with Psoriasis are people who care a lot about people and are people with a lot of LOVe in their hearts. We are people who are very sensetive about other people. I have had this now for about 3 yrs.. Had a very bad  case of it  allover my body. Now I just have a few spotes to contend with. Sure doesn’t look good and it doesn’t feel good o have it. But I know in my heart and mind who I am as a person. And no one can take that away.Psoriasis can’t take away the love that I feel for my family, my friends and for life. Think about all the good things that you do as a young person, think about your future a s a adult.And think about your parents. Bileve in your future, and yourself. Kind regards. Hope this helps. – Hide quoted text — Show quoted text – Hi!  I’m a 19 year old female, and have had psoriasis since I was about 7 or 8.  I read in a book once that people with psoriasis usually have a low self-esteem.  At first, I didn’t really believe it, but as I grew up, that changed.  Friends unaware of my skin condition would go "Eww..what’s that behind you ear???"  Then I’d feel all self-conscious and have to explain everything.  Fortunately, my psoriasis is basically located where it can be hidden (it’s only on my scalp), but still….  In phys.ed., I used to sit in the back of the class so no one could see my hair line when I had my hair tied up.  Even on the bus when my hair is down, I worry if people can see it.  Now, it’s not toooo bad.  Good thing school’s going well, ’cause I hear psoriasis can also be caused by stress.  Anyways, I just thought I’d join this group, to get some tips or whatever, to maybe "get rid" of this problem.  I know it can’t be cured (yet), so I’m stuck with it.  I’d just like to be able to not worry so much.  I’m a very self-conscious person to begin with, so having psoriasis doesn’ help…….If you have any ideas that could help, please share them…I’d love to hear about them…. Stacy

– MZ

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Hi!  I’m a 19 year old female, and have had psoriasis since I was about 7 or 8.  I read in a book once that people with psoriasis usually have a low self-esteem.  At first, I didn’t really believe it, but as I grew up, that changed.  Friends unaware of my skin condition would go "Eww..what’s that behind you ear???"  Then I’d feel all self-conscious and have to explain everything.  Fortunately, my psoriasis is basically located where it can be hidden (it’s only on my scalp), but still….  In phys.ed., I used to sit in the back of the class so no one could see my hair line when I had my hair tied up.  Even on the bus when my hair is down, I worry if people can see it.  Now, it’s not toooo bad.  Good thing school’s going well, ’cause I hear psoriasis can also be caused by stress.  Anyways, I just thought I’d join this group, to get some tips or whatever, to maybe "get rid" of this problem.  I know it can’t be cured (yet), so I’m stuck with it.  I’d just like to be able to not worry so much.  I’m a very self-conscious person to begin with, so having psoriasis doesn’ help…….If you have any ideas that could help, please share them…I’d love to hear about them…. Stacy

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- Hide quoted text — Show quoted text – Hi!  I’m a 19 year old female, and have had psoriasis since I was about 7 or 8.  I read in a book once that people with psoriasis usually have a low self-esteem.  At first, I didn’t really believe it, but as I grew up, that changed.  Friends unaware of my skin condition would go "Eww..what’s that behind you ear???"  Then I’d feel all self-conscious and have to explain everything.  Fortunately, my psoriasis is basically located where it can be hidden (it’s only on my scalp), but still….  In phys.ed., I used to sit in the back of the class so no one could see my hair line when I had my hair tied up.  Even on the bus when my hair is down, I worry if people can see it.  Now, it’s not toooo bad.  Good thing school’s going well, ’cause I hear psoriasis can also be caused by stress.  Anyways, I just thought I’d join this group, to get some tips or whatever, to maybe "get rid" of this problem.  I know it can’t be cured (yet), so I’m stuck with it.  I’d just like to be able to not worry so much.  I’m a very self-conscious person to begin with, so having psoriasis doesn’ help…….If you have any ideas that could help, please share them…I’d love to hear about them…. Stacy

Hi Stacy- Welcome to the group and sure sounds like you understand the feeling behind the this stuff sucks post someone else made. You don’t say what you’re doing to treat the P in your scalp, so I don’t know what else to suggest that you might try. There are a whole bunch of things that other people have had success with. The ng has a searchable archive at http://www.pinch.com if you want to take a look at what’s been discussed in the past. Tough to do much about the self consciousness, which as you say, the P doesn’t help. It’s easy for me to say don’t let it get to you, but that’s not exactly a vast help, I know. Might consider suggesting your friends get some lessons in tact, too <g, but yeah I know that’s not much more help. Maybe one of the scalp treatment options could get you clear enough that you don’t have anything to worry about people seeing. I’ve had the best luck with tar shampoos -lots of people like Tgel, but I didn’t think it helped as much as some others. I like one called Polytar, which doesn’t stink like some and is also gentle on the hair. I’ve also used something called Dermasmoothe with some success. It’s a corticosteroid suspended in peanut oil. The oil helps moisturize your scalp (and hair -my hair’s always nice and shiny after using it) and gently soak off the flakes, along with the benefit of the steroid. You need a doctor’s prescription to get it though, and corticosteroids can cause more problems if you use them too much over a long time. Might give you a jumpstart of clearing it up though. Also, dunno if you’ve ever heard of the National Psoriasis Foundation? It’s run by people with P and has lots of handouts available, including ones on things like Scalp P, but also on self esteem problems and what it’s like to live with P. They have a website with contact info at http://www.psoriasis.org -Kim "From far, from eve and morning  And yon twelve winded sky  The stuff of life to knit me  Blew hither, here am I"      -A. E. Housman

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Welcome Jackie, You don’t want to housesit my dog, she has a fascination with birds.  She tries to catch them. But since I don’t live in NY..guess it won’t be happening.

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Hello. I am new on this group. My name is Jackie. I turned 14 years old on November 2. I am EXTREMELY into dogs. I don’t own any. I am not allowed to, because our landlord doesn’t allow them. I own 2 birds tho, they are cockatiels. My favorite dog is the Siberian Husky. Here’s the things I do in dedication of dogs, since I can’t have one. PET SIT~ I babysit dogs & other pets. I live in NY if you ever need me. It costs only $5 a day. I can’t babysit cats unless you can prove to me they wont harm my birds. DOG WALK~ I also walk dogs. That costs only $1 per walk per dog. SHELTER VOLUNTEER~ I am not a shelter volunteer yet, but since I just turned 14, I am now eligible for a part time job. I am going to look into different shelters to work for. NEWSLETTER EDITOR~ I created a dog newsletter called Barks *n* Bites which needs subscribers. The people who read it think its wonderful. Here’s the site: http://www.angelfire.com/ny4/BarksNBites MESSAGE BOARD OWNER~ I own a dog discussion board called Dogs Are Cool!!! You may visit it @ http://members.boardhost.com/dogsarecool MY FUTURE~ I plan to be a Veteranarian and breed Siberian Huskies. Well, thats all I can think of now. Thats how much I love dogs. http://www.geocities.com/borisnatashatiels – Jackie – P.S. PLEASE VOTE FOR JINX, THE ENGLISH SPRINGER SPANIEL I BABYSIT IN A PHOTO CONTEST. GO HERE TO VOTE = http://promotees.com/mysurvey/world.php3?&version=B

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I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Take a look at this site. http://www.webcom.com/poolpond/ Good luck Alan            You have to have a sense of humor to get by……                   http://www.netdepot.com/~afarmer/

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Lori,     I have a friend who bought a commercial sized hot-tub.  With some mortared up rock for a waterfall, it made a great "pond".  I guess if you can use a hottub, you should be able to use a swimming pool <g. Mike

– Hide quoted text — Show quoted text – I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

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The website to see for a pool to pond transformation is: http://www.kilk.com/~erik/erik/pond.html When you look at his pond you’ll wonder where the pool was. He shows the step by step pictures and the veggie filter he made for it. Most pool filters will not filter a pond. Pool filters depend on all those chemicals to help them keep the water clean. Not to mention pool pumps are over sized and use a lot of electricity. ~ jan See my ponds thru the seasons: http://home.earthlink.net/~alanjordan1/jjspond/index.html         ~Keep ‘em Wet!~      Tri-Cities WA    Zone 7a          Remove Z to E-mail

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I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it.

Yes! Just don’t treat the water the way you did when you swam in it. Filter system is great as it is…..just let iut filter a week or two to clear out chemicals before adding fish. I envy you! :) Lori

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I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Thanks

Response:

<< I have a 16×32 swimming pool I don’t want to take care of any more. Can someone tell me if it is possible to make a pond and raise a few fish with it. Yup! somebody will post the webpage….. I seem to have lost it. Using sandbags the pool owners were able to build shelves so the marginal plants had a place to sit. They usually like to be 2 to 12 inches under water. Some lilies can reach the surface from 5 feet under. Here are a few webpages to start reading to get the general feel of ponding. BASIC INFORMATION  http://w3.one.net/~rzutt/index.html – internet ponder  http://www.primenet.com/~jvc/hbpond.html – small ponds http://members.home.net/crush11  - good construction info and lots of links to see other ponds  http://www.daydreamergardens.com/ – good articles for plant care, algae and other pondkeeping information http://www.pondguy.com – pond construction http://www.awebplace.com/theplantplace/index.htm  - great information site http://www.urdls.com/j/pondcalc.htm –  how big a liner needed calculator site http://www.aquaticeco.com/techtalk/tt/conversions.htm – calculator site  http://homearts.com/depts/garden/00zonef1.htm – zone info FISH http://puregold.aquaria.net/  - fish care info  http://www.goldfishconnection.com – goldfish info  http://www.kencofish.com – great fish source http://www.koiusa.com – KOIUSA magazine site for serious koi keepers.  http://www.koiusa.com/question.htm – great for koi and sick fish http://www.koivet.com – another great site for sick koi and all around koi keeping  http://www.waterscapes.com – Brett’s Fish Farm PLANTS http://www.daydreamergardens.com/ –  plants http://www.theplantplace.com/index.htm -plants http://www.paradisewatergardens.com  - plants http://www.koivet.com/plants/tropical.htm – winterizing a tropical lily CATALOGS and SOURCES   http://www.aqua-mart.com – great catalog  http://www.lilyponds.com – lovely catalog http://www.aquaticeco.com – huge wonderful catalog  http://www.anjonproducts.com/Pondliners.htm – liner source   http://www.empnet.com/bendtarp/ – for big liners http://www.pondguy.com – sludge eater info http://www.gardenhaus.com – filtering with a rock pond (kits available) FILTERING http://www.theplantplace.com/ourfilter.htm  http://nrgy.com/pondlink.htm – filter links http://www.skippysstuff.com/biofiltr.htm – rubbermaid stock tank filter http://www.arborman.com – info on Springflow filtering media ~k30~ and the watergardening labradors see the girls at http://www.daydreamergardens.com/2_level/articles/dog_how_to.htm http://www.daydreamergardens.com/2_level/articles/dog_tips.htm

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My husband has had psoriasis since he was a sophomore in high school.  It is really bad right now.  He is currently 28.  He works a lot and probably the flare up has to do with stress.  We live in the Indianapolis area and I think that he needs to try a different doc.  Anyone in this area have a good referral?  He has been using temovate ointment since we’ve been together and that is going on 8 years now…I’ve been reading some of your posts and it looks as if there are other alternatives out there.  Anyone with any information, please let me know.  I know how terrible this makes him feel and I just want to help him find some other way to go about treating it.  Thanks in advance!

Response:

Try www.aad.org. That’s the website for the "American Academy of Dermatoligsts". They have a locator search by state that is currently listing about 40 derms for Indy. Another good site for more information about psoriasis is the "National Psoriasis Foundation" site at www.psoriasis.org. I’ve found both to be very helpful… Janet

– Hide quoted text — Show quoted text – My husband has had psoriasis since he was a sophomore in high school.  It is really bad right now.  He is currently 28.  He works a lot and probably the flare up has to do with stress.  We live in the Indianapolis area and I think that he needs to try a different doc.  Anyone in this area have a good referral?  He has been using temovate ointment since we’ve been together and that is going on 8 years now…I’ve been reading some of your posts and it looks as if there are other alternatives out there.  Anyone with any information, please let me know.  I know how terrible this makes him feel and I just want to help him find some other way to go about treating it.  Thanks in advance!

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Hi, TKGraham… and to hubby too!  Welcome to the group!  Afraid I am not from your part of the country, so do not have any referral to offer, although personally I have always found my best referrals to have been from other physicians. In any case, I did want to say hello and hope both you and your husband will keep visiting here.  As to finding something that will help more than the temovate ointment that he has been using for 8 years or so, most of us find that switching treatments around periodically is more effective than sticking to any one treatment for long periods of time.  It seems our skin sort of gets used to a treatment and it loses effectiveness. In any case, the following two excellent websites will give you and your husband a lot more information than I can ever pack into a single post.  Just click on the links to get there.   http://www.psoriasis.org/    (Nat’l Psoriasis Foundation… very comprehensive, searchable) http://w1.2380.telia.com/~u238000263/flaker/docs/ (Aase Marit’s homepage, a great young lady who sometimes participates in the group.  Her personal experiences with psoriasis give her a good background in what works and the many topicals around… she is in Norway) Best regards,

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"Joseph Christie remove no.spam. to In some ways it truly is a blessing. Some people tend to judge others on superficial, surface characteristics and it frequently takes the investment of some time to get to know others well enough to tell this about them (if they’re not totally jerks when you first meet them). You have been given a built in "sensitivity test". Some people will take the effort to get to know after "noticing" and some will recoil and go away. Some of the ones who stick around will become good friends and you’re better off without the ones who don’t. You will have to spend a lot less time to find this out about other people than many "normal" folks. Hi Stacy: I too have been blesshed with psoriasis.

Sigh. I’m sure you both mean well and maybe even are entirely sincere about what you say rather than just putting the best face on a bad situation. But sorry, not enough martyr in me to even remotely consider the P a blessing, whatever good may bave come from it. That good could have come without it and without a lot of other hassle and misery.  I’m really not jumping on you both, but this seems to be the flip side of the P as punishment for your sins post that got everyone up in arms a ways back. And just about as unrealistic. It’s not a punishment, it’s not a blessing, it’s a disease. A messy, frustrating, expensive and permanent one, that’s simply part of our everyday reality. No more and no less.  Am I whining and moaning and screaming "why me?" about that fact or by saying it’s not a blessing? Nope. And if thinking of it as a blessing helps you deal better with that reality, then more power to you. So long as you are dealing with reality. But all you have to do is listen to the amount of psychic pain in the small sample of sufferers here on the ng to know it’s not really a blessing. Do you really think you’d be happier without having ever been so blessed? How happy we all would be to never have to deal with it again? And no one on the ng who finds it impossible to think of it as one should feel the slightest guilt or shame for that (having noticed that, as a group, we P sufferers tend to be particularly good at self flagellating guilt and shame <rueful grin). -Kim "From far, from eve and morning  And yon twelve winded sky  The stuff of life to knit me  Blew hither, here am I"      -A. E. Housman

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Hi Stacy: I too have been blesshed with psoriasis.And I a lot older then you. Proud to be 49.. The best thing that you can do for yourself and your psoriasis is to talk to your parents about your feelings. Be open with them. And the second best thing to do is not to worry so much about what other people think. You are the most important thing, how you feel about yourself at this time is going to greatly improve your condition. I heard once that people who are blesshed with Psoriasis are people who care a lot about people and are people with a lot of LOVe in their hearts. We are people who are very sensetive about other people. I have had this now for about 3 yrs.. Had a very bad  case of it  allover my body. Now I just have a few spotes to contend with. Sure doesn’t look good and it doesn’t feel good o have it. But I know in my heart and mind who I am as a person. And no one can take that away.Psoriasis can’t take away the love that I feel for my family, my friends and for life. Think about all the good things that you do as a young person, think about your future a s a adult.And think about your parents. Bileve in your future, and yourself. Kind regards. Hope this helps. – Hide quoted text — Show quoted text – Hi!  I’m a 19 year old female, and have had psoriasis since I was about 7 or 8.  I read in a book once that people with psoriasis usually have a low self-esteem.  At first, I didn’t really believe it, but as I grew up, that changed.  Friends unaware of my skin condition would go "Eww..what’s that behind you ear???"  Then I’d feel all self-conscious and have to explain everything.  Fortunately, my psoriasis is basically located where it can be hidden (it’s only on my scalp), but still….  In phys.ed., I used to sit in the back of the class so no one could see my hair line when I had my hair tied up.  Even on the bus when my hair is down, I worry if people can see it.  Now, it’s not toooo bad.  Good thing school’s going well, ’cause I hear psoriasis can also be caused by stress.  Anyways, I just thought I’d join this group, to get some tips or whatever, to maybe "get rid" of this problem.  I know it can’t be cured (yet), so I’m stuck with it.  I’d just like to be able to not worry so much.  I’m a very self-conscious person to begin with, so having psoriasis doesn’ help…….If you have any ideas that could help, please share them…I’d love to hear about them…. Stacy

– MZ

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Hi!  I’m a 19 year old female, and have had psoriasis since I was about 7 or 8.  I read in a book once that people with psoriasis usually have a low self-esteem.  At first, I didn’t really believe it, but as I grew up, that changed.  Friends unaware of my skin condition would go "Eww..what’s that behind you ear???"  Then I’d feel all self-conscious and have to explain everything.  Fortunately, my psoriasis is basically located where it can be hidden (it’s only on my scalp), but still….  In phys.ed., I used to sit in the back of the class so no one could see my hair line when I had my hair tied up.  Even on the bus when my hair is down, I worry if people can see it.  Now, it’s not toooo bad.  Good thing school’s going well, ’cause I hear psoriasis can also be caused by stress.  Anyways, I just thought I’d join this group, to get some tips or whatever, to maybe "get rid" of this problem.  I know it can’t be cured (yet), so I’m stuck with it.  I’d just like to be able to not worry so much.  I’m a very self-conscious person to begin with, so having psoriasis doesn’ help…….If you have any ideas that could help, please share them…I’d love to hear about them…. Stacy

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- Hide quoted text — Show quoted text – Hi!  I’m a 19 year old female, and have had psoriasis since I was about 7 or 8.  I read in a book once that people with psoriasis usually have a low self-esteem.  At first, I didn’t really believe it, but as I grew up, that changed.  Friends unaware of my skin condition would go "Eww..what’s that behind you ear???"  Then I’d feel all self-conscious and have to explain everything.  Fortunately, my psoriasis is basically located where it can be hidden (it’s only on my scalp), but still….  In phys.ed., I used to sit in the back of the class so no one could see my hair line when I had my hair tied up.  Even on the bus when my hair is down, I worry if people can see it.  Now, it’s not toooo bad.  Good thing school’s going well, ’cause I hear psoriasis can also be caused by stress.  Anyways, I just thought I’d join this group, to get some tips or whatever, to maybe "get rid" of this problem.  I know it can’t be cured (yet), so I’m stuck with it.  I’d just like to be able to not worry so much.  I’m a very self-conscious person to begin with, so having psoriasis doesn’ help…….If you have any ideas that could help, please share them…I’d love to hear about them…. Stacy

Hi Stacy- Welcome to the group and sure sounds like you understand the feeling behind the this stuff sucks post someone else made. You don’t say what you’re doing to treat the P in your scalp, so I don’t know what else to suggest that you might try. There are a whole bunch of things that other people have had success with. The ng has a searchable archive at http://www.pinch.com if you want to take a look at what’s been discussed in the past. Tough to do much about the self consciousness, which as you say, the P doesn’t help. It’s easy for me to say don’t let it get to you, but that’s not exactly a vast help, I know. Might consider suggesting your friends get some lessons in tact, too <g, but yeah I know that’s not much more help. Maybe one of the scalp treatment options could get you clear enough that you don’t have anything to worry about people seeing. I’ve had the best luck with tar shampoos -lots of people like Tgel, but I didn’t think it helped as much as some others. I like one called Polytar, which doesn’t stink like some and is also gentle on the hair. I’ve also used something called Dermasmoothe with some success. It’s a corticosteroid suspended in peanut oil. The oil helps moisturize your scalp (and hair -my hair’s always nice and shiny after using it) and gently soak off the flakes, along with the benefit of the steroid. You need a doctor’s prescription to get it though, and corticosteroids can cause more problems if you use them too much over a long time. Might give you a jumpstart of clearing it up though. Also, dunno if you’ve ever heard of the National Psoriasis Foundation? It’s run by people with P and has lots of handouts available, including ones on things like Scalp P, but also on self esteem problems and what it’s like to live with P. They have a website with contact info at http://www.psoriasis.org -Kim "From far, from eve and morning  And yon twelve winded sky  The stuff of life to knit me  Blew hither, here am I"      -A. E. Housman

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(snip) I have met many very nice people everywhere I travel.  No bad experiences in that regard, yet. I asked if YOU are from WEst Virginia..

No.  But I spend a lot of time there.  It is a beautiful state for motorcycle riding.  Lots of great scenery, very 3 dimensional (the curves go up and down as well as side to side) with little traffic and lots of wild life.  Route 39 between Summersville and Marlinton is awesome.   — John Popelish

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I asked if YOU are from WEst Virginia.. No.  But I spend a lot of time there.  It is a beautiful state for motorcycle riding.Lots of great scenery, very 3 dimensional (the curves go up and down as well as side to side) with little traffic and lots of wild life.  Route 39 between Summersville and Marlinton is awesome. — John Popelish

Oh i thought you lived in a trailer :) Dont’ get me wrong i luv that show "trailer park boys".  In fact that’s the best piece of television on right now..along with Oz.  Too bad it’s only Sunday, darn it. —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

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(snip) As it happened, I had moved up from a 650 cc Yamaha to an 1100 cc BMW, and it took me a while to get used to the higher power and weight.  I rear ended a car in Florida in March and bounced off a guard rail in West Virginia in May, Are you really from West Virgia??  Is there lotsa white trash there?

(snip) Heh.  You are really desperate to feel superior to somebody–anybody, aren’t you?   I have met many very nice people everywhere I travel.  No bad experiences in that regard, yet. — John Popelish

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- Hide quoted text — Show quoted text – (snip) As it happened, I had moved up from a 650 cc Yamaha to an 1100 cc BMW, and it took me a while to get used to the higher power and weight.  I rear ended a car in Florida in March and bounced off a guard rail in West Virginia in May, Are you really from West Virgia??  Is there lotsa white trash there? (snip) Heh.  You are really desperate to feel superior to somebody–anybody, aren’t you? I have met many very nice people everywhere I travel.  No bad experiences in that regard, yet. — John Popelish

I asked if YOU are from WEst Virginia.. —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

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I remember seeing soem picture at a Web site called www.rotten.com that has a ton of disgusting, grotesque but real pictures. One of them was entitled "Nothing comes between me and my Harley", and it showed a man on an operating table (still alive) whose entire face from between the eyes right through his lower jaw had been scooped out as if ny a trowel from a motorcycle accident. It’s one of the pictures you remember forever. I no longer feel any desire to ride a motorcycle!   ;)

I think about how I might die almost every time I ride.  It helps keep me from doing too many silly things, just because someone else is.  Of course, I think the same thoughts every time I get in an automobile, too.  50,000 or so people die in those every year.  I’m glad I don’t have to look at pictures of all of them.  How do you want to die? — John Popelish

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- Hide quoted text — Show quoted text – Ouch paper cuts..that’s paiN :) The two motorcycle accidents were bigger pains.  :( From those experiences, I am beginning to think that MSM makes your bones more resilient, also. — John Popelish Hehhe i’d like to see you fall off a bicycle..just for the show :)  you’d go like..ahhhhhh lol BTW..progress on my beard..I shaved it all off, I was afraid i’m never gonna see my chin again, or that i lost my chin lol.

A fall off a bicycle might be fun.   As it happened, I had moved up from a 650 cc Yamaha to an 1100 cc BMW, and it took me a while to get used to the higher power and weight.  I rear ended a car in Florida in March and bounced off a guard rail in West Virginia in May, sliding across the road,  and getting a breath taking body slam from one side of the bike to the other.  It a was a very strange sensation to feel my stomach reach out and slap the road at my side.  Both of these beat me up a bit (lots of fantastic bruises and a few brush burns), but all that I have to show for them now is a pink spot on one knee that is still fading.  Like I said, I am beginning to think that MSM is pretty good stuff.  Acne scars should be no problem for it.  No time to say "ahhhhhh" in either case. Too bad about your beard.  Perhaps a mustache would work better.  :{D — John Popelish

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I remember seeing soem picture at a Web site called www.rotten.com that has a ton of disgusting, grotesque but real pictures. One of them was entitled "Nothing comes between me and my Harley", and it showed a man on an operating table (still alive) whose entire face from between the eyes right through his lower jaw had been scooped out as if ny a trowel from a motorcycle accident. It’s one of the pictures you remember forever. I no longer feel any desire to ride a motorcycle!   ;) –Will

Ouch paper cuts..that’s paiN :) The two motorcycle accidents were bigger pains.  :( From those experiences, I am beginning to think that MSM makes your bones more resilient, also. — John Popelish Hehhe i’d like to see you fall off a bicycle..just for the show :)

you’d go like..ahhhhhh lol BTW..progress on my beard..I shaved it all off, I was afraid i’m never

gonna see my chin again, or that i lost – Hide quoted text — Show quoted text – my chin lol. A fall off a bicycle might be fun. As it happened, I had moved up from a 650 cc Yamaha to an 1100 cc BMW, and it took me a while to get used to the higher power and weight.  I rear ended a car in Florida in March and bounced off a guard rail in West Virginia in May, sliding across the road,  and getting a breath taking body slam from one side of the bike to the other.  It a was a very strange sensation to feel my stomach reach out and slap the road at my side.  Both of these beat me up a bit (lots of fantastic bruises and a few brush burns), but all that I have to show for them now is a pink spot on one knee that is still fading.  Like I said, I am beginning to think that MSM is pretty good stuff.  Acne scars should be no problem for it.  No time to say "ahhhhhh" in either case. Too bad about your beard.  Perhaps a mustache would work better.  :{D — John Popelish

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- Hide quoted text — Show quoted text – Ouch paper cuts..that’s paiN :) The two motorcycle accidents were bigger pains.  :( From those experiences, I am beginning to think that MSM makes your bones more resilient, also. — John Popelish Hehhe i’d like to see you fall off a bicycle..just for the show :)  you’d go like..ahhhhhh lol BTW..progress on my beard..I shaved it all off, I was afraid i’m never gonna see my chin again, or that i lost my chin lol. A fall off a bicycle might be fun. As it happened, I had moved up from a 650 cc Yamaha to an 1100 cc BMW, and it took me a while to get used to the higher power and weight.  I rear ended a car in Florida in March and bounced off a guard rail in West Virginia in May,

Are you really from West Virgia??  Is there lotsa white trash there?  sliding across the road,  and getting a breath taking body slam from one side of the bike to the other.  It a was a very strange sensation to feel my stomach reach out and slap the road at my side.  Both of these beat me up a bit (lots of fantastic bruises and a few brush burns), but all that I have to show for them now is a pink spot on one knee that is still fading.  Like I said, I am beginning to think that MSM is pretty good stuff.  Acne scars should be no problem for it.  No time to say "ahhhhhh" in either case. Too bad about your beard.  Perhaps a mustache would work better.  :{D — John Popelish

Well it wasn’t a full beard to beggin with.  If you remmeber i wanted a goatee.  It got weird after a while.. —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

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When you hear people say ‘It’s how he would have wanted to go…’ when they No it isn’t: How he wanted to go was dying in a warm cosy bed, having had a walk, in the sun, on the beach with his faithful hound, followed by a hot shower, a steak dinner with the best wine, and a f**k….At 97…… Well, that’s My Way!…

– Hide quoted text — Show quoted text – In bed. Heh heh. But seriously, in my sleep and suddenly at that–no drawn out illness or hospitalization, etc, and nothing too unpleasant for those who find me. I had a friend who died in a motorcycle accident. He was just riding down the road, and a stone turned under his wheel. He flew head-first into a tree (no helmet) and crushed part of his skull. He was technically braindead, and his family was forced to make the decision to unplug him. I figure a car is a little better, as it is a more stable vehicle with 4 wheels on the ground, has airbags (mine anyway), ABS, traction control, lots of mirrors, and a safety frame and front/rear crumple zones. More people die from smoking, though, than car wrecks–about 8 times as many in fact, each year in the U.S. alone. Maybe if some day I get to transplant my consciousness into a robot body like the Termiantor, I’ll consider getting a motorcycle. But until then… ;) –Will I remember seeing soem picture at a Web site called www.rotten.com that has a ton of disgusting, grotesque but real pictures. One of them was entitled "Nothing comes between me and my Harley", and it showed a man on an operating table (still alive) whose entire face from between the eyes right through his lower jaw had been scooped out as if ny a trowel from a motorcycle accident. It’s one of the pictures you remember forever. I no longer feel any desire to ride a motorcycle!   ;) I think about how I might die almost every time I ride.  It helps keep me from doing too many silly things, just because someone else is.  Of course, I think the same thoughts every time I get in an automobile, too.  50,000 or so people die in those every year.  I’m glad I don’t have to look at pictures of all of them.  How do you want to die? — John Popelish

Response:

In bed. Heh heh. But seriously, in my sleep and suddenly at that–no drawn out illness or hospitalization, etc, and nothing too unpleasant for those who find me. I had a friend who died in a motorcycle accident. He was just riding down the road, and a stone turned under his wheel. He flew head-first into a tree (no helmet) and crushed part of his skull. He was technically braindead, and his family was forced to make the decision to unplug him. I figure a car is a little better, as it is a more stable vehicle with 4 wheels on the ground, has airbags (mine anyway), ABS, traction control, lots of mirrors, and a safety frame and front/rear crumple zones. More people die from smoking, though, than car wrecks–about 8 times as many in fact, each year in the U.S. alone. Maybe if some day I get to transplant my consciousness into a robot body like the Termiantor, I’ll consider getting a motorcycle. But until then… ;) –Will

– Hide quoted text — Show quoted text – I remember seeing soem picture at a Web site called www.rotten.com that has a ton of disgusting, grotesque but real pictures. One of them was entitled "Nothing comes between me and my Harley", and it showed a man on an operating table (still alive) whose entire face from between the eyes right through his lower jaw had been scooped out as if ny a trowel from a motorcycle accident. It’s one of the pictures you remember forever. I no longer feel any desire to ride a motorcycle!   ;) I think about how I might die almost every time I ride.  It helps keep me from doing too many silly things, just because someone else is.  Of course, I think the same thoughts every time I get in an automobile, too.  50,000 or so people die in those every year.  I’m glad I don’t have to look at pictures of all of them.  How do you want to die? — John Popelish

Response:

- Hide quoted text — Show quoted text – what is MSM? MSM stands for meythyl sulfonyl methane, an organic molecule than contains sulfur in a form that is very useful to all living cells.  It is almost tasteless (slightly bitter to some people) and is present in all living tissue.  but it is very temperature sensitive, and is altered by cooking temperatures, so if a significant part of your diet is not uncooked cells (sushi, fruits and vegetables, etc.), you are probably a bit short of this nutrient.  It is involved in several important biochemical processes but one of the important ones for acne is its involvement in the production of amino acids that get built into proteins that make up skin an other tissue. I have read that if you take any more than about 500 mg with a meal, not all of it will be absorbed.  So a useful amount may be 500 mg to 1500 mg taken 500 mg per meal.  I am a bit lazy, and just take 1000 mg with supper, but this probably wastes some of that.  Since I started taking it about a year ago, I noticed that all my old scars are disappearing, and I heal much faster after an injury (and I am not just talking about paper cuts). — John Popelish

Ouch paper cuts..that’s paiN :) —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

Response:

what is MSM?

It’s a search engine. —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

Response:

(snip)   Since I started taking it about a year ago, I noticed that all my old scars are disappearing, and I heal much faster after an injury (and I am not just talking about paper cuts). Ouch paper cuts..that’s paiN :)

The two motorcycle accidents were bigger pains.  :( From those experiences, I am beginning to think that MSM makes your bones more resilient, also. — John Popelish

Response:

Ouch paper cuts..that’s paiN :) The two motorcycle accidents were bigger pains.  :( From those experiences, I am beginning to think that MSM makes your bones more resilient, also. — John Popelish

Hehhe i’d like to see you fall off a bicycle..just for the show :)  you’d go like..ahhhhhh lol BTW..progress on my beard..I shaved it all off, I was afraid i’m never gonna see my chin again, or that i lost my chin lol. —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

Response:

what is MSM?

Response:

what is MSM?

MSM stands for meythyl sulfonyl methane, an organic molecule than contains sulfur in a form that is very useful to all living cells.  It is almost tasteless (slightly bitter to some people) and is present in all living tissue.  but it is very temperature sensitive, and is altered by cooking temperatures, so if a significant part of your diet is not uncooked cells (sushi, fruits and vegetables, etc.), you are probably a bit short of this nutrient.  It is involved in several important biochemical processes but one of the important ones for acne is its involvement in the production of amino acids that get built into proteins that make up skin an other tissue. I have read that if you take any more than about 500 mg with a meal, not all of it will be absorbed.  So a useful amount may be 500 mg to 1500 mg taken 500 mg per meal.  I am a bit lazy, and just take 1000 mg with supper, but this probably wastes some of that.  Since I started taking it about a year ago, I noticed that all my old scars are disappearing, and I heal much faster after an injury (and I am not just talking about paper cuts).   — John Popelish

Response:

No rules really, just stay on topic, don’t bring up the urine on face "treatment", and you should be fine. What about urine in the face treatment?

You’re not supposed to mention that!!1!!!!1!

Response:

:

::: ::: No rules really, just stay on topic, don’t bring up the urine on ::: face "treatment", and you should be fine. :: :: What about urine in the face treatment? : : You’re not supposed to mention that!!1!!!!1! is this some stealth golden-shower perv froup? — Steve Leyland mhm32×16  Smeeter#35 flower: three 6 four 9 five 8 eight 9   =^MEOW^= Son:   Mommy, mommy! I don’t want any more hamburger! Mom:   Shut up and stick your arms back into the meat grinder. "please find below with full headers several posts apparently from your user who is extensively trolling, extensively cross-posting, posting off-topic, abusing and generally doing everything wrong on USENET."

Response:

: ::: ::: No rules really, just stay on topic, don’t bring up the urine on ::: face "treatment", and you should be fine. :: :: What about urine in the face treatment? : : You’re not supposed to mention that!!1!!!!1! is this some stealth golden-shower perv froup?

Exactly. — Ready to create a new newsgroup? It’s easier than ever. Download control message program and maybe find out what Snuh means at spiffy new Snuh site.     ~NEW~ Snuh web mail: http://www.geocities.com/snuhsite –   Newsgroups: alt.tv.simpsons If I have any integrity at all, I must leave.   I welcome others to do so as well if they refuse to be led by a group of unthinking drones that are stuck in such a mindnumbingly predictable pattern of snuh/attack/snuh/attack/penises/attack/snuh/rectum/attack/. – Newsgroups: alt.hentai.sailor-moon Nobody can control the snuh.  ad88888ba                             88        ad88888ba   d8"     "8b                            88       d8"     "8b   Y8,                                    88       ""      a8P   `Y8aaaaa,    8b,YHBTba,   88       88  88,dPPYba,    ,a8P"     `"""""8b,  88P’   `"8a  88       88  88P’    "8a  d8"               `8b  88       88  88       88  88       88  ""       Y8a     a8P  88       88  "8a,   ,a88  88       88  88              "Y88888P"   88       88   `"YbbdP’Y8  88       Get Snuhy!

Response:

No rules really, just stay on topic, don’t bring up the urine on face "treatment", and you should be fine.

What about urine in the face treatment? Hi! nice newsgroup. any rules I should know before I start posting? is there an faq? Thanks!

– Ready to create a new newsgroup? It’s easier than ever. Download control message program and maybe find out what Snuh means at spiffy new Snuh site.     ~NEW~ Snuh web mail: http://www.geocities.com/snuhsite –   Newsgroups: alt.tv.simpsons If I have any integrity at all, I must leave.   I welcome others to do so as well if they refuse to be led by a group of unthinking drones that are stuck in such a mindnumbingly predictable pattern of snuh/attack/snuh/attack/penises/attack/snuh/rectum/attack/. – Newsgroups: alt.hentai.sailor-moon Nobody can control the snuh.  ad88888ba                             88        ad88888ba   d8"     "8b                            88       d8"     "8b   Y8,                                    88       ""      a8P   `Y8aaaaa,    8b,YHBTba,   88       88  88,dPPYba,    ,a8P"     `"""""8b,  88P’   `"8a  88       88  88P’    "8a  d8"               `8b  88       88  88       88  88       88  ""       Y8a     a8P  88       88  "8a,   ,a88  88       88  88              "Y88888P"   88       88   `"YbbdP’Y8  88       Get Snuhy!

Response:

(snip) I have met many very nice people everywhere I travel.  No bad experiences in that regard, yet. I asked if YOU are from WEst Virginia..

No.  But I spend a lot of time there.  It is a beautiful state for motorcycle riding.  Lots of great scenery, very 3 dimensional (the curves go up and down as well as side to side) with little traffic and lots of wild life.  Route 39 between Summersville and Marlinton is awesome.   — John Popelish

Response:

I asked if YOU are from WEst Virginia.. No.  But I spend a lot of time there.  It is a beautiful state for motorcycle riding.Lots of great scenery, very 3 dimensional (the curves go up and down as well as side to side) with little traffic and lots of wild life.  Route 39 between Summersville and Marlinton is awesome. — John Popelish

Oh i thought you lived in a trailer :) Dont’ get me wrong i luv that show "trailer park boys".  In fact that’s the best piece of television on right now..along with Oz.  Too bad it’s only Sunday, darn it. —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

Response:

(snip) As it happened, I had moved up from a 650 cc Yamaha to an 1100 cc BMW, and it took me a while to get used to the higher power and weight.  I rear ended a car in Florida in March and bounced off a guard rail in West Virginia in May, Are you really from West Virgia??  Is there lotsa white trash there?

(snip) Heh.  You are really desperate to feel superior to somebody–anybody, aren’t you?   I have met many very nice people everywhere I travel.  No bad experiences in that regard, yet. — John Popelish

Response:

- Hide quoted text — Show quoted text – (snip) As it happened, I had moved up from a 650 cc Yamaha to an 1100 cc BMW, and it took me a while to get used to the higher power and weight.  I rear ended a car in Florida in March and bounced off a guard rail in West Virginia in May, Are you really from West Virgia??  Is there lotsa white trash there? (snip) Heh.  You are really desperate to feel superior to somebody–anybody, aren’t you? I have met many very nice people everywhere I travel.  No bad experiences in that regard, yet. — John Popelish

I asked if YOU are from WEst Virginia.. —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

Response:

I remember seeing soem picture at a Web site called www.rotten.com that has a ton of disgusting, grotesque but real pictures. One of them was entitled "Nothing comes between me and my Harley", and it showed a man on an operating table (still alive) whose entire face from between the eyes right through his lower jaw had been scooped out as if ny a trowel from a motorcycle accident. It’s one of the pictures you remember forever. I no longer feel any desire to ride a motorcycle!   ;)

I think about how I might die almost every time I ride.  It helps keep me from doing too many silly things, just because someone else is.  Of course, I think the same thoughts every time I get in an automobile, too.  50,000 or so people die in those every year.  I’m glad I don’t have to look at pictures of all of them.  How do you want to die? — John Popelish

Response:

- Hide quoted text — Show quoted text – Ouch paper cuts..that’s paiN :) The two motorcycle accidents were bigger pains.  :( From those experiences, I am beginning to think that MSM makes your bones more resilient, also. — John Popelish Hehhe i’d like to see you fall off a bicycle..just for the show :)  you’d go like..ahhhhhh lol BTW..progress on my beard..I shaved it all off, I was afraid i’m never gonna see my chin again, or that i lost my chin lol.

A fall off a bicycle might be fun.   As it happened, I had moved up from a 650 cc Yamaha to an 1100 cc BMW, and it took me a while to get used to the higher power and weight.  I rear ended a car in Florida in March and bounced off a guard rail in West Virginia in May, sliding across the road,  and getting a breath taking body slam from one side of the bike to the other.  It a was a very strange sensation to feel my stomach reach out and slap the road at my side.  Both of these beat me up a bit (lots of fantastic bruises and a few brush burns), but all that I have to show for them now is a pink spot on one knee that is still fading.  Like I said, I am beginning to think that MSM is pretty good stuff.  Acne scars should be no problem for it.  No time to say "ahhhhhh" in either case. Too bad about your beard.  Perhaps a mustache would work better.  :{D — John Popelish

Response:

I remember seeing soem picture at a Web site called www.rotten.com that has a ton of disgusting, grotesque but real pictures. One of them was entitled "Nothing comes between me and my Harley", and it showed a man on an operating table (still alive) whose entire face from between the eyes right through his lower jaw had been scooped out as if ny a trowel from a motorcycle accident. It’s one of the pictures you remember forever. I no longer feel any desire to ride a motorcycle!   ;) –Will

Ouch paper cuts..that’s paiN :) The two motorcycle accidents were bigger pains.  :( From those experiences, I am beginning to think that MSM makes your bones more resilient, also. — John Popelish Hehhe i’d like to see you fall off a bicycle..just for the show :)

you’d go like..ahhhhhh lol BTW..progress on my beard..I shaved it all off, I was afraid i’m never

gonna see my chin again, or that i lost – Hide quoted text — Show quoted text – my chin lol. A fall off a bicycle might be fun. As it happened, I had moved up from a 650 cc Yamaha to an 1100 cc BMW, and it took me a while to get used to the higher power and weight.  I rear ended a car in Florida in March and bounced off a guard rail in West Virginia in May, sliding across the road,  and getting a breath taking body slam from one side of the bike to the other.  It a was a very strange sensation to feel my stomach reach out and slap the road at my side.  Both of these beat me up a bit (lots of fantastic bruises and a few brush burns), but all that I have to show for them now is a pink spot on one knee that is still fading.  Like I said, I am beginning to think that MSM is pretty good stuff.  Acne scars should be no problem for it.  No time to say "ahhhhhh" in either case. Too bad about your beard.  Perhaps a mustache would work better.  :{D — John Popelish

Response:

- Hide quoted text — Show quoted text – Ouch paper cuts..that’s paiN :) The two motorcycle accidents were bigger pains.  :( From those experiences, I am beginning to think that MSM makes your bones more resilient, also. — John Popelish Hehhe i’d like to see you fall off a bicycle..just for the show :)  you’d go like..ahhhhhh lol BTW..progress on my beard..I shaved it all off, I was afraid i’m never gonna see my chin again, or that i lost my chin lol. A fall off a bicycle might be fun. As it happened, I had moved up from a 650 cc Yamaha to an 1100 cc BMW, and it took me a while to get used to the higher power and weight.  I rear ended a car in Florida in March and bounced off a guard rail in West Virginia in May,

Are you really from West Virgia??  Is there lotsa white trash there?  sliding across the road,  and getting a breath taking body slam from one side of the bike to the other.  It a was a very strange sensation to feel my stomach reach out and slap the road at my side.  Both of these beat me up a bit (lots of fantastic bruises and a few brush burns), but all that I have to show for them now is a pink spot on one knee that is still fading.  Like I said, I am beginning to think that MSM is pretty good stuff.  Acne scars should be no problem for it.  No time to say "ahhhhhh" in either case. Too bad about your beard.  Perhaps a mustache would work better.  :{D — John Popelish

Well it wasn’t a full beard to beggin with.  If you remmeber i wanted a goatee.  It got weird after a while.. —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

Response:

When you hear people say ‘It’s how he would have wanted to go…’ when they No it isn’t: How he wanted to go was dying in a warm cosy bed, having had a walk, in the sun, on the beach with his faithful hound, followed by a hot shower, a steak dinner with the best wine, and a f**k….At 97…… Well, that’s My Way!…

– Hide quoted text — Show quoted text – In bed. Heh heh. But seriously, in my sleep and suddenly at that–no drawn out illness or hospitalization, etc, and nothing too unpleasant for those who find me. I had a friend who died in a motorcycle accident. He was just riding down the road, and a stone turned under his wheel. He flew head-first into a tree (no helmet) and crushed part of his skull. He was technically braindead, and his family was forced to make the decision to unplug him. I figure a car is a little better, as it is a more stable vehicle with 4 wheels on the ground, has airbags (mine anyway), ABS, traction control, lots of mirrors, and a safety frame and front/rear crumple zones. More people die from smoking, though, than car wrecks–about 8 times as many in fact, each year in the U.S. alone. Maybe if some day I get to transplant my consciousness into a robot body like the Termiantor, I’ll consider getting a motorcycle. But until then… ;) –Will I remember seeing soem picture at a Web site called www.rotten.com that has a ton of disgusting, grotesque but real pictures. One of them was entitled "Nothing comes between me and my Harley", and it showed a man on an operating table (still alive) whose entire face from between the eyes right through his lower jaw had been scooped out as if ny a trowel from a motorcycle accident. It’s one of the pictures you remember forever. I no longer feel any desire to ride a motorcycle!   ;) I think about how I might die almost every time I ride.  It helps keep me from doing too many silly things, just because someone else is.  Of course, I think the same thoughts every time I get in an automobile, too.  50,000 or so people die in those every year.  I’m glad I don’t have to look at pictures of all of them.  How do you want to die? — John Popelish

Response:

In bed. Heh heh. But seriously, in my sleep and suddenly at that–no drawn out illness or hospitalization, etc, and nothing too unpleasant for those who find me. I had a friend who died in a motorcycle accident. He was just riding down the road, and a stone turned under his wheel. He flew head-first into a tree (no helmet) and crushed part of his skull. He was technically braindead, and his family was forced to make the decision to unplug him. I figure a car is a little better, as it is a more stable vehicle with 4 wheels on the ground, has airbags (mine anyway), ABS, traction control, lots of mirrors, and a safety frame and front/rear crumple zones. More people die from smoking, though, than car wrecks–about 8 times as many in fact, each year in the U.S. alone. Maybe if some day I get to transplant my consciousness into a robot body like the Termiantor, I’ll consider getting a motorcycle. But until then… ;) –Will

– Hide quoted text — Show quoted text – I remember seeing soem picture at a Web site called www.rotten.com that has a ton of disgusting, grotesque but real pictures. One of them was entitled "Nothing comes between me and my Harley", and it showed a man on an operating table (still alive) whose entire face from between the eyes right through his lower jaw had been scooped out as if ny a trowel from a motorcycle accident. It’s one of the pictures you remember forever. I no longer feel any desire to ride a motorcycle!   ;) I think about how I might die almost every time I ride.  It helps keep me from doing too many silly things, just because someone else is.  Of course, I think the same thoughts every time I get in an automobile, too.  50,000 or so people die in those every year.  I’m glad I don’t have to look at pictures of all of them.  How do you want to die? — John Popelish

Response:

- Hide quoted text — Show quoted text – what is MSM? MSM stands for meythyl sulfonyl methane, an organic molecule than contains sulfur in a form that is very useful to all living cells.  It is almost tasteless (slightly bitter to some people) and is present in all living tissue.  but it is very temperature sensitive, and is altered by cooking temperatures, so if a significant part of your diet is not uncooked cells (sushi, fruits and vegetables, etc.), you are probably a bit short of this nutrient.  It is involved in several important biochemical processes but one of the important ones for acne is its involvement in the production of amino acids that get built into proteins that make up skin an other tissue. I have read that if you take any more than about 500 mg with a meal, not all of it will be absorbed.  So a useful amount may be 500 mg to 1500 mg taken 500 mg per meal.  I am a bit lazy, and just take 1000 mg with supper, but this probably wastes some of that.  Since I started taking it about a year ago, I noticed that all my old scars are disappearing, and I heal much faster after an injury (and I am not just talking about paper cuts). — John Popelish

Ouch paper cuts..that’s paiN :) —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

Response:

what is MSM?

It’s a search engine. —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

Response:

(snip)   Since I started taking it about a year ago, I noticed that all my old scars are disappearing, and I heal much faster after an injury (and I am not just talking about paper cuts). Ouch paper cuts..that’s paiN :)

The two motorcycle accidents were bigger pains.  :( From those experiences, I am beginning to think that MSM makes your bones more resilient, also. — John Popelish

Response:

Ouch paper cuts..that’s paiN :) The two motorcycle accidents were bigger pains.  :( From those experiences, I am beginning to think that MSM makes your bones more resilient, also. — John Popelish

Hehhe i’d like to see you fall off a bicycle..just for the show :)  you’d go like..ahhhhhh lol BTW..progress on my beard..I shaved it all off, I was afraid i’m never gonna see my chin again, or that i lost my chin lol. —                                      /                                                   / .—–.          I am the Great Cornholio!!         |/ –`-`-                                             |                |  I need TP for my bunghole!!         |   _–         |                                      _| =-.     |      |  Come out with your pants down!      o|/o/      |      |                                      /  ~       |      |  heh-heh.  This is cool.  heh-heh        |     |      |                                           _/__/       |                                         /            __                                         -| Metallica|| |                                         ||          || |                                         ||          || |                                         /|          / /          /                         / /                     |                  |        /                  /       |      ___ | | / /       |      /                 |      |                /       |      _    |      |       |         |      |       |       _ /|     I am Corn Julio!!! I need TP for my      |      __     <_o)o-    bunghole!!!! Where we come from we      |     |                 have no bungholes…Would you like          ||                to be my bunghole?        |   |__          _      /        |   |           (*___)  /        |   |       _     |    /        |  /       | UUUUU__         |        _nnnnnn_-          |      /          |_____/

Response:

what is MSM?

Response:

what is MSM?

MSM stands for meythyl sulfonyl methane, an organic molecule than contains sulfur in a form that is very useful to all living cells.  It is almost tasteless (slightly bitter to some people) and is present in all living tissue.  but it is very temperature sensitive, and is altered by cooking temperatures, so if a significant part of your diet is not uncooked cells (sushi, fruits and vegetables, etc.), you are probably a bit short of this nutrient.  It is involved in several important biochemical processes but one of the important ones for acne is its involvement in the production of amino acids that get built into proteins that make up skin an other tissue. I have read that if you take any more than about 500 mg with a meal, not all of it will be absorbed.  So a useful amount may be 500 mg to 1500 mg taken 500 mg per meal.  I am a bit lazy, and just take 1000 mg with supper, but this probably wastes some of that.  Since I started taking it about a year ago, I noticed that all my old scars are disappearing, and I heal much faster after an injury (and I am not just talking about paper cuts).   — John Popelish

Response:

No rules really, just stay on topic, don’t bring up the urine on face "treatment", and you should be fine. What about urine in the face treatment?

You’re not supposed to mention that!!1!!!!1!

Response:

:

::: ::: No rules really, just stay on topic, don’t bring up the urine on ::: face "treatment", and you should be fine. :: :: What about urine in the face treatment? : : You’re not supposed to mention that!!1!!!!1! is this some stealth golden-shower perv froup? — Steve Leyland mhm32×16  Smeeter#35 flower: three 6 four 9 five 8 eight 9   =^MEOW^= Son:   Mommy, mommy! I don’t want any more hamburger! Mom:   Shut up and stick your arms back into the meat grinder. "please find below with full headers several posts apparently from your user who is extensively trolling, extensively cross-posting, posting off-topic, abusing and generally doing everything wrong on USENET."

Response:

: ::: ::: No rules really, just stay on topic, don’t bring up the urine on ::: face "treatment", and you should be fine. :: :: What about urine in the face treatment? : : You’re not supposed to mention that!!1!!!!1! is this some stealth golden-shower perv froup?

Exactly. — Ready to create a new newsgroup? It’s easier than ever. Download control message program and maybe find out what Snuh means at spiffy new Snuh site.     ~NEW~ Snuh web mail: http://www.geocities.com/snuhsite –   Newsgroups: alt.tv.simpsons If I have any integrity at all, I must leave.   I welcome others to do so as well if they refuse to be led by a group of unthinking drones that are stuck in such a mindnumbingly predictable pattern of snuh/attack/snuh/attack/penises/attack/snuh/rectum/attack/. – Newsgroups: alt.hentai.sailor-moon Nobody can control the snuh.  ad88888ba                             88        ad88888ba   d8"     "8b                            88       d8"     "8b   Y8,                                    88       ""      a8P   `Y8aaaaa,    8b,YHBTba,   88       88  88,dPPYba,    ,a8P"     `"""""8b,  88P’   `"8a  88       88  88P’    "8a  d8"               `8b  88       88  88       88  88       88  ""       Y8a     a8P  88       88  "8a,   ,a88  88       88  88              "Y88888P"   88       88   `"YbbdP’Y8  88       Get Snuhy!

Response:

No rules really, just stay on topic, don’t bring up the urine on face "treatment", and you should be fine.

What about urine in the face treatment? Hi! nice newsgroup. any rules I should know before I start posting? is there an faq? Thanks!

– Ready to create a new newsgroup? It’s easier than ever. Download control message program and maybe find out what Snuh means at spiffy new Snuh site.     ~NEW~ Snuh web mail: http://www.geocities.com/snuhsite –   Newsgroups: alt.tv.simpsons If I have any integrity at all, I must leave.   I welcome others to do so as well if they refuse to be led by a group of unthinking drones that are stuck in such a mindnumbingly predictable pattern of snuh/attack/snuh/attack/penises/attack/snuh/rectum/attack/. – Newsgroups: alt.hentai.sailor-moon Nobody can control the snuh.  ad88888ba                             88        ad88888ba   d8"     "8b                            88       d8"     "8b   Y8,                                    88       ""      a8P   `Y8aaaaa,    8b,YHBTba,   88       88  88,dPPYba,    ,a8P"     `"""""8b,  88P’   `"8a  88       88  88P’    "8a  d8"               `8b  88       88  88       88  88       88  ""       Y8a     a8P  88       88  "8a,   ,a88  88       88  88              "Y88888P"   88       88   `"YbbdP’Y8  88       Get Snuhy!

Response:

I think Oaf-laugh-sun is a script kiddy…he/she/it has that mentality. Really?  I always assumed he was Andy using a different newsreader..

Nah, Andy is an amateur troll…he doesn’t have the brains to pre load a path statement…

Response:

I have also been preoccupied with my 15 year old daughter. Have you been boning her?

Now this reminds me of grade 9.  It was impossible to say anything without someone making that kind of joke. Ralph V

Response:

I have also been preoccupied with my 15 year old daughter. Have you been boning her? Now this reminds me of grade 9.  It was impossible to say anything without someone making that kind of joke. Ralph V

I think Oaf-laugh-sun is a script kiddy…he/she/it has that mentality.

Response:

Hello Just found out that I have bipolar II and post-traumatic stress disorder. Pretty upset right now, though this doesn’t make me any different than the person I was yesterday. LadyHawke

Response:

Hi LadyHawke. Welcome to the jungle. — ab- You know you’re gonna have a bad day when you see the sun come up. Over the curb. http://acidbitch.com

– Hide quoted text — Show quoted text – Hello Just found out that I have bipolar II and post-traumatic stress disorder. Pretty upset right now, though this doesn’t make me any different than the person I was yesterday. LadyHawke

Response:

What happened?  I had a nervous breakdown and walked out of work one day and never went back.  I spent 2 months staring at the wall.  I was on disability so I had to see a pdoc.  That’s when I was diagnosed.  With lithium and Prozac I am not the same person I was.  I never knew how off the wall I was. Now I’m very aware of my mood swings.  Now I know what it is like to be in the middle.  I thought that mania was the "norm".  It is all clear to me now.  It took me 2 years to adjust to my new life.  I wonder how long before I feel happy. — Lisa

Response:

Welcome  ladyhawke,  Sorry you have to be here,  but there are alot of people here to talk to who can help you out,  and give you lots of advice,  and it gives you a place to bitch along with others about your depression!!!!!! Rhonda icq 38827239 – Hide quoted text — Show quoted text – Hello Just found out that I have bipolar II and post-traumatic stress disorder. Pretty upset right now, though this doesn’t make me any different than the person I was yesterday. LadyHawke

Response:

Hello Just found out that I have bipolar II and post-traumatic stress disorder. Pretty upset right now, though this doesn’t make me any different than the person I was yesterday.

Welcome to the Mardi Gras Zardos. May our bits collide, somewhere out there WebPage at www.hispc.demon.co.uk

Response:

Hi LadyHawke! Welcome. I am also PTSD, as well as ultra-rapid-cycling bipolar. I just got approved for Neurontin (an expensive drug) which is working really well for me as a mood stabilizer. This is the first time in my life that I have *had* a mood stabilizer and it was hard work for me to get the one that I knew I needed. This group was an *immense* support to me in doing that. If you are PTSD, it’s probably a good idea for you to use a newsreader with killfile capabilities ( to block posts from designated authors, or posts on certain topics). That way you can leave your feelings open to the good people and good energies that *are* here, without getting triggered and feeling re-abused by some of the really wild stuff that sometimes flies around. I use Forte Agent, a registered copy. (the FreeAgent version doesnt do filtering – i.e. killfiling). Peace to you. Mary Sunshine – Hide quoted text — Show quoted text – Hello Just found out that I have bipolar II and post-traumatic stress disorder. Pretty upset right now, though this doesn’t make me any different than the person I was yesterday. LadyHawke

Response:

My mother takes Neurontin (along with Paxil) and they have helped her a lot. My p-doc is considering it for me to start next month, but we may try one of the other mood stabilizers.  I have read reviews of Neurontin that sings its praises, and others that say it isn’t helpful at all, but it does seem to help some people. I hope that it works for you. I had never heard of ‘rapid cycling’  or the different ways that bipolar can manifest so I am learning a LOT right now. I have the paid version of Agent as well, just got the full version last week. I can already see the wide range of topics in this ng. Peace, LadyHawke ::::Hi LadyHawke! :::: ::::Welcome. :::: ::::I am also PTSD, as well as ultra-rapid-cycling bipolar. :::: ::::I just got approved for Neurontin (an expensive drug) which is working ::::really well for me as a mood stabilizer. :::: ::::This is the first time in my life that I have *had* a mood stabilizer ::::and it was hard work for me to get the one that I knew I needed. ::::This group was an *immense* support to me in doing that. :::: ::::If you are PTSD, it’s probably a good idea for you to use a newsreader ::::with killfile capabilities ( to block posts from designated authors, or ::::posts on certain topics). That way you can leave your feelings open to ::::the good people and good energies that *are* here, without getting ::::triggered and feeling re-abused by some of the really wild stuff that ::::sometimes flies around. :::: ::::I use Forte Agent, a registered copy. (the FreeAgent version doesnt do ::::filtering – i.e. killfiling). :::: ::::Peace to you. :::: ::::Mary Sunshine ::::

:::: ::::Hello :::: ::::Just found out that I have bipolar II and post-traumatic stress ::::disorder. Pretty upset right now, though this doesn’t make me any ::::different than the person I was yesterday. :::: ::::LadyHawke

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Thanks for the welcomes, and sorry that my first post was on the cranky side. I am a 41 year old graduate student and I have known for many years that there was something "different" about me. Because of various things I was afraid to tell people how I really felt because I was certain they would call me nuts and lock me up for the rest of my life. The last couple of years I finally admitted to major depression and got treatment… but I knew that there was some things that just wasn’t explained by depression. Didn’t say a word about THOSE things to therapists, etc. Have always had this ‘fear’ of being bipolar. My mom is, and for most of her life she has been untreated— she was very abusive to me as a kid. I worked hard to make certain that I wouldn’t "be like her" Well, I finally saw that things can’t improve without my ‘coming clean’ about the things I feel and think……. and finally admitted that the anti-depressants aren’t doing the trick for me. (we are thinking that they are actually causing rapid cycling)  It was also strange that I understood what the bipolar members of my support group were saying  more than those with unipolar depression.  Guess that should have been a hint, eh?   Saw a different p-doc yesterday because my usual one is in the hospital. This one has a lot more experience, and she pegged me big time. After a few questions, she told ME how and what I feel and think. I wouldn’t have thought it possible for someone to be so right after a ten minute conversation! Post-traumatic stress disorder and Bipolar II.   Yes it is good to finally know what I am dealing with. Yes I am the same person that I was yesterday. Yes I am the same person who got her undergraduate degree- with honors- last year in the midst of depression. Yes I have already beaten a LOT of odds over the years— WITH undiagnosed and untreated bipolar II and post-traumatic stress disorders. However, I am still upset about it. I guess that I always thought that no matter the amount of trauma and abuse that I have been through- that all it took to be "normal" was to work a little harder. That if I worked really hard at what I am good at, that people would notice and like me for my talents and skill. I was also thankful to not be bipolar like my mother.  Talk about self-delusion. Thanks for reading this, and I will be all right soon enough, I have given myself permission to whine about this whole thing tonight- am also going to go to a local support group here in town later this evening. LadyHawke

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I love bipolars!!!!!  We are such a fun bunch!  I to did remarkable things while depressed.  I got a BS in physics while raising 2 boys alone.  The meds will greatly slow you down.  And it will take a long time to adjust to your new life.  But, your experience will give you new insight.  You have a choice….. you can make a new start right now or you can hang on tight to the past. — Lisa

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Hi, I am also new here with pretty much the same diagnosis as you. I have post traumatic stress disorder but I think I am Bipolar 1 from what the doc says. I am more manic then depressed. I am only being treated for the manic part any way with Depakote, Risperadol and Klonipin(for insomnia). No anti-depressants. It took me a while to see how different things are now that I know what is wrong but am happy to have somewhat of a normal life now. It took about a year and a half to find the right meds for me but it was worth it. Hang in there and don’t get frustrated. Tina

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Hi Tina.  Are you from my longitudes (c. 175 degrees, Aus / NZ) or are you an American who’s up late, or …?  (It’s quarter to ten in the evening now, at my house).  Whichever,  nice to meet you. Sue.

– Hide quoted text — Show quoted text – Hi, I am also new here with pretty much the same diagnosis as you. I have post traumatic stress disorder but I think I am Bipolar 1 from what the doc says. I am more manic then depressed. I am only being treated for the manic part any way with Depakote, Risperadol and Klonipin(for insomnia). No anti-depressants. It took me a while to see how different things are now that I know what is wrong but am happy to have somewhat of a normal life now. It took about a year and a half to find the right meds for me but it was worth it. Hang in there and don’t get frustrated. Tina

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Tina, Thanks for your kind words- and thanks to everyone who has replied to my original post. It helps to know that there is someplace that I can come where people understand from experience what I am going through. Sure there is my therapist and pdoc- but that isn’t the same. I do have a big problem with depression, and my hypomanic stages can get very, very weird. They are not the "textbook" form, and they really don’t feel good at all- though the energy that comes with them is very nice to have. I suspect that I may be rapid-cycling- and apparently that isn’t uncommon for Bipolar II or Cyclothymia. My p-doc last week decided to try and hold off on the mood stabilizers until this summer because of my extremely heavy schedule this semester- I did promise to keep a close watch on my moods (I am on an antidepressant) and call if I see the first sign of something getting out of control. The rapid cycling may be due to the antidepressant, but so far the high end of things are not that extreme. I started a mood chart the other day, one for am and one for pm- she thought that may be a good idea as I may be cycling daily. I am still having problems accepting that I am bipolar, but that will pass. At least I now understand the whys behind a lot of the crazy things that I have done in past years. Can’t treat something that we don’t know is there! LadyHawke NOTE: This mail is a natural product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. and typed: ::::Hi, I am also new here with pretty much the same diagnosis as you. I have post ::::traumatic stress disorder but I think I am Bipolar 1 from what the doc says. I ::::am more manic then depressed. I am only being treated for the manic part any ::::way with Depakote, Risperadol and Klonipin(for insomnia). No anti-depressants. ::::It took me a while to see how different things are now that I know what is ::::wrong but am happy to have somewhat of a normal life now. It took about a year ::::and a half to find the right meds for me but it was worth it. Hang in there and ::::don’t get frustrated. :::: ::::Tina

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Sorry it has been a while since I have been to the site. Went through a spell of hypomania myself, the difference is I like being hypomanic but always tell my doc when it is happening because I know it is not a good thing. He increased my meds and changed me from Rispeidol to Haldol and has brought me back home. I have also been preoccupied with my 15 year old daughter. She was showing signs of Bipolar also and I took her to be evaluated. I was right she is Bipolar and now there are two of in the family. My next step is my son. He also shows pretty much the same signs as his sister and I do. What a thing to pass on. Feel free to just email me if you’de like. Maybe that will keep us out of the firing lines in this group. Tina

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 Hello everyone, She said that I have withdrawn from her and the many things that I used to enjoy. I argued with her and made excuses , but then I broke down crying and said I don’t know what’s wrong with me. After I hung up the phone, I came on the net. I looked up sites for depression.

hi lorena…… you have just got past the very hardest part… there are sooo many more people who have these ‘problems’ than dont….. it doesnt mean they are all life or job threatening but they do exist in a wide range of intensities. i really hope you find the info you need…. please dont give up if you think medical help can help you, go for it!!!! ps there are tons of ngs not just this one so look around….. take care…. anna On one site, – Hide quoted text — Show quoted text – I found a link to info about bipolar. I was curious , and I read it. I sat back in my chair and felt like I was reading my life story. Those were my feelings on the screen before me, my symptoms. I couldn’t believe it. After a while, I thought to myself that I don’t need help and that I can fight this myself. I am a strong, independent woman and I thought that admitting that I had a problem would destroy me. I woke up this morning and made a decision to seek help. I don’t want to go on living like this, one day depressed, next day not, one hour sad, next hour happy. I need help and want to try to at least control the mood swings. I would like to hear from anyone who can help give me advice or support group when I can.   Here is some info about me- Live in New York 27 yrs old work in a pharmacy

– "if you hear that same sweet song again, well you know why anyone who sings a tune so sweet is passing by… laugh in the sunshine, sing, cry in the dark, fly through the night….. dont cry now…. dont you cry…. -hunter/garcia "blessed am i to dwell in this beautiful temple"

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Hello everyone,

Hi Lorena,  welcome.   I found this group today. I have not been diagnosed with any disorder yet because I never sought help yet. I plan on phoning my doc on

    Monday and am taking the first step. Thats good. Sounds like your best move.  I believe that I am bipolar because I have highs and lows that happen a few times a day for no reason. I can be so happy, then all of a sudden I feel sad and withdrawn. I have had these problems even as a child. I remember my mood swings then.

This should interest your doctor.  I always used to think that I was weak and that I should just think more positively. I used to try to find ways to make myself happy, but it didn’t work and I never understood why.

Sounds familiar.  I broke down crying on the phone last night while talking to my older sister. She told me that she noticed a change in me. She said that I have withdrawn from her and the many things that I used to enjoy. I argued with her and made excuses , but then I broke down crying and said I don’t know what’s wrong with me. After I hung up the phone, I came on the net. I looked up sites for depression. On one site, I found a link to info about bipolar. I was curious , and I read it. I sat back in my chair and felt like I was reading my life story. Those were my feelings on the screen before me, my symptoms. I couldn’t believe it.

Maybe you have found the answer to what has been troubling you. But let the doctor make that decision. There are variations of being bipolar, and disorders which are very similiar to it as well.  After a while, I thought to myself that I don’t need help and that I can fight this myself. I am a strong, independent woman and I thought that admitting that I had a problem would destroy me.

Lorena, that attitude is one of the evolutionary steps. It reflects the healthy attitude of society to persevere. Unfortunately, it doesn’t apply to a chemical inbalance in the blood stream.  I woke up this morning and made a decision to seek help. A *very* smart idea. Sounds like you may be the type, if you are bipolar, that learns to manage the disorder, and live a productive life while keeping it in submission. I don’t want to go on living like this, one day depressed, next day not, one hour sad, next hour happy. I need help and want to try to at least control the mood swings.

There is help available. An extensive investigation by your doctor is necessary first, to see what is going on.  I would like to hear from anyone who can help give me advice or support group when I can.   Here is some info about me- Live in New York 27 yrs old work in a pharmacy

You sound like a lovely young lady. I wish you the best of luck, and have included a copy of the faqs for the group. Yours, Mark The current FAQs can be obtained in the Deja News archives. darkman’s "Welcome to the Hotel California" is not archived but is listed here. SECTIONS: FAQ1: ACRONYMS by Lynda Cunningham FAQ2: "Welcome to the Hotel California" by darkman FAQ3: Long-term prognosis of bipolar disorder.  Complete story:http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?form=6&uid=100 82186 by Gandalph FAQ4: "Ultra Rapid Cycling" by Lynda Cunningham FAQ5: 73 Medications Used in the Treatment of Psychiatric Illness FAQ6: "Choosing a Psychiatrist" by Christopher Lapp FAQ7: Search Engines and web sites FAQ1: ACRONYMS ASDM = alt.support.depression.manic SSDM = soc.support.depresion manic ASDMM = alt.support.depression.manic.moderated BTW = by the way IMO = in my opinion IMHO = in my humble opinion IMAO = in my arrogant opinion JMO = just my opinion IMNSHO = in my not so humble opinion IIRC = if I remember / recall correctly IOW = in other words IRL = in real life LTIC = laughed til I cried OOC = out of control QOL = quality of life OMG= oh my god POV = points of view FWIW = for what it’s worth BTDT = been there done that FOAD =  F**k off and die TIA = thanks in advance TIFN -= that’s it for now WYSIWYG = what you see is what you get OTOH = on the other hand IBTD = I beg to differ AFAIK = as far as I know KIT = keep in touch FYI = for your information YBMY = your brain /body may vary YMMV = your mileage may vary CRS = can’t remember shit TX = treatment DX = diagnosis pt = patient POV = point of view ROFLMAO = rolling on the floor laughing my ass off ROFL = rolling on the floor laughing LOL = Lots of laughs/laughing out loud TTFN = ta ta for now MS = mood stabilizer drug AD = antidepressant drug AP = antipsychotic drug AA = antianxiety drug OTC = over the counter medications – available without a prescription Bepeers = peoplw who have BP Disorder Pdoc = psychiatrist Mdoc = medical doctor PCP = primary care physician Meds = medications Therp = therapist URC = ultra rapid cycling RC = rapid cycling OCD = obsessive compulsive disorder PTSD = post traumatic stress syndrome SAD = seasonal affective disorder SA = scizoaffective disorder SZ = schizophrenia ADHD = attention deficit hyperactivity disorder (formerly known as ADD) BPD = borderline personality disorder BP = bipolar disorder or illness OD = overdosed on med(s) D/C = discontinue (usually a med) PRN = as needed basis (usually in relationship to meds) ADLs = activities of daily living STAT = immediately BID = 2X/day TID = 3X/day QID = 4X/day FAQ2: "Welcome to the Hotel California" by darkman Welcome to the BPBC the Bi-Polar Broadcasting Corporation.  ’;-) Knowledge is one of the strongest weapons that you will find to help you fight this illness.  Sometimes, when it is the darkest inside, knowledge will be your only weapon.  Please use it to your advantage. Following this brief note, is a narrative called "Welcome to the Hotel California".  Please print it out to hard copy, and keep "The 5 Stages of Bipolar Grief" at the bottom of this message, as it is long.  This was prepared as a signpost for you, to make sure that you are not lost or walking in the wrong direction as you begin your search.  If you feel it to be useful, share it with a friend.  Do yourself a favor and read it all the way through.  Please thoroughly explore the hyper links embedded in the text. They will provide the resources to  answer some of your immediate and pressing questions. Consider this to be a small piece of the puzzle that you will  sooner or later find yourself putting together as you strive to find your way back home.  .  Educate yourself and those you love as best you can. Stay strong and do not ever give up the fight. I wish you peace and a little shelter from the storm.     – darkman=AE –

The sun rose and the world turned the page.  While the sleepers were lost in their own sea of darkness; others sought to find the truth and were armed with the awesome weapon of self-attained  knowledge.  They were self-empowered; again in control of their destiny. Welcome to the Hotel California.  If you ignore the personal  bickering that goes on here from time to time; and arrive early for the common meals served in the dining room, you will find, that although the menu is exotic and seasonally varied, certain entree’s may or may not agree with your constitution. Please be advised, that you, as our guest, are here at your own risk. Be careful what truths you eat, read, and drink; as the  descriptions on the desert page are sometimes misleading.  The hotel   management although non-existent assumes no liability for anything  consumed that may cause flatulence or other gastronomic distress.  At the  sound of the tone, please feel free to send a copy of this to the next  newbie who wanders through the door.  This is a recording.  Beep.  Oh, and just in case nobody told you about Manic Depression… There are two things that you might want to remember. "WE ARE NOT THIS DISEASE!  We are people who suffer from it and Fight to Live with it!" "IF LEFT UNTREATED, IT WILL IN THE END, STEAL YOUR LIFE!" Manic-depressive illness, or bipolar disorder, is a chronic, neurological condition that causes changes in an individual’s  brain chemistry resulting in extreme mood swings thus the description "Bipolar" Historically, many of the world’s greatest actors, statesmen, and artists have shown signs of having this disorder.  It is not  uncommon for those with this disorder to be highly intelligent and often very creative Therefore, it is understandable that manic depression is sometimes referred to as the missing link between genius and  lunacy. Medication is required to regulate our (changes in attitude)  emotional swings.  Individuals with this disorder often attempt to self  medicate themselves, by using traditional means of altering their reality  and regulating their emotions.  Over indulgence in alcohol, sex,  comfort purchases, and eating are among those at the head of the alternative self-medication list. Unfortunately, these attempts to self medicate and the  consequences of  this behavior often result in additional ambient feelings of guilt,  lowered self-esteem, and repressed anger.  Suicidal ideation is not uncommon, when we are faced with the realities of the ashes strewn in our wake of our actions, after burning through the rarefied air of mania. To quote another well read contributor here, The mind is its own place, and in itself, can make a heaven a hell or a hell into heaven. Paradise Lost, John Milton, 1967  In short, we do not know what causes it.  Drug treatments are  necessary but not always sufficient to address it.  There is no way yet to fix it.  We make no claims to our abilities to provide expertise in how an individual should be medicated.  Please seek professional medical guidance in that area.  It is advisable for both the individual with … read more »

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– Hide quoted text — Show quoted text – Hello everyone, Hi Lorena,  welcome. I would like to hear from anyone who can help give me advice or support group when I can.   Here is some info about me- Live in New York 27 yrs old work in a pharmacy You sound like a lovely young lady. I wish you the best of luck, and have included a copy of the faqs for the group. Yours, Mark

first of all to lorena… you are taking the right course of action by seeing a doctor as soon as possible. be as honest and as open as you can. and like mark said, a lot of disorders can mimic bipolar. dont self diagnose :) . you have right idea on getting help when you need it. and to my friend mark… a request? i think that posting the FAQs and links to the very newest of the readers is a terrific idea, and you make a great Welcome Wagon um Guy. wow, remember the Welcome Wagon Ladies? anyway – sorry for the digression. perhaps emailing the newbie, or requesting the newbies permission to send an email might be a good idea. remember, many that read here are from europe and great britian…. they pay by the minute. the FAQs are a lot of bandwith. just a suggestion. please dont refrain from making the information available to the new folks – i remember what it was like for me when i came here so long ago, and i wept to discover i was not alone. regards snowtree

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informed me of this: :- i remember what it was like for me when i :came here so long ago, and i wept to discover i was not alone. : :regards :snowtree Me too Snowtree, Me too. I agree that she should go to a doctor and get him to look into a diagnosis. I came here after doing just that. Deep down I knew I was bipolar, but reading all the post here was indeed like looking at myself in the mirror. Before I came here, I had doubts, denial, confusion and despair. ASDM stopped the doubts and denial. The confusion & despair were helped by several months of medication. Lorena, you are so lucky to have found out your illness and have the opportunity to get help so early in life. I made the decision, long ago to fight my moods, to be strong. I failed, and I don’t fail at much I decide to do. BP is something that: 1.  Cannot be fought against by yourself. It is a chemical imbalance that you cannot control. No guilt at failure is necessary. 2. Gets worse the longer you go untreated. 3. Can be controlled in most people with a little medication. You moods will get better. You will not have to "FIGHT" it all the time. You will be able to feel happy without forcing yourself to be happy. This is not happiness anyway. Good Luck and make sure that you find a doctor where you can be half of the team against your illness. You must help your doctor. Write down some of your feeling. Keep a record of when you get sad or happy. Make a list of questions you want to ask the doctor. Most of all make sure the doctor knows that you are willing and able to help him help you. Your chances of a rapid recovery improve by doing this. Hopper

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Sorry, I do not read new posts but I must warn you stay away from Fred davis aka Manic Fantasie,  He is insane.  LindaNP or Mark or anna will talk to you asap.  LindaNP will get you the FAQs  Please wait.

Hello everyone,   I found this group today. I have not been diagnosed with any disorder yet because I never sought help yet. I plan on phoning my doc on Monday and am taking the first step. I believe that I am bipolar because I have highs and lows that happen a few times a day for no reason. I can be so happy, then all of a sudden I feel sad and withdrawn. I have had these problems even as a child. I remember my mood swings then. I always used to think that I was weak and that I should just think more positively. I used to try to find ways to make myself happy, but it didn’t work and I never understood why. I broke down crying on the phone last night while talking to my older sister. She told me that she noticed a change in me. She said that I have withdrawn from her and the many things that I used to enjoy. I argued with her and made excuses , but then I broke down crying and said I don’t know what’s wrong with me. After I hung up the phone, I came on the net. I looked up sites for depression. On one site, I found a link to info about bipolar. I was curious , and I read it. I sat back in my chair and felt like I was reading my life story. Those were my feelings on the screen before me, my symptoms. I couldn’t believe it. After a while, I thought to myself that I don’t need help and that I can fight this myself. I am a strong, independent woman and I thought that admitting that I had a problem would destroy me. I woke up this morning and made a decision to seek help. I don’t want to go on living like this, one day depressed, next day not, one hour sad, next hour happy. I need help and want to try to at least control the mood swings. I would like to hear from anyone who can help give me advice or support group when I can.   Here is some info about me- Live in New York 27 yrs old work in a pharmacy

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How can you be sure Lite Box Freddy is not messing with the new kids? – Hide quoted text — Show quoted text – Hello everyone, Hi Lorena,  welcome. I would like to hear from anyone who can help give me advice or support group when I can.   Here is some info about me- Live in New York 27 yrs old work in a pharmacy You sound like a lovely young lady. I wish you the best of luck, and have included a copy of the faqs for the group. Yours, Mark first of all to lorena… you are taking the right course of action by seeing a doctor as soon as possible. be as honest and as open as you can. and like mark said, a lot of disorders can mimic bipolar. dont self diagnose :) . you have right idea on getting help when you need it. and to my friend mark… a request? i think that posting the FAQs and links to the very newest of the readers is a terrific idea, and you make a great Welcome Wagon um Guy. wow, remember the Welcome Wagon Ladies? anyway – sorry for the digression. perhaps emailing the newbie, or requesting the newbies permission to send an email might be a good idea. remember, many that read here are from europe and great britian…. they pay by the minute. the FAQs are a lot of bandwith. just a suggestion. please dont refrain from making the information available to the new folks – i remember what it was like for me when i came here so long ago, and i wept to discover i was not alone. regards snowtree

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 Hello everyone,   I found this group today. I have not been diagnosed with any disorder yet because I never sought help yet. I plan on phoning my doc on Monday and am taking the first step. I believe that I am bipolar because I have highs and lows that happen a few times a day for no reason. I can be so happy, then all of a sudden I feel sad and withdrawn. I have had these problems even as a child. I remember my mood swings then. I always used to think that I was weak and that I should just think more positively. I used to try to find ways to make myself happy, but it didn’t work and I never understood why. I broke down crying on the phone last night while talking to my older sister. She told me that she noticed a change in me. She said that I have withdrawn from her and the many things that I used to enjoy. I argued with her and made excuses , but then I broke down crying and said I don’t know what’s wrong with me. After I hung up the phone, I came on the net. I looked up sites for depression. On one site, I found a link to info about bipolar. I was curious , and I read it. I sat back in my chair and felt like I was reading my life story. Those were my feelings on the screen before me, my symptoms. I couldn’t believe it. After a while, I thought to myself that I don’t need help and that I can fight this myself. I am a strong, independent woman and I thought that admitting that I had a problem would destroy me. I woke up this morning and made a decision to seek help. I don’t want to go on living like this, one day depressed, next day not, one hour sad, next hour happy. I need help and want to try to at least control the mood swings. I would like to hear from anyone who can help give me advice or support group when I can.   Here is some info about me- Live in New York 27 yrs old work in a pharmacy

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To ASD and ASDMers, I have been reading your posts for about 3 weeks but just learned how to participate. I was dx as MD II 6 years ago, but I have known something was wrong since I was 10 and tried to hang myself. I still think about suicide a lot. But, since I’ve been thinking about that off and on for 36 years, I guess I’m never going to carry it out. I’ve ruled out jumping onto the Kennedy Expressway (the driver might slow down and maim me for the rest of my life, ouch! or someone might have an accident!) and jumping off the Sears Tower (too long a time to have second thoughts after its too late). A 0.38 seems quick, but messy. I have a therapist and a pdoc, but they can’t tell when I’m depressed. Neither can my wife, but I tell her anyway when I’m feeling really bad. I take Li and ativan for sleep and sometimes melaril when I feeling racing thoughts.  Last week I was really down, but reading your posts for the last week has really helped. (OK, I admit, getting a job offer helped, too.) I am impressed by your infectious sense of humor, your warmth and empathy, and your medical knowledge. I never knew another person with my illness, and reading of your experiences has helped me feel less alone and, in many cases, not so bad off. Sometimes someone’s experiences would bring tears to my eyes and I’d feel a sense of emotional release from all the bottled up feelings. I found myself wanting to help, if possible. Its nice to see other people carrying on with life, with humor even, despite having been dealt a card from the bottom of the deck. So thanks. Rocky — For more information about this service, send e-mail to:

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- Hide quoted text — Show quoted text – To ASD and ASDMers, I have been reading your posts for about 3 weeks but just learned how to participate. I was dx as MD II 6 years ago, but I have known something was wrong since I was 10 and tried to hang myself. I still think about suicide a lot. But, since I’ve been thinking about that off and on for 36 years, I guess I’m never going to carry it out. I’ve ruled out jumping onto the Kennedy Expressway (the driver might slow down and maim me for the rest of my life, ouch! or someone might have an accident!) and jumping off the Sears Tower (too long a time to have second thoughts after its too late). A 0.38 seems quick, but messy. I have a therapist and a pdoc, but they can’t tell when I’m depressed. Neither can my wife, but I tell her anyway when I’m feeling really bad. I take Li and ativan for sleep and sometimes melaril when I feeling racing thoughts.  Last week I was really down, but reading your posts for the last week has really helped. (OK, I admit, getting a job offer helped, too.) I am impressed by your infectious sense of humor, your warmth and empathy, and your medical knowledge. I never knew another person with my illness, and reading of your experiences has helped me feel less alone and, in many cases, not so bad off. Sometimes someone’s experiences would bring tears to my eyes and I’d feel a sense of emotional release from all the bottled up feelings. I found myself wanting to help, if possible. Its nice to see other people carrying on with life, with humor even, despite having been dealt a card from the bottom of the deck. So thanks. Rocky — For more information about this service, send e-mail to:

Welcome!! (((((((Rocky)))))))) jen

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Yes, this is still a good group despite the resident troublemakers. :) – Hide quoted text — Show quoted text – Yes, thank you, I found this moderated group :) But I will continue to read this one too and just ignore the rabid varmints…. faeriewings hi, ummm just subscribed to this group…is it always like this?? i mean what the heck is going on? I thought it was a support group but now i’m kinda’ scared to post anything…. :o < faeriewings Sadly, things seldom quiet down for long here, although the 2 terrorizing the group now are some of the most rabid ever. A moderated group was set up for people who want support without the trolls, and the traffic there is beginning to pick up nicely. alt.support.depression.manic.moderated

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Yes, thank you, I found this moderated group :) But I will continue to read this one too and just ignore the rabid varmints…. faeriewings

– Hide quoted text — Show quoted text – hi, ummm just subscribed to this group…is it always like this?? i mean what the heck is going on? I thought it was a support group but now i’m kinda’ scared to post anything…. :o < faeriewings Sadly, things seldom quiet down for long here, although the 2 terrorizing the group now are some of the most rabid ever. A moderated group was set up for people who want support without the trolls, and the traffic there is beginning to pick up nicely. alt.support.depression.manic.moderated

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Daphne and PM… please don’t be afraid to post.  You will find that most of the people here are kind and supportive, as well as knowledgeable regarding this disorder.  We do sometimes have warped senses of humor, but I think that helps to make up who we are.   The garbage you’re seeing now is just that.  Garbage.  They’ll be gone soon.  Trust me.  There are several ways to ignore their happenings. Just ask here and someone will show you if you don’t know how, or email me (yes this is my real email address, AND name) and I’ll walk you through it. I wish you both peace. Linda – Hide quoted text — Show quoted text – hi, ummm just subscribed to this group…is it always like this?? i mean what the heck is going on? I thought it was a support group but now i’m kinda’ scared to post anything…. :o < faeriewings

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hi, ummm just subscribed to this group…is it always like this?? i mean what the heck is going on? I thought it was a support group but now i’m kinda’ scared to post anything…. :o < faeriewings

Sadly, things seldom quiet down for long here, although the 2 terrorizing the group now are some of the most rabid ever. A moderated group was set up for people who want support without the trolls, and the traffic there is beginning to pick up nicely. alt.support.depression.manic.moderated

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ditto.. – Hide quoted text — Show quoted text – hi, ummm just subscribed to this group…is it always like this?? i mean what the heck is going on? I thought it was a support group but now i’m kinda’ scared to post anything…. :o < faeriewings

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heh…duhhh..i posted my damn name…so much for assuaging my paranoia….from now on it’ll be faeriewings….just so you’ll know and thanks for the welcome.

– Hide quoted text — Show quoted text – Hi Daphne, Nope, it’s not always like this…. just been overrun lately…. stick around… we’re usually a pretty fun bunch to hang with. Barbie Doll hi, ummm just subscribed to this group…is it always like this?? i mean what the heck is going on? I thought it was a support group but now i’m kinda’ scared to post anything…. :o < faeriewings

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Hi Daphne, Nope, it’s not always like this…. just been overrun lately…. stick around… we’re usually a pretty fun bunch to hang with. Barbie Doll

– Hide quoted text — Show quoted text – hi, ummm just subscribed to this group…is it always like this?? i mean what the heck is going on? I thought it was a support group but now i’m kinda’ scared to post anything…. :o < faeriewings

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hi, ummm just subscribed to this group…is it always like this?? i mean what the heck is going on? I thought it was a support group but now i’m kinda’ scared to post anything…. :o < faeriewings

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I have been diagnosed manic depressive for two and half years. I am on the verge of losing another job due to my inability to focus on the mundane task at hand. I am concidering diving into the abyss that is freelance writing…but I am scared. What if I can’t do that either…(even though I am a talented writer) It is the disicpline and the routine that I lack….is it me…or the Manic Depression? Help! I am tired of feeling like a brilliant failure. I read all the posts for the last two weeks by the way– and Atlanta Writer, you can email me any time you want….seems like we had the same manic experiance…. where our whole identity was ripped out and tossed away and left us with nothing. oh yeah guess what….I write humor essays!!! Can’t you tell? <smile

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Hi there Wrdmystris, Sorry to hear that you went through a manic experience exactly like mine, because mine really sucked.  You wrote that you are considering diving into the abyss of freelance writing.  I would highly recommend against this if you are feeling unstable.  I also have made my living as a freelance writer and it is not a good lifestyle if your bipolar issues are acting up.  Currently I am in a "stupid" job that is far less creative and challenging than I am capable of taking on, but it provides me the gift of stability, a background of familiar and simple demands.  Sure I complain about it from time to time, and threaten to leave it, but I’m not ready.  Especially not at this time of year, as you have noticed in my posts about being shaken up. — For more information about this service, send e-mail to:

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Welcome, Carole- I’m kind of new here myself.  You’ll find that everyone here is great – very friendly and helpful.  It really is like one big family.  Glad you decided to join us. Tracy

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I have been posting here for a couple of weeks, but just realized I never formally introduced myself.<S Here’s a bit about myself…I’m 31, live in the Detroit area, diagnosed with CD in 96, symptomatic off and on since 78.  No surgery, no pred!  Hooray for mesalamine and 6-MP.<G     My CD is primarily large bowel, and I have two perirectal fistulas  (perianal??? not sure) that have kept me company for years.  No other major illnesses…and been lucky enough to have symptoms under control enough most of the time that it has never affected my work negatively.  (I  know how lucky I am!)   I am a R.N. and have made it my own personal mission to educate my healthcare coworkers on the facts of IBD…but only when they’re ready to listen.<G  I live with my boyfriend and our two dogs.   I am the only member of my family (close and extended) to have IBD, so, so far that genetic predisposition theory doesn’t bear out well in my family, although I do believe that it’s true.  Also, I am not lactose intolerant! — Carole Lee

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Hi, I am new here.  I have had crohns colitis since I was about 25 and never really had any problems since the initial illness with it until the last few years.  My doctor is really pushing me for surgery to remove my colon and of course I am pushing not to.   I am now on prednisone because of a bad flare up and I hate it.  But for the last year or so Pentasa seems to be helping the day to day stuff. He is hoping that the new drug remicade soon gets approved here in Canada but in the mean time here I sit. My question is what do you take for gas.  I have a lot of gas.  My stomach swells up sometimes so bad I look like I am six months pregnant.  This does not help me much I have already put on about 15 pounds with this damned steriod. Please help me.  I can’t seem to find anything really good at relieving gas.  I would really appreciate any help at all. Thanks Paulette

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hi paulette-i also have this bloated feeling and gas-somedays worse than others-alot of if is the disease i think-i have found Gas X helps sometimes also Mylanta-at least it seems to relieve some of the pressure and helps my stomach go down-i too wish is would have known about remicade-it had not been approved until after my surgery-my gi told me on tuesday that i possibly could have been a canidate-hope this helps you a little mspakrbakr

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Hey paulette- You might try beno’s or symethicone. available at drug store over the counter. What you eat also plays a big part in gas – fried food, some vegies, beans, ect. good luck. – wildbill

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Just a few tips on how to get less gas… Avoid onions, paprika, peas, beans, fat and all kinds of carbonated beverages… except mineral waters which may help you burp… I know the feeling, because I experience it after almost every meal, but since I gave up quite a few things I feel better. But I try them every now and then… I’ve just tried to eat some veil and French fries… Bad idea! By the way, porc is much better than veil… fried food is never good, and too much fruit means gas… If you want more tips just Good luck! / Sylvia

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Nancy:  Since you live 30 miles from N’ville, you ought to be able to call their academy of medicine in the city and they should be able to give you a list of a good internal medicine doc.  A good workup by that doc ought to be able to get you sent in the right direction. Good luck!

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Yep that’s it.  Thanks Fran.  I am still sick  but at least my heads still attached.  Sorry about yesterday.  UM MOM, ok, ok i know I said I was sorry enough <G

– Hide quoted text — Show quoted text – said… I forget the name of this last specialist but He is a kidney doc. Nephrologist? — Fran

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Nancy, I just wanted to welcome you here.  I’m sorry you needed to join us but glad you found this wonderful place.  Good luck! :)  mgbio CD Class of ‘99 – Hide quoted text — Show quoted text – Hello all, I am new here so hope everyone bares  with me on questions off and on. After suffering for several years and being put off I finally found a doctor who diagnosed Ulcerative Colitis.     Within  the year we moved and after that I could not find a doctor who would refer me or treat my colitis.    Between my job and everything else I couldn’t spend all my time "living"  in doctors offices but I can tell you I did try to get adequate medical attention but to no avail.      Years went by and then I started becoming very ill.    Within a matter of months I was experiencing multiple symptoms. The worst being  severe fluid retention with severe all over body pain. This edema was everywhere in my body especially my face.        The edema would always return if it had abated or worsen when I slept. With this fluid retention came a severe feeling of intoxication.   It was impossible to function. For the last 4 to 5 years I have been living like this.   My son and husband state that I would scream constantly from the all over body pain and finally pass out.   And that I was basically just living in and out of consciousness. When possible they took me to  PCP’s  in hopes that someone would know what was causing this or refer me to someone who would.   But again to no avail. I now have a PCP starting treatment. At the time I am being treated for Colitis and Interstitial Cystitis. (I also had the IC for 16 years without treatment.)    I am responding to treatment and at least am aware of my surroundings.     But if I overdue things,  ride in a car,  sit in a chair for any amount of time or eat any foods that bother me the edema and pain returns.   But again only coming back after any of these occurrences when I sleep. I am sorry this is so long.   But didn’t know how to explain this otherwise.    Has anyone ever heard of these symptoms accompanying Colitis?  Or where I can find information on it? At this time we have a physician willing to help me with any information I can find. Also does anyone know of a competent Gastroenterologist or Dr.  of Internal medicine in the middle Tennessee  area?    I live about 30 miles west of Nashville. Thanks for any replies, Nancy

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Thanks Fran, just posted part of what I have been going through.  It is pouring here, thus I expect me to lose connection again. UM MOM Susan

– Hide quoted text — Show quoted text – Nancy Sullivan said… Hello all, I am new here so hope everyone bares  with me on questions off and on. Hello, and welcome to the party.  Questions is what people are here for… that and mutual support.  I’ll leave it to others to help you with specifics because I’m here in the role of a sort-of carer (my friend’s daughter is the patient and you’ll meet my friend (Beth) here as well) rather than a sufferer.  My chief role seems to be tea and coffee maker and keeper of the privy biscuit tin ;-) I can tell you though that you’re not the only one to have this sort of fluid retention.  I don’t know whether or not it’s the same thing, but Susan Dores – are you there Susan? – has reported problems with oedema as well.  You never know, there may be some help you can give each other with this. — Fran

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Nancy, I have crohn’s but I also have problems with edema.  What I have had to do, is first take a water pill.  I see a GI, Pain management doc, pulmonary doc, and I forget the name of this last specialist but He is a kidney doc.  Have you had a complete blood work up?  My kidney doctor found through the blood tests that I was not absorbing necessary vitamin and mineral which I am taking a med for too.  I had a colonoscopy and endoscopy to check on any disease recurrance.  My blood test also showed that my kidneys are sluggish.  I see the kidney doc again next week.  UM MOM Susan, please feel free to email me directly if you would like.  I live in Florida so I can’t help with the doctors.

– Hide quoted text — Show quoted text – Hello all, I am new here so hope everyone bares  with me on questions off and on. After suffering for several years and being put off I finally found a doctor who diagnosed Ulcerative Colitis.     Within  the year we moved and after that I could not find a doctor who would refer me or treat my colitis.    Between my job and everything else I couldn’t spend all my time "living"  in doctors offices but I can tell you I did try to get adequate medical attention but to no avail.      Years went by and then I started becoming very ill.    Within a matter of months I was experiencing multiple symptoms. The worst being  severe fluid retention with severe all over body pain. This edema was everywhere in my body especially my face.        The edema would always return if it had abated or worsen when I slept. With this fluid retention came a severe feeling of intoxication.   It was impossible to function. For the last 4 to 5 years I have been living like this.   My son and husband state that I would scream constantly from the all over body pain and finally pass out.   And that I was basically just living in and out of consciousness. When possible they took me to  PCP’s  in hopes that someone would know what was causing this or refer me to someone who would.   But again to no avail. I now have a PCP starting treatment. At the time I am being treated for Colitis and Interstitial Cystitis. (I also had the IC for 16 years without treatment.)    I am responding to treatment and at least am aware of my surroundings.     But if I overdue things,  ride in a car,  sit in a chair for any amount of time or eat any foods that bother me the edema and pain returns.   But again only coming back after any of these occurrences when I sleep. I am sorry this is so long.   But didn’t know how to explain this otherwise.    Has anyone ever heard of these symptoms accompanying Colitis?  Or where I can find information on it? At this time we have a physician willing to help me with any information I can find. Also does anyone know of a competent Gastroenterologist or Dr.  of Internal medicine in the middle Tennessee  area?    I live about 30 miles west of Nashville. Thanks for any replies, Nancy

Response:

Hello all, I am new here so hope everyone bares  with me on questions off and on. After suffering for several years and being put off I finally found a doctor who diagnosed Ulcerative Colitis.     Within  the year we moved and after that I could not find a doctor who would refer me or treat my colitis.    Between my job and everything else I couldn’t spend all my time "living"  in doctors offices but I can tell you I did try to get adequate medical attention but to no avail.      Years went by and then I started becoming very ill.    Within a matter of months I was experiencing multiple symptoms. The worst being  severe fluid retention with severe all over body pain. This edema was everywhere in my body especially my face.        The edema would always return if it had abated or worsen when I slept.   With this fluid retention came a severe feeling of intoxication.   It was impossible to function. For the last 4 to 5 years I have been living like this.   My son and husband state that I would scream constantly from the all over body pain and finally pass out.   And that I was basically just living in and out of consciousness. When possible they took me to  PCP’s  in hopes that someone would know what was causing this or refer me to someone who would.   But again to no avail.     I now have a PCP starting treatment. At the time I am being treated for Colitis and Interstitial Cystitis. (I also had the IC for 16 years without treatment.)    I am responding to treatment and at least am aware of my surroundings.     But if I overdue things,  ride in a car,  sit in a chair for any amount of time or eat any foods that bother me the edema and pain returns.   But again only coming back after any of these occurrences when I sleep. I am sorry this is so long.   But didn’t know how to explain this otherwise.    Has anyone ever heard of these symptoms accompanying Colitis?  Or where I can find information on it? At this time we have a physician willing to help me with any information I can find. Also does anyone know of a competent Gastroenterologist or Dr.  of Internal medicine in the middle Tennessee  area?    I live about 30 miles west of Nashville. Thanks for any replies, Nancy

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<<You are not as addicted as I am, I come here first before reading my emails Girlfriend, you’ve got it bad!!!  ; ) Patsy : )

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– Hide quoted text — Show quoted text – Hi all.  I’m new here, as you probably gathered from the subject line.  I’m female, 20, Canadian.  I started getting symptoms when I ws about 11 and was bounced around from doc to doc.  I was finally diagnosed at 17.  Oddly enough by a new doctor who caught it right away (why didn’t i see her first?!).  Anyhow, I get sick a lot, but I don’t want to tell my doctor in case he wants to take another peek up the pipes.  That was not fun. Well, just wrote to say ‘hi, i’m here.’  :) — -Jenn (Kaezh)

– Welcome Jenn!  This is a wonderful group full of the nicest people around.  Feel free to jump right in and vent, give advice, or post a joke or two.  You’ll see that we tend to go off topic quite often. But, that’s the fun of it all.  Because we all need to laugh more.  :) Take Care, Sherry CD Class of ‘92 Before you buy.

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Patsy Oh well, I like the company in here !!! and half of the emails are spam related anyways !!

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Yes they do, mine was done on Oct 31. Anju

– Hide quoted text — Show quoted text – I’m not sure if they take biopsies with a sigmoid… good question… anyone know? Be well- Tracy CD class of ‘98 my homepage: http://home.talkcity.com/ParadiseDr/goodboie/index.html  : )  smile – it makes people wonder what you’re up to!

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Posting a bit late, but anyhow: I’ve had three sigmoids so far (not all at the same time) and each time I had biopsies taken. – Hide quoted text — Show quoted text – I’m not sure if they take biopsies with a sigmoid… good question… anyone know? Be well- Tracy CD class of ‘98 my homepage: http://home.talkcity.com/ParadiseDr/goodboie/index.html  : )  smile – it makes people wonder what you’re up to!

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I have no idea what I had.. I don’t know the difference between the two. The took a biopsy and no they didn’t give me any medication during the procedure. — -Jenn (Kaezh) – Hide quoted text — Show quoted text – Jenn- Welcome!    Sorry you had the need to find us, but glad you are here. This is a great place to come for support, advice, and humor. Sorry you are not feeling well.  Did you have a colonoscopy or a sigmoidoscopy?  Did they give you meds to put you to sleep (well, almost) for the procedure? Be well- Tracy CD class of ‘98 my homepage: http://home.talkcity.com/ParadiseDr/goodboie/index.html  : )  smile – it makes people wonder what you’re up to!

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A sigmoidoscopy just looks at the colon, where a colonoscopy goes further up. Generally, for a colonoscopy, you are medicated, where you are not for the sigmoidoscopy. Be well- Tracy CD class of ‘98 my homepage: http://home.talkcity.com/ParadiseDr/goodboie/index.html  : )  smile – it makes people wonder what you’re up to!

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Welcome Jenn You came to the BESTEST support newsgroup around , we are family here ready to listen to vents, educate , and even have fun with Maryjo

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Patsy You are not as addicted as I am, I come here first before reading my emails

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Tracy, I’m not sure, but do they take biopsy with a sigmoid? Lynn in Fl

– Hide quoted text — Show quoted text -A sigmoidoscopy just looks at the colon, where a colonoscopy goes further up. Generally, for a colonoscopy, you are medicated, where you are not for the sigmoidoscopy. Be well- Tracy CD class of ‘98 my homepage: http://home.talkcity.com/ParadiseDr/goodboie/index.html : )  smile – it makes people wonder what you’re up to!

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Welcome, If you are having any problems you really should tell the doctor.  You would not want to let things get out of hand because of test that are not plesant. Lynn in Fl – Hide quoted text — Show quoted text – Hi all.  I’m new here, as you probably gathered from the subject line. I’m female, 20, Canadian.  I started getting symptoms when I ws about 11 and was bounced around from doc to doc.  I was finally diagnosed at 17.  Oddly enough by a new doctor who caught it right away (why didn’t i see her first?!).  Anyhow, I get sick a lot, but I don’t want to tell my doctor in case he wants to take another peek up the pipes.  That was not fun. Well, just wrote to say ‘hi, i’m here.’  :) — -Jenn (Kaezh)

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I’m not sure if they take biopsies with a sigmoid… good question… anyone know? Be well- Tracy CD class of ‘98 my homepage: http://home.talkcity.com/ParadiseDr/goodboie/index.html  : )  smile – it makes people wonder what you’re up to!

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Hi all.  I’m new here, as you probably gathered from the subject line.  I’m female, 20, Canadian.  I started getting symptoms when I ws about 11 and was bounced around from doc to doc.  I was finally diagnosed at 17.  Oddly enough by a new doctor who caught it right away (why didn’t i see her first?!).  Anyhow, I get sick a lot, but I don’t want to tell my doctor in case he wants to take another peek up the pipes.  That was not fun.  Well, just wrote to say ‘hi, i’m here.’  :) — -Jenn (Kaezh)

Response:

Jenn- Welcome!    Sorry you had the need to find us, but glad you are here.  This is a great place to come for support, advice, and humor. Sorry you are not feeling well.  Did you have a colonoscopy or a sigmoidoscopy?  Did they give you meds to put you to sleep (well, almost) for the procedure? Be well- Tracy CD class of ‘98 my homepage: http://home.talkcity.com/ParadiseDr/goodboie/index.html  : )  smile – it makes people wonder what you’re up to!

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Welcome Kaezh!  Sorry for the reason you’re here but I’m glad you found us! Watch out it’s VERY addictive! : )  I know this is the first place I head to after checking my e-mail.  People here genuinely care and and have a wealth of knowledge and info from our shared experiences.  Pull up a chair and feel right at home to jump in any time! Patsy : )

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Hi Everyone,      Just thought I’d drop a line and say hi and that I’m new here….took awhile for me to figure out how to subscribe. Anyway,  I’m 41 and I was diagnosed with UC at 23 yr. old . It was pretty much in remission w/o med. for 17yrs. Then 2 years ago I was diagnosed with IBD.  Was told by my doctor a few months ago that I have the wrong kind of job for this disease….I’m a letter carrier for the U.S Postal Service for the last 11 1/2 years.  He suggested I should look for another job….one inside.  Since this past July I’ve been on limited duty with weight restrictions. I also would be interested in emailing outside this list with anyone who has the same illness. Take Care, Francine

Response:

Dear Francine, Welcome to the group.  Carrying the mail would be my nightmare job with UC!  UC is just one type of IBD (chrons being the other), so it sounds like your diagnosis hasn’t really changed from years ago.  Good for you being in remission all those years. Patsy

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Welcome to the ng Stephen!  Sorry yo

– Hide quoted text — Show quoted text – Hi My name is Stephen  and I am a suffer of UC I have had this now for 2 years and i’m only 20 years old, I live in Canada, Went to the doctor last week and I was told that my UC is bad, so i’m back on the pred(Steriods) again for the 6th time and next month is the Imuran Chat. Well Hope to keep in Touch with you all. Stephen

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Hi Stephen – Welcome to the ng!  Sorry you had to find it – but glad for you that you did!  You will

– Hide quoted text — Show quoted text – Hi My name is Stephen  and I am a suffer of UC I have had this now for 2 years and i’m only 20 years old, I live in Canada, Went to the doctor last week and I was told that my UC is bad, so i’m back on the pred(Steriods) again for the 6th time and next month is the Imuran Chat. Well Hope to keep in Touch with you all. Stephen

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Stephen – Welcome to the ng!  Sorry all for my 2 other partial posts as I’m having problems again. Anyway – Stephen, you will find lots of wonderful support and helpful information here. Christine UC Class of 01

– Hide quoted text — Show quoted text – Hi My name is Stephen  and I am a suffer of UC I have had this now for 2 years and i’m only 20 years old, I live in Canada, Went to the doctor last week and I was told that my UC is bad, so i’m back on the pred(Steriods) again for the 6th time and next month is the Imuran Chat. Well Hope to keep in Touch with you all. Stephen

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Hi My name is Stephen  and I am a suffer of UC I have had this now for 2 years and i’m only 20 years old, I live in Canada, Went to the doctor last week and I was told that my UC is bad, so i’m back on the pred(Steriods) again for the 6th time and next month is the Imuran Chat. Well Hope to keep in Touch with you all. Stephen

Stephen-    Welcome!  I hope you are able to taper off the Pred uneventfully and that Imuran will put you into a long remission.:-) Get/stay healthy, Kathi

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Hi Stephen – Welcome!! Hugs,  Linda

– Hide quoted text — Show quoted text – Hi My name is Stephen  and I am a suffer of UC I have had this now for 2 years and i’m only 20 years old, I live in Canada, Went to the doctor last week and I was told that my UC is bad, so i’m back on the pred(Steriods) again for the 6th time and next month is the Imuran Chat. Well Hope to keep in Touch with you all. Stephen

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Hi My name is Stephen  and I am a suffer of UC I have had this now for 2 years and i’m only 20 years old, I live in Canada, Went to the doctor last week and I was told that my UC is bad, so i’m back on the pred(Steriods) again for the 6th time and next month is the Imuran Chat. Well Hope to keep in Touch with you all. Stephen

hi stephen…welcome to the group,…i am annie and when i am home i live in boston..now am temporarily in the seattle area…good luck with the pred..and the uc…you have come to a great place for information, sharing and just plain talk..this group is awesome… annie

Response:

Welcome Stephen.  Sorry you had to join us but, glad that you did.  Feel free to jump right in. — Take Care, Sherry  :o) (To reply remove nospam from addie.)

Hi My name is Stephen  and I am a suffer of UC I have had this now for 2 years and i’m only 20 years old, I live in Canada, Went to the doctor last week and I was told that my UC is bad, so i’m back on the pred(Steriods) again for the 6th time and next month is the Imuran Chat. Well Hope to keep in Touch with you all. Stephen

— Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com).

Response:

Welcome Stephen!!  Keep us informed. Hugs, Love, Peace and Good Tidings to you all :) –Staci–

Response:

Hi My name is Stephen  and I am a suffer of UC I have had this now for 2 years and i’m only 20 years old, I live in Canada, Went to the doctor last week and I was told that my UC is bad, so i’m back on the pred(Steriods) again for the 6th time and next month is the Imuran Chat. Well Hope to keep in Touch with you all. Stephen

Response:

Stephen, Hello and welcome! :)  mgbio – Hide quoted text — Show quoted text – Hi My name is Stephen  and I am a suffer of UC I have had this now for 2 years and i’m only 20 years old, I live in Canada, Went to the doctor last week and I was told that my UC is bad, so i’m back on the pred(Steriods) again for the 6th time and next month is the Imuran Chat. Well Hope to keep in Touch with you all. Stephen

Response:

Welcome Stephen.  I hope we can be of help and support to you. Connie

– Hide quoted text — Show quoted text – Stephen, Hello and welcome! :)  mgbio Hi My name is Stephen  and I am a suffer of UC I have had this now for 2 years and i’m only 20 years old, I live in Canada, Went to the doctor last week and I was told that my UC is bad, so i’m back on the pred(Steriods) again for the 6th time and next month is the Imuran Chat. Well Hope to keep in Touch with you all. Stephen

Response:

What a small world!!!!! My consultant is based at Northwick Park. That makes me feel better that someone else has seen a doc from there and feels good about them.

– Hide quoted text — Show quoted text – Hi – I’m London too! I can sympathise with the time taken for diagnosis – mine was after more than a year of moaning at my GP. I started off with a bad hospital (IMO), but then the NACC recommended St Marks’s at Northwick Park (Middlesex) who have been pretty good to me so far (not cured yet though…) Hope your hospital makes you feel better – I’m currently on Prednisolone too which is making me do things like to post to newsgroups (normally I just read!) — remove pam etc I’m new too! From London! Yvie lol, sure beats hurricanes! jeff near detroit mich (hick town near port huron, actually clyde township….lol), where it is 70’s to 80’s and sunny and dry! jeff  Gee…during the summer season isn’t that part of tornado alley ?  It used to run across route 69 from Flint to Port Huron…? It’s been a few years since I’ve been in Michigan.     Linda + Darin

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I’m new too! From London! Yvie – Hide quoted text — Show quoted text – lol, sure beats hurricanes! jeff near detroit mich (hick town near port huron, actually clyde township….lol), where it is 70’s to 80’s and sunny and dry! jeff  Gee…during the summer season isn’t that part of tornado alley ? It used to run across route 69 from Flint to Port Huron…? It’s been a few years since I’ve been in Michigan.     Linda + Darin

Response:

Hi – I’m London too! I can sympathise with the time taken for diagnosis – mine was after more than a year of moaning at my GP. I started off with a bad hospital (IMO), but then the NACC recommended St Marks’s at Northwick Park (Middlesex) who have been pretty good to me so far (not cured yet though…) Hope your hospital makes you feel better – I’m currently on Prednisolone too which is making me do things like to post to newsgroups (normally I just read!) — remove pam etc – Hide quoted text — Show quoted text – I’m new too! From London! Yvie lol, sure beats hurricanes! jeff near detroit mich (hick town near port huron, actually clyde township….lol), where it is 70’s to 80’s and sunny and dry! jeff  Gee…during the summer season isn’t that part of tornado alley ?  It used to run across route 69 from Flint to Port Huron…? It’s been a few years since I’ve been in Michigan.     Linda + Darin

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i don’t really recall that area being referred to as that.  that is just west of us.  guess it could be, but we don’t get too many as compared to the "real" tornado alley (more central of the "mid-west"). jeff

– Hide quoted text — Show quoted text – near detroit mich (hick town near port huron, actually clyde township….lol), where it is 70’s to 80’s and sunny and dry! jeff  Gee…during the summer season isn’t that part of tornado alley ? It used to run across route 69 from Flint to Port Huron…? It’s been a few years since I’ve been in Michigan.     Linda + Darin

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lol, sure beats hurricanes! jeff

– Hide quoted text — Show quoted text – near detroit mich (hick town near port huron, actually clyde township….lol), where it is 70’s to 80’s and sunny and dry! jeff  Gee…during the summer season isn’t that part of tornado alley ? It used to run across route 69 from Flint to Port Huron…? It’s been a few years since I’ve been in Michigan.     Linda + Darin

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Boston,MA USA Debs – Hide quoted text — Show quoted text – seattle, wa Where is everyone from? — "I never met a chocolate I didn’t like!" -Lisa-   welcome ~  as i drink my dark hot chocolate…i come across this response thread….so there are alot of kindred’s here with good taste..   you’ll learn alot here and get some laughs & support too. take good care~ carol (the other carol)

– remove YOURFOOT before responding

Response:

near detroit mich (hick town near port huron, actually clyde township….lol), where it is 70’s to 80’s and sunny and dry! jeff

– Hide quoted text — Show quoted text – Where is everyone from? — "I never met a chocolate I didn’t like!" -Lisa-    welcome ~   as i drink my dark hot chocolate…i come across this response thread….so there are alot of kindred’s here with good taste..    you’ll learn alot here and get some laughs & support too.  take good care~  carol (the other carol)

Response:

near detroit mich (hick town near port huron, actually clyde township….lol), where it is 70’s to 80’s and sunny and dry! jeff

 Gee…during the summer season isn’t that part of tornado alley ? It used to run across route 69 from Flint to Port Huron…? It’s been a few years since I’ve been in Michigan.     Linda + Darin

Response:

seattle, wa – Hide quoted text — Show quoted text – Where is everyone from? — "I never met a chocolate I didn’t like!" -Lisa-    welcome ~   as i drink my dark hot chocolate…i come across this response thread….so there are alot of kindred’s here with good taste..    you’ll learn alot here and get some laughs & support too.  take good care~  carol (the other carol)

Response:

I’m here in Coral Springs, FL which has turned into hurricane alley in the last five weeks!  UM MOM Susan, Jeanne is coming now!

– Hide quoted text — Show quoted text – seattle, wa Where is everyone from? — "I never met a chocolate I didn’t like!" -Lisa-    welcome ~   as i drink my dark hot chocolate…i come across this response thread….so there are alot of kindred’s here with good taste..    you’ll learn alot here and get some laughs & support too.  take good care~  carol (the other carol)

Response:

Lisa from Nova Scotia, Canada 8-) — "I never met a chocolate I didn’t like!" -Lisa-

{{{{{Rebecca}}}}  What a pal!  I will promise to share half of my dark

chocolate with you, the rest is destined for my mother, who is a dark chocoholic and I am committed to keeping her that way <G. – Hide quoted text — Show quoted text – :)  mgbio Dark chocolate junkie here — I’ll send mg all my milk chocolate. . . Rebecca :-) OH yes, I’m a chocoholic who is NOT in seek of a cure!  Pass the milk chocolate please! :)  mgbio Thank you so much for being so nice. I knew I would like it here ;-) I take it you are a chocoholic like myself, great stuff!!!!! It is a cure all for me. Talk to you soon "I never met a chocolate I didn’t like!" -Lisa- —– Original Message —– Newsgroups: alt.support.crohns-colitis Sent: Tuesday, September 14, 2004 4:13 PM Hi Lisa and welcome! I like your motto, it is so ME!  I have a magnet on my fridge given to me by a friend that says the same thing <G. I am sorry to hear of your recent Crohn’s dx.  The most important thing you can do for yourself is learn as much as you can about the disease. A good place to start is the Crohn’s & Colitis Foundation of America’s web site:  http://www.ccfa.org.  They have a lot of good basic and not so basic information about this disease.  I also put together a simple, easy to read, website about Crohn’s Disease, http://www.skyweb.net/~mgbio/cd/cd.html. It also connects to my own story with CD.  Feel free to hang out, listen and ask questions. :)  mgbio CD Class of ‘99 http://www.skyweb.net/~mgbio/cd/cd.html Hi all, I am new to this group, but would very much like to be a part of it as I was just diagnosed with crohns. I would like to talk with others suffering from this disease and maybe make some friends in the process ;-) — "I never met a chocolate I didn’t like!" -Lisa-

Response:

{{{{{Rebecca}}}}  What a pal!  I will promise to share half of my dark chocolate with you, the rest is destined for my mother, who is a dark chocoholic and I am committed to keeping her that way <G. :)  mgbio – Hide quoted text — Show quoted text – Dark chocolate junkie here — I’ll send mg all my milk chocolate. . . Rebecca :-) OH yes, I’m a chocoholic who is NOT in seek of a cure!  Pass the milk chocolate please! :)  mgbio Thank you so much for being so nice. I knew I would like it here ;-) I take it you are a chocoholic like myself, great stuff!!!!! It is a cure all for me. Talk to you soon "I never met a chocolate I didn’t like!" -Lisa- —– Original Message —– Newsgroups: alt.support.crohns-colitis Sent: Tuesday, September 14, 2004 4:13 PM Hi Lisa and welcome! I like your motto, it is so ME!  I have a magnet on my fridge given to me by a friend that says the same thing <G. I am sorry to hear of your recent Crohn’s dx.  The most important thing you can do for yourself is learn as much as you can about the disease. A good place to start is the Crohn’s & Colitis Foundation of America’s web site:  http://www.ccfa.org.  They have a lot of good basic and not so basic information about this disease.  I also put together a simple, easy to read, website about Crohn’s Disease, http://www.skyweb.net/~mgbio/cd/cd.html. It also connects to my own story with CD.  Feel free to hang out, listen and ask questions. :)  mgbio CD Class of ‘99 http://www.skyweb.net/~mgbio/cd/cd.html Hi all, I am new to this group, but would very much like to be a part of it as I was just diagnosed with crohns. I would like to talk with others suffering from this disease and maybe make some friends in the process ;-) — "I never met a chocolate I didn’t like!" -Lisa-

Response:

This is always fun, let’s start a new thread and see the results. Rebecca :-)     Wisconsin, USA

– Hide quoted text — Show quoted text – Where is everyone from? — "I never met a chocolate I didn’t like!" -Lisa-    welcome ~   as i drink my dark hot chocolate…i come across this response thread….so there are alot of kindred’s here with good taste..    you’ll learn alot here and get some laughs & support too.  take good care~  carol (the other carol)

Response:

Where is everyone from? — "I never met a chocolate I didn’t like!" -Lisa-

– Hide quoted text — Show quoted text –    welcome ~   as i drink my dark hot chocolate…i come across this response thread….so there are alot of kindred’s here with good taste..    you’ll learn alot here and get some laughs & support too.  take good care~  carol (the other carol)

Response:

Dark chocolate junkie here — I’ll send mg all my milk chocolate. . . Rebecca :-)

– Hide quoted text — Show quoted text – OH yes, I’m a chocoholic who is NOT in seek of a cure!  Pass the milk chocolate please! :)  mgbio Thank you so much for being so nice. I knew I would like it here ;-) I take it you are a chocoholic like myself, great stuff!!!!! It is a cure all for me. Talk to you soon "I never met a chocolate I didn’t like!" -Lisa- —– Original Message —– Newsgroups: alt.support.crohns-colitis Sent: Tuesday, September 14, 2004 4:13 PM Hi Lisa and welcome! I like your motto, it is so ME!  I have a magnet on my fridge given to me by a friend that says the same thing <G. I am sorry to hear of your recent Crohn’s dx.  The most important thing you can do for yourself is learn as much as you can about the disease. A good place to start is the Crohn’s & Colitis Foundation of America’s web site:  http://www.ccfa.org.  They have a lot of good basic and not so basic information about this disease.  I also put together a simple, easy to read, website about Crohn’s Disease, http://www.skyweb.net/~mgbio/cd/cd.html. It also connects to my own story with CD.  Feel free to hang out, listen and ask questions. :)  mgbio CD Class of ‘99 http://www.skyweb.net/~mgbio/cd/cd.html Hi all, I am new to this group, but would very much like to be a part of it as I was just diagnosed with crohns. I would like to talk with others suffering from this disease and maybe make some friends in the process ;-) — "I never met a chocolate I didn’t like!" -Lisa-

Response:

Thank you Annie and good luck with the move! — "I never met a chocolate I didn’t like!" -Lisa-

– Hide quoted text — Show quoted text – Thank you so much for being so nice. I knew I would like it here ;-) I take it you are a chocoholic like myself, great stuff!!!!! It is a cure all for me. Talk to you soon "I never met a chocolate I didn’t like!" -Lisa- hi lisa i did NOT see your original message but did see all the welcomes from people..so welcome from me too…i like the chocolate motto <G susan and i are both addicted..as are a lot ofp eople on the board… i consider crohns and uc bearable as long as i can have chocolate in some form <g my name is annie and u wont see me on here after friday for a while..i live in boston..but we have been out in the seattle area for 2 years..friday is moving day…but welcome to our "family".. annie

Response:

welcome!  You’ll find lots of support here.  I have CD, and I too LOVE chocolate! – Hide quoted text — Show quoted text – Clear DayHi all, I am new to this group, but would very much like to be = a part of it as I was just diagnosed with crohns. I would like to talk with others suffering from this disease and maybe = make some friends in the process ;-) –=20 "I never met a chocolate I didn’t like!" -Lisa-

Response:

   welcome ~   as i drink my dark hot chocolate…i come across this response thread….so there are alot of kindred’s here with good taste..    you’ll learn alot here and get some laughs & support too.  take good care~  carol (the other carol)

Response:

OH yes, I’m a chocoholic who is NOT in seek of a cure!  Pass the milk chocolate please! :)  mgbio – Hide quoted text — Show quoted text – Thank you so much for being so nice. I knew I would like it here ;-) I take it you are a chocoholic like myself, great stuff!!!!! It is a cure all for me. Talk to you soon "I never met a chocolate I didn’t like!" -Lisa- —– Original Message —– Newsgroups: alt.support.crohns-colitis Sent: Tuesday, September 14, 2004 4:13 PM Hi Lisa and welcome! I like your motto, it is so ME!  I have a magnet on my fridge given to me by a friend that says the same thing <G. I am sorry to hear of your recent Crohn’s dx.  The most important thing you can do for yourself is learn as much as you can about the disease.  A good place to start is the Crohn’s & Colitis Foundation of America’s web site:  http://www.ccfa.org.  They have a lot of good basic and not so basic information about this disease.  I also put together a simple, easy to read, website about Crohn’s Disease, http://www.skyweb.net/~mgbio/cd/cd.html.  It also connects to my own story with CD.  Feel free to hang out, listen and ask questions. :)  mgbio CD Class of ‘99 http://www.skyweb.net/~mgbio/cd/cd.html Hi all, I am new to this group, but would very much like to be a part of it as I was just diagnosed with crohns. I would like to talk with others suffering from this disease and maybe make some friends in the process ;-) — "I never met a chocolate I didn’t like!" -Lisa-

Response:

Thank you so much for being so nice. I knew I would like it here ;-) I take it you are a chocoholic like myself, great stuff!!!!! It is a cure all for me. Talk to you soon "I never met a chocolate I didn’t like!" -Lisa-

hi lisa i did NOT see your original message but did see all the welcomes from people..so welcome from me too…i like the chocolate motto <G susan and i are both addicted..as are a lot ofp eople on the board… i consider crohns and uc bearable as long as i can have chocolate in some form <g my name is annie and u wont see me on here after friday for a while..i live in boston..but we have been out in the seattle area for 2 years..friday is moving day…but welcome to our "family".. annie

Response:

Hi Lisa and welcome! I like your motto, it is so ME!  I have a magnet on my fridge given to me by a friend that says the same thing <G.   I am sorry to hear of your recent Crohn’s dx.  The most important thing you can do for yourself is learn as much as you can about the disease.  A good place to start is the Crohn’s & Colitis Foundation of America’s web site:  http://www.ccfa.org.  They have a lot of good basic and not so basic information about this disease.  I also put together a simple, easy to read, website about Crohn’s Disease, http://www.skyweb.net/~mgbio/cd/cd.html.  It also connects to my own story with CD.  Feel free to hang out, listen and ask questions. :)  mgbio CD Class of ‘99 http://www.skyweb.net/~mgbio/cd/cd.html – Hide quoted text — Show quoted text – Hi all, I am new to this group, but would very much like to be a part of it as I was just diagnosed with crohns. I would like to talk with others suffering from this disease and maybe make some friends in the process ;-) — "I never met a chocolate I didn’t like!" -Lisa-

Response:

Thank you so much for being so nice. I knew I would like it here ;-) I take it you are a chocoholic like myself, great stuff!!!!! It is a cure all for me. Talk to you soon "I never met a chocolate I didn’t like!" -Lisa- – Hide quoted text — Show quoted text —— Original Message —– Newsgroups: alt.support.crohns-colitis Sent: Tuesday, September 14, 2004 4:13 PM Hi Lisa and welcome! I like your motto, it is so ME!  I have a magnet on my fridge given to me by a friend that says the same thing <G. I am sorry to hear of your recent Crohn’s dx.  The most important thing you can do for yourself is learn as much as you can about the disease.  A good place to start is the Crohn’s & Colitis Foundation of America’s web site:  http://www.ccfa.org.  They have a lot of good basic and not so basic information about this disease.  I also put together a simple, easy to read, website about Crohn’s Disease, http://www.skyweb.net/~mgbio/cd/cd.html.  It also connects to my own story with CD.  Feel free to hang out, listen and ask questions. :)  mgbio CD Class of ‘99 http://www.skyweb.net/~mgbio/cd/cd.html Hi all, I am new to this group, but would very much like to be a part of it as I was just diagnosed with crohns. I would like to talk with others suffering from this disease and maybe make some friends in the process ;-) — "I never met a chocolate I didn’t like!" -Lisa- — "I never met a chocolate I didn’t like!" -Lisa- Hi Lisa and welcome! I like your motto, it is so ME!  I have a magnet on my fridge given to me by a friend that says the same thing <G. I am sorry to hear of your recent Crohn’s dx.  The most important thing you can do for yourself is learn as much as you can about the disease.  A good place to start is the Crohn’s & Colitis Foundation of America’s web site:  http://www.ccfa.org.  They have a lot of good basic and not so basic information about this disease.  I also put together a simple, easy to read, website about Crohn’s Disease, http://www.skyweb.net/~mgbio/cd/cd.html.  It also connects to my own story with CD.  Feel free to hang out, listen and ask questions. :)  mgbio CD Class of ‘99 http://www.skyweb.net/~mgbio/cd/cd.html Hi all, I am new to this group, but would very much like to be a part of it as I was just diagnosed with crohns. I would like to talk with others suffering from this disease and maybe make some friends in the process ;-) — "I never met a chocolate I didn’t like!" -Lisa-

Response:

Clear DayWelcome to the group Lisa!  There are a lot of wonderful people here. If you change to plain text more people will be able to respond to you.  I had to change it because I can’t respond to HTML.  I have crohn’s disease also with two surgeries.  I look forward to hearing more from you. Welcome again to the group.  UM MOM Susan

Hi all, I am new to this group, but would very much like to be a part of it as I was just diagnosed with crohns. I would like to talk with others suffering from this disease and maybe make some friends in the process ;-) — "I never met a chocolate I didn’t like!" -Lisa-

Response:

I guess it’s too early for brain functions.  Don’t know where the beginning of my sentence came from! ;-)  Welcome again to the group!  UM MOM Susan

– Hide quoted text — Show quoted text – Clear DayWelcome to the group Lisa!  There are a lot of wonderful people here. If you change to plain text more people will be able to respond to you.  I had to change it because I can’t respond to HTML.  I have crohn’s disease also with two surgeries.  I look forward to hearing more from you. Welcome again to the group.  UM MOM Susan Hi all, I am new to this group, but would very much like to be a part of it as I was just diagnosed with crohns. I would like to talk with others suffering from this disease and maybe make some friends in the process ;-) — "I never met a chocolate I didn’t like!" -Lisa-

Response:

Hi I’m new  too,just getting the hang of this webtv.I have had arthritis for a long time.Have been on a lot of different drugs.Some work a little  I ended up taking motrin ,and then more motrin.I moved to N.C. with my husband last Sept.He was the one that has a work permit , being Canadian, I am not allowed to work until he gets his green card which takes 3 yrs. So I have a lot of time on my hands. Watching t.v. one day I saw an ad for volunteers for an arthritis study. I qualified and started taking this drug. After about 4 days on the drug I started waking up with incredibly itchy hands ,and sweating like 10 men. I gained 12 pounds in a week.The chiropractor I was going to said this might all be due to that drug. It was a little confusing cause I thought I might be starting menopause too. It was over the Xmas holidays so of course the Dr. office was closed. I finally got in touch with them and of course they said GET OFF THE DRUG. That kinda scared the —— out of me .I wondered what kind of damage I might  have done. So I decided not to take anything. I feel the cure might be worse then the disease. You know I have a lot of pain, and some days I can hardly move,but mentally I feel better for not taking anything that might destroy my kidneys or liver. Some day I might have to  take something but until that day comes I try to force myself to stay as active as a bored to death house engineer can be. I get my stiffest when I sit TOOOO long and play with this ghismo.Talk to you again, Heather

Response:

Hi Heather! So sad to see you here, but glad to meecha, ya hey der. sorry, couldn’t resist today….

– Hide quoted text — Show quoted text – Hi I’m new  too,just getting the hang of this webtv.I have had arthritis for a long time.Have been on a lot of different drugs.Some work a little  I ended up taking motrin ,and then more motrin.I moved to N.C. with my husband last Sept.He was the one that has a work permit , being Canadian, I am not allowed to work until he gets his green card which takes 3 yrs. So I have a lot of time on my hands. Watching t.v. one day I saw an ad for volunteers for an arthritis study. I qualified and started taking this drug. After about 4 days on the drug I started waking up with incredibly itchy hands ,and sweating like 10 men. I gained 12 pounds in a week.The chiropractor I was going to said this might all be due to that drug. It was a little confusing cause I thought I might be starting menopause too. It was over the Xmas holidays so of course the Dr. office was closed. I finally got in touch with them and of course they said GET OFF THE DRUG. That kinda scared the —— out of me .I wondered what kind of damage I might  have done. So I decided not to take anything. I feel the cure might be worse then the disease. You know I have a lot of pain, and some days I can hardly move,but mentally I feel better for not taking anything that might destroy my kidneys or liver. Some day I might have to  take something but until that day comes I try to force myself to stay as active as a bored to death house engineer can be. I get my stiffest when I sit TOOOO long and play with this ghismo.Talk to you again, Heather

Response:

I am being treated for inflammatory osteoarthritis in my fingers (and no, typing doesn’t help! ;-(  )

    Do what I do.  Type with your toes. I’ve had some problems with the first joints started to get misshappen and swollen for a couple of years – but no real pain.  (Maybe because over the last 10 years I’ve been on all kinds of anti inflammatories and prednisone for shoulder and then back injury???)  Stopped the stuff for those and the hands got bad enough to agree to see specialist. Started on Day-Pro in the fall and was changed to Vioxx in December – 12.5mg twice a day.

    Vioxx is a reasonable choice for a long-term anti- inflamatory. The doctor also prescribed a hot wax therabath for me to use at home. I wish I could keep my hands in that all the time!

    Just flex those toes. Last visit to the doc in March he said I could take an extra 12.5 during the day if I needed – or try taking the 12.5 inthe morning and 25 in the evening since I tend to wake up during the night with hand pain. The 12.5 three times a day seems to feel best (and the hot wax!!)  Told the doc and he said that the insurance will not cover more than 25mg/day. So, does this mean that I’m overdosing on some days?

    No, I’d say it just means that your insurance coverage leaves something to be desired. My poor liver!  (no one would want that with or without onions!) Is there NOTHING to help the gnarling?

    There probably isn’t anything short of prosthetic joint replacement that will un-gnarl joints that have become gnarled. Typically the change in shape on the surface is a reflection of the accumulation of scar tissue underneath, and that sort of thing doesn’t just go away. He said that when I start menopause that there is a chance that this will let up.  Anyone have success with that?

    Not me, but I confess I’m already insecure enough with my masculinity that I doubt the sex-change operation would help… Gee – makes it look very appealing! Maybe with menopause the pain will let up and hot flashes will help keep me warm!  lol!

    Hey, even wishful thinking is better than abandoning hope. Glo

– Nathan Engle               Shop Steward               Electron Juggler’s Guild, Local #1 "Some Assembly Required"

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nathan, LOL. good to see you posting again. diane

Response:

nathan, LOL. good to see you posting again. diane

Always good to hear from Nathan. Harv

Response:

I have passed menopause and there is no relief yet from the pain DeeTee – Hide quoted text — Show quoted text – Hi, I am being treated for inflammatory osteoarthritis in my fingers (and no, typing doesn’t help! ;-(  ) I’ve had some problems with the first joints started to get misshappen and swollen for a couple of years – but no real pain.  (Maybe because over the last 10 years I’ve been on all kinds of anti inflammatories and prednisone for shoulder and then back injury???)  Stopped the stuff for those and the hands got bad enough to agree to see specialist. Started on Day-Pro in the fall and was changed to Vioxx in December – 12.5mg twice a day. The doctor also prescribed a hot wax therabath for me to use at home. I wish I could keep my hands in that all the time! Last visit to the doc in March he said I could take an extra 12.5 during the day if I needed – or try taking the 12.5 inthe morning and 25 in the evening since I tend to wake up during the night with hand pain. The 12.5 three times a day seems to feel best (and the hot wax!!)  Told the doc and he said that the insurance will not cover more than 25mg/day. So, does this mean that I’m overdosing on some days? My poor liver!  (no one would want that with or without onions!) Is there NOTHING to help the gnarling? He said that when I start menopause that there is a chance that this will let up.  Anyone have success with that? Gee – makes it look very appealing! Maybe with menopause the pain will let up and hot flashes will help keep me warm!  lol! Glo

– http://www.erols.com/bobndiana/ http://lep694.gsfc.nasa.gov/lepedu/FrontPage.html

Response:

Dear Gloria: I do believe your dr. is on drugs if he thinks the pain will decrease once you are in menopause.  He must have read that out of Cosmo or something.  I am so sorry he disillused you into thinking that.  Many of us are in pre, peri or meno and it has done nothing for our pain one way or the other.  I suggest you maybe should look for a more knowledgeable dr.  Learning the truth about your condition is very important.  You are in a good environment here at ASA to learn alot of info.  Welcome and stick with us, we will help you along. Blessings, Jeannette

Response:

Hi, I am being treated for inflammatory osteoarthritis in my fingers (and no, typing doesn’t help! ;-(  )   I’ve had some problems with the first joints started to get misshappen and swollen for a couple of years – but no real pain.  (Maybe because over the last 10 years I’ve been on all kinds of anti inflammatories and prednisone for shoulder and then back injury???)  Stopped the stuff for those and the hands got bad enough to agree to see specialist. Started on Day-Pro in the fall and was changed to Vioxx in December – 12.5mg twice a day.   The doctor also prescribed a hot wax therabath for me to use at home. I wish I could keep my hands in that all the time!   Last visit to the doc in March he said I could take an extra 12.5 during the day if I needed – or try taking the 12.5 inthe morning and 25 in the evening since I tend to wake up during the night with hand pain.   The 12.5 three times a day seems to feel best (and the hot wax!!)  Told the doc and he said that the insurance will not cover more than 25mg/day.   So, does this mean that I’m overdosing on some days? My poor liver!  (no one would want that with or without onions!) Is there NOTHING to help the gnarling? He said that when I start menopause that there is a chance that this will let up.  Anyone have success with that? Gee – makes it look very appealing! Maybe with menopause the pain will let up and hot flashes will help keep me warm!  lol! Glo

Response:

Hi – I have lurked and maybe posted once or twice. I am from the fibro group, and now have spondylosis – cervical and thoracic and arthritis in my foot. The foot is why I am posting – do orthotics help? I saw the podiatrist and he taped it all up to see if it took the pressure off, but I couldn’t stand the tape so I took it off. I really need to walk and keep exercising for all this – I have 40% mobility in my toes and it’s pressing on the nerves. Any suggestions?? Thank you, Kathi Kathi < I did what I knew how to do, and when I knew better, I did better.

Response:

Hi Kathi, I remember seeing you post before!   Welcome out of lurkerland!!! Kathi, do you know what type of arthritis you have in your foot?   Was it diagnosed by a rheumatologist?   Are you taking anyhing for the arthritis?  Orthotics do have their place in dealing with arthritis, but there may be some other options out there for you as well. I know this isn’t much help to you, but I did want to say hi and let you know that others will be along to give you a bit more advice! If you are a frequent lurker, then you know to hide your chocolate!!! LOL! Donna G

Response:

[This followup was posted to alt.support.arthritis and a copy was sent to the cited author.] Hi – I have lurked and maybe posted once or twice. I am from the fibro group, and now have spondylosis – cervical and thoracic and arthritis in my foot. The foot is why I am posting – do orthotics help? I saw the podiatrist and he taped it all up to see if it took the pressure off, but I couldn’t stand the tape so I took it off. I really need to walk and keep exercising for all this – I have 40% mobility in my toes and it’s pressing on the nerves. Any suggestions?? Thank you, Kathi Kathi < I did what I knew how to do, and when I knew better, I did better.

It probably depends on the reason for the orthotics. A previous podiatrist said that the reason I was having foot pain was that I had heels spurs. The orthotics he had made did a VERY good job of reducing the pain (by putting hollows under the spurs) and also reduced pronation (twisting of the ankle) which contributed to the formation of the spurs in the first place. A bit later I had some more pain which turned out to me neuroma (pressure on the ball of the foot where two nerves cross) and he added a pad, slightly behind the ball of the foot, which relieved that pressure also. The orthotics were made to fit the specific model shoe I was wearing at the time, and, since then, I have continued to wear that same type shoe to allow a proper fit. All in all, the orthotics have been very helpful to me, even to the point of allowing me to continued folkdancing (though the other problems have reduced that a bit). — "One of the most striking differences between a cat  and a lie is that a cat only has nine lives."  Puddinhead Wilson’s Calendar (Mark Twain) —– mr(dot)bones(at)att(dot)net

Response:

The pressing on the nerves — causing neuropathy? There has been a discussion not too long ago of a drug called Neurontin which helps with lots of things including that. Welcome to our sandbox Kathi. Duckie Hi – I have lurked and maybe posted once or twice. I am from the fibro group, and now have spondylosis – cervical and thoracic and arthritis in my foot. The foot is why I am posting – do orthotics help? I saw the podiatrist and he taped it all up to see if it took the pressure off, but I couldn’t stand the tape so I took it off. I really need to walk and keep exercising for all this – I have 40% mobility in my toes and it’s pressing on the nerves. Any suggestions?? Thank you, Kathi Kathi < I did what I knew how to do, and when I knew better, I did better.

–   _(‘  (_<_)           _   _(‘< -quack  (_<_)     _    __(‘< *QUACK!* <_{__)   _(‘< "|,,|_"  (_<_)   _(‘< "AFLAC!"  (_<_)

Response:

I have this problem with my feet and could not sleep at night due to the pain. My rhumy put me on Neurontin  and it has helped me. jbinnc

– Hide quoted text — Show quoted text – The pressing on the nerves — causing neuropathy? There has been a discussion not too long ago of a drug called Neurontin which helps with lots of things including that. Welcome to our sandbox Kathi. Duckie Hi – I have lurked and maybe posted once or twice. I am from the fibro group, and now have spondylosis – cervical and thoracic and arthritis in my foot. The foot is why I am posting – do orthotics help? I saw the podiatrist and he taped it all up to see if it took the pressure off, but I couldn’t stand the tape so I took it off. I really need to walk and keep exercising for all this – I have 40% mobility in my toes and it’s pressing on the nerves. Any suggestions?? Thank you, Kathi Kathi < I did what I knew how to do, and when I knew better, I did better. —   _(‘  (_<_)     _   _(‘< -quack  (_<_)     _  __(‘< *QUACK!* <_{__)   _(‘< "|,,|_"  (_<_)   _(‘< "AFLAC!"  (_<_)

Response:

If you are a frequent lurker, then you know to hide your chocolate!!! LOL!

LOL -no I didn’t know that but thanks for the heads up. I don’t know what type of arthritis and a rheumy didn’t dx it – the podiatrist did. I had figured as much since anti inflammatories help so much. I have bone spurs all up my back and spondy.. I am assuming it’s osteoarthritis. I’ll have to ask him next week. I did finally test slightly postive when I did my last bloodwork so I’m not surprised. Thanks for the reply, Kathi Kathi < I did what I knew how to do, and when I knew better, I did better.

Response:

een a discussion not too long ago of a drug called Neurontin which helps with

I was on it for three years – didn’t help the foot at all. Or maybe it did and I don’t remember.. I went off it because I felt like I had taken it so long I had trouble concentrating, and I have found I do better not on it.  I take one once in a while when I can’t stand the pain -I know that’s not the way but it does help. Kathi < I did what I knew how to do, and when I knew better, I did better.

Response:

Hi I’m new  too,just getting the hang of this webtv.I have had arthritis for a long time.Have been on a lot of different drugs.Some work a little  I ended up taking motrin ,and then more motrin.I moved to N.C. with my husband last Sept.He was the one that has a work permit , being Canadian, I am not allowed to work until he gets his green card which takes 3 yrs. So I have a lot of time on my hands. Watching t.v. one day I saw an ad for volunteers for an arthritis study. I qualified and started taking this drug. After about 4 days on the drug I started waking up with incredibly itchy hands ,and sweating like 10 men. I gained 12 pounds in a week.The chiropractor I was going to said this might all be due to that drug. It was a little confusing cause I thought I might be starting menopause too. It was over the Xmas holidays so of course the Dr. office was closed. I finally got in touch with them and of course they said GET OFF THE DRUG. That kinda scared the —— out of me .I wondered what kind of damage I might  have done. So I decided not to take anything. I feel the cure might be worse then the disease. You know I have a lot of pain, and some days I can hardly move,but mentally I feel better for not taking anything that might destroy my kidneys or liver. Some day I might have to  take something but until that day comes I try to force myself to stay as active as a bored to death house engineer can be. I get my stiffest when I sit TOOOO long and play with this ghismo.Talk to you again, Heather

Response:

Hi Heather! So sad to see you here, but glad to meecha, ya hey der. sorry, couldn’t resist today….

– Hide quoted text — Show quoted text – Hi I’m new  too,just getting the hang of this webtv.I have had arthritis for a long time.Have been on a lot of different drugs.Some work a little  I ended up taking motrin ,and then more motrin.I moved to N.C. with my husband last Sept.He was the one that has a work permit , being Canadian, I am not allowed to work until he gets his green card which takes 3 yrs. So I have a lot of time on my hands. Watching t.v. one day I saw an ad for volunteers for an arthritis study. I qualified and started taking this drug. After about 4 days on the drug I started waking up with incredibly itchy hands ,and sweating like 10 men. I gained 12 pounds in a week.The chiropractor I was going to said this might all be due to that drug. It was a little confusing cause I thought I might be starting menopause too. It was over the Xmas holidays so of course the Dr. office was closed. I finally got in touch with them and of course they said GET OFF THE DRUG. That kinda scared the —— out of me .I wondered what kind of damage I might  have done. So I decided not to take anything. I feel the cure might be worse then the disease. You know I have a lot of pain, and some days I can hardly move,but mentally I feel better for not taking anything that might destroy my kidneys or liver. Some day I might have to  take something but until that day comes I try to force myself to stay as active as a bored to death house engineer can be. I get my stiffest when I sit TOOOO long and play with this ghismo.Talk to you again, Heather

Response:

I am being treated for inflammatory osteoarthritis in my fingers (and no, typing doesn’t help! ;-(  )

    Do what I do.  Type with your toes. I’ve had some problems with the first joints started to get misshappen and swollen for a couple of years – but no real pain.  (Maybe because over the last 10 years I’ve been on all kinds of anti inflammatories and prednisone for shoulder and then back injury???)  Stopped the stuff for those and the hands got bad enough to agree to see specialist. Started on Day-Pro in the fall and was changed to Vioxx in December – 12.5mg twice a day.

    Vioxx is a reasonable choice for a long-term anti- inflamatory. The doctor also prescribed a hot wax therabath for me to use at home. I wish I could keep my hands in that all the time!

    Just flex those toes. Last visit to the doc in March he said I could take an extra 12.5 during the day if I needed – or try taking the 12.5 inthe morning and 25 in the evening since I tend to wake up during the night with hand pain. The 12.5 three times a day seems to feel best (and the hot wax!!)  Told the doc and he said that the insurance will not cover more than 25mg/day. So, does this mean that I’m overdosing on some days?

    No, I’d say it just means that your insurance coverage leaves something to be desired. My poor liver!  (no one would want that with or without onions!) Is there NOTHING to help the gnarling?

    There probably isn’t anything short of prosthetic joint replacement that will un-gnarl joints that have become gnarled. Typically the change in shape on the surface is a reflection of the accumulation of scar tissue underneath, and that sort of thing doesn’t just go away. He said that when I start menopause that there is a chance that this will let up.  Anyone have success with that?

    Not me, but I confess I’m already insecure enough with my masculinity that I doubt the sex-change operation would help… Gee – makes it look very appealing! Maybe with menopause the pain will let up and hot flashes will help keep me warm!  lol!

    Hey, even wishful thinking is better than abandoning hope. Glo

– Nathan Engle               Shop Steward               Electron Juggler’s Guild, Local #1 "Some Assembly Required"

Response:

nathan, LOL. good to see you posting again. diane

Response:

nathan, LOL. good to see you posting again. diane

Always good to hear from Nathan. Harv

Response:

I have passed menopause and there is no relief yet from the pain DeeTee – Hide quoted text — Show quoted text – Hi, I am being treated for inflammatory osteoarthritis in my fingers (and no, typing doesn’t help! ;-(  ) I’ve had some problems with the first joints started to get misshappen and swollen for a couple of years – but no real pain.  (Maybe because over the last 10 years I’ve been on all kinds of anti inflammatories and prednisone for shoulder and then back injury???)  Stopped the stuff for those and the hands got bad enough to agree to see specialist. Started on Day-Pro in the fall and was changed to Vioxx in December – 12.5mg twice a day. The doctor also prescribed a hot wax therabath for me to use at home. I wish I could keep my hands in that all the time! Last visit to the doc in March he said I could take an extra 12.5 during the day if I needed – or try taking the 12.5 inthe morning and 25 in the evening since I tend to wake up during the night with hand pain. The 12.5 three times a day seems to feel best (and the hot wax!!)  Told the doc and he said that the insurance will not cover more than 25mg/day. So, does this mean that I’m overdosing on some days? My poor liver!  (no one would want that with or without onions!) Is there NOTHING to help the gnarling? He said that when I start menopause that there is a chance that this will let up.  Anyone have success with that? Gee – makes it look very appealing! Maybe with menopause the pain will let up and hot flashes will help keep me warm!  lol! Glo

– http://www.erols.com/bobndiana/ http://lep694.gsfc.nasa.gov/lepedu/FrontPage.html

Response:

Dear Gloria: I do believe your dr. is on drugs if he thinks the pain will decrease once you are in menopause.  He must have read that out of Cosmo or something.  I am so sorry he disillused you into thinking that.  Many of us are in pre, peri or meno and it has done nothing for our pain one way or the other.  I suggest you maybe should look for a more knowledgeable dr.  Learning the truth about your condition is very important.  You are in a good environment here at ASA to learn alot of info.  Welcome and stick with us, we will help you along. Blessings, Jeannette

Response:

Hi, I am being treated for inflammatory osteoarthritis in my fingers (and no, typing doesn’t help! ;-(  )   I’ve had some problems with the first joints started to get misshappen and swollen for a couple of years – but no real pain.  (Maybe because over the last 10 years I’ve been on all kinds of anti inflammatories and prednisone for shoulder and then back injury???)  Stopped the stuff for those and the hands got bad enough to agree to see specialist. Started on Day-Pro in the fall and was changed to Vioxx in December – 12.5mg twice a day.   The doctor also prescribed a hot wax therabath for me to use at home. I wish I could keep my hands in that all the time!   Last visit to the doc in March he said I could take an extra 12.5 during the day if I needed – or try taking the 12.5 inthe morning and 25 in the evening since I tend to wake up during the night with hand pain.   The 12.5 three times a day seems to feel best (and the hot wax!!)  Told the doc and he said that the insurance will not cover more than 25mg/day.   So, does this mean that I’m overdosing on some days? My poor liver!  (no one would want that with or without onions!) Is there NOTHING to help the gnarling? He said that when I start menopause that there is a chance that this will let up.  Anyone have success with that? Gee – makes it look very appealing! Maybe with menopause the pain will let up and hot flashes will help keep me warm!  lol! Glo

Response:

Hi – I have lurked and maybe posted once or twice. I am from the fibro group, and now have spondylosis – cervical and thoracic and arthritis in my foot. The foot is why I am posting – do orthotics help? I saw the podiatrist and he taped it all up to see if it took the pressure off, but I couldn’t stand the tape so I took it off. I really need to walk and keep exercising for all this – I have 40% mobility in my toes and it’s pressing on the nerves. Any suggestions?? Thank you, Kathi Kathi < I did what I knew how to do, and when I knew better, I did better.

Response:

Hi Kathi, I remember seeing you post before!   Welcome out of lurkerland!!! Kathi, do you know what type of arthritis you have in your foot?   Was it diagnosed by a rheumatologist?   Are you taking anyhing for the arthritis?  Orthotics do have their place in dealing with arthritis, but there may be some other options out there for you as well. I know this isn’t much help to you, but I did want to say hi and let you know that others will be along to give you a bit more advice! If you are a frequent lurker, then you know to hide your chocolate!!! LOL! Donna G

Response:

[This followup was posted to alt.support.arthritis and a copy was sent to the cited author.] Hi – I have lurked and maybe posted once or twice. I am from the fibro group, and now have spondylosis – cervical and thoracic and arthritis in my foot. The foot is why I am posting – do orthotics help? I saw the podiatrist and he taped it all up to see if it took the pressure off, but I couldn’t stand the tape so I took it off. I really need to walk and keep exercising for all this – I have 40% mobility in my toes and it’s pressing on the nerves. Any suggestions?? Thank you, Kathi Kathi < I did what I knew how to do, and when I knew better, I did better.

It probably depends on the reason for the orthotics. A previous podiatrist said that the reason I was having foot pain was that I had heels spurs. The orthotics he had made did a VERY good job of reducing the pain (by putting hollows under the spurs) and also reduced pronation (twisting of the ankle) which contributed to the formation of the spurs in the first place. A bit later I had some more pain which turned out to me neuroma (pressure on the ball of the foot where two nerves cross) and he added a pad, slightly behind the ball of the foot, which relieved that pressure also. The orthotics were made to fit the specific model shoe I was wearing at the time, and, since then, I have continued to wear that same type shoe to allow a proper fit. All in all, the orthotics have been very helpful to me, even to the point of allowing me to continued folkdancing (though the other problems have reduced that a bit). — "One of the most striking differences between a cat  and a lie is that a cat only has nine lives."  Puddinhead Wilson’s Calendar (Mark Twain) —– mr(dot)bones(at)att(dot)net

Response:

The pressing on the nerves — causing neuropathy? There has been a discussion not too long ago of a drug called Neurontin which helps with lots of things including that. Welcome to our sandbox Kathi. Duckie Hi – I have lurked and maybe posted once or twice. I am from the fibro group, and now have spondylosis – cervical and thoracic and arthritis in my foot. The foot is why I am posting – do orthotics help? I saw the podiatrist and he taped it all up to see if it took the pressure off, but I couldn’t stand the tape so I took it off. I really need to walk and keep exercising for all this – I have 40% mobility in my toes and it’s pressing on the nerves. Any suggestions?? Thank you, Kathi Kathi < I did what I knew how to do, and when I knew better, I did better.

–   _(‘  (_<_)           _   _(‘< -quack  (_<_)     _    __(‘< *QUACK!* <_{__)   _(‘< "|,,|_"  (_<_)   _(‘< "AFLAC!"  (_<_)

Response:

I have this problem with my feet and could not sleep at night due to the pain. My rhumy put me on Neurontin  and it has helped me. jbinnc

– Hide quoted text — Show quoted text – The pressing on the nerves — causing neuropathy? There has been a discussion not too long ago of a drug called Neurontin which helps with lots of things including that. Welcome to our sandbox Kathi. Duckie Hi – I have lurked and maybe posted once or twice. I am from the fibro group, and now have spondylosis – cervical and thoracic and arthritis in my foot. The foot is why I am posting – do orthotics help? I saw the podiatrist and he taped it all up to see if it took the pressure off, but I couldn’t stand the tape so I took it off. I really need to walk and keep exercising for all this – I have 40% mobility in my toes and it’s pressing on the nerves. Any suggestions?? Thank you, Kathi Kathi < I did what I knew how to do, and when I knew better, I did better. —   _(‘  (_<_)     _   _(‘< -quack  (_<_)     _  __(‘< *QUACK!* <_{__)   _(‘< "|,,|_"  (_<_)   _(‘< "AFLAC!"  (_<_)

Response:

If you are a frequent lurker, then you know to hide your chocolate!!! LOL!

LOL -no I didn’t know that but thanks for the heads up. I don’t know what type of arthritis and a rheumy didn’t dx it – the podiatrist did. I had figured as much since anti inflammatories help so much. I have bone spurs all up my back and spondy.. I am assuming it’s osteoarthritis. I’ll have to ask him next week. I did finally test slightly postive when I did my last bloodwork so I’m not surprised. Thanks for the reply, Kathi Kathi < I did what I knew how to do, and when I knew better, I did better.

Response:

een a discussion not too long ago of a drug called Neurontin which helps with

I was on it for three years – didn’t help the foot at all. Or maybe it did and I don’t remember.. I went off it because I felt like I had taken it so long I had trouble concentrating, and I have found I do better not on it.  I take one once in a while when I can’t stand the pain -I know that’s not the way but it does help. Kathi < I did what I knew how to do, and when I knew better, I did better.

Response:

Welcome Joy. Realize you are an addict. You have an addiction. The only way to quit is to put em down and not pick up again. Use the patch, the gum, cold turkey… whatever works. But please read here and post here as often as you can. It’s a great group and we’ll help you through the rough spots the best we can! Nicole SA #4  f3as3  Nine months, four weeks, one day, 4 hours, 55 minutes and 14 seconds. 10577 cigarettes not smoked, saving $1,882.74. Time I can spend with my little one that I wouldn’t have if I were smoking: 5 weeks, 1 day, 17 hours, 25 minutes. – Hide quoted text — Show quoted text -Hi everyone, I have heard a lot about this group and would love to join all of you. So many of your quits tell me that *I* too can quit smoking! Lately, my nasty habit has been invading my life to a point that I want to stop. This past week my 5 year old was a few steps away from having pneumonia.  His coughing was so bad at night that I took him into the doctor.  No fever, just coughing.  When the doc listened to his little lungs, he said that if I had waited a couple of days he would be admitted into the hospital for pneumo. I realize that a virus is going around that starts off as a cold and steadily gets worse until pneumo settles in….(that’s what the doc says)…BUT I still have to blame myself.  I’m sure that he wouldn’t have been so sick if it wasn’t for my second-hand smoke lurking around this house! I have bronchitis…he has bronchitis…and I am still smoking.   I am hooked …I am an addict…I feel like a moron! I need help! Joy a soon to be quitter

If you hold up your head with a smile on your face and are truly thankful… you are blessed because the majority can, but most do not.

Response:

Hi everyone, Hiya Joy I have heard a lot about this group and would love to join all of you. So many of your quits tell me that *I* too can quit smoking!

I’m quite new here too… but don’t let being new hold you back from posting or ranting… it’s healthy imho. Hope to add you to the Weedkillers (December quit crew) soon. Jeroen, The Netherlands http://www.strange-fiction.nl (A writer’s resource page) —— I chose not to smoke since 12/06/2001 at 00:30:00, Not smoked for 1 Day 20 Minutes 7 Seconds. Roll-ups not smoked: 25. Money saved: Euro 1.27.

Response:

Welcome to AS3, Joy!  Very happy to have you join us.  This group is the reason I have stayed quit and WILL CONTINUE to stay quit for the rest of my life.  You have no idea what a difference they make.  These ppl help wipe the scales from your eyes and brush the cobwebs out of your head.  They won’t LET your Junkie Thinking fool you.  They/We all talk about it too much for it to sneak up on anybody and steal away your freedom again. Just, as rosie says, Read and Post often! BinnieBee One month, five days, 14 hours, 52 minutes and 33 seconds. 1068 cigarettes not smoked, saving $175.78. Life saved: 3 days, 17 hours, 0 minutes.

– Hide quoted text — Show quoted text – Hi everyone, I have heard a lot about this group and would love to join all of you.  So many of your quits tell me that *I* too can quit smoking! Lately, my nasty habit has been invading my life to a point that I want to stop. This past week my 5 year old was a few steps away from having pneumonia.  His coughing was so bad at night that I took him into the doctor.  No fever, just coughing.  When the doc listened to his little lungs, he said that if I had waited a couple of days he would be admitted into the hospital for pneumo. I realize that a virus is going around that starts off as a cold and steadily gets worse until pneumo settles in….(that’s what the doc says)…BUT I still have to blame myself.  I’m sure that he wouldn’t have been so sick if it wasn’t for my second-hand smoke lurking around this house! I have bronchitis…he has bronchitis…and I am still smoking. I am hooked …I am an addict…I feel like a moron! I need help! Joy a soon to be quitter

Response:

)…BUT I still have to blame myself.  I’m sure that he wouldn’t have been so sick if it wasn’t for my second-hand smoke lurking around you are SO CORRECT! — read and post daily! rosie "Knowing that happiness is always within reach if I extend my hand for it strengthens my grasp. I’ll practice taking charge of my own happiness today."

– Hide quoted text — Show quoted text – Hi everyone, I have heard a lot about this group and would love to join all of you.  So many of your quits tell me that *I* too can quit smoking! Lately, my nasty habit has been invading my life to a point that I want to stop. This past week my 5 year old was a few steps away from having pneumonia.  His coughing was so bad at night that I took him into the doctor.  No fever, just coughing.  When the doc listened to his little lungs, he said that if I had waited a couple of days he would be admitted into the hospital for pneumo. I realize that a virus is going around that starts off as a cold and steadily gets worse until pneumo settles in….(that’s what the doc says)…BUT I still have to blame myself.  I’m sure that he wouldn’t have been so sick if it wasn’t for my second-hand smoke lurking around this house! I have bronchitis…he has bronchitis…and I am still smoking. I am hooked …I am an addict…I feel like a moron! I need help! Joy a soon to be quitter

Response:

When you realize you no longer smoke for enjoyment….but due to addiction, you are ready to quit.   Sounds like you’re there Joy.    This group has been instrumental in helping me quit.  Words can’t describe how much they have encouraged and supported me.  Lean on us, we will support you.  Blow off steam at us, we don’t hold a grudge.  Ask us, and if there is any way on earth, we will help. Chris 3 weeks 4 days – Hide quoted text — Show quoted text – Hi everyone, I have heard a lot about this group and would love to join all of you. So many of your quits tell me that *I* too can quit smoking! Lately, my nasty habit has been invading my life to a point that I want to stop. This past week my 5 year old was a few steps away from having pneumonia.  His coughing was so bad at night that I took him into the doctor.  No fever, just coughing.  When the doc listened to his little lungs, he said that if I had waited a couple of days he would be admitted into the hospital for pneumo. I realize that a virus is going around that starts off as a cold and steadily gets worse until pneumo settles in….(that’s what the doc says)…BUT I still have to blame myself.  I’m sure that he wouldn’t have been so sick if it wasn’t for my second-hand smoke lurking around this house! I have bronchitis…he has bronchitis…and I am still smoking. I am hooked …I am an addict…I feel like a moron! I need help! Joy a soon to be quitter

Response:

Thanks for the warm welcome everyone!  I think I finally have this newsgroup/email thing worked out (thanks Bob S)…got my meter all set up and ready to go…3pm today I’m going to become a non-smoker :)  Tomorrow morning I’m going to put on a patch and continue to quit. This is going to be a good thing for my family and myself.  I’m sick of being sick….extremely tired of those endless antibiotic prescriptions being filled at Walgreens for me and the kids. Joy

Response:

I have bronchitis…he has bronchitis…and I am still smoking.   I am hooked …I am an addict…I feel like a moron!

You’re doing a wise thing…you really don’t want to end up with chronic bronchitis so that you gasp and wheeze for air. As to the addict part, yes, you are, but that definitely doesn’t mean you can’t quit. Despite everything, it basically comes down to being determined to stop smoking and stay that way more than you want a cigarette. As the days turn into weeks and months, it gets so much easier to do that. Stick around, and you’re sure to get all the help you need. Cindy DOF Computer-Based Instruction                         Columbus, Ohio 43210 University Technology Services                     614/292-9689

Response:

you did it, I checked your email address. cheers Bob S. 1M+

– Hide quoted text — Show quoted text – Thanks for the fast reply Bob.  I *think* I did it – I’m new at using outlook express and not sure about how to go about things like this. Hopefully this works… Joy Hi Joy, it depends on what you are using as a newsreader. The program you are using should have an area where you can modify your account information.  Simply edit your email address and apply the changes. cheers Bob S. 1M+ Does anyone know how I can put a "no spam" function in my email address when I use a newsgroup? Thanks, Joy Hi everyone, I have heard a lot about this group and would love to join all of you.  So many of your quits tell me that *I* too can quit smoking! Lately, my nasty habit has been invading my life to a point that I want to stop. This past week my 5 year old was a few steps away from having pneumonia.  His coughing was so bad at night that I took him into the doctor.  No fever, just coughing.  When the doc listened to his little lungs, he said that if I had waited a couple of days he would be admitted into the hospital for pneumo. I realize that a virus is going around that starts off as a cold and steadily gets worse until pneumo settles in….(that’s what the doc says)…BUT I still have to blame myself.  I’m sure that he wouldn’t have been so sick if it wasn’t for my second-hand smoke lurking around this house! I have bronchitis…he has bronchitis…and I am still smoking. I am hooked …I am an addict…I feel like a moron! I need help! Joy a soon to be quitter

Response:

Thanks for the fast reply Bob.  I *think* I did it – I’m new at using outlook express and not sure about how to go about things like this. Hopefully this works… Joy

– Hide quoted text — Show quoted text – Hi Joy, it depends on what you are using as a newsreader. The program you are using should have an area where you can modify your account information.  Simply edit your email address and apply the changes. cheers Bob S. 1M+ Does anyone know how I can put a "no spam" function in my email address when I use a newsgroup? Thanks, Joy Hi everyone, I have heard a lot about this group and would love to join all of you.  So many of your quits tell me that *I* too can quit smoking! Lately, my nasty habit has been invading my life to a point that I want to stop. This past week my 5 year old was a few steps away from having pneumonia.  His coughing was so bad at night that I took him into the doctor.  No fever, just coughing.  When the doc listened to his little lungs, he said that if I had waited a couple of days he would be admitted into the hospital for pneumo. I realize that a virus is going around that starts off as a cold and steadily gets worse until pneumo settles in….(that’s what the doc says)…BUT I still have to blame myself.  I’m sure that he wouldn’t have been so sick if it wasn’t for my second-hand smoke lurking around this house! I have bronchitis…he has bronchitis…and I am still smoking. I am hooked …I am an addict…I feel like a moron! I need help! Joy a soon to be quitter

Response:

Hi Joy, it depends on what you are using as a newsreader. The program you are using should have an area where you can modify your account information.  Simply edit your email address and apply the changes. cheers Bob S. 1M+

– Hide quoted text — Show quoted text – Does anyone know how I can put a "no spam" function in my email address when I use a newsgroup? Thanks, Joy Hi everyone, I have heard a lot about this group and would love to join all of you.  So many of your quits tell me that *I* too can quit smoking! Lately, my nasty habit has been invading my life to a point that I want to stop. This past week my 5 year old was a few steps away from having pneumonia.  His coughing was so bad at night that I took him into the doctor.  No fever, just coughing.  When the doc listened to his little lungs, he said that if I had waited a couple of days he would be admitted into the hospital for pneumo. I realize that a virus is going around that starts off as a cold and steadily gets worse until pneumo settles in….(that’s what the doc says)…BUT I still have to blame myself.  I’m sure that he wouldn’t have been so sick if it wasn’t for my second-hand smoke lurking around this house! I have bronchitis…he has bronchitis…and I am still smoking. I am hooked …I am an addict…I feel like a moron! I need help! Joy a soon to be quitter

Response:

Hi everyone, I have heard a lot about this group and would love to join all of you.  So many of your quits tell me that *I* too can quit smoking!

Yes, you can!  This group has helped many many people rid themselves of this addiction. Lately, my nasty habit has been invading my life to a point that I want to stop.

Make a list of reasons to quit.  Read your list often. This past week my 5 year old was a few steps away from having pneumonia.  His coughing was so bad at night that I took him into the doctor.  No fever, just coughing.  When the doc listened to his little lungs, he said that if I had waited a couple of days he would be admitted into the hospital for pneumo.

A child that you love and want to protect is a wonderful reason to quit. I realize that a virus is going around that starts off as a cold and steadily gets worse until pneumo settles in….(that’s what the doc says)…BUT I still have to blame myself.  I’m sure that he wouldn’t have been so sick if it wasn’t for my second-hand smoke lurking around this house! I have bronchitis…he has bronchitis…and I am still smoking. I am hooked …I am an addict…I feel like a moron!

Yep.  You are an addict.  That realization is the first step to becoming smoke free. I need help!

You’ve come to the right place. Joy a soon to be quitter

Congratulations on your decision. — Stan McCann, VOF       stan at nmsua dot nmsu dot edu Computer Services Manager, New Mexico State University at Alamogordo address is forwarded to /dev/null (deleted for you non-Unix people).

Response:

Hi everyone, I have heard a lot about this group and would love to join all of you.  So many of your quits tell me that *I* too can quit smoking! Lately, my nasty habit has been invading my life to a point that I want to stop. This past week my 5 year old was a few steps away from having pneumonia.  His coughing was so bad at night that I took him into the doctor.  No fever, just coughing.  When the doc listened to his little lungs, he said that if I had waited a couple of days he would be admitted into the hospital for pneumo. I realize that a virus is going around that starts off as a cold and steadily gets worse until pneumo settles in….(that’s what the doc says)…BUT I still have to blame myself.  I’m sure that he wouldn’t have been so sick if it wasn’t for my second-hand smoke lurking around this house! I have bronchitis…he has bronchitis…and I am still smoking.   I am hooked …I am an addict…I feel like a moron! I need help! Joy a soon to be quitter

Response:

Hi Joy, I’ve only been here a short time, and so far have found the help, stories and amazing people here have made a huge difference in my attitude to this quit, compared to past failures. I have a young child as well, and her health was a large factor in my decision to quit. Now you’re here, you can do it. You’ve truly come to the right place. I have chosen not to smoke for 5 Days 16 Hours 55 Minutes 26 Seconds. Cigarettes not smoked: 114. Money saved:

SWITCH? from Flovent to Pulmicort?

Question:

Has anyone been sick of the bad side effects from Flovent MDI inhaler (mainly lowered imune system TONS of Bronchitis where there was none before Flovent), and SWITCHED to Pulmicort? Did the swithc work, as in, the asthma was as under control with Pulmicort, but less or no immune problems associated with Flovent. TIA! -James

Response:

I doubt if anybody else has had quite the effects you describe with Flovent. I found I had a somewhat tight chest for half an hour after using Flovent, and switched to Pulmicort, which I like a lot. No problems with Pulmicort. Since ALL inhaled steroids are designed to lower the effects of the immune system, I am sure you will have similar problems whatever kind you use, assuming the problems are related to the steroids.. Boyd — "The cure for boredom is curiosity. There is no cure for curiosity." (Ellen Parr- author)

– Hide quoted text — Show quoted text – Has anyone been sick of the bad side effects from Flovent MDI inhaler (mainly lowered imune system TONS of Bronchitis where there was none before Flovent), and SWITCHED to Pulmicort? Did the swithc work, as in, the asthma was as under control with Pulmicort, but less or no immune problems associated with Flovent. TIA! -James

Response:

I had lots of bronchitis while on Flovent. My doctor recently switched me to Pulmicort because I had a hoarse voice all the time. I haven’t been on Pulmicort long enough to know whether there will be less bronchitis. It is usually worse in the winter anyway. I am hoping for the best.

– Hide quoted text — Show quoted text – Has anyone been sick of the bad side effects from Flovent MDI inhaler (mainly lowered imune system TONS of Bronchitis where there was none before Flovent), and SWITCHED to Pulmicort? Did the swithc work, as in, the asthma was as under control with Pulmicort, but less or no immune problems associated with Flovent. TIA! -James

Response:

I took Flovent several years ago.  I don’t remember any adverse side effects, but I do remember that it did not do the job.  I have also tried pulmicort and got very little results.  I have now been taking Advair diskus for about a month.  I began with 2 puffs twice a day and am now taking 1 puff twice a day.  I have been very satisfied with the results that I have gotten.   I have in the last couple of months found a specialist who is treating my asthma and allergies very aggressively and I am finding greater relief than ever  When I enter the office with immediate breathing difficulties, they are always sure to administer a steroid shot that provides wonderful relief.  They are careful not to depend on steroids, but aren’t stingy with them if I need them.  I am very pleased with the quality of care that I have received at this particular allergy and asthma center which is located in Fort Wayne, IN for those of you who are in Indiana.  This is not the first specialist that I have been referred to and I have been disappointed many times.  I am now in Heaven as I am able to participate in activities that I have been excluded from for a few years. I hope that you find the specialist and the treatment regimen that is right for you.  It is also very helpful that you are seeking those who can identify with your condition. Good luck and God bless!! – Hide quoted text — Show quoted text – Has anyone been sick of the bad side effects from Flovent MDI inhaler (mainly lowered imune system TONS of Bronchitis where there was none before Flovent), and SWITCHED to Pulmicort? Did the swithc work, as in, the asthma was as under control with Pulmicort, but less or no immune problems associated with Flovent. TIA! -James

Response:

Question?

Question:

What are the current medical alternatives for people with steroid resistant asthma, or for people with asthma who can not tolerate steroids? Thanks. Jeff.

Response:

What are the current medical alternatives for people with steroid resistant asthma, or for people with asthma who can not tolerate steroids? Thanks. Jeff.

First a thorough evaluation needs to be made to make sure the patient really has asthma. This can best be done at National Jewish Center, top lung/asthma center in the US, which experience in these cases. Article: "Pseudo-steroid resistant asthma Paul S Thomas,a Duncan M Geddes,b Peter J Barnesa a Department of Thoracic Medicine, National Heart and Lung Institute, Dovehouse Street, London SW3, UK, b Department of Respiratory Medicine, Royal Brompton National Heart and Lung Hospital, Sydney Street, London SW3, UK BACKGROUND Steroid resistant asthma (SRA) represents a small  subgroup of those patients who have asthma and who are  difficult to manage. CONCLUSION Such patients are important to identify as they require supportive treatment which should not consist of high doses of glucocorticosteroids and 2 adrenergic agonists. Diagnoses other than asthma, such as gastro-oesophageal reflux, hyperventilation, vocal cord dysfunction and sleep apnoea, should be sought as these may be a cause of glucocorticosteroid treatment failure and pseudo-SRA, and may respond to alternative treatment." Thorax 1999;54:352-356 ( April ) Links: http://www.ama-assn.org/special/asthma/library/scan/archive/resist.htm * Steroid-Resistant Asthma: Evaluation and Management Abstract Nov 96 http://www.njc.org/MSU/13n2MSU_StRe_Asthma.html Steroid-Resistant Asthma ‘95, NJC Excerpt: "As of now there are no clear alternatives to oral steroids  for treating patients with SR asthma. Our group has had some success using combined treatment with troleandomycin  and methylprednisolone in several SR patients. This regimen led to normalization of T cell sensitivity.  Another group has reported success using cyclosporine to improve the symptoms of patients with SR asthma. Other  potentially useful agents include methotrexate, gold, intravenous gamma globulin, hydroxychloroquine, dapsone,  and interferon-y."

Steroid dependent

Question:

Her allergist is a friend.  She" has" an immune difficiency  but it is supposed to have a beneficial effect on asthama.

Response:

Hi, I am 23 year old having developed asthma 1 year back, ironically just when I got my medicene degree. I have tried lots of things including moving, but moving seems to have worsened my problem. Or it may just have been asthma increasing over one year, I don’t know. I have been avoiding the things I have been found sensitive to on sensitivity testing. Since the past month I have been having severe attacks requiring oral prednisolone. I am in a chronic persistant state of asthma right now. I wanted to get an AC installed in my room. I read your extremely helpful post. I’ll change my vacuum cleaner to the HEPA filter type you mentioned. I needed to know if there’s any particular type of air conditioning I should look for for my room (pretty small room). ou mentioned ’sub-micron furnace/AC filters ‘ – I’ll ask for those – any other specifications? Thanks, Neole

Response:

My wife has been on steroids for jsut about 10 yrs with very little time off of them.  She is currently on 17.5 mg of Prednisone every other days and we are working to bring this down.  She gets IGG infusions once a month and is on heavy doses of vitamins and Evening primrose Oil and has been doing much better later and will taper down to 15 mg every other day this week.  Working our way down.

Response:

Does anyone have experience with being on steroids such as Prednisone long term.  I developed Asthma at age 30 about 5 years ago.  The nasal and other inhalers did not work.  I have been on 10 mgs of Predisone for 90% of the time over the last 5 years.  My Asthma has bascially been controlled with steroid pills.  But they have not worked very well this year.

There are new more effective steroid asthma inhalers now available; in particular Pulmicort Turbuhaler and Flovent. They have enable many steroid dependent asthmatics to get off oral steroids. Tapering off prednisone for a steroid dependent patient can be a laborious process; at around 15 mg/day, alternate day dose should be used, then may be tapered down 1 mg/day gradually [while on High Dose Pulmicort or Flovent steroid inhaler]; more details in the book Reversing Asthma, Firshein. Many cases of intractible asthma are due either to Sinusitis (post nasal drip into lungs) or GE reflux (aspirated into lungs). Other cases may involve a steroid resistant patient or immune system problems. Steps should be taken to evaluate your allergies and minimize exposure to allergens if allergic, and irritants. And lung function tests to measure the degree of reversibility. You may benefit from referral to an allergist and pulmonologist. The top lung/asthma center in the US is National Jewish Center in Denver (www.njc.org). It might be worth a trip there for an evaluation. Also check if there is an asthma support group in your area; often the American Lung Assoc sponsors these or knows about them. Ellis  I live near Detroit Michigan and we have – Hide quoted text — Show quoted text – had severe weather and humidity changes this year.  I just got out of the hospital with an Asthma attack and I am now on 40 mg and tapering back down to 10 mg daily.  I feel the steroids are zapping all of the life out of me.  But I have been on them so long, I dont know how to get off of them and the doctors dont seem to have a solution.  I am considering moving to another state, but I dont have any idea where to move.  How do you investigate these things such as best places for Astmatics, wheather conditions year arounds, humidity changes, doctors, etc.  Asthma has detroyed my life. —

Response:

Just out of curiousity, (if you don’t mind me asking) what does your wife get the IgG for?  I also get IVIG once a month for hypogammaglobulinemia. Thanks! *hugs* Ash – Hide quoted text — Show quoted text – My wife has been on steroids for jsut about 10 yrs with very little time off of them.  She is currently on 17.5 mg of Prednisone every other days and we are working to bring this down.  She gets IGG infusions once a month and is on heavy doses of vitamins and Evening primrose Oil and has been doing much better later and will taper down to 15 mg every other day this week.  Working our way down.

Response:

- Hide quoted text — Show quoted text – Does anyone have experience with being on steroids such as Prednisone long term.  I developed Asthma at age 30 about 5 years ago.  The nasal and other inhalers did not work.  I have been on 10 mgs of Predisone for 90% of the time over the last 5 years.  My Asthma has bascially been controlled with steroid pills.  But they have not worked very well this year.  I live near Detroit Michigan and we have had severe weather and humidity changes this year.  I just got out of the hospital with an Asthma attack and I am now on 40 mg and tapering back down to 10 mg daily.  I feel the steroids are zapping all of the life out of me.  But I have been on them so long, I dont know how to get off of them and the doctors dont seem to have a solution.  I am considering moving to another state, but I dont have any idea where to move.  How do you investigate these things such as best places for Astmatics, wheather conditions year arounds, humidity changes, doctors, etc.  Asthma has detroyed my life. — Posted via Talkway – http://www.talkway.com Exchange ideas on practically anything ™.

Kimberly, My wife has late onset asthma that she developed at 20.  Initially, her asthma was pretty bad and out of control, resulting in about 3 to 4 ER trips per year and one major hospitilzation for over a week due to one severe asthma attack.  She was born and raised in the Detroit, MI area, and her father, brother and two of her sisters also have asthma and allergy problems to varying degrees. My wife’s asthma is now under control and doing very well.   We moved to Greer, SC, just over a year ago and the area we are in now has less daily variations in temperature and humidity than south eastern MI.  Also, air pollution is practically non-existent here, whereas in smelly old Detroit it was unbearable. Prednisone was a standard part of my wife’s daily regimen for about 6 years, usually in the 10 to 20 mg but occassionaly up at the  40 to 60 mg level during a burst as necessary during the winter to deal with respiratory infections. The long term effects that my wife experienced were uncontrollable appetite, creeping weight gain, changes in her vision that required corrective lenses and calcium depletion of her skeleton.  Since she got off of the prednison she only needs her eye glasses and not for continuous everyday use in activities such as driving or watching TV or a movie.  Her calcium depletion has been controlled and calcium supplements are helping now.  Her appetite is better controlled (no binges of prednisone induced chocolate cake at 1:00am) and she is able to exercise now. By all means, get off of the prednisone if you can.  It is helpful when you are having a specific bout of difficulty with your asthma and is one of the quickest ways to boost your system and help reduce the inflamation in your lungs.  Unfortunately, long term use has enough deleterious side effects to make it quite frightening to stay on it for too long. As for moving away from Detroit, yes, by all means do so.  When moving, seek to avoid the factors that have the most negative impact on your breathing.  Avoid places that have large variations in temperature and humidity from morning to night and day to day.  A change in temperature of 35 degrees F or a 20 % change in relative humidity in the course of a day can wreak havoc with your breathing.  Likewise, avoid areas that have a lot of automobiles and a lot of industry that pollutes the air.  Just driving over the Rouge bridge and passing the Marathon refinery is enough to make a person with healthy lungs have a wheezing fit, let alone an asthmatic…  Detroit has very dirty air. Everytime I go back to work on site with my clients I get red watery eyes and end up living on tylenol sinus, and I am sure it is all due to the air pollution.  Also, if you have known allergies to certain types of grasses, trees, flowers or some other flora, then try not to move into an area in which those species are indigenous.  However, be aware that you might become sensitized to other plants in the area to which you move. This has been known to happen to allergy sufferers in as little as 2 years and some time in as long as 5 to 10 years.  It really depends on how bad your allergies are to begin with and if there are any other influencing factors around you such as pets in the house or a wet basement with mold/mildew problems. Make sure that your vacuum cleaner is one of the models that has a HEPA grade filter on it.  I never thought that it made much difference for myself, but my wife could not be present in the house during vacuuming or for the next few hours aftewards when we used a standard canister vacuum.  Now that we have a HEPA grade filtered vacuum she can even vacuum for herself and not have any breathing difficulties.  An alternative to a HEPA filtered vaccuum is to install a central vacuum system that has its filter and air exhaust outlet outside of the home. Also, there are sub-micron furnace/AC filters that do a fine job of eliminating those really small particles that get into your lungs. If you have central heating/AC, consider having your air ducts professionally cleaned.  We had this done recently and the impact on my wife’s breathing was very favorable.  She used to get coughing and wheezing fits everytime the furnace kicked on during the winter.  After having the ducts cleaned she cannot even smell when it comes on and she does not have any more bouts of coughing or wheezing.  As a bonus, the sub-micron furnace filters last about 2 to 3 months now instead of just 2 to 3 weeks.  Any home with central heating/AC will accumulate enough dust and dirt in the duct work to warrant a professional cleaning about once every 5 years.  Be careful who you select to clean your ducts.  Not all "professionals" clean the ducts to the same standards.  Make sure that the company that provides this service uses a good high power vacuum (approx. 18,000 PSI of vacuum) from a truck-mounted vacuum pump to suction out the air ducts while the ducts are being power brushed.  The folks who cleaned our ducts did this.  They also cleaned out the main trunk line ducts, sprayed an odorless broad spectrum bactericide/fungicide into the ducts to kill any pathogens in there and then they thoroughly cleaned the heat exchange, fan and air chambers in the furnace and the AC unit.  All of this for about $15.00/air vent. — Chuck Chopp                                   ICQ # 22321532 RTFM Consulting Services Inc.     864 801 2795 voice & voicemail 103 Autumn Hill Road              864 801 2774 fax Greer, SC  29651                  800 400 4935 pager

Response:

The oral steriods will cause other chronic illness over time.  Try to analyze why the asthma is severe.  Something non-obvious – cigarrettes, neighborhood petro-chemical, heavy auto-exhaust, etc.  Doctors typically do not analyze environmental factors.  Often, they just keep prescribing more and more drugs until something works. Asthmatic

Response:

Hi, I live in a suburb of Detroit also.  I have been diagnosed with being both steroid dependent and resistant.  There are a few extreme medications that may be able to help you ween of the Prednisone.  Most however, are used for other medical conditions and have very little testing in the area of asthma.  The jury is still out on the true efficacy on the drugs.  Two that come to mind are cyclosporine and methyltrexate.  I take cyclosporine as needed instead of the prednisone. In very low short doses the side effects of the cyclosprorine are minimal.  Cyclosporine according to research seems to be more effective and have less side effects, but, like I said a lot of the research is preliminary.  I have a bunch of links on information on these drugs and others if interested.   I was on prednisone for ever and now only get solumedrol in very rare occasions when I end up at a different ER than where my doctor is.  I have been hospitalized 5 times since December 1998.  I take or haave taken every tradional asthma drug on the market.   I would be happy to talk more if your interested just e-mail me.  Sorry this is so long.  What hospital do you go to if you don’t mind me asking?  I’m just curious, since we are from the same area. Good luck and take care, Lisa – Hide quoted text — Show quoted text – Does anyone have experience with being on steroids such as Prednisone long term.  I developed Asthma at age 30 about 5 years ago.  The nasal and other inhalers did not work.  I have been on 10 mgs of Predisone for 90% of the time over the last 5 years.  My Asthma has bascially been controlled with steroid pills.  But they have not worked very well this year.  I live near Detroit Michigan and we have had severe weather and humidity changes this year.  I just got out of the hospital with an Asthma attack and I am now on 40 mg and tapering back down to 10 mg daily.  I feel the steroids are zapping all of the life out of me.  But I have been on them so long, I dont know how to get off of them and the doctors dont seem to have a solution.  I am considering moving to another state, but I dont have any idea where to move.  How do you investigate these things such as best places for Astmatics, wheather conditions year arounds, humidity changes, doctors, etc.  Asthma has detroyed my life. — Posted via Talkway – http://www.talkway.com Exchange ideas on practically anything ™.

– Lisa M. DeSavage Hinsbar Laboratories, Inc. www.hinsbarlabs.com

Response:

– Hide quoted text — Show quoted text – Does anyone have experience with being on steroids such as Prednisone long term.  I developed Asthma at age 30 about 5 years ago.  The nasal and other inhalers did not work.  I have been on 10 mgs of Predisone for 90% of the time over the last 5 years.  My Asthma has bascially been controlled with steroid pills.  But they have not worked very well this year.  I live near Detroit Michigan and we have had severe weather and humidity changes this year.  I just got out of the hospital with an Asthma attack and I am now on 40 mg and tapering back down to 10 mg daily.  I feel the steroids are zapping all of the life out of me.  But I have been on them so long, I dont know how to get off of them and the doctors dont seem to have a solution.  I am considering moving to another state, but I dont have any idea where to move.  How do you investigate these things such as best places for Astmatics, wheather conditions year arounds, humidity changes, doctors, etc.  Asthma has detroyed my life. — Posted via Talkway – http://www.talkway.com Exchange ideas on practically anything ™. only have experience with about 3 1/2 months on varying degrees of

  Prednisone & then 3 or 4 subsequent 9 day treatments to get on top of my asthma. The pred’s were originally to treat chronic hives. Get off them at all costs. My regimen at present consists of Accolate, Pulmicort & Serevent. I am also taking 1000 mg of Vitamin C                  Ordinary    http://www.newsfeeds.com       The Largest Usenet Servers in the World!

Response:

Does anyone have experience with being on steroids such as Prednisone long term.  I developed Asthma at age 30 about 5 years ago.  The nasal and other inhalers did not work.  I have been on 10 mgs of Predisone for 90% of the time over the last 5 years.  My Asthma has bascially been controlled with steroid pills.  But they have not worked very well this year.  I live near Detroit Michigan and we have had severe weather and humidity changes this year.  I just got out of the hospital with an Asthma attack and I am now on 40 mg and tapering back down to 10 mg daily.  I feel the steroids are zapping all of the life out of me.  But I have been on them so long, I dont know how to get off of them and the doctors dont seem to have a solution.  I am considering moving to another state, but I dont have any idea where to move.  How do you investigate these things such as best places for Astmatics, wheather conditions year arounds, humidity changes, doctors, etc.  Asthma has detroyed my life. — Posted via Talkway – http://www.talkway.com Exchange ideas on practically anything ™.

Response:

Is this normal or should I find YET another doctor?

Question:

My guess is that there is something he is not telling you. The view you describe usually means they are trying to look at the apex (top ) of the lungs without the collar bones getting in the way. The CT is another way to get a better look. BTW I usually check the x-ray to investigate new symptoms like wheezing or chest tightness. Just today I did this and found that the guy had extra fluid around the lungs (effusions -not from asthma). I don’t check an x-ray on new patients who are currently well controlled unless there is some other reason. — Good Luck, CBI, M.D. – Hide quoted text — Show quoted text – I usually get a chest x-ray on anyone with new symptoms of shortness of breath. It is simple, relatively cheap, and can be helpful in many ways; both supporting the diagnosis and ruling other things out. How about this?  I went to a new doctor at a regional asthma center. I thought nothing of it when the doctor wanted a chest x ray (as far as I can tell, if you meet a doctor crossing the street he is going to want a chest x ray).  Then the doctor wanted another chest x ray.  A few weeks later had yet another – this time looking ‘down’ over my shoulder. Now, on Wednesday I am going in for a CAT scan.  I know that doctors love chest xrays, but I really suspect that there is something I am not being told.  And I fully intend to get insistent if they do not tell me what is going on. "Usenet is like a herd of performing elephants with diarrhea — massive, diffucult to redirect, awe-inspiring, entertaining, and a source of mind boggling amounts of excrement when you least expect it." Gene Spafford 1992

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Coral

Response:

– Hide quoted text — Show quoted text – I usually get a chest x-ray on anyone with new symptoms of shortness of breath. It is simple, relatively cheap, and can be helpful in many ways; both supporting the diagnosis and ruling other things out. How about this?  I went to a new doctor at a regional asthma center. I thought nothing of it when the doctor wanted a chest x ray (as far as I can tell, if you meet a doctor crossing the street he is going to want a chest x ray).  Then the doctor wanted another chest x ray.  A few weeks later had yet another – this time looking ‘down’ over my shoulder. Now, on Wednesday I am going in for a CAT scan.  I know that doctors love chest xrays, but I really suspect that there is something I am not being told.  And I fully intend to get insistent if they do not tell me what is going on.

I wish you the best. Please do become insistant–I personally wouldn’t wait utnil the next appt either, use the phone & call first thing tuesday morning. Lesa

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The doctor I currently have now is a internist with an emphasis on treating asthma since she herself has it. The first time I went to her with my breathing problem, she asked me my symptoms and had me blow into a peak flow, she said I probably have asthma because my reading was 350. Now my question is, is this the way asthma is diagnosed or should everyone who suspects they have asthma get a chest X ray and pulmonary test? is a pulmonary test the same as a ECG? because my ECG is normal. She was about to order a chest x ray for me until she saw my peak reading, then she just prescribed some medicine. needless to say the medicine DID get rid of my breathing problems but Im still wondering if she diagnosed me right. did all of you guys get these tests? Now Im begining to wonder about this doctor.

Asthma is supposed to be diagnosed using history and lung function tests; the simple test is blow into a meter, use a bronchodilator like albuterol inhaler, then repeat the test. A 12% improvement tends to support an asthma diagnosis (since asthma is a reversible disease). More elaborate lung function tests can be run in a pulmonary lung function lab. My experience is most doctors don’t bother with lung tests but go on history and whether the asthma meds they give you work. A good asthma doctor, however, should have a spirometer in their office. I was once tested in the pulmonary lung function facility of a major west coast medical center; the RRT bungled the test; I didn’t use my asthma meds for 12 hours preceding, I was tested, then administered the bronchodilator, started coughing up copious phlegm, the RRT wouldn’t let me recover but forced me back on the lung function machine; I couldn’t complete the test. The asthma doctor just looke at the results and said "Oh my" So my choice would be to stay with the doctor who has asthma; they are often most experienced and may not need to run rigorous tests. Ellis

Response:

Hi Colin,               I wish you well. Regards, — " I always do what the voices in my head tell me."

– Hide quoted text — Show quoted text – I usually get a chest x-ray on anyone with new symptoms of shortness of breath. It is simple, relatively cheap, and can be helpful in many ways; both supporting the diagnosis and ruling other things out. How about this?  I went to a new doctor at a regional asthma center. I thought nothing of it when the doctor wanted a chest x ray (as far as I can tell, if you meet a doctor crossing the street he is going to want a chest x ray).  Then the doctor wanted another chest x ray.  A few weeks later had yet another – this time looking ‘down’ over my shoulder. Now, on Wednesday I am going in for a CAT scan.  I know that doctors love chest xrays, but I really suspect that there is something I am not being told.  And I fully intend to get insistent if they do not tell me what is going on. "Usenet is like a herd of performing elephants with diarrhea — massive, diffucult to redirect, awe-inspiring, entertaining, and a source of mind boggling amounts of excrement when you least expect it." Gene Spafford 1992

Response:

I usually get a chest x-ray on anyone with new symptoms of shortness of breath. It is simple, relatively cheap, and can be helpful in many ways; both supporting the diagnosis and ruling other things out.

How about this?  I went to a new doctor at a regional asthma center. I thought nothing of it when the doctor wanted a chest x ray (as far as I can tell, if you meet a doctor crossing the street he is going to want a chest x ray).  Then the doctor wanted another chest x ray.  A few weeks later had yet another – this time looking ‘down’ over my shoulder. Now, on Wednesday I am going in for a CAT scan.  I know that doctors love chest xrays, but I really suspect that there is something I am not being told.  And I fully intend to get insistent if they do not tell me what is going on. "Usenet is like a herd of performing elephants with diarrhea — massive, diffucult to redirect, awe-inspiring, entertaining, and a source of mind boggling amounts of excrement when you least expect it." Gene Spafford 1992

Response:

I usually get a chest x-ray on anyone with new symptoms of shortness of breath. It is simple, relatively cheap, and can be helpful in many ways; both supporting the diagnosis and ruling other things out. The ECG measures the electrical activity of the heart. It can suggest cardiac disease and certain forms of lung disease but is not terribly helpful in diagnosing or treating asthma (although simple and easy enough to still be worth doing). I frequently will try some meds first and see if they help, with close follow-up. Especially if the story is typical (walks like a duck……). Your positive response to the meds is helpful but not diagnostic. I think pulmonary function testing is not as useful during acute flares of disease. It is harder to do and tells you little about how the lungs are doing on a day to day basis. At some point in the not too distant future you should definitely have pulmonary function tests done as this is the only way to really tell from where the decreased PF is coming. I too, am frequently frustrated by the wacky things that my patients bring me from ER docs. While many are well trained and fine physicians, the ER also seems to be a sanctuary for docs who can’t cut it in an environment where they will have to see the patient again and be held accountable. — Good Luck, CBI, M.D.     The doctor I currently have now is a internist with an emphasis on treating asthma since she herself has it. The first time I went to her with my breathing problem, she asked me my symptoms and had me blow into a peak flow, she said I probably have asthma because my reading was 350. Now my question is, is this the way asthma is diagnosed or should everyone who suspects they have asthma get a chest X ray and pulmonary test? is a pulmonary test the same as a ECG? because my ECG is normal. She was about to order a chest x ray for me until she saw my peak reading, then she just prescribed some medicine. needless to say the medicine DID get rid of my breathing problems but Im still wondering if she diagnosed me right. did all of you guys get these tests? Now Im begining to wonder about this doctor.     (This is just one of a long list of bad experiences Ive had with doctors the first quack I met in the ER wanted to perform a bronchoscopy on the spot, and he didnt tell me he was going to do it until the topical anestesia was administered and I couldnt feel my tongue to speak. Another doctor wanted to "take a look down there, meaning my throat to see if it was an allergic reaction or my voice box"!!! With a what looked like a lubricated rubber tube and a light probe.     Another doctor (again in the ER)  said it was in my head and gave me some siezure drugs and antidepressants.) Where do some of these docs their degrees, hamburger University?     Sorry, Im rambling and going off on tangents.     Coral     if I dont find the humor in this Id be a very bitter person.

Response:

seasonal flare up?

Question:

I am a 32 year old male and have had asthma for the past twelve years.  I have managed fine with albuterol and asthmacort for most of that time.  In the past three months I have become allergic to aspirin, and have had such severe attacks aside from aspirin that I have been to the emergency room twice.

My two cents that won’t help you at all, keith, but here it is anyway: there’s no such thing as "aspirin *allergy*".  The asthmatic attack to aspirin and other NSAIDS (like ibuprofen (Motrin) and other analgesic, antipyretic, anti-inflammatory drugs has nothing to do with an immune response, eg allergy. There is Aspirin Sensitive Asthma. Current understanding of the situation would suggest that in aspirin sensitive asthmatics, the inflammatory response is poised on the brink of an attack.  Only the natural anti-inflammatory agent prostaglandin E is keeping the response in check. A single aspirin, ibuprofen, naprosyn, indocin, whatever inhibits the prodution of that ‘good’ prostaglandin and the cascade to inflammation and constriction is left unchecked. Many ASA’s respond well to the anti-leukotriene agents, Singulair and Accolate. Many don’t.   A – Hide quoted text — Show quoted text – chest X-ray and CAT Scan came up negative for any other problems, but my asthma is not responding right now to anything except prednisone.  My concerns are that this condition will not get better and that I will be at risk for long-term prednisone effects.  What is considered "long-term" for prednisone, and what are the warning signs I should watch for?  Also, has anyone had flare ups this severe and later recovered to "normal" living?  I have not exercised in three months and miss it very much.  I also get exhausted and wheezy easily even while on the prednisone.  Finally, I live in Pennsylvania and would be interested in hearing if others in the northeast have experienced symptoms that are any worse this season than usual.  Any info or suggestions would be

Response:

I am a 32 year old male and have had asthma for the past twelve years.  I have managed fine with albuterol and asthmacort for most of that time.  In the past three months I have become allergic to aspirin, and have had such severe attacks aside from aspirin that I have been to the emergency room twice.

 Have you been taking ibuprofen (Advil, etc.)? Though different from aspirin, it can cross-react in people allergic to it and consequently is contraindicated for asthmatics. This warning is printed on the box and/or vial. chest X-ray and CAT Scan came up negative for any other problems, but my asthma is not responding right now to anything except prednisone.  My concerns are that this condition will not get better and that I will be at risk for long-term prednisone effects.  What is considered "long-term" for prednisone, and what are the warning signs I should watch for?  

Long-term use of corticosteroids means many months or years. It all depends on the individual and dosage. Some people (women in particular) have bad side effects almost immediately: moon face, acne, voracious appetite with weight gain, high blood pressure, thinning of and tears in the skin,  mood swings and even psychotic-type reactions. Long-term effects are osteoporosis (thinning of the bones due to loss of calcium), cataracts, glaucoma. In your case I would have my eyes examined by an ophtalmologist. I have been more on than off prednisone for the last two years, but everything seems fine. I’ve cut out the sodium from my diet and loaded up on potassium and calcium rich foods, with lots of water. Also, has anyone had flare ups this severe and later recovered to "normal" living?  I have not exercised in three months and miss it very much.  I also get exhausted and wheezy easily even while on the prednisone.  

Is it possible that your prednisone dose is too low? Also, if you’re  really stressed, prednisone becomes less effective.  In addition to meditation, etc,  I take an occasional 2 mg of valium and/or valerian capsules, which allow the meds to work better. If you don’t have stress in your life and your heart and lungs are otherwise healthy, see if you’re costantly exposed to some allergen or irritant you’re not aware of. Check with your allergist or pulmonologist. I don’t know if my story has any relevance, but here it is. I have had asthma for 27 years, since age 32. It’s non-allergic and severe. I went from near respiratory arrest the first year to seventeen years of complete remission: no symptoms and no meds. It returned 9 years ago, requiring a few short bursts of prednisone, Azmacort, theophylline and later Serevent. Two years ago I came down with eosinophilic pneumonia and fluid in the pleura, caused by high doses of Azmacort, a rare side effect of that and other inhaled steroids. This condition required relatively high doses of prednisone (40-25 mg] for a couple of months, then taper off. The pneumonia did clear, but my asthma was totally destabilized and still is. All it takes to set me back is a cold, bout of sneezing or exposure to irritants. Prednisone is taking longer and longer to work, and I too have wondered about prednisone resistance, but I think it’s more a matter of stress. Last time I talked to a National Jewish nurse on the LungLine, I was told that the whole subject is far from clear and that their Center had to retract a previous statement to the effect that they had found a test for prednisone resistance. A surfer until age 50, I had to give it up because my maximum peak flow has gone down from 580 to 480. I can still do a little weight-lifting, moderate jogging and power-walking. But, I’m 59. You’re 32 and the prognosis should be excellent. National Jewish is always a good last resort, if you have the time and good health insurance. FC

Response:

- Hide quoted text — Show quoted text – I am a 32 year old male and have had asthma for the past twelve years.  I have managed fine with albuterol and asthmacort for most of that time.  In the past three months I have become allergic to aspirin, and have had such severe attacks aside from aspirin that I have been to the emergency room twice.  A chest X-ray and CAT Scan came up negative for any other problems, but my asthma is not responding right now to anything except prednisone.  My concerns are that this condition will not get better and that I will be at risk for long-term prednisone effects.  What is considered "long-term" for prednisone, and what are the warning signs I should watch for?  Also, has anyone had flare ups this severe and later recovered to "normal" living?  I have not exercised in three months and miss it very much.  I also get exhausted and wheezy easily even while on the prednisone.  Finally, I live in Pennsylvania and would be interested in hearing if others in the northeast have experienced symptoms that are any worse this season than usual.  Any info or suggestions would be

Azmacort is a fairly weak steroid inhaler. Have you tried the new high strength ones; Flovent 220 and Pulmicort Turbuhaler (200)? Have you been tested for allergies; and if so taken steps to minimize exposure. I think those with aspirin sensitivity tend to have nonallergic or intrinsic asthma, and it tends to be severe. Have you had lung function tests that confirm the asthma; and have related conditions like Sinusitis (post nasal drip exacerbates asthma) or GERD (gastroesophageal reflux also makes asthma worse) diagnosed? Here are some links that might be related: http://www.ama-assn.org/special/asthma/newsline/conferen/acaai97/mark…       Novel Marker Of Steroid Resistant Asthma Identified http://www.njc.org/MSU/13n2MSU_StRe_Asthma.html Steroid-Resistant Asthma

Spacers – not always a good thing!

Question:

The cheapest most accessible spacer around is an empty toilet-tissue roll!  It takes some effort to use, but it works in a pinch! Jan

Response:

I used the AeroChamber but have switched to the Ellipse.  I find it easy to use, very easy to clean, and it delivers a good dose of the meds. Jan

Response:

There is another very good reason to using spacers, especially with inhaled steroids.  The use of a spacer helps to keep systemic absorbtion around the mouth down.  The steroids go to the airways easier with the use of aspacer. Without it the steroid is spread all over your throat, cheeks and tongue.  Then as it  sits there it can be absorbed by the body.  Rinsing after use without a spacer helps reduce this some, but they have found that spacers reduce this effect dramatically.

Response:

- Hide quoted text — Show quoted text – Re: "Cleaning and Care 1.Clean the AeroChamber

1977-National Asthma Center, Denver

Question:

I assume you are speaking of the National Jewish Center for Immunology and Respiratory Medicine.  Their address is 1400 Jackson Street, Denver, CO 80206.  Their phone numbers shown in some materials I’ve received are:  1-303-368-4461 or 1-800-222-5864.  While I’ve never been there, they have assisted me with information about my allergies and asthma, via the phone and mail.  Also, I’ve used their web info and if I recall correctly,  they have "ask" sections on their web site, where you can enter specific questions and receive replies.   Hope this helps. Janie

Response:

Read an article in newsweek or time about 2 months ago that discussed NAC in Denver and they are alive and well.  Sounds like they are doing some good stuff too.  I don’t have the article nor do I have a contact.  Keep looking and good luck! – Hide quoted text — Show quoted text -When I was 7 years old, I was sent to the National Asthma Center in Denver, Colorado for 1 year. It was sponsored by NJH at the time (National Jewish Hospital?). Anyway, I guess the NAC doesn’t exist anymore. If anybody knows what happened, or where I can get more information on this, let me know! -Kevin T. Smith

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Preventing Thrush From Inhaled Steroids

Question:

I read that it was not a good idea to swallow the water used to rinse your mouth with after using a corticosteroid inhaler. This puts the medicine into your system in a similar way as an orally injected steroid. Then the side effects are much greater. Just rinse and spit. Vicki — John Chattoe

As posted a while ago, it probably IS a good idea to swallow the water.  Rinsing and spitting out the water will decrease the possibility of oral thrush, but unless you swallow the water, the steroid that get deposited in the espohagus stays there, and there is a risk of esophageal candidiasis.  Only by swallowing will you rinse out the steroid in the espohagus.  And the amount of steroid that you swallow is small, therefore the risk of increasing systemic absorption of steroid to an appreciable extent is probably minimal. So I recommend swish and swallow

Response:

Listed to a tape by Dr. Mark Mallard, director of the Baylor University Asthma Center, in which he states that most of the inhaled steroid drugs, except that in Azmacort, are not very soluable in water.  Rather than just rinsing and gargling with water, he recommended using a commercial mouthwash that has a small amount of alchohol in hit.  The durgs are more soluable in the alcohol and it helps to get them out of the mouth better.  Of course you don’t want to swallow the mouthwash, like you can with water! Bill

Response:

I read that it was not a good idea to swallow the water used to rinse your mouth with after using a corticosteroid inhaler. This puts the medicine into your system in a similar way as an orally injected steroid. Then the side effects are much greater. Just rinse and spit. Vicki — John Chattoe

Response:

: I read that it was not a good idea to swallow the water used : to rinse your mouth with after using a corticosteroid inhaler. : This puts the medicine into your system in a similar way as : an orally injected steroid. Then the side effects are much : greater. Just rinse and spit. Vicki I tried it both ways, and swallowing does help keep the throat from feeling dry etc.  Might I suggest a compromise, for the first rinse, spit it out, and then swallow the second or third depending on how dedicated you are. Cheers, Kin Hoong

Response:

: I read that it was not a good idea to swallow the water used : to rinse your mouth with after using a corticosteroid inhaler. : This puts the medicine into your system in a similar way as : an orally injected steroid. Then the side effects are much : greater. Just rinse and spit. Vicki While technically correct [to a point; I'm unsure of how much of the meds would get broken down before they could get absorbed, and it may well be most of the med...], the actualy amount one would be ingesting, even if ALL of it were then absorbed into one’s bloodstream, is VERY small compared to the dosages one gets of oral steroids.  As a result, the systemic effects for most people are likely to be minor, or even non-existent [from a noticeable or measurable standpoint].  However, given how yucky that rinse water can taste, it’s probybla smart not to swallow it *anyways* :) )) SW.

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