Posts belonging to Category 'Asthma Heart'

wood furniture and allergies:

Question:

Positively yes. Keep the windows closed and let the dehumidifier do it job. I keep my humidty at about 35% right mow its 33% I do open 2 windows but only if the polle/air quality is good outside. I vent cooking odors with a vent ect. Once the humidity hits about 50% dust mites multiply like crazy. Mold/mildew ect love humidity. If my humidity hits 40% I actually panic.Thats how much i know keeping it low works. Example:  my neighbors house when I visit was 60% humidity, she has a hygrometer in her living room. I told her it was 60%, she said she did not have the a/c on. I do not rely on the a/c to lower the humidity because if its cool out it doesnt run. I have 2 dehumidifiers, 1 in basement and 1 in livingroom. I will admit the livingroom one is noisy so it can be a pain, but I would never thing of shutting it off for more the a couple hours, or if the humidity starts to go to 40% or more…. I would not dream of having my humidity level above 45%.. Nor would I go below 25%. I never endorse any products as this is considered spam. I will if asked. One thing that is made by many companies is in pill form, its Bi Yan Pian, Its chinese alternative medicine. Do a search for it on the web. The best place is from a alternative medical Doctor. It helped me alot. Make sure its real and has no tylenol pain killer in it. All natural only. The bottle says 3-4  3times per day. My Doctor said 5  3 times a day. If you have taken antibiotics your good bacteria in you gut is most likely gone. try a acidophilus, they are not all the same. Ask A reliable health food store. They must be coated properly to get into your intestents. Its a good live bacteria. Again no milk, wine, cheese (at all) for 3 weeks.Wine a a absolute NO WAY. If you must have alcohol drink rum and diet coke or something. That should keep you from drinking. lol. Ease up on yeast. Well good luck. It takes many life style changes not just 1 easy thing to make it all work. But it can work. If you can not breath through your nose and only your mouth you could also get astma <—spelling? Any question please ask here. Good luck everyone. Try to get it under control before cold/flu season so you have a better chance. Im done talking now :)

Response:

On Sat, 18 Sep 2004 18:35:11 -0500, eee2…@webtv.net (DD DDD) wrote:

I do not rely on the a/c to lower the humidity because if its cool out it doesnt run.

That is one of the problems alright.

I have 2 dehumidifiers, 1 in basement and 1 in livingroom. I will admit the livingroom one is noisy so it can be a pain, but I would never thing of shutting it off for more the a couple hours, or if the humidity starts to go to 40% or more…. I would not dream of having my humidity level above 45%.. Nor would I go below 25%. I never endorse any products as this is considered spam.

I know you are absolutley correct about humidity.   I can not stand noise though. Has anyone found any quiet dehumidifiers?

Response:

She said because of my heart condition i can’t have allergy testin , and with me on beta blockers i can’t have the  tests either. Didn;t you just say you were tested for allergies?

          If i said i can’t have testing it was in error, what i meant to say was i can’t have allergy shots. I thought maybe after the testing was done i could do the allergy shots to possibly be desensitized, but because of the beta blocker and because of my heart condition the doctor said that allergy shots were not an option.

Response:

On 17 Sep 2004 04:14:31 GMT, cwhitesi…@aol.com (suzieQ) wrote:

She said because of my heart condition i can’t have allergy testin , and with me on beta blockers i can’t have the  tests either. Didn;t you just say you were tested for allergies?          If i said i can’t have testing it was in error, what i meant to say was i can’t have allergy shots.

OK I suspected that.   No big deal,  they don’t always work anyway.  Just eliminate or minimize exposure instead. – Hide quoted text — Show quoted text -

I thought maybe after the testing was done i could do the allergy shots to possibly be desensitized, but because of the beta blocker and because of my heart condition the doctor said that allergy shots were not an option.

Response:

I have old furniture that belonged to my husband family. This summer I could smell that old wood. I aired them out but it is not enough. They need sun. The thing is not to use them for storage, but if you use them everyday like getting clothes out of the drawer they get air circulation, My hubby has his daily clothes in his dresser and it does not smell as he opens the drawers to get his clothes out. The next sunny day I will take the drawers out in the sun. I am allergic to mold in food and Meds. Beer, wine, cheeses any fermented food preps. Penicillin. shirley

Response:

I’ve not long joined this newsgroup – but I really got quite excited reading this post (rightly or wrongly) Im 34, and have always been fit and active. I get severe ‘headaches’ and wake up daily with a pressurised feeling above my eyes. I would say 2 or 3 days every week I have severe pain in my head / face / jaw. Sinus scans have come back as ‘normal’. What really grabbed my attention is the heart rhythm problems, as I too suffer with this but have never found a cause. The doctors did not believe I had this, until I bought my own monitor and recorded several episodes and then he saw it on the printout (I can feel it when it happens). The subsequent ECGs came back as normal. I suffered with asthma dreadfully as a child and still occasionally get ‘wheezy’ but not the full blown asthma. Could you just explain the link for me with the old documents and books, and also the connection with ‘mould’ that was mentioned? Like a lot of people I guess, I’ve never found a trigger or any pattern to my apparent sinus pain, or to my heart rhythm problems – any advice or information would be welcome. Thanks :) Tony "CanDo" <rasm1…@bellsouth.net

wrote in message

news:bQq2d.148689$0o5.109595@bignews1.bellsouth.net… – Hide quoted text — Show quoted text -

I am very sensitive to either new wood, or old wood, and especially sensitive to old paper. If I get near an old book, or an old document, it will bring on immediate asthma, heart rhythm problems, and will send my blood pressure soaring. I had some fairly new cabinets on the wall, and some stand-up closets that

I

got rid of, because of the smell. I have found absolutely no relief from my sensitivity to old books and old documents. Sorry. What happens to you when you get close to your old

wooden

furniture? Do you have an immediate bad reaction? I feel that sensitivities and allergies are combinational, so I have been trying to reduce my "sensitivity load" by eliminating chemicals, foods,

etc. > from my environment, hoping that my bad reactions to old books and old > documents (among other things) would be lessened by a reduced "sensitivity > load". Although it has improved my health, and reduced my asthma and heart > problems, It hasn’t made me less sensitive to old books and old documents, > yet. > "suzieQ" <cwhitesi…@aol.com

wrote in message

> news:20040916193653.01852.00000807@mb-m13.aol.com… > > I got the results of my allergy tests, and i was told that i was allegic > to old > > wood and old paper. The doctor’s nurse said that i am allergic to mold and

there is something in old papers and old wood that produce mold. I have some very old furniture. Does this mean that i must get rid of my furniture. Most of it has sentamental value, and i’d hate to have to get rid of it.    She said because of my heart condition i can’t have allergy testing, and with me on beta blockers i can’t have the  tests either. Are there any options? Anyone else been through this?

Response:

The next sunny day I will take the drawers out in the sun. I am allergic to mold in food and Meds. Beer, wine, cheeses any fermented food preps

     So am I, I am allergic to wheat and yeast  as well as many others. I wonder how people become allergic to so much..

Response:

Hi, Did you try keeping the humidity lower? I had major problems when it was high. Ventilation is ok unless you are bringing in more pollution ect. Just try keeping it at 35%. It helped me a lot. Also are you sure its just the wood/paper? If it is, the lower humidity will keep them from opening up in the air. Trust me try it. Just give it 3 weeks and I think it will help a lot. I have had sinus problems for many years until I did this. Plus dust mites, Mold, mildew, ect. love warm and humid places. Give up milk, wine, cheese just for 3 weeks. I am very serious about this. But it seems everytime I post only a few people say it works because most dont try it. Just try it. 3 weeks is nothing. People ask for help here but always seem to shy away from there original question. I have been sinus problem free for almost a year now. I have a deviated septum, swollen turbinates, polyps as per 5 Doctors and I feel great now. No surgery. A good air cleaner in your sleeping area worked for me also. Its a lot to do but worth every penny. When I turned off the dehumidifier to save on my electric bill I started having sinus problems again. Is it not worth the Doctors bills and pills, sprays ect to keep your living area mold, dustmite, and allergen free as possible? As I type this I can breath in my nose freely. Can you say the same? I have no sinus pain or headaches. Please try this. I only post here 2-3 times a year because I talk to much and most people never listen, they just want someone to listen to there problems but dont listen to what others say. This is a help group, That is why I write this. So good luck. Been there done that.  

Response:

Its been a year now since I had sinus problems. I had a few flair ups but nothing like last year. This is what I did: I bought 2 dehumidifiers and keep the humidity at or below 40% (35% is perfect) very very important. But not lower than 25%. I had 2 old wood tables, I had them sealed with a poly coat. But if yours are antiques ask a pro first. I got rid of all junk in my basement. Towels, rags, blankets, CARDBOARD boxes. (use plastic boxes for storage) stuffed animals, rugs, just have a garage sale and sell this stuff or throw it out. Its not worth keeping stuff that just collects anyways. We all do it..:) I use a good furnace filter and have 2 hepa filters running almost 24/7 its cost about $45.00 in electricity a month but for me its worth it.  Get rid of dust collectors. I also replaced my carpet. In 1 month it will be a year. This is what I had before I did all this. It was a week before sinus surgery that I just could not do it. I did hours or internet research. And did dust mite covers. cleaning, ect. I also took chinese meds. yes they work. I was very bad off. I could not breath from my nose, only my mouth. Seen many Doctors that only wanted surgery. Antibiotics that really screwed me up. steroids. flonase, claritin, on and on and on….. Same crap different Doctor… More thing that worked for me: Get off of milk and wine for 8 weeks. Just see if it works. I dont drink them anymore. Well thats it for now. Any question let me know. Been there done that. No surgery for me. Sorry but I hate most Doctors.. After what they told me and stick together I no longer trust them. Thats a real shame. good luck

Response:

On Fri, 17 Sep 2004 21:39:31 -0500, eee2…@webtv.net (DD DDD) wrote:

Hi, Did you try keeping the humidity lower? I had major problems when it was high. Ventilation is ok unless you are bringing in more pollution ect. Just try keeping it at 35%. It helped me a lot.

Lower humidity does make a huge difference, but the problem is, what  do you do if the outside temperature is say 68F but the humidity is 70%. Do you close the windows to allow the dehumifier to work? Also, most dehumidifiers make a huge amount of noise. Maybe you have solutions to these problems…… Thanks….

Response:

I got the results of my allergy tests, and i was told that i was allegic to old wood and old paper. The doctor’s nurse said that i am allergic to mold and there is something in old papers and old wood that produce mold. I have some very old furniture. Does this mean that i must get rid of my furniture. Most of it has sentamental value, and i’d hate to have to get rid of it.    She said because of my heart condition i can’t have allergy testing, and with me on beta blockers i can’t have the  tests either. Are there any options? Anyone else been through this?

Response:

I am very sensitive to either new wood, or old wood, and especially sensitive to old paper. If I get near an old book, or an old document, it will bring on immediate asthma, heart rhythm problems, and will send my blood pressure soaring. I had some fairly new cabinets on the wall, and some stand-up closets that I got rid of, because of the smell. I have found absolutely no relief from my sensitivity to old books and old documents. Sorry. What happens to you when you get close to your old wooden furniture? Do you have an immediate bad reaction? I feel that sensitivities and allergies are combinational, so I have been trying to reduce my "sensitivity load" by eliminating chemicals, foods, etc. from my environment, hoping that my bad reactions to old books and old documents (among other things) would be lessened by a reduced "sensitivity load". Although it has improved my health, and reduced my asthma and heart problems, It hasn’t made me less sensitive to old books and old documents, yet. "suzieQ" <cwhitesi…@aol.com

wrote in message

news:20040916193653.01852.00000807@mb-m13.aol.com… – Hide quoted text — Show quoted text -

I got the results of my allergy tests, and i was told that i was allegic

to old

wood and old paper. The doctor’s nurse said that i am allergic to mold and there is something in old papers and old wood that produce mold. I have

some

very old furniture. Does this mean that i must get rid of my furniture.

Most of

it has sentamental value, and i’d hate to have to get rid of it.    She said because of my heart condition i can’t have allergy testing,

and

with me on beta blockers i can’t have the  tests either. Are there any

options?

Anyone else been through this?

Response:

On 16 Sep 2004 23:36:53 GMT, cwhitesi…@aol.com (suzieQ) wrote:

I got the results of my allergy tests, and i was told that i was allegic to old wood and old paper. The doctor’s nurse said that i am allergic to mold and there is something in old papers and old wood that produce mold. I have some very old furniture. Does this mean that i must get rid of my furniture. Most of it has sentamental value, and i’d hate to have to get rid of it.

Their are molds in wood but the quantity would not be large if it is is dried out. You could try increasing ventilation a *lot* as an alternative.  Or put them in an isolated room.

  She said because of my heart condition i can’t have allergy testin , and with me on beta blockers i can’t have the  tests either.

Didn;t you just say you were tested for allergies? – Hide quoted text — Show quoted text -

Are there any options? Anyone else been through this?

Response:

HRT – Activella

Question:

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Subject: Re: HRT – Activella From: accader…@yahoo.com  (acca) Date: 4/3/03 2:05 PM Eastern Standard Time Message-id: <4c16c425.0304031105.4042a…@posting.google.com lark84…@aol.com (Lark84321) wrote in message <news:20030403101325.04368.00000055@mb-fh.aol.com… Hello acca, Wow, you are a weatlth of knowledge! I guess you also know about the recent claims that estrogen may stave off altzheimers? Hopefully, that isn’t a myth too. It is a total myth. And they even report as such in the last Wyeth Annual Report. All it takes is actually reading the full text of the studies behind the headlines to know what is really going on. You can use "PubMed" to find use of HRT drugs is linked with increased rates of problems for just about every condition you are presently taking other drugs for: impaired glucose tolerance; body and lower back pains; arthritis; asthma; heart conditions; depression …… and "dry-mouth". I have long worried about the cascade effect once a woman starts taking HRT drugs. In a few years I have observed she has added a lot of other drugs …. for conditions clearly labeled as HRT drug side effects. This is of grave concern. acca

Thanks again, I am really going to have to re-think this. I was rather enjoying no bleeding after 2 years on Premphase and bleeding every month. The first time I tried Activella I had this annoying spotting all the time. Every time you would think it was over, and take the pads off, back it would come. I went off Activella at that point and actually did well. I had mild hot flashes and that was it. Then this serious depression came over me. This is atypical as spring is always my happiest time of the year. I really have no situational reasons for depression now either. I took it to be the cessation of the drug, but then I read in the side effect handout that it can cause depression. Also, who knows what placebo effects were going on too. I am so confused and also a bit annoyed that my doctor didn’t know some of this. I figured the Allegra would have to dry me out as that is the function. I also have a diuretic in the Avalide. I am 53, overweight and have type 2 diabetes. Heart disease runs in my family so initally I took HRT for that too. Why are women being targeted with misinformation? Is my doctor getting kickbacks from the drug companies? Also, aspirin never bothered my stomach and worked fairly well on my lumbar spine arthritis. Vioxx costs me $40 every 3 months. Do you know if it really is better? You can add up my meds and see it’s about $120 a month. I can’t really afford this. Thanks – Jen

Response:

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Subject: Re: HRT – Activella From: suf…@aol.comnospam  (Susan Fein) Date: 4/4/03 9:43 AM Eastern Standard Time Message-id: <20030404094301.23756.00000…@mb-fj.aol.com x-no-archive: yes In article <20030404093016.00177.00000…@mb-fs.aol.com, lark84…@aol.com (Lark84321) writes: Hi Priscilla and all who answered, I have allergies from hell – dust, molds, cats, wool ,tree pollen. I am in misery most days. Claritin helped me the first year I took it, then it stopped working. Ditto Zyrtec. They won’t give me a decongestant due to my hypertension, so I have to use Flonase. The Flonase caused a fungal lung infection. I also read it can damage your immune system over time. Allegra is working for now. I take 60mg in the am, 60mg at night and I still have to use a nasal spray at times. I did find a saline product called Entsol and that works great, but it doesn’t last long. When I was a child the doctor made an X on my back with a finger with medium pressure. After a few minutes he lifted my shirt and there was the perfectly outline X in red. He said that was a sure sign of an allergic child, and he was so right. Jen Have you considered desensitization by an immunologist?  I’ve been on shots for over a year and a half, and the relief in spring and summer was nothing short of miraculous even in the first year.  I give myself the shots at home now every two weeks, and go for retesting and reformulation every few months. The only really awful time I had last year was with ragweed in late summer, but with another year of shots now, I’m hoping for better relief this year. I too had fungal infections with steroid inhalers, but Astelin nasal spray is wonderful in my experience; it’s a local acting anthistamine, and even aborts sinus migraines as they’re getting started. Susan

Hi Susan, I did the shots for 2 years. Even during testing my arm would swell to twice it’s size so they had to start me out at a very low dose. After 2 years I had no progress so I stopped going. I had to drive there twice weekly and that was a pain too. I never heard of Astelin. Thanks for that information, I will check it out. I get migraines too. I think many allergic people do.  Jenny

Response:

From: lark84…@aol.com  (Lark84321) Date: 4/4/03 6:30 AM Pacific Standard Time Hi Priscilla and all who answered, I have allergies from hell

Just curious…did you come from a really clean,pet-free home,growing up? Sharon…………Cats, Coffee, Chocolate…vices to live by

Response:

From: lark84…@aol.com  (Lark84321) Date: 4/4/03 6:46 AM Pacific Standard Time I am 53, overweight and have type 2 diabetes.

Can you start a walking regimen? Walking is said to help with both weight control and diabetes. Since I upped my walking (could be coincidental),I haven’t had the allergy problems nearly as much. Exercise is said to boost the immune system. (putting hammer away) Sharon…………Cats, Coffee, Chocolate…vices to live by

Response:

Lark84321 wrote:

Hi Priscilla and all who answered, I have allergies from hell – dust, molds, cats, wool ,tree pollen. I am in misery most days.

That is lousy, I know how it feels, I was there also.

The Flonase caused a fungal lung infection. I also read it can damage your immune system over time.

The fungal infection is because Flonase contains a  corticosteroid.

 When I was a child the doctor made an X on my back with a finger with medium pressure. After a few minutes he lifted my shirt and there was the perfectly outline X in red. He said that was a sure sign of an allergic child, and he was so right. Jen

My doctor did the same kind of thing and said I probably had a lot of food allergies. Later testing proved him right. If you have "allergies from hell"  you might want to look into naet. It is an alternative method of eliminating allergies and has helped me with food, pollen and enviomental allergies. So far it has worked fantasticly for me. If you are interested they have a website naet.com. I would also be glad to give you more information, if you are interested, I would be glad to answer any questions. I have no connection to naet etc. etc. sue

Response:

- Hide quoted text — Show quoted text -lark84…@aol.com (Lark84321) wrote in message <news:20030404094646.00177.00000337@mb-fs.aol.com

… and actually did well. I had mild hot flashes and that was it. Then this serious depression came over me. This is atypical as spring is always my happiest time of the year. I really have no situational reasons for depression now either. I took it to be the cessation of the drug, but then I read in the side effect handout that it can cause depression. Also, who knows what placebo effects were going on too. I am so confused and also a bit annoyed that my doctor didn’t know some of this. I figured the Allegra would have to dry me out as that is the function. I also have a diuretic in the Avalide. I am 53, overweight and have type 2 diabetes. Heart disease runs in my family so initally I took HRT for that too. Why are women being targeted with misinformation? Is my doctor getting kickbacks from the drug companies? Also, aspirin never bothered my stomach and worked fairly well on my lumbar spine arthritis. Vioxx costs me $40 every 3 months. Do you know if it really is better? You can add up my meds and see it’s about $120 a month. I can’t really afford this. Thanks – Jen

It seems like good old "execise" (walking 30-90 minutes a day – the 10,000 Step Program) helps just about everything you have as one of your concerns. Weaning yourself into a good fitness program, or working towards the 10,000 Steps a Day program may be a good way to wean off of the drugs you and your doctor are comfortable foregoing. You can get a US$10 pedometer at a sporting goods store that just counts the steps you take each day, with the goal to get to 10,000 a day (about 90 minutes of walking through out the day). But arthritis pain, weight control, depression, cardio-health, hot flashes, Type II diabetes ….. lots of things are now showing benefits just from getting more exercise — but it has to be something you like doing, other wise it is just one more stress. Walking can be really great. I found "SAS brand" shoes to make all the difference in the world for walking. Expensive, but they last forever and are really like walking on clouds. Best wishes,

Response:

- Hide quoted text — Show quoted text -acca wrote:

lark84…@aol.com (Lark84321) wrote in message <news:20030404094646.00177.00000337@mb-fs.aol.com… It seems like good old "execise" (walking 30-90 minutes a day – the 10,000 Step Program) helps just about everything you have as one of your concerns. Weaning yourself into a good fitness program, or working towards the 10,000 Steps a Day program may be a good way to wean off of the drugs you and your doctor are comfortable foregoing. You can get a US$10 pedometer at a sporting goods store that just counts the steps you take each day, with the goal to get to 10,000 a day (about 90 minutes of walking through out the day). But arthritis pain, weight control, depression, cardio-health, hot flashes, Type II diabetes ….. lots of things are now showing benefits just from getting more exercise — but it has to be something you like doing, other wise it is just one more stress. Walking can be really great. I found "SAS brand" shoes to make all the difference in the world for walking. Expensive, but they last forever and are really like walking on clouds.

I found out the hard way that shoes can make a HUGE difference, when I bought a pair of New Balance.  Good brand, highly rated, all that.  Felt find in the store.  But it turns out that I supinate (more weight on outside edges of my feet), but these shoes are designed for people who pronate (inside edges of feet).  The "hard way" was a case of plantar fasciitis, which I’m still recovering from a year later. Moral of the story is that a style or brand of shoe that is wonderful for one person may not be good at all for someone else. http://www.roadrunnersports.com provides information on what body type, running style, walking style, weight, high arches, etc. a particular shoe is good for.  Their catalog provides even more information.  Even if you don’t order shoes from them, it helps you narrow down your choices.  (I have no interest in Road Runner Sports, etc.) FurPaw — No nationality, religion or ethnic group has a monopoly on stupidity.  It’s an equal-opportunity affliction. To reply, unleash the dog.

Response:

FurPaw <furpawnews…@comcast.net

wrote in

news:3E8DF0DD.3090400@comcast.net:

http://www.roadrunnersports.com provides information on what body type, running style, walking style, weight, high arches, etc. a particular shoe is good for.  Their catalog provides even more information.  Even if you don’t order shoes from them, it helps you narrow down your choices.  (I have no interest in Road Runner Sports, etc.)

This is also a pretty good site, they don’t sell anything, and they put a lot of good information in one page: http://public.csusm.edu/guests/hhv/puls0501.txt Saucony is the best shoe I’ve found for my foot type (supinating or underpronating) but I have a lot of trouble finding them.   Chakolate

Response:

- Hide quoted text — Show quoted text -Chakolate wrote:

FurPaw <furpawnews…@comcast.net wrote in news:3E8DF0DD.3090400@comcast.net: http://www.roadrunnersports.com provides information on what body type, running style, walking style, weight, high arches, etc. a particular shoe is good for.  Their catalog provides even more information.  Even if you don’t order shoes from them, it helps you narrow down your choices.  (I have no interest in Road Runner Sports, etc.) This is also a pretty good site, they don’t sell anything, and they put a lot of good information in one page: http://public.csusm.edu/guests/hhv/puls0501.txt Saucony is the best shoe I’ve found for my foot type (supinating or underpronating) but I have a lot of trouble finding them.   Chakolate

Roadrunner sells a lot of Sauconys.  If you have a style that you like and don’t need to try on, ordering is pretty safe.  And they’re good with returns.   I’ve found a shoe by Asics (also hard to find in stores) that they sell; unfortunately, it’s on the "endangered" list and I probably won’t be able to get it for much longer. FurPaw — No nationality, religion or ethnic group has a monopoly on stupidity.  It’s an equal-opportunity affliction. To reply, unleash the dog.

Response:

From: accader…@yahoo.com  (acca) Date: 4/4/03 12:36 PM Pacific Standard Time Walking can be really great.

Yes,it totally can. I’ve been walking daily for about 15 years. I adore my walks. I walk even when it’s rainy…just put on a raincoat and use an umbrella. Some people even walk up and down malls. I am lucky enough to have a boulevard that runs through a hillside,so I can see the changing patterns of nature. Can you find a walking buddy? I walk alone about half the time,and then I have a friend who is a book buddy. We talk about books as we walk. If you have a dog,the dog will love a walk too. Some people enjoy listening to a book on tape or radio station as they walk. I prefer just ruminating over things or planning an art project as I walk. Sharon…………Cats, Coffee, Chocolate…vices to live by

Response:

suemil…@aol.comnospam (Sue milham) wrote in message <news:20030403105100.28690.00000315@mb-fv.aol.com

… I don’t know about the others, but Allegra is very drying.  That is it’s purpose. lark84…@aol.com  (Lark84321) wrote: << Hello acca, Wow, you are a weatlth of knowledge! I guess you also know about the recent claims that estrogen may stave off altzheimers? Hopefully, that isn’t a myth too.

Yes, it is a myth – a very calculated myth hyped by the drug companies: http://www.mercola.com/2000/feb/27/alzheimers_estrogen_no_benefit.htm Just one of many reports now coming in finding estrogen is in fact even worsening Alzheimers. This one is old, but recently there were early findings reporting the same thing from the WHI and WHIMS trial as well.

Response:

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Subject: Re: HRT – Activella From: Priscilla Ballou vze23…@verizon.net Date: 4/3/03 12:31 PM Eastern Standard Time Message-id: <vze23t8n-B9D3CA.12302603042…@news.verizon.net In article <3E8C6D9D.2090…@comcast.net, Kevin and Sue Mullen <kjmul…@comcast.net wrote: Frankenmel wrote: From: suemil…@aol.comnospam  (Sue milham) Date: 4/3/03 7:51 AM Pacific Standard Time I don’t know about the others, but Allegra is very drying.  That is it’s purpose. Plus neither DH nor I found relief with it. You have to take Allegra every day, in order for it to work. Other similar meds you can take when you need it. I haven’t found that to be true — the Allegra every day bit.  I take it when I’m being bothered by allergic symptoms, and it works.  I’ve also taken it to dry me up when I have a cold, and it sort of works then, but Benedryl works better (although I limit that to bedtime). My mother is prescribed Allegra for occasional use, but she is forbidden to take it continuously. Priscilla —

Hi Priscilla and all who answered, I have allergies from hell – dust, molds, cats, wool ,tree pollen. I am in misery most days. Claritin helped me the first year I took it, then it stopped working. Ditto Zyrtec. They won’t give me a decongestant due to my hypertension, so I have to use Flonase. The Flonase caused a fungal lung infection. I also read it can damage your immune system over time. Allegra is working for now. I take 60mg in the am, 60mg at night and I still have to use a nasal spray at times. I did find a saline product called Entsol and that works great, but it doesn’t last long.  When I was a child the doctor made an X on my back with a finger with medium pressure. After a few minutes he lifted my shirt and there was the perfectly outline X in red. He said that was a sure sign of an allergic child, and he was so right. Jen

Response:

Hello all,  I am starting Activella again. I am thankful, as I became severely depressed off the estrogen.  I had been on Premphase for 2 years and doing well. Then I was switched to Activella as it is a lower dose of the hormomes.  Well, I was in that 14% that spots on the drug, so I stopped it by tapering off (on one day, off the next.)  After 2 weeks I went into the worst depression. My vaginal area was dry, my skin looked chalky and I was having night sweats like you wouldn’t believe!  I know all of the negatives. When I see words like" vaginal atrophy" and osteoporosis though, they are nothing I want to experience when help is available. (Yes, I lift weights and exercise to keep my bones strong). I think the straw that broke the camel’s back was the depression though. Estrogen, even a small amount, seems to help me. Anyone else experience that? Thanks for listening ,    Jenny

Response:

lark84…@aol.com (Lark84321) wrote in news:20030331193138.28164.00000167@mb-cj.aol.com:

I think the straw that broke the camel’s back was the depression though. Estrogen, even a small amount, seems to help me. Anyone else experience that?

Can’t speak about Activella from personal experience, but if you need help with depression, wouldn’t it be safer to take a drug specifically designed to help depression?   Chakolate, with experience of depression…

Response:

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Subject: Re: HRT – Activella From: Chakolate chakolateDeathToSpamm…@hotmail.com Date: 4/1/03 12:43 AM Eastern Standard Time Message-id: <Xns934FF05781B35chakolatehotmail…@128.248.7.54 lark84…@aol.com (Lark84321) wrote in news:20030331193138.28164.00000167@mb-cj.aol.com: I think the straw that broke the camel’s back was the depression though. Estrogen, even a small amount, seems to help me. Anyone else experience that? Can’t speak about Activella from personal experience, but if you need help with depression, wouldn’t it be safer to take a drug specifically designed to help depression?   Chakolate, with experience of depression…

Hello Chakolate, ( love your name :-)  Well, when I stopped Premphase depression started so it is linked to estrogen according to my GYN. Now, with Activella it is gone for the most part. I am going to stay on this until my next checkup and then she will put me on an even lower dose. If an antidepressant could stop depression, hot flashes, night sweats and bone loss I may go for it :-) Seriously, I did explore that option of antidepressants but most really dry you out and I am already dry if you know what I mean. Also, I take other medications that may conflict. Wellbutrin was tried but it gave me violent headaches.  Thanks for your thoughts ! Jenny

Response:

lark84…@aol.com (Lark84321) wrote in message <news:20030402173242.08299.00000093@mb-cn.aol.com

… Subject: Re: HRT – Activella From: Chakolate chakolateDeathToSpamm…@hotmail.com Date: 4/1/03 12:43 AM Eastern Standard Time Message-id: <Xns934FF05781B35chakolatehotmail…@128.248.7.54 lark84…@aol.com (Lark84321) wrote in news:20030331193138.28164.00000167@mb-cj.aol.com: I think the straw that broke the camel’s back was the depression though. Estrogen, even a small amount, seems to help me. Anyone else experience that?

 Estrogen drugs as steroidal drugs may be able to create a tonic or short-term euphoric effect ….. like many steroid drugs, such as cortisone. This is not an exclusive "estrogen" effect. However when tested against a placebo, there is no evidence of any estrogen drug benefit. Estrogen drugs in the US particularly come with a huge marketing induced placebo element. Which is why when tested blindly against placebos, no one can yet confirm any "feel good" effect. In fact, just the opposite has been found in these studies. Just one more of the ongoing HRT drug controversies. The opposite is the ongoing controversy about the "feel bad" effects of the progestin components of HRT drugs.

 Well, when I stopped Premphase depression started so it is linked to estrogen according to my GYN.

Bluntly put, your GYN has not kept up with the literature or even read the HRT drug waring label. He/she is committing malpractice making unproven off-label claims inducing you to use a drug unsuited and unauthorized for "depression." Please read the drug label yourself and discuss this with him/her. Also, an GYB is practicing as a diagnostic psychiatrist is practiciing well outside the scope of their training.  

If an antidepressant could stop depression, hot flashes, night sweats and bone loss I may go for it :-)

Many studies recently have shown just that – anti-depressants "work" for hot flashes too. Surely you doctor must have read those studies.

Seriously, I did explore that option of antidepressants but most really dry you out and I am already dry if you know what I mean. Also, I take other medications that may conflict.

It is far more likely the other medications you are taking are responsible for the "dryness" as dry mouth is associated with up to 60% of all medications, with some classes of drugs more likely the culprit than others. There is little proof that HRT drugs change vaginal lubrication. They only change vaginal cytology scores which so far have not been shown to even matter in relation to any subjective symptom complaints or relief. Are you getting the impression there are more myths than facts about all of this? If you track back the sources of alleged "information" about HRT drugs, including unfortunately what your doctor thinks he/she knows about them, you will find most roads lead back directly to drug company marketing …. which has been shown to be egregiously wrong and in error of late. But the myths about these drugs, contrary to any supportable facts, die hard because everyone really wants to think there are simple answers to "fixing" everything they can at this time in life with a easy solution and a one shot pill.  Wellbutrin was tried but it gave me violent

headaches.

I hope you will also consider things like meditation, counseling therapy, bio-feedback or even acupuncture. Those too are showing benefits.

 Thanks for your thoughts ! Jenny

You are welcome, too. Getting facts and fancies sorted out on this topic is a complex chore, and luckily when we think we finally know something, we have passed on to another stage of this whole biologic transition time. It is just like trying to find "answers" or pills to "cure" puberty …. yeah, like 4-5 years of time. (!) Best wishes, acca

Response:

Hello acca, Wow, you are a weatlth of knowledge! I guess you also know about the recent claims that estrogen may stave off altzheimers? Hopefully, that isn’t a myth too. I take : Cardizem 240mg Avalide – 300/12.5 Vioxx 25mg Allegra 60mg 2x’s daily Glucophage – 2,000 mg Activella – 1mg /0.5 mg I did try Wellbutrin – headaches made me stop. My eyes are dry, my throat is always dry and it is expensive to buy eye drops, replens & throat losenges all the time.              Thanks again, Jenny – Hide quoted text — Show quoted text -

Subject: Re: HRT – Activella From: accader…@yahoo.com  (acca) Date: 4/2/03 10:10 PM Eastern Standard Time Message-id: <4c16c425.0304021910.5e299…@posting.google.com lark84…@aol.com (Lark84321) wrote in message <news:20030402173242.08299.00000093@mb-cn.aol.com… Subject: Re: HRT – Activella From: Chakolate chakolateDeathToSpamm…@hotmail.com Date: 4/1/03 12:43 AM Eastern Standard Time Message-id: <Xns934FF05781B35chakolatehotmail…@128.248.7.54 lark84…@aol.com (Lark84321) wrote in news:20030331193138.28164.00000167@mb-cj.aol.com: I think the straw that broke the camel’s back was the depression though. Estrogen, even a small amount, seems to help me. Anyone else experience that? Estrogen drugs as steroidal drugs may be able to create a tonic or short-term euphoric effect ….. like many steroid drugs, such as cortisone. This is not an exclusive "estrogen" effect. However when tested against a placebo, there is no evidence of any estrogen drug benefit. Estrogen drugs in the US particularly come with a huge marketing induced placebo element. Which is why when tested blindly against placebos, no one can yet confirm any "feel good" effect. In fact, just the opposite has been found in these studies. Just one more of the ongoing HRT drug controversies. The opposite is the ongoing controversy about the "feel bad" effects of the progestin components of HRT drugs.  Well, when I stopped Premphase depression started so it is linked to estrogen according to my GYN. Bluntly put, your GYN has not kept up with the literature or even read the HRT drug waring label. He/she is committing malpractice making unproven off-label claims inducing you to use a drug unsuited and unauthorized for "depression." Please read the drug label yourself and discuss this with him/her. Also, an GYB is practicing as a diagnostic psychiatrist is practiciing well outside the scope of their training. If an antidepressant could stop depression, hot flashes, night sweats and bone loss I may go for it :-) Many studies recently have shown just that – anti-depressants "work" for hot flashes too. Surely you doctor must have read those studies. Seriously, I did explore that option of antidepressants but most really dry you out and I am already dry if you know what I mean. Also, I take other medications that may conflict. It is far more likely the other medications you are taking are responsible for the "dryness" as dry mouth is associated with up to 60% of all medications, with some classes of drugs more likely the culprit than others. There is little proof that HRT drugs change vaginal lubrication. They only change vaginal cytology scores which so far have not been shown to even matter in relation to any subjective symptom complaints or relief. Are you getting the impression there are more myths than facts about all of this? If you track back the sources of alleged "information" about HRT drugs, including unfortunately what your doctor thinks he/she knows about them, you will find most roads lead back directly to drug company marketing …. which has been shown to be egregiously wrong and in error of late. But the myths about these drugs, contrary to any supportable facts, die hard because everyone really wants to think there are simple answers to "fixing" everything they can at this time in life with a easy solution and a one shot pill. Wellbutrin was tried but it gave me violent headaches. I hope you will also consider things like meditation, counseling therapy, bio-feedback or even acupuncture. Those too are showing benefits.  Thanks for your thoughts ! Jenny You are welcome, too. Getting facts and fancies sorted out on this topic is a complex chore, and luckily when we think we finally know something, we have passed on to another stage of this whole biologic transition time. It is just like trying to find "answers" or pills to "cure" puberty …. yeah, like 4-5 years of time. (!) Best wishes, acca

Response:

lark84…@aol.com (Lark84321) wrote in message <news:20030403101325.04368.00000055@mb-fh.aol.com

… Hello acca, Wow, you are a weatlth of knowledge! I guess you also know about the recent claims that estrogen may stave off altzheimers? Hopefully, that isn’t a myth too.

It is a total myth. And they even report as such in the last Wyeth Annual Report. All it takes is actually reading the full text of the studies behind the headlines to know what is really going on. You can use "PubMed" to find use of HRT drugs is linked with increased rates of problems for just about every condition you are presently taking other drugs for: impaired glucose tolerance; body and lower back pains; arthritis; asthma; heart conditions; depression …… and "dry-mouth". I have long worried about the cascade effect once a woman starts taking HRT drugs. In a few years I have observed she has added a lot of other drugs …. for conditions clearly labeled as HRT drug side effects. This is of grave concern. acca I take : – Hide quoted text — Show quoted text -

Cardizem 240mg Avalide – 300/12.5 Vioxx 25mg Allegra 60mg 2x’s daily Glucophage – 2,000 mg Activella – 1mg /0.5 mg I did try Wellbutrin – headaches made me stop. My eyes are dry, my throat is always dry and it is expensive to buy eye drops, replens & throat losenges all the time.              Thanks again, Jenny

Response:

- Hide quoted text — Show quoted text -Priscilla Ballou wrote:

In article <3E8C6D9D.2090…@comcast.net,  Kevin and Sue Mullen <kjmul…@comcast.net wrote: Frankenmel wrote: From: suemil…@aol.comnospam  (Sue milham) Date: 4/3/03 7:51 AM Pacific Standard Time I don’t know about the others, but Allegra is very drying.  That is it’s purpose. Plus neither DH nor I found relief with it. You have to take Allegra every day, in order for it to work. Other similar meds you can take when you need it. I haven’t found that to be true — the Allegra every day bit.  I take it when I’m being bothered by allergic symptoms, and it works.  I’ve also taken it to dry me up when I have a cold, and it sort of works then, but Benedryl works better (although I limit that to bedtime). My mother is prescribed Allegra for occasional use, but she is forbidden to take it continuously.

Don’t know, maybe I am not remembering correctly. sue

Response:

In article <3E8C6F2B.4090…@comcast.net

,

 FurPaw <furpawnews…@comcast.net

wrote: Kevin and Sue Mullen wrote: You have to take Allegra every day, in order for it to work. Other similar meds you can take when you need it. My dad just got a notice that Allegra and other prescription antihistamines were being dropped from his insurance’s formulary, due to the availability of Claritin OTC.  IOW, if Claritin doesn’t do it for you, you’re screwed, and you’ll now be hit with the max copay for any of the others (around $45, I think).

I’d gotten the impression that Claritin was more selective in whom it would help than other antihistimines. Priscilla — "I don’t feel comfortable with a boot with my name on it on the throat of the rest of the world."  – Alan Winston in rec.arts.sf.fandom

Response:

Kevin and Sue Mullen wrote:

You have to take Allegra every day, in order for it to work. Other similar meds you can take when you need it.

My dad just got a notice that Allegra and other prescription antihistamines were being dropped from his insurance’s formulary, due to the availability of Claritin OTC.  IOW, if Claritin doesn’t do it for you, you’re screwed, and you’ll now be hit with the max copay for any of the others (around $45, I think). FurPaw — No nationality, religion or ethnic group has a monopoly on stupidity.  It’s an equal-opportunity affliction. To reply, unleash the dog.

Response:

In article <3E8C6D9D.2090…@comcast.net

,

 Kevin and Sue Mullen <kjmul…@comcast.net

wrote: Frankenmel wrote: From: suemil…@aol.comnospam  (Sue milham) Date: 4/3/03 7:51 AM Pacific Standard Time I don’t know about the others, but Allegra is very drying.  That is it’s purpose. Plus neither DH nor I found relief with it. You have to take Allegra every day, in order for it to work. Other similar meds you can take when you need it.

I haven’t found that to be true — the Allegra every day bit.  I take it when I’m being bothered by allergic symptoms, and it works.  I’ve also taken it to dry me up when I have a cold, and it sort of works then, but Benedryl works better (although I limit that to bedtime). My mother is prescribed Allegra for occasional use, but she is forbidden to take it continuously. Priscilla — "I don’t feel comfortable with a boot with my name on it on the throat of the rest of the world."  – Alan Winston in rec.arts.sf.fandom

Response:

Frankenmel wrote:

From: suemil…@aol.comnospam  (Sue milham) Date: 4/3/03 7:51 AM Pacific Standard Time I don’t know about the others, but Allegra is very drying.  That is it’s purpose. Plus neither DH nor I found relief with it.

You have to take Allegra every day, in order for it to work. Other similar meds you can take when you need it. sue

Response:

I don’t know about the others, but Allegra is very drying.  That is it’s purpose. lark84…@aol.com  (Lark84321) wrote:

<< Hello acca, Wow, you are a weatlth of knowledge! I guess you also know about the recent claims that estrogen may stave off altzheimers? Hopefully, that isn’t a myth too. I take : Cardizem 240mg Avalide – 300/12.5 Vioxx 25mg Allegra 60mg 2x’s daily Glucophage – 2,000 mg Activella – 1mg /0.5 mg I did try Wellbutrin – headaches made me stop. My eyes are dry, my throat is always dry and it is expensive to buy eye drops, replens & throat losenges all the time.              Thanks again, Jenny

<BR<BR

Sue M.

Response:

From: suemil…@aol.comnospam  (Sue milham) Date: 4/3/03 7:51 AM Pacific Standard Time I don’t know about the others, but Allegra is very drying.  That is it’s purpose.

Plus neither DH nor I found relief with it. Sharon…………Cats, Coffee, Chocolate…vices to live by

Response:

Constantly yawning

Question:

ORickado wrote:

She said I didn’t stop breathing completely, but would slow down enough so that my blood oxygen level would drop below 2%.

On Thu, 20 Dec 2001 19:34:29 GMT, NormC  wrote:

You had to have left the first digit from your blood oxy level.  Otherwise Ithink you would be dead <g.  Mine dropped to 84% and that was considred serious.

hmm… I’m still alive and clickin’, so I must’ve misunderstood what I was told. Could she have said "dropped *by* 2%"? That doesn’t sound like much. Maybe she meant 2% below "minimum" <whatever that is

?

Anyhoo, it dropped below whatever level they use to determine an event. And I had more events than I would have ever guessed. Thanks for the  correction ;-) Rick

Response:

- Hide quoted text — Show quoted text -ORick…@hotmail.com wrote:

ORickado wrote: She said I didn’t stop breathing completely, but would slow down enough so that my blood oxygen level would drop below 2%. On Thu, 20 Dec 2001 19:34:29 GMT, NormC  wrote: You had to have left the first digit from your blood oxy level.  Otherwise Ithink you would be dead <g.  Mine dropped to 84% and that was considred serious. hmm… I’m still alive and clickin’, so I must’ve misunderstood what I was told. Could she have said "dropped *by* 2%"? That doesn’t sound like much. Maybe she meant 2% below "minimum" <whatever that is? Anyhoo, it dropped below whatever level they use to determine an event. And I had more events than I would have ever guessed. Thanks for the  correction ;-) Rick

Actually, the drop in blood oxygen results from the non-breathing event(s), not the other way around.  You can have non-breathing events that don’t necessarily affect you blood oxy level.

Response:

- Hide quoted text — Show quoted text -ORick…@hotmail.com wrote:

Time to report back. On Wed, 21 Nov 2001 18:05:18 -0600, ORickado wrote in Message-ID: <o9govtojqv44denjei018alqpn5vo00…@4ax.com I’ve got the weirdest problem. <Snip long involved problem/situation description etc. My doc (Internist) is stumped. I’ve seen two Cardiologists. (1st one did the stress test, 2nd did 2nd opinion). They’re don’t know. I have an appointment with a Pulmonary specialist in a few days, but my Internist isn’t optomistic that he’ll find anything. Well, the Pulmonary guy didn’t have any hard and fast answers either, but he set up an appointment for a two night (last night and the night before) sleep test at a local sleep lab. I’m supposed to get a report from the sleep specialist in a few days, but the technician told me I snored and had numerous events the first night (who’d a thunk it!). She said I didn’t stop breathing completely, but would slow down enough so that my blood oxygen level would drop below 2%.

You had to have left the first digit from your blood oxy level.  Otherwise Ithink you would be dead <g

.  Mine dropped to 84% and that was considred serious.

– Hide quoted text — Show quoted text -

The second night they put me on a CPAP machine and were able to completely stop both the snoring and the events by using a pressure just one step above it’s lowest. So I guess that’s good news. Unfortunately, my breathing/gasping/yawning problem was still with me when I woke up this morning. So I still don’t know for sure whether or not it’s related to Sleep Apnea, and I suppose I won’t find out unless/until it goes away after using the CPAP for awhile. We’ll try it and see what happens. I’ll report in again soon and let you know. Also, I want to thank those who responded, both here and through email.  It’s been a big help. Tanks ;-) Rick

Response:

Time to report back. On Wed, 21 Nov 2001 18:05:18 -0600, ORickado wrote in Message-ID: <o9govtojqv44denjei018alqpn5vo00a5o@4ax.com

I’ve got the weirdest problem.

<Snip long involved problem/situation description etc.

My doc (Internist) is stumped. I’ve seen two Cardiologists. (1st one did the stress test, 2nd did 2nd opinion). They’re don’t know. I have an appointment with a Pulmonary specialist in a few days, but my Internist isn’t optomistic that he’ll find anything.

Well, the Pulmonary guy didn’t have any hard and fast answers either, but he set up an appointment for a two night (last night and the night before) sleep test at a local sleep lab. I’m supposed to get a report from the sleep specialist in a few days, but the technician told me I snored and had numerous events the first night (who’d a thunk it!). She said I didn’t stop breathing completely, but would slow down enough so that my blood oxygen level would drop below 2%. The second night they put me on a CPAP machine and were able to completely stop both the snoring and the events by using a pressure just one step above it’s lowest. So I guess that’s good news. Unfortunately, my breathing/gasping/yawning problem was still with me when I woke up this morning. So I still don’t know for sure whether or not it’s related to Sleep Apnea, and I suppose I won’t find out unless/until it goes away after using the CPAP for awhile. We’ll try it and see what happens. I’ll report in again soon and let you know. Also, I want to thank those who responded, both here and through email.  It’s been a big help. Tanks ;-) Rick

Response:

ORick…@hotmail.com wrote:

I’ve got the weirdest problem.

I’ve had that same weird problem for years, too.  I describe it as a feeling of "trying to breathe through a straw."  And I went through everything you did – tests for asthma, heart tests, pulmonary tests, visits with specialists, anti-anxiety drugs.  Zilch. And, like you, I’m physically active, work out a lot, am in decent shape, and so on.  At one point, I lost about 50 pounds, and it made no difference (I’ve since gained it back, and am in the process of re-losing it, this time in a healthy, sustainable way instead of by taking dangerous drugs, i.e., phen-fen). For me, this problem came on in 1994 and has continued since then, being worse sometimes and better other times.  That was long before being diagnosed with sleep apnea (that happened in summer of 2000).  Around then, my boyfriend told me that I had started snoring, something I’d never done in my life up to that point.  When we started sleeping together in late ‘97, I wasn’t snoring, and previous boyfriends never noticed it either.  I called a couple of them I had been with in the previous few years and asked. Anyway, when the sleep doctor examined me for the first time, he noticed that the opening of the airway at the back of my throat is unusually small.  Also, my jaw is somewhat set back (when I bite, my lower teeth are some distance behind my upper teeth).  He said this could account for why I’m feeling like I’m not getting enough air. I’m thinking that maybe this breathing thing was a very, very early sign of sleep apnea.  I was 28 when it started; I’m now 36. I concur with what others said – visit a sleep specialist. — "So that’s what Hell is: I’d never have believed it. Do you remember, brimstone, the stake, the gridiron? What a joke! No need of a gridiron, Hell is other people."  - Jean-Paul Sartre

Response:

<< Also, any favorite sites for a basic explanation of Sleep Apnea? I know almost nothing about it.

A very good place to start is http://www.talkaboutsleep.com A list of accredited sleep specialists is at http://www.absm.org/Diplomates/listing.htm Even if you do not fit the profile for sleep apnea, an accredited sleep specialist can give you the best advice, and determine if a sleep study would give some good information. Mike

Response:

ORick…@hotmail.com wrote:

On 11/22/01, NormC  wrote: At age 65, with no previous recognizable symptoms of sleep apnea (no snoring, no problem getting up, no problem staying awake all day and evening, etc. etc.), I began having the need to yawn… and felt fatigued.  I couldn’t hold my head up.  I couldn’t hold the phone to my ear.  I couldn’t even work at my computer (after 44 years).  When I went to my recliner to take advantage of a headrest, I’d fall asleep. hmm.. I wake up 5am every morning (usually, a few seconds before the alarm goes off) full of energy. Not fatigued at all. I seldom get to bed early though, depends on how late I work. Midnight or after is not unusual.

Identical scenario for me, except I never awoke before my alarm.  If I didn’t use an alarm, I just kept sleeping for another hour or so.

Sometimes I’ll nap right after supper for an hour or so (6pm-7pm approx) maybe 2-3 times a week.

Ask yourself the question, "Why do I have to nap at all?"  This need could be an indicator.

I live/sleep alone so don’t know of any symptoms (or lack thereof) during my sleep. I’ll call my X to see what she remembers as of a few years ago. She’s never mentioned snoring, irregular breathing, etc though.

Identical for me and wife.

Does Sleep Apnea come on suddenly? Or gradually?

Yes (G),  Both

I didn’t investigate sleep apnea.  I investigated the physiology of a yawn, which I consider to have been worthwhile, and recommend you do likewise. Thanks, I’ll do that. Did a quick Yahoo search and found a couple of sites that explained it as the body’s way of regulating oxygen/CO2 ratio in the blood. But they both had the disclaimer that nobody "really" knows for sure.

Don’t recall ‘nobody really knows’.

Can you recommend a particular site (or any other place) to start investigating?

It was over a year ago.  I just used Google and "yawn", yawn physiology", etc.

Also, any favorite sites for a basic explanation of Sleep Apnea? I know almost nothing about it.

I had a sleep test and apnea diagnosed before I researched it. – Hide quoted text — Show quoted text -

I would recommend an ENT or maxillo-facial surgeon who has the capability to do an endoscopy – absolutely, IMO. Thanks, I’ll do that. I don’t know the Pulmonary guy that I have an appointment with. My Internist made the referral and appointment. I’ll check to see if he’s a "Certified Sleep Specialist" or not. Then go from there. Thanks again, Rick ORickado wrote: I’ve got the weirdest problem. I posted to a pulmonary group and a heart group about it, and someone there suggested I post here. I know I probably don’t get enough sleep ("quantity") due to my lifestyle (always on the go), but AFAIK, I’ve never had a problem with the "quality" of my sleep … but then, how would I know? <shrug. Anyway, if my symptoms sound at all familiar, I would appreciate it if someone could point me in the right direction. TIA Here’s the copy/paste of my post to the other groups. Problem here. I’m having to constantly gasp to catch my breath. It’s like always feeling the need for a deep yawn. Most of the time I catch it first try, sometimes takes two or three. But the "caught breath feeling" lasts only a few minutes and then I have to yawn (catch my breath) again. Some days are worse than others, but it seems to me the bad days are happening more often in the last couple of months. This has been going on for almost a year now, with no improvement. It isn’t brought on or affected by strenuous excercise or anything else in particular. It just starts for no reason and lasts for days. I don’t usually feel completely smothered (although I’ve had two fairly "scary" episodes in the past year) it’s mostly just annoying to me and others around me. But I’m worried that it may be progressive (lately, it’s not going away as often as it used to). I’m a 50 year old male, non smoker, and I’m in better physical condition than most 30 year olds (much better than when *I* was 30). I had a complete physical, blood work, etc. everything normal. No asthma, emphysema, etc.) Chest Xray normal. Had a stress test. Did 12 minutes on the treadmill, no prob, everything normal. Had a Pulmonary Funtion test. Shows I have 125% expected lung capacity. I’m not allergic to anything AFAIK. My doc (Internist) is stumped. I’ve seen two Cardiologists. (1st one did the stress test, 2nd did 2nd opinion). They’re don’t know. I have an appointment with a Pulmonary specialist in a few days, but my Internist isn’t optomistic that he’ll find anything. I’m very discouraged right now. *Something* has to be causing this … and I’d like to know what. Any ideas? Thanks in advance, Rick

Response:

On 11/22/01, NormC  wrote:

At age 65, with no previous recognizable symptoms of sleep apnea (no snoring, no problem getting up, no problem staying awake all day and evening, etc. etc.), I began having the need to yawn… and felt fatigued.  I couldn’t hold my head up.  I couldn’t hold the phone to my ear.  I couldn’t even work at my computer (after 44 years).  When I went to my recliner to take advantage of a headrest, I’d fall asleep.

hmm.. I wake up 5am every morning (usually, a few seconds before the alarm goes off) full of energy. Not fatigued at all. I seldom get to bed early though, depends on how late I work. Midnight or after is not unusual. Sometimes I’ll nap right after supper for an hour or so (6pm-7pm approx) maybe 2-3 times a week. I live/sleep alone so don’t know of any symptoms (or lack thereof) during my sleep. I’ll call my X to see what she remembers as of a few years ago. She’s never mentioned snoring, irregular breathing, etc though. Does Sleep Apnea come on suddenly? Or gradually?

I didn’t investigate sleep apnea.  I investigated the physiology of a yawn, which I consider to have been worthwhile, and recommend you do likewise.

Thanks, I’ll do that. Did a quick Yahoo search and found a couple of sites that explained it as the body’s way of regulating oxygen/CO2 ratio in the blood. But they both had the disclaimer that nobody "really" knows for sure. Can you recommend a particular site (or any other place) to start investigating? Also, any favorite sites for a basic explanation of Sleep Apnea? I know almost nothing about it.

I would recommend an ENT or maxillo-facial surgeon who has the capability to do an endoscopy – absolutely, IMO.

Thanks, I’ll do that. I don’t know the Pulmonary guy that I have an appointment with. My Internist made the referral and appointment. I’ll check to see if he’s a "Certified Sleep Specialist" or not. Then go from there. Thanks again, Rick – Hide quoted text — Show quoted text -ORickado wrote:

I’ve got the weirdest problem. I posted to a pulmonary group and a heart group about it, and someone there suggested I post here. I know I probably don’t get enough sleep ("quantity") due to my lifestyle (always on the go), but AFAIK, I’ve never had a problem with the "quality" of my sleep … but then, how would I know? <shrug. Anyway, if my symptoms sound at all familiar, I would appreciate it if someone could point me in the right direction. TIA Here’s the copy/paste of my post to the other groups. Problem here. I’m having to constantly gasp to catch my breath. It’s like always feeling the need for a deep yawn. Most of the time I catch it first try, sometimes takes two or three. But the "caught breath feeling" lasts only a few minutes and then I have to yawn (catch my breath) again. Some days are worse than others, but it seems to me the bad days are happening more often in the last couple of months. This has been going on for almost a year now, with no improvement. It isn’t brought on or affected by strenuous excercise or anything else in particular. It just starts for no reason and lasts for days. I don’t usually feel completely smothered (although I’ve had two fairly "scary" episodes in the past year) it’s mostly just annoying to me and others around me. But I’m worried that it may be progressive (lately, it’s not going away as often as it used to). I’m a 50 year old male, non smoker, and I’m in better physical condition than most 30 year olds (much better than when *I* was 30). I had a complete physical, blood work, etc. everything normal. No asthma, emphysema, etc.) Chest Xray normal. Had a stress test. Did 12 minutes on the treadmill, no prob, everything normal. Had a Pulmonary Funtion test. Shows I have 125% expected lung capacity. I’m not allergic to anything AFAIK. My doc (Internist) is stumped. I’ve seen two Cardiologists. (1st one did the stress test, 2nd did 2nd opinion). They’re don’t know. I have an appointment with a Pulmonary specialist in a few days, but my Internist isn’t optomistic that he’ll find anything. I’m very discouraged right now. *Something* has to be causing this … and I’d like to know what. Any ideas? Thanks in advance, Rick

Response:

- Hide quoted text — Show quoted text -ORick…@hotmail.com wrote:

I’ve got the weirdest problem. I posted to a pulmonary group and a heart group about it, and someone there suggested I post here. I know I probably don’t get enough sleep ("quantity") due to my lifestyle (always on the go), but AFAIK, I’ve never had a problem with the "quality" of my sleep … but then, how would I know? <shrug. Anyway, if my symptoms sound at all familiar, I would appreciate it if someone could point me in the right direction. TIA Here’s the copy/paste of my post to the other groups. Problem here. I’m having to constantly gasp to catch my breath. It’s like always feeling the need for a deep yawn. Most of the time I catch it first try, sometimes takes two or three. But the "caught breath feeling" lasts only a few minutes and then I have to yawn (catch my breath) again. Some days are worse than others, but it seems to me the bad days are happening more often in the last couple of months. This has been going on for almost a year now, with no improvement. It isn’t brought on or affected by strenuous excercise or anything else in particular. It just starts for no reason and lasts for days. I don’t usually feel completely smothered (although I’ve had two fairly "scary" episodes in the past year) it’s mostly just annoying to me and others around me. But I’m worried that it may be progressive (lately, it’s not going away as often as it used to). I’m a 50 year old male, non smoker, and I’m in better physical condition than most 30 year olds (much better than when *I* was 30). I had a complete physical, blood work, etc. everything normal. No asthma, emphysema, etc.) Chest Xray normal. Had a stress test. Did 12 minutes on the treadmill, no prob, everything normal. Had a Pulmonary Funtion test. Shows I have 125% expected lung capacity. I’m not allergic to anything AFAIK. My doc (Internist) is stumped. I’ve seen two Cardiologists. (1st one did the stress test, 2nd did 2nd opinion). They’re don’t know. I have an appointment with a Pulmonary specialist in a few days, but my Internist isn’t optomistic that he’ll find anything. I’m very discouraged right now. *Something* has to be causing this … and I’d like to know what. Any ideas? Thanks in advance, Rick

At age 65, with no previous recognizable symptoms of sleep apnea (no snoring, no problem getting up, no problem staying awake all day and evening, etc. etc.), I began having the need to yawn… and felt fatigued.  I couldn’t hold my head up.   I couldn’t hold the phone to my ear.  I couldn’t even work at my computer (after 44 years).  When I went to my recliner to take advantage of a headrest, I’d fall asleep. The yawns that I began to experience were different than a regular yawn (for me).  I made some unusual sounds, not guttural, but the kind that would come with absolute fatigue.  And in the process of the yawn, I felt like I was going to ‘melt’ from the feeling of fatigue.  The first yawn at any time during the day was just a sign of things to come. I didn’t investigate sleep apnea.  I investigated the physiology of a yawn, which I consider to have been worthwhile, and recommend you do likewise. After a week or so, I had a regularly scheduled appointment with my internist. I told him about what was happening and asked if he had any ideas.  The only idea he had to offer was…. sleep apnea. I said I couldn’t have sleep apnea because "I sleep like a log."  He said, "But do you sleep like a human being?", and scheduled me for a sleep study.  The results showed severe positional obstructive sleep apnea.  So even though I was ’sleeping’ I wasn’t getting "quality sleep". I, and scores of others on this NG, recommend that you connect up with a certified sleep specialist, not just a plain pulmonary specialist.  Certified sleep specialist come in a number of disciplines: psychiatrists, pulmonary, ENT, etc.  I would recommend an ENT or maxillo-facial surgeon who has the capability to do an endoscopy – absolutely, IMO.

Response:

I’ve got the weirdest problem. I posted to a pulmonary group and a heart group about it, and someone there suggested I post here. I know I probably don’t get enough sleep ("quantity") due to my lifestyle (always on the go), but AFAIK, I’ve never had a problem with the "quality" of my sleep … but then, how would I know? <shrug

.

Anyway, if my symptoms sound at all familiar, I would appreciate it if someone could point me in the right direction. TIA Here’s the copy/paste of my post to the other groups. Problem here. I’m having to constantly gasp to catch my breath. It’s like always feeling the need for a deep yawn. Most of the time I catch it first try, sometimes takes two or three. But the "caught breath feeling" lasts only a few minutes and then I have to yawn (catch my breath) again. Some days are worse than others, but it seems to me the bad days are happening more often in the last couple of months. This has been going on for almost a year now, with no improvement. It isn’t brought on or affected by strenuous excercise or anything else in particular. It just starts for no reason and lasts for days. I don’t usually feel completely smothered (although I’ve had two fairly "scary" episodes in the past year) it’s mostly just annoying to me and others around me. But I’m worried that it may be progressive (lately, it’s not going away as often as it used to). I’m a 50 year old male, non smoker, and I’m in better physical condition than most 30 year olds (much better than when *I* was 30). I had a complete physical, blood work, etc. everything normal. No asthma, emphysema, etc.) Chest Xray normal. Had a stress test. Did 12 minutes on the treadmill, no prob, everything normal. Had a Pulmonary Funtion test. Shows I have 125% expected lung capacity. I’m not allergic to anything AFAIK. My doc (Internist) is stumped. I’ve seen two Cardiologists. (1st one did the stress test, 2nd did 2nd opinion). They’re don’t know. I have an appointment with a Pulmonary specialist in a few days, but my Internist isn’t optomistic that he’ll find anything. I’m very discouraged right now. *Something* has to be causing this … and I’d like to know what. Any ideas? Thanks in advance, Rick

Response:

URINETHERAPY cures all kinds of CANCER …

Question:

here read this… hey if you don’t like what ancient people like old romans, Greeks, Indians, chinese used to cure from any deseases with urinetharpy why don’t you piss off by yourself and people who really need help here read by yourself… www.shirleys-wellness-cafe.com/urine.htm www.users.erols.com/martinlara/index.html URINET HOMEPAGE Yahoo! Groups : urinetherapy Natural Alternatives that Work beekman.net: healing books — urine therapy books Urine Therapy (Medical Alternatives Network) – Hide quoted text — Show quoted text – read this… Urine therapy (also known as urea therapy) is a type of alternative therapy that involves the drinking or rubbing onto the skin of one’s own urine. You are a seriously sick woman

Response:

people who really need help here read by yourself…

People frequent this newsgroup to look for accurate information.  You are presenting an idea that seemingly has no merit.  You are making claims that you have not substantiated.  Unless you can cite studies that prove what you are stating, you are irresponsible in posting this stuff. …lisa

Response:

I have already done that but people like you never get in your heards…sorry…at least i tried…but not for you of course and if you still want to know about it…why don’t you search on net that information by yourself? or shall i sedn all info I got…no, you don’t even deserve it you lazyass…do by yourself! – Hide quoted text — Show quoted text – people who really need help here read by yourself… People frequent this newsgroup to look for accurate information.  You are presenting an idea that seemingly has no merit.  You are making claims that you have not substantiated.  Unless you can cite studies that prove what you are stating, you are irresponsible in posting this stuff. …lisa

Response:

I have already done that b

No, you have not.  One link was to an ad for a book about this stuff that comprises testimonials.  The other link doesn’t even work. Resorting to name calling?  Grow up. …lisa

Response:

here read this… hey if you don’t like what ancient people like old romans, Greeks, Indians, chinese used to cure from any deseases with urinetharpy why don’t you piss off by yourself and people who really need help here read by yourself…

"Piss off"?

Response:

here read this… hey if you don’t like what ancient people like old romans, Greeks, Indians, chinese used to cure from any deseases with urinetharpy why don’t you piss off by yourself and people who really need help here read by yourself… "Piss off"?

Better "pissed off" than "pissed on…"   ;-) URINETHERAPY CURES ENURESIS!!!   (All you have to do is piss the bed on purpose before going to sleep!) Tin-foil beany-caps cure mental illness!  Film at Eleven! Testimonial by Anna! Realistically…  I am a total laryngectomee.  Doesn’t anybody think I’d have done anything tp prevent having lost my voice to cancer.  To avoid having to breathe through a stoma (hole in my neck) for the rest of my life? To avoid the pain of the surgery, radiation and compliucations? Damn straight, if there was a "magic bullet" I’d have sought it out instead. The problem is that I’d rather live.  So I study the techniques that have allowed others to survive.  Playing around with my urine may have some kind of kinky sex-pleasure value to some, but it’s never proven to have any documented survival value whatsoever. By the way…  Regarding "testimonials" and "true tories…" Washing Venetian blinds in a bath tub causes fuses to blow!  I know because I have witnessed it first-hand!   The minute my older brother turned on the water, the lights went out. See?  I just wrote a testimonial about household electrical safety! Ok…  I got it all out of my system. (for now…) Best, Jake

Response:

At least Anna isn’t selling her own urine, and she certainly doesn’t = make a profit on my urine. She may be a quack (opinion withheld), but you got to admit it’s not = spam in the usual sense of the word.

It is DANGEROUS. If someone chooses to follow this advice they can come to unnecessary harm.  See where she posts…     … We are talking here about urine from the point of     view of somebody who follows a reasonably healthy diet,     and who does not use chemical drugs or allopathic     medicines. So, to try this supposed treatment, the patient must stop taking most other treatments.   — Oisin  "Curly++"  Curtin   SURVIVOR    http://pages.infinit.net/curlypp/

Response:

—–BEGIN PGP SIGNED MESSAGE—– Hash: SHA1 So tell me do you self cathertize yourself and suck it back in directly or pee in a bottle and drink it later. Dose it age well is pee 1997 more robust and  flavorful the Pee 1999. Dose an Oak cask work better than say Maple or stainless steel? Do you use the leftover to tan skins for leather as the "ancients" did with Buffalo skins? Should we limit ourselves to people pee or expand to other "pee’s" ( I am not sure of the plural usage here it was not covered in English grammar) for example would Bull Pee be good for impotence? How about Giraffe pee would it help the height challenged! Which doYOU use and how often do you drink your pee do you use any other pee? What type of cancer did you have and how long did you drink pee before you were cured?Is there any problem with cross sexual pee should males drink only male pee? Dose Pee conflict with Watchman’s de"Iron"ization?(sp) How about Kristofer Dale’s magic but put down secret formula? What about the "Mistic Waters" do they make better pee? Do you also recommend blood-letting which was also used for thousands of years or how about Mercury another famous ancient remedy! Please enlighten us?

you people listen carefully! ther is no desease that urinetheray doesn’t cure. you don’t loose anything but gain your lifes back when you try it! all ancient nations used it and using still…already 4 000 years…just type URINETHERAPY on net and evey searchmachine has hondreds of pages and books and testimonials..succes to every body and don’t forget to testimony when you are cured! here read this shortly… There is practically nothing it won’t cure. Urine is said to be effective against the flu, the common cold, broken bones, toothache, dry skin, psoriasis and all other skin problems. It is said to deter aging and is helpful with AIDS, allergies,  animal  and snake bites, asthma, heart disease, hypertension, burns, cancer, chemical intoxication, chicken pox, enteritis, constipation,  and pneumonia. Urine is said to be effective against dysentery, edema, eczema, eye irritation, fatigue, fever, gonorrhea, gout, bloody urine, small pox, immunological disorders, infections, infertility, baldness, insomnia, jaundice, hepatitis, Kaposi’s sarcoma, leprosy, lymphatic disorder,  urticaria, morning sickness, hangover, obesity, papilloma virus,  parasitoses, gastric ulcer,  rheumatism,  birth marks, stroke, congestion, lumbago, typhus, gastritis, depression, cold sore, tuberculosis,  tetanus, Parkinson’s disease, foot fungus, diabetes and other endocrine related diseases. Some enthusiasts see urine therapy as a divine manifestation of cosmic intelligence. They use urine to unleash their kundalini, sending it straight into the third eye, bringing instant enlightenment. With such wondrous properties, it is amazing that science bothered developing medicine when it had the key to good health already in the bottle, so to speak. Each of us is a walking pharmacopoeia. one testimonial among others… Lumps in the breast,-Linda discovered strange lumps in her breasts while getting dressed for a party. She was a single mother, 43 years old and her two children were becoming teenagers. They needed her more than ever therefore she decided to fight with all her might. She did not have medical insurance and a friend advised her to go to the clinic at the local hospital to have some tests done. After going through several X rays the doctor asked for permission to do a biopsy. She was reluctant. Therefore, he started mentioning the statistics and how quickly breast cancer spreads and kills its victims. She wanted to be informed of her options, but demanded impartial information instead of gestapo-type tactics to scare her into submitting to surgery, chemotherapy and radiation. After all, there was no proof of the tumor being malignant, it was just a dark spot on an X ray. The doctor insisted on Linda making a quick decision, but she knew that, although this could be a life threatening situation, traditional medicine’s approach was not really the best choice. Linda asked for more information on the actual cause of breast lumps and breast cancer, but the doctor had no explanation other than saying that it was a common problem with women her age and that it could be genetic. Linda recognized the doctor’s good intention, but she was getting frustrated with his constant pressure into doing tests and going through surgery. She made an appointment to do a biopsy four weeks later, the doctor insisted, but could not persuade her to do it sooner. A friend of hers invited her to one of Martin Lara’s workshops to get a different point of view with respect to her condition. Though Mr. Lara is not a physician, she was able to understand that her problem was directly associated with the lymphatic system malfunctioning which resulted in the body not being able to eliminate all the waste produced by the cells in the muscles, bones, joints and organs that make up a human being. Martin Lara is extremely resourceful person and a plumber by trade. Therefore, he knew exactly how the lymphatic system works in the body since it is very similar to the sewer system of any large city. The only difference is that instead of calling buildings by different names he calls them muscles, bones, joints, eyes, ears, liver and lungs. And instead of using medicines and toxic substances Mr. Lara uses urine, a blood byproduct that does not place additional burdens to the body. Linda started using the ultimate universal remedy every two hours, the rectal implants every morning, she applied compresses with stale urine every night mixing the urine with eucalyptus oil to eliminate the smell, she rubbed fresh urine on the skin three times a week and she drank three to four ounces of urine three times a day. In addition to all these applications, she improved her diet and made some changes in her lifestyle. Four weeks later Linda went to see the doctor for the biopsy that was scheduled previously. They proceeded to take the pre surgery X ray and discovered perfectly healthy specimens. Nurse, Nurse, called the doctor. Do we have the right folder for this patient? Why! Yes doctor, the nurse replied. Linda was smiling cynicallly. She knew the lumps were gone, but she wanted the doctor to confirm it. The biopsy was not necessary since she eliminated the problem instead of dealing only with the symptoms as the doctor wanted. —–BEGIN PGP SIGNATURE—– Version: PGPfreeware 6.5.8 for non-commercial use <http://www.pgp.com iQA/AwUBO+UNJ6Qs0IDIVV8JEQKV9wCg1BNlRWLHW4zFjUaNwUpKuzY3aJIAn2Q3 PkAq4d/u5lrG3SR66sLOluqq =nJOi —–END PGP SIGNATURE—–

Response:

– Hide quoted text — Show quoted text – here read this… hey if you don’t like what ancient people like old romans, Greeks, Indians, chinese used to cure from any deseases with urinetharpy why don’t you piss off by yourself and people who really need help here read by yourself… "Piss off"? Better "pissed off" than "pissed on…"   ;-) URINETHERAPY CURES ENURESIS!!! (All you have to do is piss the bed on purpose before going to sleep!) Tin-foil beany-caps cure mental illness!  Film at Eleven! Testimonial by

Anna!     She wears it to keep "them" from beaming thoughts into her head…. intelligent thoughts or otherwise…. must not be working too well…… ;-) – Hide quoted text — Show quoted text – Realistically…  I am a total laryngectomee.  Doesn’t anybody think I’d have done anything tp prevent having lost my voice to cancer.  To avoid having to breathe through a stoma (hole in my neck) for the rest of my life? To avoid the pain of the surgery, radiation and compliucations? Damn straight, if there was a "magic bullet" I’d have sought it out instead. The problem is that I’d rather live.  So I study the techniques that have allowed others to survive.  Playing around with my urine may have some kind of kinky sex-pleasure value to some, but it’s never proven to have any documented survival value whatsoever. By the way…  Regarding "testimonials" and "true tories…" Washing Venetian blinds in a bath tub causes fuses to blow!  I know because I have witnessed it first-hand!   The minute my older brother turned on the water, the lights went out.

    WOW! So that’s why my fuses all blew. I’ll have to cut that out, somebody might get hurt! :-)

Response:

read this… Urine therapy (also known as urea therapy) is a type of alternative therapy that involves the drinking or rubbing onto the skin of one’s own urine. Urine therapy has been practised for thousands of years and has merely fallen a bit into obscurity in the last century. However, urine therapy may seem to be unorthodox and perhaps revolutionary, it does not introduce anything new or original. It has been known throughout the centuries both in the West and in the East. The first question that probably comes to mind is whether urine is not a toxic substance and how a toxic waste product could ever be of any benefit for your health. Well, urine is NOT a toxic waste product and this has been scientifically proven. 95% of urine is water, 2.5% consists of urea and the remaining 2.5% is a mixture of minerals, salt, hormones and enzymes. Toxic substances are being removed from the body through the liver and intestines, through the skin and through the outbreath. The main function of the kidneys is to keep the composition of the blood in optimal balance. When there is too much water, the kidneys will remove it. But that doesn’t make water into a toxic waste product. Only the substance urea can be poisonous when present in very large amounts in the blood. However, this is irrelevant in the practice of drinking urine, as urine is not immediately put back in the bloodstream. In the small amounts urea gets back into the body, it is purifying, clears up excess mucus and has a number of specific, very useful effects. Moreover, it has a wonderful healing and tonifying effect when applied to the skin. You can find urea in many skin products as one of the main components This brings us at a last important feature of urine. Urine itself is, as said, not a toxic waste product. It does contain, however, minute particles connected with possible disease processes in the body. These minute particles are mainly antibodies, which upon re-ingesting can help the body to react on specific pathological situations. Dr. Evagelos Danopouolos of Greece reported that urea found in urine has anti-cancerous properties. The urea seems to disrupt the ability of cancer cells to group together and kills them by upsetting some of their normal metabolic activities. Urine therapy has been used to treat cancers of the skin, cervix, lungs, eyes, breast, and liver. Liquid urea can be injected into the skin around skin tumors or directly into the tumors themselves. Powdered urea can be applied to tumors, and it can be taken orally in liquid or pill form. This is a much less-disgusting method than urinating into a glass and drinking it! – Hide quoted text — Show quoted text – you people listen carefully! ther is no desease that urinetheray doesn’t cure. you don’t loose anything but gain your lifes back when you try it! all ancient nations used it and using still…already 4 000 years…just type URINETHERAPY on net and evey searchmachine has hondreds of pages and books and testimonials..succes to every body and don’t forget to testimony when you are cured! here read this shortly… Have you ever wondered why, if urine is so beneficial to the body, we have kidneys designed to excrete it? Or why people with kidney failure

Response:

read this… Urine therapy (also known as urea therapy) is a type of alternative therapy that involves the drinking or rubbing onto the skin of one’s own urine.

You are a seriously sick woman

Response:

Well, At least Anna isn’t selling her own urine, and she certainly doesn’t make a profit on my urine. She may be a quack (opinion withheld), but you got to admit it’s not spam in the usual sense of the word. — Berky the Warrior Folie

Hi from Australia – Im a newbie

Question:

‘Twas Wed, 09 May 2001 12:41:45 GMT  when the wise and venerated TSNowWhat? <tourettenoww…@home.com enlightened alt.support.tourette with these thought provoking words: irritable bowel syndrome, narcolepsy, Tourette’s disorder, migraine, fibromyalgia, chronic fatigue syndrome, and kleptomania. Seven conditions in search of a punch line.

And the punch line may be I’ve had all seven.  This is spooky.  Have you found a magic key?  Has this much of my life been all about the high quantity of phosphorus in my diet? Since receiving treatment for sleep apnea, I haven’t had symptoms of migraine or narcolepsy (except for a few days in a hotel in Ohio, until I realized the CPAP hose was getting squeezed between the pillow and the headboard).  So that wasn’t dietary, was it?  But perhaps there is a connection even there. I haven’t had a problem with kleptomania in over 30 years, but I still have those urges.  In recent years I’ve had some bouts of what could be irritable bowel.  I was disappointed that CPAP didn’t completely solve chronic fatigue.  I certainly suffer symptoms of chronic fatigue to this day.  And have I been smoking marijuana for fibromyalgia?  That’s looking quite possible.  I haven’t had pain like your son, but I’ve been pretty doped up. Reading about fibromyalgia there’s a whole lot I identify with. Let me go eat some salami while I think about this.  B^) — RB |  

Having a positive ion day?

Question:

How many of you felt more patient, healthy and in a good mood yesterday (Fri., Aug. 11)? I know I had boundless energy. I found a web site that predicts the stock market and athletic performances of athletes such as Tiger Woods and Alex Rodriguez based on the ratio of positive or negative ions in the atmosphere. It also explains how moods are affected. "An excess of positive ions can have unpleasant physical effects such as: Body pains, headaches, dizziness, twitching of the eyes, nausea, fatigue, respiratory difficulties, allergies, asthma, heart and circulatory disorders (heart attacks approx. 50% higher)

Facing Hysterectomy Too Young. Some Alt. Options? HELP!!!!!

Question:

If I had done it quicker, you would have only seen the message once.    

Gheez…..a lengthy post all about urine…….why didn’t you send it private e-mail?? Hmmmm. Jan

Response:

Hi there I genuinely feel for you, Unfortunately I can’t offer you a magic cure in a bottle unlike some here who think allopathy can. I can suggest a visit to a Chinese herbalist, I don’t know if they are expensive where you are, but here we get a visit and about 2 weeks of herbs for about $30 which really isn’t much. I know my sister was cured of hep c by using Chinese herbs exclusively (this I found out today). I always knew Chinese herbs have some pretty good results with many problems, but they also taste bad too I believe hehe. Most Chinese herbalists will do acupuncture also, but please see a genuine herbalist, and someone who genuinely believes in what he/she is doing. I prefer one of Chinese origin and education, they know much more and have an insight into it. No offence to any herbalists of western origin including some of you acupuncturists. Kinesiology is another good option, but probably more expensive. I know if you were here I would help out no matter your financial situation. I only charge what can be afforded and will even accept barter. Unfortunately there’s not many in this world who cares enough to make health care affordable to all. Love and Light Steven

– Hide quoted text — Show quoted text – Hello Group, I’m New; My First Post. Can Anyone Advise? I have severe endometriosis (dysfunctional uterine bleeding). It’s back with a vengeance, after I had it surgically removed 2 years ago this month (just as the doctors predicted). Now they say my only hope (if I ever want relief from the pain) is a radical hysterectomy (everything goes: uterus, ovaries, tubes, cervix). After the surgery, they put you on estrogen replacement therapy so you don’t wind up with osteoporosis or heart disease, among other horrors. — I DONT WANT TO HAVE TO DO THIS — I already have terrible, debilitating PMS. I now understand that the hormone replacement therapies often cause PMS-like symptoms. I have been looking at other ng’s (one for endo, another for menopause, which is where I will be after the surgery — menopausal, that is). Most of the women who have had hysterectomies (for whatever reason) and the subsequent hormonal replacement therapy seem to be no better or even *worse* than they were before. Many of them sound so hopeless. They say things like, "well, my life is over." Nearly 10 years ago (I was 24) I was diagnosed with massive, bilateral ovarian cysts (10 centimeters each). The docs wanted to do a hysterectomy then. I decided to try the macrobiotic cancer diet instead. Low and behold, the ovaries shrunk back to normal. I found it difficult if not impossible to stay on the cancer diet, however, and gradually slipped back to my old "junk-food vegetarian" ways. I’m ready to try it again. I’m older now; have more discipline and certainly this time greater motivation (it’s real serious: the endo is wrapping around my intestines — sorry so graphic). What I need to know is this: I am not wealthy, and I recall that a macrobiotic diet called for all kinds of expensive goodies. Further, I have ZERO energy — and I do mean nada, zip, zilch. I can’t fathom myself toiling away in the kitchen for any length of time, stirring my adzuki beans. Any suggestions how follow this diet on a budget — and how to keep it (really, really) simple, so I don’t collapse on the kitchen floor? Anything you feel inclined to say to me — really, any advice at all, even if it’s a non-macrobiotic suggestion — would be untellably appreciated. T-minus 14 days to my surgery date. Someone please help me DEFINITIVELY talk myself out of this. No cancer is (thus far) indicated. I’m in constant unrelieved pain and my emotions are — well, I’m nearly nuts. Thanks so much, H.

Response:

You posted it twice also . T

– Hide quoted text — Show quoted text – Tool, It is lengthy, So I have put some of these **** where it explains why urine shouldn’t be considered a "Medicine Tool" Urine Therapy Drink water from your own cistern, flowing water from your own well. (The Book of Proverbs 5:15) Urine therapy refers to one of several uses of urine to prevent or cure sickness, to enhance beauty or to cleanse one’s bowels. Most devotees drink the midstream of their morning urine. Some prefer it straight and steaming hot; others mix it with juice or serve it over fruit. Some prefer a couple of urine drops mixed with a tablespoon of water applied sublingually several times a day. Hip New Agers no doubt prefer to take their dose with their evening salad tossed with Piss & Vinegar dressing, available at alternative specialty shops. Some wash themselves in their own golden fluid to improve their skin quality. Many modern Japanese women are said to engage in urine bathing. The truly daring use their own urine as an enema. Urine is not quite the breakfast of champions, but it is the elixir of choice of a number of holy men in India where drinking urine has been practiced for thousands of years. The drink is also the preferred pick-me-up for a growing number of naturopaths and other advocates of  "nature cures." The main attractions of this ultimate home brew are its cost, availability and portability. It is much cheaper than that other "water of life," whisky (uisge beatha), which also has been hailed for its medicinal qualities. Unlike whisky, however, urine is always available, everyone carries a supply at all times, and, for most people, there are no intoxicating side effects. Furthermore, the urge to overindulge is almost absent when drinking urine.  The same can’t be said for good single malt such as Highland Park or a good whiskey such as Black Bush. Many advocates claim that urine is a panacea. There is practically nothing it won’t cure. Urine is said to be effective against the flu, the common cold, broken bones, toothache, dry skin, psoriasis and all other skin problems. It is said to deter aging and is helpful with AIDS, allergies,  animal  and snake bites,  asthma, heart disease, hypertension, burns, cancer, chemical intoxication, chicken pox, enteritis, constipation,  and pneumonia. Urine is said to be effective against dysentery, edema, eczema, eye irritation, fatigue, fever, gonorrhea, gout, bloody urine, small pox, immunological disorders, infections, infertility, baldness,  insomnia, jaundice, hepatitis, Kaposi’s sarcoma, leprosy, lymphatic disorder,  urticaria, morning sickness, hangover, obesity, papilloma virus,  parasitoses, gastric ulcer,  rheumatism,  birth marks, stroke, congestion, lumbago, typhus, gastritis, depression, cold sore, tuberculosis,  tetanus, Parkinson’s disease, foot fungus, diabetes and other endocrine related diseases. Some enthusiasts see urine therapy as a divine manifestation of cosmic intelligence. They use urine to unleash their kundalini, sending it straight into the third eye, bringing instant enlightenment. With such wondrous properties, it is amazing that science bothered developing medicine when it had the key to good health already in the bottle, so to speak. Each of us is a walking pharmacopoeia. Homer Smith (Man and His Gods) once wrote that "man is a machine for turning wine into urine." Little did he know that man is a machine for turning just about anything into a medicinal tonic. ***Despite the claims by authors of books on urine therapy, the scientific evidence which would recommend that we all start drinking our own urine is piss poor. According to urninophiles, the medical establishment has conspired to keep us ignorant of the wonder drug we all carry in our bladders. One self-proclaimed expert on the subject claims …the medical community has already been aware of [urine's] astounding efficacy for decades, and yet none of us has ever been told about it. Why? Maybe they think it’s too controversial. Or maybe, more accurately, there wasn’t any monetary reward for telling people what scientists know about one of the most extraordinary natural healing elements in the world.* This is a common argument from defenders of alternative therapies: the greed of medical doctors leads them to conspire against chiropractors, chelation therapists, etc. The evidence for this conspiracy wouldn’t fill a specimen beaker. Part of the alleged conspiracy to keep us ignorant of the wonders of our own wee wee is the fact that many people think urine is poisonous. Urine is generally not toxic and you will not die of uremic poisoning if you start your day off with a cup of your own golden fluid. However, it hardly seems fair to blame the medical establishment for the general public’s ignorance on this matter. In any case, just because something is not toxic does not mean it is good for you. Hair is not toxic, either, and even though it might be a good source of fiber, it is generally not desirable to put hair in food. Furthermore, while it is true that some of the constituents of urine are being used and tested for their potential or actual therapeutic value, it does not follow that drinking one’s urine is therapeutic. It may be discovered that one of the chemicals in human urine is effective for fighting cancer. However,  drinking one’s own urine is not likely going to supply enough of any cancer fighting substance to do any good. It is also true that some of the substances in urine are good for you. For example, if you are ingesting more vitamin C (a water soluble vitamin) than your body needs or can process, you will excrete it in your urine. It doesn’t follow that drinking your urine is a good way to get vitamin C into your body. An orange or a tablet might be preferable. However, if you are urinating excess vitamin C, what do you think your body will do with the vitamin C you ingest with your urine? If you guessed that it would get rid of it, you guessed right. The reason your urine contains vitamins and minerals is because your body didn’t need them or couldn’t use them. You might as well pour water into a full glass as reuptake your excess vitamins and minerals. Even urea, which can be toxic in very high doses, occurs in such minute quantities in the average person’s urine that there is very little chance of  poisoning from drinking one’s own urine. The origin of this unusual practice seems to be in certain religious rites among Hindus, where it is called amaroli in tantric religious traditions. The tantric tradition is known for its flouting of conventional behavior as a means of establishing the moral superiority of its practitioners. It is also possible that this practice is related to superstitions based on sympathetic magic. Since urine is emitted from the same bodily organ used in sex, perhaps it was thought that by drinking one’s urine one was swallowing some sort of sexual energizer. In any case,   it is unlikely that Indians some 4,000 years ago had scientific reasons for drinking their own urine. Another rather unscientific notion which seems to be accepted by urinophiles is that urine is really blood, since it is the byproduct of blood filtering by the kidneys. It is unlikely that if you need a blood transfusion that urine will work just as well. Another misleading claim being made by urninophiles is that amniotic fluid is nothing but urine: fetal urine. If it is good for the fetus, it should be good for all of us. Here is what urine expert Martha . . . the amniotic fluid that surrounds human infants in the womb is primarily urine. Actually, the infant "breathes in" urine-filled amniotic fluid continually, and without this fluid, the lungs don’t develop. Doctors also believe that the softness of baby skin and the ability of in-utero infants to heal quickly without scarring after pre-birth surgery is due to the therapeutic properties of the urine-filled amniotic fluid. Some of the chemicals found in amniotic fluid are not going to be found in most urine samples. It is misleading, to say the least, to claim that amniotic fluid is "primarily" urine. It would be more accurate to say that they are both primarily water. I don’t know what doctors she is talking about, but most parents will tell you that when their babies came out of the womb their skin was anything but beautiful. Comparisons to wrinkly prunes are quite common. So is comparison to one’s skin after being in the swimming pool for a long time. The baby’s skin becomes soft only after it has been out of its liquid environment for some time. There is a reason for that, according to Kim Kelly, a naturopathic doctor and nurse from Seattle. Newborns don’t produce oil from their sebaceous glands until several weeks after their birth, which is why they often appear to have dry, flaky skin. Rather than amniotic fluid contributing to soft skin, according to Kelly, babies in the womb are protected by vernix, a creamy substance that serves as a barrier between the baby and the amniotic fluid. So, unless your urine is full of vernix, using it as a skin lotion is unlikely to work as a moisturizer. What is urine? Urine is usually yellow or clear, depending upon a person’s health and diet. It usually has an ammonia-like odor due to the nitrogenous wastes that make up about 5% of the fluid (the remaining 95% is water). It is a slightly acidic fluid which carries waste from the kidneys to the outside world. The

… read more »

Response:

<< Lastly, if you feel in your heart that having a total hysterectomy is a = mistake – do NOT go through with the surgery. What wise words!

Response:

Andyito, Please post any info you can to prove that urine will not work . You seem to be the one thinking up cute little sexual/psycho comments about this . You have posted not one thing to back up your position . It takes courage to take charge of your own health . Something you seem to be bankrupt in .    T

– Hide quoted text — Show quoted text – Oh, so it takes courage to urinate on oneself!   I thought it would be a lack of hygiene!    And you have the gall to tell others to grow up? As for the serious psycho/sexual problems, you are the one engaged in the propagation of urination application mis-information.    In other words, You are projecting. Stop the madness and use the toilet instead. . I think that you and a few others here talk big doo doo , but you and your clones here, have not / will not even look to see if something such as urine can help . Seems to me what with your and Andy’s repeated adolescent words about this subject , have some very serious psycho/sexual problems . Grow up please . I and others have had the courage to check this out , you have not . So please tell us why we should take what twisted ideas you have about this or any other health modalities , over the opinion of people who have at least done there own research . { flawed possibly , but none the less more than blathering on as you do .}  I hope that you are only ignorant , you still might learn something . T Andrew Kingoff Find out why Hulda Clark is bad for your health! http://www.uoguelph.ca/~kkolas/#teeth

Response:

I see much opinion , but where is the PROOF ?  All you have posted is one more cute blathering.  T

– Hide quoted text — Show quoted text – Tool, It is lengthy, So I have put some of these where it explains why urine shouldn’t be considered a "Medicine Tool" Urine Therapy Drink water from your own cistern, flowing water from your own well. (The Book of Proverbs 5:15) Urine therapy refers to one of several uses of urine to prevent or cure sickness, to enhance beauty or to cleanse one’s bowels. Most devotees drink the midstream of their morning urine. Some prefer it straight and steaming hot; others mix it with juice or serve it over fruit. Some prefer a couple of urine drops mixed with a tablespoon of water applied sublingually several times a day. Hip New Agers no doubt prefer to take their dose with their evening salad tossed with Piss & Vinegar dressing, available at alternative specialty shops. Some wash themselves in their own golden fluid to improve their skin quality. Many modern Japanese women are said to engage in urine bathing. The truly daring use their own urine as an enema. Urine is not quite the breakfast of champions, but it is the elixir of choice of a number of holy men in India where drinking urine has been practiced for thousands of years. The drink is also the preferred pick-me-up for a growing number of naturopaths and other advocates of  "nature cures." The main attractions of this ultimate home brew are its cost, availability and portability. It is much cheaper than that other "water of life," whisky (uisge beatha), which also has been hailed for its medicinal qualities. Unlike whisky, however, urine is always available, everyone carries a supply at all times, and, for most people, there are no intoxicating side effects. Furthermore, the urge to overindulge is almost absent when drinking urine.  The same can’t be said for good single malt such as Highland Park or a good whiskey such as Black Bush. Many advocates claim that urine is a panacea. There is practically nothing it won’t cure. Urine is said to be effective against the flu, the common cold, broken bones, toothache, dry skin, psoriasis and all other skin problems. It is said to deter aging and is helpful with AIDS, allergies,  animal  and snake bites,  asthma, heart disease, hypertension, burns, cancer, chemical intoxication, chicken pox, enteritis, constipation,  and pneumonia. Urine is said to be effective against dysentery, edema, eczema, eye irritation, fatigue, fever, gonorrhea, gout, bloody urine, small pox, immunological disorders, infections, infertility, baldness,  insomnia, jaundice, hepatitis, Kaposi’s sarcoma, leprosy, lymphatic disorder,  urticaria, morning sickness, hangover, obesity, papilloma virus,  parasitoses, gastric ulcer,  rheumatism,  birth marks, stroke, congestion, lumbago, typhus, gastritis, depression, cold sore, tuberculosis,  tetanus, Parkinson’s disease, foot fungus, diabetes and other endocrine related diseases. Some enthusiasts see urine therapy as a divine manifestation of cosmic intelligence. They use urine to unleash their kundalini, sending it straight into the third eye, bringing instant enlightenment. With such wondrous properties, it is amazing that science bothered developing medicine when it had the key to good health already in the bottle, so to speak. Each of us is a walking pharmacopoeia. Homer Smith (Man and His Gods) once wrote that "man is a machine for turning wine into urine." Little did he know that man is a machine for turning just about anything into a medicinal tonic. ***Despite the claims by authors of books on urine therapy, the scientific evidence which would recommend that we all start drinking our own urine is piss poor. According to urninophiles, the medical establishment has conspired to keep us ignorant of the wonder drug we all carry in our bladders. One self-proclaimed expert on the subject claims …the medical community has already been aware of [urine's] astounding efficacy for decades, and yet none of us has ever been told about it. Why? Maybe they think it’s too controversial. Or maybe, more accurately, there wasn’t any monetary reward for telling people what scientists know about one of the most extraordinary natural healing elements in the world.* This is a common argument from defenders of alternative therapies: the greed of medical doctors leads them to conspire against chiropractors, chelation therapists, etc. The evidence for this conspiracy wouldn’t fill a specimen beaker. Part of the alleged conspiracy to keep us ignorant of the wonders of our own wee wee is the fact that many people think urine is poisonous. Urine is generally not toxic and you will not die of uremic poisoning if you start your day off with a cup of your own golden fluid. However, it hardly seems fair to blame the medical establishment for the general public’s ignorance on this matter. In any case, just because something is not toxic does not mean it is good for you. Hair is not toxic, either, and even though it might be a good source of fiber, it is generally not desirable to put hair in food. Furthermore, while it is true that some of the constituents of urine are being used and tested for their potential or actual therapeutic value, it does not follow that drinking one’s urine is therapeutic. It may be discovered that one of the chemicals in human urine is effective for fighting cancer. However,  drinking one’s own urine is not likely going to supply enough of any cancer fighting substance to do any good. It is also true that some of the substances in urine are good for you. For example, if you are ingesting more vitamin C (a water soluble vitamin) than your body needs or can process, you will excrete it in your urine. It doesn’t follow that drinking your urine is a good way to get vitamin C into your body. An orange or a tablet might be preferable. However, if you are urinating excess vitamin C, what do you think your body will do with the vitamin C you ingest with your urine? If you guessed that it would get rid of it, you guessed right. The reason your urine contains vitamins and minerals is because your body didn’t need them or couldn’t use them. You might as well pour water into a full glass as reuptake your excess vitamins and minerals. Even urea, which can be toxic in very high doses, occurs in such minute quantities in the average person’s urine that there is very little chance of  poisoning from drinking one’s own urine. The origin of this unusual practice seems to be in certain religious rites among Hindus, where it is called amaroli in tantric religious traditions. The tantric tradition is known for its flouting of conventional behavior as a means of establishing the moral superiority of its practitioners. It is also possible that this practice is related to superstitions based on sympathetic magic. Since urine is emitted from the same bodily organ used in sex, perhaps it was thought that by drinking one’s urine one was swallowing some sort of sexual energizer. In any case,   it is unlikely that Indians some 4,000 years ago had scientific reasons for drinking their own urine. Another rather unscientific notion which seems to be accepted by urinophiles is that urine is really blood, since it is the byproduct of blood filtering by the kidneys. It is unlikely that if you need a blood transfusion that urine will work just as well. Another misleading claim being made by urninophiles is that amniotic fluid is nothing but urine: fetal urine. If it is good for the fetus, it should be good for all of us. Here is what urine expert Martha . . . the amniotic fluid that surrounds human infants in the womb is primarily urine. Actually, the infant "breathes in" urine-filled amniotic fluid continually, and without this fluid, the lungs don’t develop. Doctors also believe that the softness of baby skin and the ability of in-utero infants to heal quickly without scarring after pre-birth surgery is due to the therapeutic properties of the urine-filled amniotic fluid. Some of the chemicals found in amniotic fluid are not going to be found in most urine samples. It is misleading, to say the least, to claim that amniotic fluid is "primarily" urine. It would be more accurate to say that they are both primarily water. I don’t know what doctors she is talking about, but most parents will tell you that when their babies came out of the womb their skin was anything but beautiful. Comparisons to wrinkly prunes are quite common. So is comparison to one’s skin after being in the swimming pool for a long time. The baby’s skin becomes soft only after it has been out of its liquid environment for some time. There is a reason for that, according to Kim Kelly, a naturopathic doctor and nurse from Seattle. Newborns don’t produce oil from their sebaceous glands until several weeks after their birth, which is why they often appear to have dry, flaky skin. Rather than amniotic fluid contributing to soft skin, according to Kelly, babies in the womb are protected by vernix, a creamy substance that serves as a barrier between the baby and the amniotic fluid. So, unless your urine is full of vernix, using it as a skin lotion is unlikely to work as a moisturizer. What is urine? Urine is usually yellow or clear, depending upon a person’s health and diet. It usually has an ammonia-like odor due to the nitrogenous wastes that make up about 5% of the fluid (the remaining 95% is water). It is a slightly acidic fluid

… read more »

Response:

Dear Windblow , IMHO ,You as usual have nothing to offer except your ignorant little attempts at causing sick folks more pain , time waiting for your man-god in a white coat to find a solution to life’s pains and problems . I think that you and a few others here talk big doo doo , but you and your clones here, have not / will not even look to see if something such as urine can help . Seems to me what with your and Andy’s repeated adolescent words about this subject , have some very serious psycho/sexual problems . Grow up please . I and others have had the courage to check this out , you have not . So please tell us why we should take what twisted ideas you have about this or any other health modalities , over the opinion of people who have at least done there own research . { flawed possibly , but none the less more than blathering on as you do .}  I hope that you are only ignorant , you still might learn something . T

– Hide quoted text — Show quoted text – X-No-Archive: Yes Before your 14 days pass , you can read the book " YOUR OWN PERFECT MEDICINE * Which will tell you to drink PISS!!!!  Yep,.. you too can become a urine drinker….  *GAG*  There is nothing in urine to remove endomertial implants, scar tissue or adhesions not to mention any endometriomas she may have.  What’s next?  Stool on a stick? " .  You can find part of it on-line . I guess you might find it in a GOOD book store . * In the new-age section reserved for books on UFO’s, Bigfoot etc. The author had went through a lot of the same thing as you . She found an answer that cured it. Without surgery.    Best to you , Tools *  How many gallons of urine do you drink a week now Mr. Tools? — Y Before buying any health care products on the net see: http://www.wellweb.com/ALTERN/bunko/bunko.htm http://www.quackwatch.com http://www.mlmwatch.org

Response:

Endometriosis is a condition caused by mislocation and overgrowth of uterine endometrial tissue and attachment of this tissue to other organs. It’s normal tissue growing in abnormal places. Common Causes: Excess levels of estrogen, deficient progesterone, hormone imbalance thatcauses abnormal biochemical processes in the edometrium; sexually transmitted chlamydia, cervical dysplasia or vaginal warts; magnesium deficiency; hypoglycemia; EFA deficiency and prostaglandin imbalance; X-ray consequences; high fat diet with too much caffeine and alcohol. I’m treating two women currently for both endo and fibroids. They have changed their diets to mostly fresh foods. One of them has detoxed using a fasting method. The other one plans to detox, but hasn’t yet. They are both using wild yam cream with DHEA and these herbs…. Dong Quai Root, Blessed Thistle, Siberian Ginseng, Squaw Vine, Cramp Bark, Black Cohosh, Ginger Root, Red Raspberry, Dandelion, and Nettles. One is using Evening Primrose Oil, the other Flax Seed Oil. I also have them use ginger compresses or baths for cramping and pain when needed. Both of them had been put on birth control pills, one had also been on depo-provera. One has also had D&C’s. One has three children, the other has none. None of these things had worked for either of them. The one with the three children has been recommended for a hysterectomy, and is scheduled to see another doctor for a second opinion, but is currently pain free. The other one has already gone through all the doctors and currently isn’t seeing one, but she is also pain free right now. Try calling the endometriosis hotline for more information…(800) 992-ENDO There is also a Dr. Redwine who has some very interesting theories regarding endometriosis. He has done follow-up studies on the type of surgery he performs, which show approximately 75% of his patients experience complete relief of symptoms, 20% an improvement in symptoms so that they are only in minimal pain. Only 5%report no relief whatsoever. You might want to contact his for information on his procedure, even though it includes a surgery. You can obtain information on Dr. Redwine and his approach at this address… Endometriosis Treatment Program St. Charles Medical Center 2500 NE Neff Road Bend, OR. 97701-6015 (503) 382-4321 I also have a letter from a woman who was under Dr. Redwine’s care, if you are interested in seeing her experiences with him. — Kay http://www.herbcare.com

– Hide quoted text — Show quoted text – Hello Group, I’m New; My First Post. Can Anyone Advise? I have severe endometriosis (dysfunctional uterine bleeding). It’s back with a vengeance, after I had it surgically removed 2 years ago this month (just as the doctors predicted). Now they say my only hope (if I ever want relief from the pain) is a radical hysterectomy (everything goes: uterus, ovaries, tubes, cervix). After the surgery, they put you on estrogen replacement therapy so you don’t wind up with osteoporosis or heart disease, among other horrors. — I DONT WANT TO HAVE TO DO THIS — I already have terrible, debilitating PMS. I now understand that the hormone replacement therapies often cause PMS-like symptoms. I have been looking at other ng’s (one for endo, another for menopause, which is where I will be after the surgery — menopausal, that is). Most of the women who have had hysterectomies (for whatever reason) and the subsequent hormonal replacement therapy seem to be no better or even *worse* than they were before. Many of them sound so hopeless. They say things like, "well, my life is over." Nearly 10 years ago (I was 24) I was diagnosed with massive, bilateral ovarian cysts (10 centimeters each). The docs wanted to do a hysterectomy then. I decided to try the macrobiotic cancer diet instead. Low and behold, the ovaries shrunk back to normal. I found it difficult if not impossible to stay on the cancer diet, however, and gradually slipped back to my old "junk-food vegetarian" ways. I’m ready to try it again. I’m older now; have more discipline and certainly this time greater motivation (it’s real serious: the endo is wrapping around my intestines — sorry so graphic). What I need to know is this: I am not wealthy, and I recall that a macrobiotic diet called for all kinds of expensive goodies. Further, I have ZERO energy — and I do mean nada, zip, zilch. I can’t fathom myself toiling away in the kitchen for any length of time, stirring my adzuki beans. Any suggestions how follow this diet on a budget — and how to keep it (really, really) simple, so I don’t collapse on the kitchen floor? Anything you feel inclined to say to me — really, any advice at all, even if it’s a non-macrobiotic suggestion — would be untellably appreciated. T-minus 14 days to my surgery date. Someone please help me DEFINITIVELY talk myself out of this. No cancer is (thus far) indicated. I’m in constant unrelieved pain and my emotions are — well, I’m nearly nuts. Thanks so much, H.

Response:

Hi H., After years on the pill, deciding to "go natural" (and having no need for birth control, for various reasons) I went off it and my genetic predisposition to endo took over.  Slowly at first, but after a few years, to a very debilitating level (bowel pain, three weeks of heavy bleeding/spotting each month, pain radiating down the thighs, etc.)  I simply went back on the pill.  Low dose, and the improvement was within the first two months. You don’t say if you can take birth control pills, or if you’ve tried them in the past, however, this did work for me.   As for your diet…do you have a crock pot?  It’s a great way to prepare beans, as well as healthy veggie soups and stews, and once you’re done chopping, keeps you off your feet.  Do you have a juicer?  Even an inexpensive one, while it may not last as long as some of the heavy-duty, expensive kinds, will allow you to ingest a great deal more veggie-goodness than you can eat.  (I started out with a Singer model I picked up at a Meijer’s store and it lasted…wow…about eight years with pretty frequent use.)  Start doing research on diet again – there are other ones besides macrobiotics being touted for helping support cancer healing that just may work for you as well without the stringencies of macrobiotics.  (Gary Null has a lot of interesting information about juicing in general for healthy and healing.) Evening primrose oil, borage, and flaxseed all help with the symptoms of PMS.  As does vitamin E.  Chasteberry is another old herbal remedy for regulating menstruation.  If you aren’t allergic to them, dandelion root (tea or capsules) also helps with its astringent, dieuretic effects.  Fresh fruit smoothies with silken tofu added are nutritious and help by adding more plant estrogens to your diet, which often helps mitigate your body producing too much.  Though you may find it a crazy suggestion now, aerobic exercise also helps (even if you can just muster up a short daily walk – get up and go.) Lastly, if you feel in your heart that having a total hysterectomy is a mistake – do NOT go through with the surgery.  It is not the kind of decision you can change your mind about later (though of course it can remain an option.)  Simply call your doctor and cancel.  Endo and fibroids both tend to go away on their own after menopause and you may find the endo’s return merely a symptom you have reached perimenopause but by doing things similar to those you did ten years ago, you can get it under control enough to wait for your body to handle things on its own. Good luck to you.  I do understand the frustration of your situation. PJ. Astrology & New Age Garnered Images Astrology [ Where beauty moves and wit delights and signs of kindness bind me, there, oh there, wher’ere I go, I leave my heart behind me. (Thomas Ford, 1607) [

  Hello Group, I’m New; My First Post. Can Anyone Advise?   I have severe endometriosis (dysfunctional uterine bleeding). It’s back with a   vengeance, after I had it surgically removed 2 years ago this month (just as   the doctors predicted). Now they say my only hope (if I ever want relief from   the pain) is a radical hysterectomy (everything goes: uterus, ovaries, tubes,   cervix). After the surgery, they put you on estrogen replacement therapy so you   don’t wind up with osteoporosis or heart disease, among other horrors.   — I DONT WANT TO HAVE TO DO THIS —   I already have terrible, debilitating PMS. I now understand that the hormone   replacement therapies often cause PMS-like symptoms. I have been looking at   other ng’s (one for endo, another for menopause, which is where I will be after   the surgery — menopausal, that is). Most of the women who have had   hysterectomies (for whatever reason) and the subsequent hormonal replacement   therapy seem to be no better or even *worse* than they were before. Many of   them sound so hopeless. They say things like, "well, my life is over."   Nearly 10 years ago (I was 24) I was diagnosed with massive, bilateral ovarian   cysts (10 centimeters each). The docs wanted to   do a hysterectomy then. I decided to try the macrobiotic cancer diet instead.   Low and behold, the ovaries shrunk back to normal. I found it difficult if not   impossible to stay on the cancer diet, however, and gradually slipped back to   my old "junk-food vegetarian" ways.   I’m ready to try it again. I’m older now; have more discipline and certainly   this time greater motivation (it’s real serious: the endo is wrapping around my   intestines — sorry so graphic). What I need to know is this: I am not wealthy,   and I recall that a macrobiotic diet called for all kinds of expensive goodies.   Further, I have ZERO energy   — and I do mean nada, zip, zilch. I can’t fathom myself toiling away in the   kitchen for any length of time, stirring my adzuki beans. Any suggestions how   follow this diet on a budget — and how to keep it (really, really) simple, so   I don’t collapse on the kitchen floor?   Anything you feel inclined to say to me — really, any advice at all, even if   it’s a non-macrobiotic suggestion — would be untellably appreciated. T-minus   14 days to my surgery date. Someone please help me DEFINITIVELY talk myself out   of this. No cancer is (thus far) indicated. I’m in constant unrelieved pain and   my emotions are — well, I’m nearly nuts.   Thanks so much,   H.

Response:

Before your 14 days pass , you can read the book " YOUR OWN PERFECT MEDICINE " .  You can find part of it on-line . I guess you might find it in a GOOD book store . The author had went through a lot of the same thing as you . She found an answer that cured it. Without surgery.    Best to you ,   Tools

– Hide quoted text — Show quoted text – Hello Group, I’m New; My First Post. Can Anyone Advise? I have severe endometriosis (dysfunctional uterine bleeding). It’s back with a vengeance, after I had it surgically removed 2 years ago this month (just as the doctors predicted). Now they say my only hope (if I ever want relief from the pain) is a radical hysterectomy (everything goes: uterus, ovaries, tubes, cervix). After the surgery, they put you on estrogen replacement therapy so you don’t wind up with osteoporosis or heart disease, among other horrors. — I DONT WANT TO HAVE TO DO THIS — I already have terrible, debilitating PMS. I now understand that the hormone replacement therapies often cause PMS-like symptoms. I have been looking at other ng’s (one for endo, another for menopause, which is where I will be after the surgery — menopausal, that is). Most of the women who have had hysterectomies (for whatever reason) and the subsequent hormonal replacement therapy seem to be no better or even *worse* than they were before. Many of them sound so hopeless. They say things like, "well, my life is over." Nearly 10 years ago (I was 24) I was diagnosed with massive, bilateral ovarian cysts (10 centimeters each). The docs wanted to do a hysterectomy then. I decided to try the macrobiotic cancer diet instead. Low and behold, the ovaries shrunk back to normal. I found it difficult if not impossible to stay on the cancer diet, however, and gradually slipped back to my old "junk-food vegetarian" ways. I’m ready to try it again. I’m older now; have more discipline and certainly this time greater motivation (it’s real serious: the endo is wrapping around my intestines — sorry so graphic). What I need to know is this: I am not wealthy, and I recall that a macrobiotic diet called for all kinds of expensive goodies. Further, I have ZERO energy — and I do mean nada, zip, zilch. I can’t fathom myself toiling away in the kitchen for any length of time, stirring my adzuki beans. Any suggestions how follow this diet on a budget — and how to keep it (really, really) simple, so I don’t collapse on the kitchen floor? Anything you feel inclined to say to me — really, any advice at all, even if it’s a non-macrobiotic suggestion — would be untellably appreciated. T-minus 14 days to my surgery date. Someone please help me DEFINITIVELY talk myself out of this. No cancer is (thus far) indicated. I’m in constant unrelieved pain and my emotions are — well, I’m nearly nuts. Thanks so much, H.

Response:

Hello Group, I’m New; My First Post. Can Anyone Advise? I have severe endometriosis (dysfunctional uterine bleeding). It’s back with a vengeance, after I had it surgically removed 2 years ago this month (just as the doctors predicted). Now they say my only hope (if I ever want relief from the pain) is a radical hysterectomy (everything goes: uterus, ovaries, tubes, cervix). After the surgery, they put you on estrogen replacement therapy so you don’t wind up with osteoporosis or heart disease, among other horrors.                                 — I DONT WANT TO HAVE TO DO THIS — I already have terrible, debilitating PMS. I now understand that the hormone replacement therapies often cause PMS-like symptoms. I have been looking at other ng’s (one for endo, another for menopause, which is where I will be after the surgery — menopausal, that is). Most of the women who have had hysterectomies (for whatever reason) and the subsequent hormonal replacement therapy seem to be no better or even *worse* than they were before. Many of them sound so hopeless. They say things like, "well, my life is over." Nearly 10 years ago (I was 24) I was diagnosed with massive, bilateral ovarian cysts (10 centimeters each). The docs wanted to do a hysterectomy then. I decided to try the macrobiotic cancer diet instead. Low and behold, the ovaries shrunk back to normal. I found it difficult if not impossible to stay on the cancer diet, however, and gradually slipped back to my old "junk-food vegetarian" ways. I’m ready to try it again. I’m older now; have more discipline and certainly this time greater motivation (it’s real serious: the endo is wrapping around my intestines — sorry so graphic). What I need to know is this: I am not wealthy, and I recall that a macrobiotic diet called for all kinds of expensive goodies. Further, I have ZERO energy — and I do mean nada, zip, zilch. I can’t fathom myself toiling away in the kitchen for any length of time, stirring my adzuki beans. Any suggestions how follow this diet on a budget — and how to keep it (really, really) simple, so I don’t collapse on the kitchen floor? Anything you feel inclined to say to me — really, any advice at all, even if it’s a non-macrobiotic suggestion — would be untellably appreciated. T-minus 14 days to my surgery date. Someone please help me DEFINITIVELY talk myself out of this. No cancer is (thus far) indicated. I’m in constant unrelieved pain and my emotions are — well, I’m nearly nuts. Thanks so much, H.

Response:

no wheelchair?

Question:

This sounds like the sort of thing I need it for.  I don’t intend to sit in it all day.  Unfortunately, where I live is too hilly and rough to use it around the farm.  But in town it would be great.  No need around the house at all. Thanks Carmel – Hide quoted text — Show quoted text -concerned4…@my-deja.com wrote:

In article <37A2C2E5.7FA59…@ledanet.com.au,   Carmel Pacey Digby <jara…@ledanet.com.au wrote: Anyway, it could be worse.  I can still do everything (only a lot less of it) and I look fairly normal <8-O. It also could be better.  Get the wheelchair.  My husband has MND and got an electric wheelchair two years ago.  You know what he uses it for?  So he can "walk" around our lovely neighborhood.  Doesn’t sound like much but it lets him feel less trapped.  He still uses a cane when we’re out and about in town because it’s flat there and the walks are short. But the chair lets him decide when a stroll in the neighborhood is in order.  At his last exam his neurologist was baffled at how well his muscles are doing so the chair has not caused him to sit around and atrophy. — Support the anti-Spam amendment. Join the fight http://www.cauce.org/ Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.

— " Don’t wait for a light to appear at the end of the tunnel.   Stride down there and light the bloody thing yourself."

Response:

I’ve been looking at powered wheelchairs and finding out how to get one.  I can walk quite well, but only for a short distance.  Fatigue is also a big problem. so if I want to go somewhere where I would need to walk a lot, I sometimes use a chair.  I can’t push it along by myself, though.  My arms run out of muscle in about four pushes.   I saw my neuro last week and asked him about this.  He said I shouldn’t use a wheelchair because it will only make my legs even weaker.  I can see his point, but the reality is that if I don’t use one, I can’t do much.   He also now thinks I don’t have MS after all.  My leg reflexes are decreased and there is demonstrable weakness everywhere, and some reduced nerve conduction in my legs.  My MRI spots are apparently "non-specific" and spinal tap and VER show nothing.  So I have to have a muscle and nerve biopsy to see if I have peripheral neuropathy.  So I really don’t know where I am at the moment.  One doc says it’s definitely MS and everyone else says it probably isn’t.   Meanwhile, I still can’t walk far, and have less energy every day.  With various other problems surfacing (eye pain, asthma, heart problems and a painful, palpable mass in my belly) things aren’t improving much, and he says just keep walking and doing everything as normal.  No wheelchair needed.  I wonder what he’d do if he was like this?   Carmel — " Don’t wait for a light to appear at the end of the tunnel.   Stride down there and light the bloody thing yourself."

Response:

Carmel Pacey Digby wrote: I wonder what he’d [doctor] do if he was like

this? < Dear Carmel — I’m betting he’d get another doctor. If you really want to know, though, just ask him. Calmly, clearly and straightforward just ask, "What would you do in my situation?" My best regards to you — Meg

Response:

In article <37A122B1.26EDD…@ledanet.com.au

, Carmel Pacey Digby

<jara…@ledanet.com.au

writes: I saw my neuro last week and asked him about this.  He said I shouldn’t use a wheelchair because it will only make my legs even weaker.  I can see his point, but the reality is that if I don’t use one, I can’t do much.  

This is a fine line.  I think you should have the wheelchair available for "distance" like I do (though the meaning of "distance"  keeps getting shorter and shorter!) but avoid using the thing inside your house.  That’s where I’m at right now.  I use a crutch full-time inside, because I was tired of falling every week to ten days and banging myself up.   If you use the wheelchair ALL the time, your legs *will* get weaker.  But doesn’t doc understand that is not what you are talking about?  I would seriously consider  changing doctors if he is this dense and insensitive.   Kathi

Response:

On Fri, 30 Jul 1999 13:57:37 +1000, Carmel Pacey Digby <jara…@ledanet.com.au

wrote: Meanwhile, I still can’t walk far, and have less energy every day.  With various other problems surfacing (eye pain, asthma, heart problems and a painful, palpable mass in my belly) things aren’t improving much, and he says just keep walking and doing everything as normal.  No wheelchair needed.  I wonder what he’d do if he was like this?  

Carmel, Stop worrying about the wheelchair (which I think would help) and get some help for the mass in your belly.  Until someone can tell you for certain that they know exactly what it is and when it will stop hurting, keep insisting.  If you have not had a CT-scan of your abdomen and pelvic, an ultrasound (including a transvaginal if the mass is low), and a colonoscopy DO NOT STOP! Also be sure you have had the simplest blood test — a complete blood count–  to be sure that this growing fatigue is not due to anemia which might be related to internal bleeding. When I say colonoscopy, I mean a full examination of the entire length of the colon.  Don’t stop at a sigmoidoscopy which many docs will tell you is "just as good."  It isn’t.  With adequate meds, the exam should not hurt, just leave you dopey and dizzy and wondering what the hell happened. Good luck. Kate

Response:

In article <37A2C2E5.7FA59…@ledanet.com.au

,

  Carmel Pacey Digby <jara…@ledanet.com.au

wrote: Anyway, it could be worse.  I can still do everything (only a lot less

of it)

and I look fairly normal <8-O.

It also could be better.  Get the wheelchair.  My husband has MND and got an electric wheelchair two years ago.  You know what he uses it for?  So he can "walk" around our lovely neighborhood.  Doesn’t sound like much but it lets him feel less trapped.  He still uses a cane when we’re out and about in town because it’s flat there and the walks are short. But the chair lets him decide when a stroll in the neighborhood is in order.  At his last exam his neurologist was baffled at how well his muscles are doing so the chair has not caused him to sit around and atrophy. — Support the anti-Spam amendment. Join the fight http://www.cauce.org/ Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.

Response:

You know, Carmel — Kate makes an excellent point here which I glossed over as well. It’s the mass that’s the thing. My best regards, Meg

Response:

Thanks for the care and concern, Tick – and Kate too.  I *am going after the important stuff.  It takes a long time because I can’t get appointments with the specialists for weeks or months.  But I’m having all kinds of tests.  I feel a lot better after yet another course of antibiotics, except for the tiredness, but I do wonder what the tests will find out if the acute problem is long over before I can get them.  Unfortunately this is the price of living so far from the big cities.   I’ve also gone off my tucker a bit, and this might have the desirable side-effect (eventually) of getting rid of some weight, thereby making walking a bit easier (??)  I’m hanging out for my appointment with a doctor I trust and respect.  He’s an endocrinologist and diagnostician, and was very supportive and helpful when I had cancer.  If anyone can find out what’s wrong, he can.  I’ve been asking for a referral to him for a long time, and finally got one.  But I can’t see him for a few weeks yet.  He’s *very* busy.  I think it’s probably worth the wait.   More waiting for a muscle & nerve biopsy, too.  My neuro has referred that to someone in Brisbane who he says is the very best.  I can have it done here and sent down there.  But it will take a long time to get the results because this expert is apparently in great demand.  Neuro says this, too, will be worth the wait.  Sure hope so.   Anyway, it could be worse.  I can still do everything (only a lot less of it) and I look fairly normal <8-O.  And maybe they’ll find something that can fix it.  In any case, after this round of tests etc. – whatever they find out – I’m off to the herbalist and the acupuncturist (maybe even the bee hive).  I’ve had enough of doctors for a while.  What I really need is a nice long holiday in a luxury apartment by the sea. <gggggg

Carmel – Hide quoted text — Show quoted text -G T wrote:

Carmel darlin’, you said, "I wonder what he’d do if he was like this?"………….. He would most likely immediately start on all 3 of the ABC’s as well as Rebif.  He’d have all the fillings removed from his teeth and start chelation asap.  He’d go on a low fat, gluten free diet and stop all intake of suger free Aspartame spiked food and drink.  He’d have all the nitric oxide leached from his body and start sleeping on an inclined bed so his Mannatech. Noni, and blue green algae wouldn’t back into his throat as he slept.  He would start Carie’s treatment as well as the enzyme from the lady in Washington State.  While doing all this he would be in Mexico getting the magic wand treatment along with the BST and BVT, PDQ. Then a year or so from now when you see him on the street sitting in his w/c with drool running down his chin, you can ask him cheerily, "wouldn’t you like to get up and walk with me a ways?" I’m with Kate.  Get the tummy looked at first, priorities remember? Then go get the damn w/c if it makes life easier.  My neuro didn’t want me to have one either, but since I can’t drive my truck or ride my horse into the supermarket, I overruled her and got a chair.  Just for the long trips. Get that important stuff taken care of first. The MS ain’t gonna kill ya but some of the other stuff might. Worried hugs, Tick http://community.webtv.net/OLTICK/GTakaTICKsWEBPAGE

— " Don’t wait for a light to appear at the end of the tunnel.   Stride down there and light the bloody thing yourself."

Response:

On 30 Jul 1999 14:27:58 GMT, kamatth…@aol.com (Kathi Matthews) wrote:

If you use the wheelchair ALL the time, your legs *will* get weaker.  But doesn’t doc understand that is not what you are talking about?  I would seriously consider  changing doctors if he is this dense and insensitive.  

Any muscle not used will get weaker and may even atrophy.  This doesn’t mean you shouldn’t use a wheelchair as much as you need it. Get exercise at the gym, the physical therapists, lying on the floor where you can’t fall over, in the pool.  The notion that you will sit in a wheelchair and shrivel away is nuts. Of course, you can do that.  The wheelchair begins to be a symbol of how weak and infirm you are, how unable to move.  You sit and withdraw.  That’s nuts too. Kate

Response:

Carmel darlin’, you said, "I wonder what he’d do if he was like this?"………….. He would most likely immediately start on all 3 of the ABC’s as well as Rebif.  He’d have all the fillings removed from his teeth and start chelation asap.  He’d go on a low fat, gluten free diet and stop all intake of suger free Aspartame spiked food and drink.  He’d have all the nitric oxide leached from his body and start sleeping on an inclined bed so his Mannatech. Noni, and blue green algae wouldn’t back into his throat as he slept.  He would start Carie’s treatment as well as the enzyme from the lady in Washington State.  While doing all this he would be in Mexico getting the magic wand treatment along with the BST and BVT, PDQ. Then a year or so from now when you see him on the street sitting in his w/c with drool running down his chin, you can ask him cheerily, "wouldn’t you like to get up and walk with me a ways?" I’m with Kate.  Get the tummy looked at first, priorities remember? Then go get the damn w/c if it makes life easier.  My neuro didn’t want me to have one either, but since I can’t drive my truck or ride my horse into the supermarket, I overruled her and got a chair.  Just for the long trips. Get that important stuff taken care of first. The MS ain’t gonna kill ya but some of the other stuff might. Worried hugs, Tick http://community.webtv.net/OLTICK/GTakaTICKsWEBPAGE

Response:

Asthma cure? You be the judge

Question:

– Hide quoted text — Show quoted text -modern medicine is still evolving and we need to be humble — two years ago i researched and wrote a book on diet to prevent  heart disease- the co-author and editor delayed things and came back to me recently – I’ve nearly rewritten my half of the book including the recommendations thanks to new findings. Medicine is moving so fast that it is difficult for anyone to keep up and make sense of research findings that are often contrdictory. There is very little research on diet and asthma and the results are contradictory. The epidemiological data shows that areas where people he a higher intake of salt increased levels of asthma. However restricting salt rarely has any effect on asthmatics. People can be sensitive to food– British research on children with behavior problems for example shows that food additives, coloring and even some food stuffs can trigger severe violence.

Are you sure about this. I thought the research found no link between food additives and behavioral problems in children. Do you have a reference for any reports? Remove the spam from address if replying by email

Response:

demonstrate the proper level of training and competence. I hope you are not suggesting that we let self proclaimed gurus with no credentials join.

CBI – I am not inferring that you *must* work with every person who proclaims themselves a healer.  I am suggesting, though, that MD’s start accepting the fact that there are many legitimate alternative practitioners out here who are very successful at what they do.   The positive impact on patients could be tremendous if, instead of MD’s fighting against alternative, they could work in conjunction with each other.  Out of the alternative practitioners that I have had experience with, not one of them could get any consideration from the conventional medical community.  I’m not talking about faith healers and water diviners, mind you.  I am referring to DC’s, DO’s and the like.  These people want to work in tandem with the medical community – it’s the MD’s, for the most part,  who have been unwilling to do so.  My hope is that some day the good of the patient will rise above this lack of communication between the two.

Response:

DC’s and DO’s are pretty well accepted. DO’s get the same licensee that MD’s have. They also can take the same boards and practice in the same hospitals. As for the others I don’t think the MD’s are to blame. If they want to practice "outside conventional medicine" fine, do so. Just don’t go whining about not being let in. You can’t have your cake and eat it too. We have a set of rules we have agreed to play by. Many of these rules were dictated by society and not the doctors. These other practitioners come along and don’t want to play by the rules, preferring instead to claim outsider status and infer that this leaves them somehow less subject to corruption. They then claim they are being "kept out". The whole thing is insane. It is like me claiming that major league baseball is keeping me out. — Good Luck, CBI, M.D.

– Hide quoted text — Show quoted text – to demonstrate the proper level of training and competence. I hope you are not suggesting that we let self proclaimed gurus with no credentials join. CBI – I am not inferring that you *must* work with every person who proclaims themselves a healer.  I am suggesting, though, that MD’s start accepting the fact that there are many legitimate alternative practitioners out here who are very successful at what they do.   The positive impact on patients could be tremendous if, instead of MD’s fighting against alternative, they could work in conjunction with each other.  Out of the alternative practitioners that I have had experience with, not one of them could get any consideration from the conventional medical community.  I’m not talking about faith healers and water diviners, mind you.  I am referring to DC’s, DO’s and the like.  These people want to work in tandem with the medical community – it’s the MD’s, for the most part,  who have been unwilling to do so.  My hope is that some day the good of the patient will rise above this lack of communication between the two.

Response:

People can be sensitive to food– British research on children with behavior problems for example shows that food additives, coloring and even some food stuffs can trigger severe violence. This is a common misconception. There were a few early, small, poorly conducted studies that seemed to show this. When attempts were made to replicate the results with larger, blinded studies the results did not hold up. There is no good data suggesting that food additives or refined sugars affect violence in adults, hyperactivity in children, or asthma. — Good Luck, CBI, M.D.

– Hide quoted text — Show quoted text -modern medicine is still evolving and we need to be humble — two years ago i researched and wrote a book on diet to prevent  heart disease- the co-author and editor delayed things and came back to me recently – I’ve nearly rewritten my half of the book including the recommendations thanks to new findings. Medicine is moving so fast that it is difficult for anyone to keep up and make sense of research findings that are often contrdictory. There is very little research on diet and asthma and the results are contradictory. The epidemiological data shows that areas where people he a higher intake of salt increased levels of asthma. However restricting salt rarely has any effect on asthmatics. People can be sensitive to food– British research on children with behavior problems for example shows that food additives, coloring and even some food stuffs can trigger severe violence. I ask my patients to experiment– go on diet with few foods and then gradually add one new item every alternate day. If there is no reaction — asthma or allergy then it’s ok– move on to the next item. There seem to be two factors operating food allergy – where the person develops a reaction and food sensitivity– where a food may trigger an attack. Often if one avoids the offending item for 6- months the immune system normalizes and the person is no longer sensitive. Occasionally after a gap a the person may have a much more severe reaction (possibly levels of blocking antibodies fall)– my experience has been that allergy testing  may occasionally help but RAST and other immunological tests are a waste. The thing to do is to learn how to listen to your body — if something doesn’t suit you avoid it- animals do it all the time– dayal — Dayal Mirchandani MD. Asthma/Heart http://www.geocities.com/HotSprings/Spa/6604 Anti Spam: Remove the X from the e-mail address. Auto Reply button will not work The ‘food pyramid’ is just a very basic guideline to nutrition.  It’s quite suitable for people who have no underlying negative health condition. However,

Response:

Anyone can join the club. They just have to demonstrate the proper level of training and competence. I hope you are not suggesting that we let self proclaimed gurus with no credentials join. — Good Luck, CBI, M.D.

– Hide quoted text — Show quoted text -Harold Spatz writes:  Medicine and Science have come a long way in the last few hundred years and we are seeing the results of it.  But they have barely scratched the surface in understanding the human body and how it works and reacts. Harold – it’s good to hear from people like you who believe that there is more to treating an illness than to suppress the body’s natural responses to disease and pain.   I liken the AMA to the builders of the Titanic – the AMA, also, thinks that they are capable of overriding nature’s forces with their synthetic drugs.  I don’t boycott conventional medicine; it has made some very important advances for the benefit of mankind.  Nonetheless, they have been conditioned to treat illness one symptom at a time, whereas alternative practitioners concentrate on prevention.  Ideally, both alternative and allopathic practitioners should work together. Unfortunately the majority of conventional MD’s refuse to give alt. practitioners a membership into the ‘good ol’ boy’s club’, and because we humans are conditioned to stay with the familiar, we tend to follow what is more common.

Response:

There was a study done where they looked at children who’s parents all felt that sugar and food additives affected their behavior. They fed different diets to the kids and then had both trained observers and their parents observe and rate them. None of the observers knew what diet the kids had consumed. This was repeated on different days with different diets given to the same kids. Neither the trained observers nor the parents could predict which days their children had consumed refine sugar or food additives. — Good Luck, CBI, M.D.

– Hide quoted text — Show quoted text -caowens writes:  Chemical food additives, yes, if they happen to be included in your triggers; but on what basis do you condemn refined sugar? Chris -I ‘condemn’ refined sugar on the basis that chemicals are used in the refining process.  Also, I have seen the positive effects that cutting it out of my son’s diet has had on his health. Not necessarily.  It might be a sign of an hyperactive immune system, or an out-of-balance immune system. Whether the immune system is suppressed or hyperactive, it is, either way, out of balance.  I realize that an asthma attack itself is most often the result of hyper-activity on the part of the immune system, however; the main trigger for my son’s attacks, which are upper-respiratory infections, are a result of a suppressed immune system. <<Not at all.  I know why: 1.  Variable risk of exposure. 2.  Variable immune response. People existing in close proximity of each other carry an equal risk of exposure, although not all people who exist in close proximity succumb to illness.  To address point #2; why does each individual’s immune response vary? Because some people have strong, healthy immune systems and other people’s immune systems are compromised for one reason or another. Carol

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And have learned to place less than godlike faith in traditional medicine ?    Medicine and Science have come a long way in the last few hundred years and we are seeing the results of it.  But they have barely scratched the surface in understanding the human body and how it works and reacts.

But compare this knowlege with the knowlege of the alternative medicine people.  At least there is a factual basis for conventional medicine.

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modern medicine is still evolving and we need to be humble — two years ago i researched and wrote a book on diet to prevent  heart disease- the co-author and editor delayed things and came back to me recently – I’ve nearly rewritten my half of the book including the recommendations thanks to new findings. Medicine is moving so fast that it is difficult for anyone to keep up and make sense of research findings that are often contrdictory. There is very little research on diet and asthma and the results are contradictory. The epidemiological data shows that areas where people he a higher intake of salt increased levels of asthma. However restricting salt rarely has any effect on asthmatics. People can be sensitive to food– British research on children with behavior problems for example shows that food additives, coloring and even some food stuffs can trigger severe violence. I ask my patients to experiment– go on diet with few foods and then gradually add one new item every alternate day. If there is no reaction — asthma or allergy then it’s ok– move on to the next item. There seem to be two factors operating food allergy – where the person develops a reaction and food sensitivity– where a food may trigger an attack. Often if one avoids the offending item for 6- months the immune system normalizes and the person is no longer sensitive. Occasionally after a gap a the person may have a much more severe reaction (possibly levels of blocking antibodies fall)– my experience has been that allergy testing  may occasionally help but RAST and other immunological tests are a waste. The thing to do is to learn how to listen to your body — if something doesn’t suit you avoid it- animals do it all the time– dayal — Dayal Mirchandani MD. Asthma/Heart http://www.geocities.com/HotSprings/Spa/6604 Anti Spam: Remove the X from the e-mail address. Auto Reply button will not work – Hide quoted text — Show quoted text – The ‘food pyramid’ is just a very basic guideline to nutrition.  It’s quite suitable for people who have no underlying negative health condition. However,

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Colin – That you are cautious in your acceptance of any kind of treatment, be it conventional or alternative, is very wise.  Nobody should approach any treatment with their eyes closed.   The point that I have been attempting to make has only been that nothing should be overlooked as a possible treatment for any illness.  What works for my son undoubtedly will not work with everyone – all people respond to treatment differently.  However, there are people out there who can benefit from a multitude of both allopathic and alternative treatments that are available, but only if they are aware of them.  The way many people first become aware of the various treatments is by reading about personal experiences with them in newsgroups such as these.  Then we, as individuals, need to use common sense in not blindly following a stranger’s advise without first educating ourselves.

The problem is that you seem to have made a blanket assumption that your particular treatment ‘works’ based on nothing more that your unscientific observation of one person. Another problem with ‘alternative’ medicine is that you cannot evaluate the risks and benefits as (unlike conventional medicine) there is no requirement for the proponents to validate thier claims.  In fact many people marketing ‘alternative’ treatments deliberately hide information about the dangers of a particullar treatment. What we need are 1) licensing standards for ‘alternative’ practiconers, 2) professional liability – and the requirement that they have malpractice insurance 3) require safety testing for _all_ alterbative treatments 4) criminal penalties for any deception regarding the safety and/or effectivness of the treatment and 5) greater resources for the FDA and the FTC to investigate fraud in the alternative medicine industry.

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Harold Spatz writes:  Medicine and Science have come a long way in the last few hundred years and we are seeing the results of it.  But they have barely scratched the surface in understanding the human body and how it works and reacts.

Harold – it’s good to hear from people like you who believe that there is more to treating an illness than to suppress the body’s natural responses to disease and pain.   I liken the AMA to the builders of the Titanic – the AMA, also, thinks that they are capable of overriding nature’s forces with their synthetic drugs.  I don’t boycott conventional medicine; it has made some very important advances for the benefit of mankind.  Nonetheless, they have been conditioned to treat illness one symptom at a time, whereas alternative practitioners concentrate on prevention.  Ideally, both alternative and allopathic practitioners should work together. Unfortunately the majority of conventional MD’s refuse to give alt. practitioners a membership into the ‘good ol’ boy’s club’, and because we humans are conditioned to stay with the familiar, we tend to follow what is more common.

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I do not claim to know every detail of every system of the human body, nor have I ever inferred that I do.  

With that admission you open your mind to real learning !  More medical providers need to take such an open stance.   A book I’d recommend is Dr.Doris Rapp’s "Is This Your Child?"  I picked it up a few days ago and love it !  It is extremely enlightening on the topic of allergies. I have, however, done quite a bit of research into not only conventional treatment of asthma, but many of the alternative treatments, and in the process have learned quite a bit about the various inner workings of the human body, including the immune system.  

And have learned to place less than godlike faith in traditional medicine ?    Medicine and Science have come a long way in the last few hundred years and we are seeing the results of it.  But they have barely scratched the surface in understanding the human body and how it works and reacts. Harold Spatz Independent Alpine Air Dealer corporate Web Site http://www.alpineindustries.com

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Colin writes:  The problem here is that we do not know exactly what was responsible for the change.  You attribute it to one specific cause. I am a little more cautious and want to see if this is repeatable in other people or if it merely the result of coincidence. <

Colin – That you are cautious in your acceptance of any kind of treatment, be it conventional or alternative, is very wise.  Nobody should approach any treatment with their eyes closed.   The point that I have been attempting to make has only been that nothing should be overlooked as a possible treatment for any illness.  What works for my son undoubtedly will not work with everyone – all people respond to treatment differently.  However, there are people out there who can benefit from a multitude of both allopathic and alternative treatments that are available, but only if they are aware of them.  The way many people first become aware of the various treatments is by reading about personal experiences with them in newsgroups such as these.  Then we, as individuals, need to use common sense in not blindly following a stranger’s advise without first educating ourselves.

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Colin – as I said in my last post, you are completely unconvincing in your rhetoric.  You have no basis for the supposed ‘facts’ you keep repeating; I, however, have seen first-hand how someone reacts to the treatment that I refer to.

The problem here is that we do not know exactly what was responsible for the change.  You attribute it to one specific cause. I am a little more cautious and want to see if this is repeatable in other people or if it merely the result of coincidence.

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caowens writes:  Chemical food additives, yes, if they happen to be included

in your triggers; but on what basis do you condemn refined sugar?

Chris -I ‘condemn’ refined sugar on the basis that chemicals are used in the refining process.  Also, I have seen the positive effects that cutting it out of my son’s diet has had on his health.   Not necessarily.  It might be a sign of an hyperactive immune system, or an out-of-balance immune system.

Whether the immune system is suppressed or hyperactive, it is, either way, out of balance.  I realize that an asthma attack itself is most often the result of hyper-activity on the part of the immune system, however; the main trigger for my son’s attacks, which are upper-respiratory infections, are a result of a suppressed immune system.   <<Not at all.  I know why: 1.  Variable risk of exposure. 2.  Variable immune response.

People existing in close proximity of each other carry an equal risk of exposure, although not all people who exist in close proximity succumb to illness.  To address point #2; why does each individual’s immune response vary?  Because some people have strong, healthy immune systems and other people’s immune systems are compromised for one reason or another. Carol

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Colin – as I said in my last post, you are completely unconvincing in your rhetoric.  You have no basis for the supposed ‘facts’ you keep repeating; I, however, have seen first-hand how someone reacts to the treatment that I refer to.  To use a statement of yours as an example of you talking out both sides of your mouth, so to speak, is (and I quote):  ….I demand that a proposed treatment meet specific objective critera, while you simply want something that sounds good.<

What exactly are you trying to say here?  By talking in circles, You may feel that you come off as educated on this subject, but it’s obvious by the way you stick to your vague claims of knowledge that it is a feeble attempt at a smokescreen.  I at first I looked forward to a very interesting debate with you, but it seems to have stalled.  I do not claim to know every detail of every system of the human body, nor have I ever inferred that I do.  I have, however, done quite a bit of research into not only conventional treatment of asthma, but many of the alternative treatments, and in the process have learned quite a bit about the various inner workings of the human body, including the immune system.  

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Colin – I will dispense with the quotes for the benefit of saving time. Besides, your answers to my statements are not very convincing. Your statements show that you have no willingness to practice what you preach as far as learning as much as possible about asthma and the wide range of treatments out there for it.

I fail to see your point.  I am willing to spend the time to research out the research conducted into what asthma is, and I am willing to research source materials regarding asthma treatments.  Where we seem to disagree is that I demand that a proposed treatment meet specific objective critera, while you simply want something that sounds good.   It’s too bad that you are willing to settle for what someone else tells you do instead of looking around to see what really will work for you.  People like you who limit themselves to one way of thinking without looking at all possibilities are short-changing themselves.

I do look around.  I also do an analysis to determine the potential benefits, the potential harm, and the likleyhood of each.  I ask questions and do actual research. One thing I do not do is use myself as a guiena pig.   I will say that what works for my son’s asthma will not work with everyone, just as what med works with some people will not work with all.  However, I have personally seen the results of this treatment work on other people – I didn’t need to wait for scientific results to come out in print.

The problem here is that what you ’see’ may not really be there.  This is why the scientific method was developed.  It is human nature for people to decieve themselves in order "see" the effects they are looking for – if you do not use caution then you can mistakenly assume that two unconnected events share a cause-effect relationship.   As far as asthma being the result of an hyper-active immune system – my son’s asthma is triggered primarily by viruses like colds and such.  Because his immune system was suppressed, he was unable to fight off these simple colds, consequently setting off the chain of events that led to his frequent asthma attacks.

You keep saying that his immune system was suppressed.  How do you know this?  Or are you simply making another assumption?  (BTW, if your immune system is suppressed the doctor will know it). You really should learn something about how the immune system operates.

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The ‘food pyramid’ is just a very basic guideline to nutrition.  It’s quite suitable for people who have no underlying negative health condition.  However, it cannot be relied on for diabetics, nor for people with asthma or other adverse health problems.  Refined sugars and chemical food additives are a real problem for people affected by asthma

Chemical food additives, yes, if they happen to be included in your triggers; but on what basis do you condemn refined sugar? If you have a healthy immune system, your body can usually cope with the occasional mild illness.  When chronic illness is present, that is, in fact, a sign of a suppressed immune system.  

Not necessarily.  It might be a sign of an hyperactive immune system, or an out-of-balance immune system. When the immune system isn’t up to par, it can’t cope with, for example, a cold virus, whereas a person with a healthy immune system has no problems with the virus.  Ever wonder why some people seem to be sick all of the time during the cold & flu season, and others seem to not be affected at all?  

Not at all.  I know why: 1.  Variable risk of exposure. 2.  Variable immune response. Chris Owens

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Colin – I will dispense with the quotes for the benefit of saving time. Besides, your answers to my statements are not very convincing. Your statements show that you have no willingness to practice what you preach as far as learning as much as possible about asthma and the wide range of treatments out there for it.  It’s too bad that you are willing to settle for what someone else tells you do instead of looking around to see what really will work for you.  People like you who limit themselves to one way of thinking without looking at all possibilities are short-changing themselves.  I will say that what works for my son’s asthma will not work with everyone, just as what med works with some people will not work with all.  However, I have personally seen the results of this treatment work on other people – I didn’t need to wait for scientific results to come out in print.  As far as asthma being the result of an hyper-active immune system – my son’s asthma is triggered primarily by viruses like colds and such.  Because his immune system was suppressed, he was unable to fight off these simple colds, consequently setting off the chain of events that led to his frequent asthma attacks.  Because we choose to look at the underlying conditions that affect his asthma, we are able to control it much better.  Take your nose out of that scientific journal and check out the options out there – you may be pleasantly surprised at what there is to discover.

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The ‘food pyramid’ is just a very basic guideline to nutrition.  It’s quite suitable for people who have no underlying negative health condition.  However, it cannot be relied on for diabetics, nor for people with asthma or other adverse health problems.  Refined sugars and chemical food additives are a real problem for people affected by asthma and other health problems. Unfortunately, this kind of education is not given to most patients of allopaths.

Can you provide a reference that asthmatics have special dietary requirements?  All the scientific research I have read indicates that (with the exception of food allergies) a sensible diet is all that an asthmatic needs. I would like to see some citation references about the refined sugars and food additives – every time I have tried to track these down it resulted in the ’source’ being made up in somebody’s promotional literature.   I, too, have occasionally been precribed generic brands after being sent home with a night’s supply of a name brand med.  Not all doctors get sucked into the drug company rhetoric, just as not all consumers get taken in by scammers.  Most of us know that generic meds are no different than name-brands.  They are required to have the same ingredients – you just end up paying more for name-brands because they have to cover the cost of not only advertising, but all of those nice fancy dinners they sponsor for hospital personnel so they can sell them on their products.  (I have attended more than one of these – they are not an assumption on my part).

Be real carefull though.  Not all generics are exactly like name-brand medications.  I have no trouble with ‘generic’ albuterol but some people require a specific brand. Theophylline is another example where you need to be ‘brand-loyal’ as different brands can produce different levels of drug in the bloodstream. My regular doctor always prescribes generic albuterol, my specalist will only prescribe Proventil HFA (which he feels is safer). If you have a healthy immune system, your body can usually cope with the occasional mild illness.  When chronic illness is present, that is, in fact, a sign of a suppressed immune system.

Isn’t asthma an example of an ‘overenthuastic’ rather than ’suppressed’ immune system?  I have heard this claim a lot – typically made by people selling (bogus) products to ‘boost’ the immune system. We know too much about asthma nowadays to confuse it with a comprimised or suppressed immune system.   When the immune system isn’t up to par, it can’t cope with, for example, a cold virus, whereas a person with a healthy immune system has no problems with the virus.  Ever wonder why some people seem to be sick all of the time during the cold & flu season, and others seem to not be affected at all?  We are all exposed to all these viruses at one time or another – only people who’s immune system is functioning properly will not get ill.

Last October some Canadian researchers released a study where this observation was tested.  They found that over a course of several years all generally healthy people will get ill at roughly equal rates.  Another intresting result from that study was that the vegetable oil placebo was found to be better at preventing colds/flu than the homeopathic remedy they were testing it against. I beg to differ on the point of needing a good grounding in science and statistics to know what is working for me.  Nobody needs to be a rocket scientist to observe how their own health is.  As for statistics, nobody will have a textbook case.  Textbook cases take statistics and combine them to give people a general idea of what to expect – they apply to no one person.

The problem is that without an objective yardstick, you have no idea whether it is really working for you or not.  The scientific method and statistical analysis were designed to overcome human nature and our tenedncy towards fooling ourselves. I think that the real problem is, Colin, that you are afraid to trust in your own capability of reasoning and deduction.

Actually, I am very confident in my capabilities in terms of reasoning and deduction.  So sure in fact that I always use objective standards to test my assumptions.  I am also aware that the fact that I believe something dosen’t necessarily mean it is true.  I also recognise that just because something appears to be causing another thing to occur – dosent mean that that is what is really happening.   Doctors should not have a monopoly on all knowledge pertaining to our health.  Yes, doctors are quite valuable in their diagnostic abilities, and they alone can dispense prescriptions, but that doesn’t mean that the rest of us should sit back and leave all of the decisions to them.  The knowledge is out there for the public – it is not classified information.

You are correct.  That is why I encourage everybody to learn about asthma and read the research behind the science of asthma.  The more you know about asthma the easier it is to spot the quacks.   What we need to do is take more initiative and make use of those resources that can benefit us as individuals.  As far as testing any beliefs, I have been testing my belief in the treatment of my son’s asthma since last June.  So far, results have been very positive compared to any previous treatment he had received.  Exactly what more do I need to qualify for someone who has ‘tested a belief’?

Well, for one thing you need to test your belief.  All you have done is assume a cause/effect relationship based on one (unscientific) trial.

Response:

Colin writes: My primary doctor has the habit of forcing phamphlets

describing the ‘food pyramid’ with the recommended dietary intake of various foods.  He also keeps giving me pamphlets on the dangers of smoking and drinking.  When I tell him that I don’t smoke and rarely drink, he tells me to give them to someone who does.<<< The ‘food pyramid’ is just a very basic guideline to nutrition.  It’s quite suitable for people who have no underlying negative health condition.  However, it cannot be relied on for diabetics, nor for people with asthma or other adverse health problems.  Refined sugars and chemical food additives are a real problem for people affected by asthma and other health problems. Unfortunately, this kind of education is not given to most patients of allopaths.   Actually, doctors get a lot of promotional material from the drug companies.  In fact the drug companies have no way of knowing which doctors are even prescribibg thier products. It amuses me when my doctor gives me the free starter pack for a particular medication, but prescribes a different brand (generally on the basis of the other brand is cheaper and just as good).

Yes; doctors DO get a lot of promotional material from the drug companies, which is what makes for good business for those same drug companies.  They don’t need to know which doctor is precribing their products – as long as they are being prescribed, that’s all that matters to them.  It’s the same as with any business – make the label known to the public and to the doctors; what is most familiar is what tends to get requested more.  I, too, have occasionally been precribed generic brands after being sent home with a night’s supply of a name brand med.  Not all doctors get sucked into the drug company rhetoric, just as not all consumers get taken in by scammers.  Most of us know that generic meds are no different than name-brands.  They are required to have the same ingredients – you just end up paying more for name-brands because they have to cover the cost of not only advertising, but all of those nice fancy dinners they sponsor for hospital personnel so they can sell them on their products.  (I have attended more than one of these – they are not an assumption on my part). There are specific times when a doctor should prescribe nutritional supplementation.  However, for the otherwise healthy person a reasonably balanced diet is all that is needed.<<<

I very much agree with you here, Colin.  Not everybody needs nutritional supplements.  I do not take any extra supplements, but my son, who has asthma, does.  There is such thing as overkill when taking too many supplements. << BTW, if your diet is so poor that it is affecting your immune system then you are going to have other medical problems show up first.

If you have a healthy immune system, your body can usually cope with the occasional mild illness.  When chronic illness is present, that is, in fact, a sign of a suppressed immune system.  When the immune system isn’t up to par, it can’t cope with, for example, a cold virus, whereas a person with a healthy immune system has no problems with the virus.  Ever wonder why some people seem to be sick all of the time during the cold & flu season, and others seem to not be affected at all?  We are all exposed to all these viruses at one time or another – only people who’s immune system is functioning properly will not get ill.  <<Any you are right, it does not take a degree in statistics to know if a treatment _appears_ to work or not.  But in order to know for sure you need a good grounding in science and statisitcs.

I beg to differ on the point of needing a good grounding in science and statistics to know what is working for me.  Nobody needs to be a rocket scientist to observe how their own health is.  As for statistics, nobody will have a textbook case.  Textbook cases take statistics and combine them to give people a general idea of what to expect – they apply to no one person. <<The problem is that _you_ really do not know.  You may think you do, but since you have never tested than belief you can not know for sure.<<

I think that the real problem is, Colin, that you are afraid to trust in your own capability of reasoning and deduction.  Doctors should not have a monopoly on all knowledge pertaining to our health.  Yes, doctors are quite valuable in their diagnostic abilities, and they alone can dispense prescriptions, but that doesn’t mean that the rest of us should sit back and leave all of the decisions to them.  The knowledge is out there for the public – it is not classified information.  What we need to do is take more initiative and make use of those resources that can benefit us as individuals.  As far as testing any beliefs, I have been testing my belief in the treatment of my son’s asthma since last June.  So far, results have been very positive compared to any previous treatment he had received.  Exactly what more do I need to qualify for someone who has ‘tested a belief’?

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Colin – Doctors consistently neglect to educate their patients on the value of good nutrition as a means to achieve optimum health.  I do not consider being told to "exercise and eat a balanced diet" sound nutritional counseling.  How many people actually know what a "balanced diet" is?

My primary doctor has the habit of forcing phamphlets describing the ‘food pyramid’ with the recommended dietary intake of various foods.  He also keeps giving me pamphlets on the dangers of smoking and drinking.  When I tell him that I don’t smoke and rarely drink, he tells me to give them to someone who does.   I don’t deal with vitamin salesmen; just like doctors who receive perks from drug companies for using their products, vitamin salesmen are out to make the almighty buck, also. Instead, I rely on my own experiences with different products, as well as product literature, to make a truly informed decision.

Actually, doctors get a lot of promotional material from the drug companies.  In fact the drug companies have no way of knowing which doctors are even prescribibg thier products. It amuses me when my doctor gives me the free starter pack for a particular medication, but prescribes a different brand (generally on the basis of the other brand is cheaper and just as good). I have a hard time believing that you believe that there is no connection between nutrition and adverse health conditions.  What about all the conventional doctors who recommend taking vitamin supplements?  What about people who have diet restrictions on account of having heart disease?  Every system in the body is affected by nutritional deficit.  Most important of all is the immune system.  Without proper nutrition, the immune system becomes suppressed, thereby directly affecting how the other systems of the body (cardiovascular, respiratory, digestive, etc.) function.  I do not base my opinions on what I’m told by the so-called "industry liars" – I instead rely on my own observations.  It does not take a degree in physics to determine what kind of treatment is working and what kind is not.

There are specific times when a doctor should prescribe nutritional supplementation.  However, for the otherwise healthy person a reasonably balanced diet is all that is needed. BTW, if your diet is so poor that it is affecting your immune system then you are going to have other medical problems show up first. Any you are right, it does not take a degree in statistics to know if a treatment _appears_ to work or not.  But in order to know for sure you need a good grounding in science and statisitcs. Colin – my opinion is that all the scientific proof in the world means nothing to me if it does not give me results.  That’s wonderful that standard treatment works for some people; if it doesn’t give me the results that I want, I do not consider it valid to me personally.  About insuring that what results I witness with my own eyes is actually there, who knows better than myself if I am feeling good as a result of a treatment?

The problem is that _you_ really do not know.  You may think you do, but since you have never tested than belief you can not know for sure.

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- Hide quoted text — Show quoted text –   Didn’t you make the comment about the dangers of human bias in research?  What measures do you take to ensure that what you witness with your own eyes, is actually there? Colin – my opinion is that all the scientific proof in the world means nothing to me if it does not give me results.  That’s wonderful that standard treatment works for some people; if it doesn’t give me the results that I want, I do not consider it valid to me personally.  About insuring that what results I witness with my own eyes is actually there, who knows better than myself if I am feeling good as a result of a treatment? How do you know what that alternative treatment is actually doing?  Are you relying on the word of the person selling it to you?  (And, is this a good idea?) < How do I know what alternative treatment is doing?  Like I said earlier, I know by how I am feeling.  I have much less fear of using nutritional supplements than I do using pharmaceuticals.  And no, I do not rely on anyone else’s word that they work.  I rely on personal experience.

THere really shouldn’t be this dichotomy between traditional and alternative therapies. Sadie’s comments are logical and valid and inarguable — if it works for me, it WORKS! THe problem is when less rational people, discouraged by the ‘apparent’ lack of effect of traditional medicine discard it and turn to alternatives. They can be led down a garden path from one ineffective alternative to another by a practioner who is not trained or regulated and whose major concern is profit not patient health (I know – that sounds a lot like a HMO – except for the regulated).  WHen parents do this for/TO their chidren it borders on criminal. In general – there’s nothing wrong with alternative approaches as adjuncts to traditional medicine.  If they make you feel better, great, but be careful if you wean yourself from traditional meds – many can cause severe problems if discontinued abruptly.

Response:

Colin writes: Actually, doctors do educate thier patients on the subject. The thing to remember is that the doctors stick to the actual facts (which is something the vitamin salesmen don’t do).

Colin – Doctors consistently neglect to educate their patients on the value of good nutrition as a means to achieve optimum health.  I do not consider being told to "exercise and eat a balanced diet" sound nutritional counseling.  How many people actually know what a "balanced diet" is?  I don’t deal with vitamin salesmen; just like doctors who receive perks from drug companies for using their products, vitamin salesmen are out to make the almighty buck, also. Instead, I rely on my own experiences with different products, as well as product literature, to make a truly informed decision.   Have you taken a close look at the ’science’ supporting these nutrition claims?  Nutritional therapy is only usefull for problems that are actually related to nutrition.  Since asthma is not a nutritional problem, and since nutritional supplements have been shown to have no real effect on asthma (with one minor exception).  Why should anybody waste thier money and support an industry that lies to its customers?

I have a hard time believing that you believe that there is no connection between nutrition and adverse health conditions.  What about all the conventional doctors who recommend taking vitamin supplements?  What about people who have diet restrictions on account of having heart disease?  Every system in the body is affected by nutritional deficit.  Most important of all is the immune system.  Without proper nutrition, the immune system becomes suppressed, thereby directly affecting how the other systems of the body (cardiovascular, respiratory, digestive, etc.) function.  I do not base my opinions on what I’m told by the so-called "industry liars" – I instead rely on my own observations.  It does not take a degree in physics to determine what kind of treatment is working and what kind is not.     Didn’t you make the comment about the dangers of human bias in research?  What measures do you take to ensure that what you witness with your own eyes, is actually there?

Colin – my opinion is that all the scientific proof in the world means nothing to me if it does not give me results.  That’s wonderful that standard treatment works for some people; if it doesn’t give me the results that I want, I do not consider it valid to me personally.  About insuring that what results I witness with my own eyes is actually there, who knows better than myself if I am feeling good as a result of a treatment? How do you know what that alternative treatment is actually doing?  Are you relying on the word of the person selling it to you?  (And, is this a good idea?) <

How do I know what alternative treatment is doing?  Like I said earlier, I know by how I am feeling.  I have much less fear of using nutritional supplements than I do using pharmaceuticals.  And no, I do not rely on anyone else’s word that they work.  I rely on personal experience

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training (down to the biochemical level) in nutrition.  And this information is available to us.  I suggest that you do some research into the ’science’ that supports most of these claims – then decide just how reliable an ‘alternative’ practiconer is.

Colin,    I realize that the information about the correllation between nutrition and health is out there; unfortunately, medical doctors will not educate their patients (and themselves) on this subject.  I have had experience with both conventional doctors and alternative practitioners.  I have dealt with a fairly broad sampling of both, and what I have seen is that the MD’s rely more on medications to treat symptoms, whereas alternative practitioners look deeper into what is actually causing the symptoms.  Then, using nutritional therapy among other natural treatments, they try to help the body itself cope with the condition.        As far as scientific research goes, what I witness with my own eyes is far more reliable research than something that has been tested on a bunch of rats, as far as I am concerned.  I believe there is a need for both conventional and alternative medicine.  I just don’t believe that being prescribed a medication to just cover up symptoms is very prudent when there is an alternative treatment out there that can help the body’s natural defenses deal with the problem.  I guess we’re just probably at opposite ends of the spectrum on this, but the conventional medical field has left a bad taste in my mouth after what we’ve gone through. Carol

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Colin,    I realize that the information about the correllation between nutrition and health is out there; unfortunately, medical doctors will not educate their patients (and themselves) on this subject.

Actually, doctors do educate thier patients on the subject. The thing to remember is that the doctors stick to the actual facts (which is something the vitamin salesmen don’t do).   I have had experience with both conventional doctors and alternative practitioners.  I have dealt with a fairly broad sampling of both, and what I have seen is that the MD’s rely more on medications to treat symptoms, whereas alternative practitioners look deeper into what is actually causing the symptoms.  Then, using nutritional therapy among other natural treatments, they try to help the body itself cope with the condition.

Have you taken a close look at the ’science’ supporting these nutrition claims?  Nutritional therapy is only usefull for problems that are actually related to nutrition.  Since asthma is not a nutritional problem, and since nutritional supplements have been shown to have no real effect on asthma (with one minor exception).  Why should anybody waste thier money and support an industry that lies to its customers?      As far as scientific research goes, what I witness with my own eyes is far more reliable research than something that has been tested on a bunch of rats, as far as I am concerned.

Didn’t you make the comment about the dangers of human bias in research?  What measures do you take to ensure that what you witness with your own eyes, is actually there?   I believe there is a need for both conventional and alternative medicine.  I just don’t believe that being prescribed a medication to just cover up symptoms is very prudent when there is an alternative treatment out there that can help the body’s natural defenses deal with the problem.  I guess we’re just probably at opposite ends of the spectrum on this, but the conventional medical field has left a bad taste in my mouth after what we’ve gone through.

How do you know what that alternative treatment is actually doing?  Are you relying on the word of the person selling it to you?  (And, is this a good idea?)

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More doctor/medication problems (long)

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Dear John Try mind-body healing– any good hypnotherapist should be able to help you with your pain. It has been used for painless surgery without chemical anaesthesia– so can be helpful even if psychological factors are not operative. dayal — Dayal Mirchandani MD. Asthma/Heart http://www.geocities.com/HotSprings/Spa/6604 Anti Spam: Remove the X from the e-mail address. Auto Reply button will not work – Hide quoted text — Show quoted text – The fun never seems to end around here. I want to preface this by mentioning that my shoulder/back problems are presently diagnosed as myofascial pain syndrome, not orthopedic problems at all. I

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2 x 4 therapy, now why did I not think of that? Good idea, Rauni. BTW, nice to see you here too. Ingrid (Slashmom to you!)– My house is maintained for the comfort of my Cardigan Welsh Corgis (Slash is one of them) – if you don’t like it, leave. – Hide quoted text — Show quoted text – I am so sick of MALE docs doing that to woman when THEY are frustrated what they need is a little 2 by 4 therapy I, according to a part of my chart, have a *histrionic personality* because I described in *great detail and with animation* what was wrong with me. I also *ruminated* about my problems. Yeah, you tend to go on trying to get it through their thick heads that you really hurt. Ingrid

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I would like to know if there is anyone in this group that hasn’t had it written in their chart that they have taken "too many" pain meds during some period.  My question is what in the world is too many? Who decides?  How?  We are talking about OUR bodies.  With support and guidance from the medical community you would think that this kind of daily pain should be delt with so we can live and enjoy life.  You really touched a sore spot with me John and I am really hoping the doc you have now works out for you.  I don’t think I ever want to see my chart.  It would probably send me into a 10 day migraine just from anger.   Stephanie

Aaaahhhhh!  Stehpanie, I think you hit the nail on the head, "support and guidance" don’t seem to exsist for most of those doctor folks, they care about power, cash, and when their next golf date is!  (Sorry guys, I’m getting fed up real quick with all of the medical profession! )  Finally got an appointment to see a nuero, as my primary care giver did not think it was necessary. Gin —

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: Sure. I was so organized, bringing in a list of questions to ask along with : the MRIs and X-rays that he’d requested, that a rheumatologist decided I : had obsessive-compulsive disorder. Even wrote it in my chart. And then : wondered why I didn’t go back to see him. I’m sorry, but I laughed when I read this.  You see, I *do* have a mild case of OCD and get kudos at work for my organizational skills.  ;-)   Priscilla

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[Post from John Martinez about infuriatingly inaccurate and judgemental notes in his medical records snipped] If there’s something in one’s credit report that needs a counter-note and one can have a letter inserted into one’s credit report, why the hell can’t the same thing be done with one’s medical records?  Makes sense to me… which is why it probably isn’t allowed. Priscilla

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I would like to know if there is anyone in this group that hasn’t had it written in their chart that they have taken "too many" pain meds during some period.  My question is what in the world is too many? Who decides?  How?  We are talking about OUR bodies.  With support and guidance from the medical community you would think that this kind of daily pain should be delt with so we can live and enjoy life.  You really touched a sore spot with me John and I am really hoping the doc you have now works out for you.  I don’t think I ever want to see my chart.  It would probably send me into a 10 day migraine just from anger.   Stephanie

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– Hide quoted text — Show quoted text – [snipped for space] Anyway, I feel insulted by the whole tone of this chart entry and particularly by the insinuations that I am some kind of medication junkie. There is nothing serious enough there to bother with a formal complaint, but I just can’t let it pass. I plan to write him a letter letting him know what I think of his diagnostic approach and his lack of sympathy/empathy for those living with chronic pain. Any comments? John — John Martinez John:

<snipped comments on the hazards of  being an honest patient First, it seems like the doctor could just claim he or she was writing up their plans based on what they had seen from all results, exams, etc. The doctor would simply claim the offending material was their professional impression.  I doubt you can get the reports amended or the "offending" sections deleted.

I doubt it as well, based on experience in a case where a doc actually *lied* in my chart, and nobody but me thinks its worth the trouble to amend the records. Second, I think you said in an earlier post that you have finally found someone who is adequately treating your pain, so it is not like you are still searching and these records are going to impede your search.  Sometimes, it is best to just move on and let the assholes receed into your distant memories!

I hear you, but it’s awfully hard to do. Bottom line is that, given you were in this health care plan and it appears that you used every means possible *within* the plan to get relief, you had to see several docs.  As we know on this board, there are alot of docs out there who think the pain is all in your head, or that you’re faking, etc.  If a physician is dead set against opiates, you can forget changing their minds. If I can ask a personal question, how many doctors have you seen in regards to your pain situation prior to finding your current pain management doctor?  

I have seen eleven, including two different PCPs (switched medical plans, so I had to start over), eight orthopedists (one, the partner of the asshole we are discussing, performed a surgery), and my present pain management anesthesiologist. I am not counting three distinct rounds of physical therapy and the pain management psychologist I saw briefly for help w/ depression. As for a suggestion, I would, at the very least, request the files for those doctors that you went to see using your benefits *under your health care plan*.  Docs you went to outside of the plan are probably a non-issue, since only you and the doctor know about those visits, so it would not haunt you if that is a concern.  REMEMBER THO, you could get reamed in the future if you have to fill out some form asking about prior physicians seen and you do not report these other doctors and then someone gets hold of the information–so maybe IT IS a good idea to cover all bases.  That is a decision you have to make.

Such concerns are precisely why I am trying to get the most outrageous notations retracted. The only reason the files from the health care plan doctors may be especially  important is they (the files) will "follow" you around for awhile. Keep in mind also that the times are changing.  If you take the time to read the prescribing literature for meds like Oxycontin, they address the labelling issue and point out that people suffering genuine pain may have to go to multiple doctors before they receive adequate treatment, and that the mere number of doctors seen is not sufficient grounds to label someone as "Med-seeking".

This is interesting. It’s not a big thing, but it is progress. — John Martinez "I have a plastic laminated ID card, therefore I am." Remove the nojunk to get my address or URL. Visit our humble home page at http://www.primenet.com/~nojunkmmart/index.html

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I, according to a part of my chart, have a *histrionic personality* because I described in *great detail and with animation* what was wrong with me. I also *ruminated* about my problems. Yeah, you tend to go on trying to get it through their thick heads that you really hurt. Ingrid — My house is maintained for the comfort of my Cardigan Welsh Corgis – if you don’t like it, leave.

– Hide quoted text — Show quoted text -<snip Any comments? John — John Martinez Sure. I was so organized, bringing in a list of questions to ask along with the MRIs and X-rays that he’d requested, that a rheumatologist decided I had obsessive-compulsive disorder. Even wrote it in my chart. And then wondered why I didn’t go back to see him. Bkwyrm — Fidelis ad urnam scribendi. http://bkwyrm.occult.net

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<snip Any comments? John — John Martinez

Sure. I was so organized, bringing in a list of questions to ask along with the MRIs and X-rays that he’d requested, that a rheumatologist decided I had obsessive-compulsive disorder. Even wrote it in my chart. And then wondered why I didn’t go back to see him. Bkwyrm — Fidelis ad urnam scribendi. http://bkwyrm.occult.net

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Anyway, I feel insulted by the whole tone of this chart entry and particularly by the insinuations that I am some kind of medication junkie. There is nothing serious enough there to bother with a formal complaint, but I just can’t let it pass. I plan to write him a letter letting him know what I think of his diagnostic approach and his lack of sympathy/empathy for those living with chronic pain. Any comments?

I don’t agree. I think that this _is_ serious enough for a complaint.  I would write a letter to the doctor and cc it to the appropriate people. This letter would say why I’m so unhappy and outline what *really* is happening in my life.  Just think, if he is doing this to you, he is doing this to other people too.  This type of "treatment" is totally unacceptable. — Marijke http://www.geocities.com/Athens/Forum/2511 Medical Specialist Coordinator:  http://www.mediconsult.com

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– Hide quoted text — Show quoted text – [snipped for space] Anyway, I feel insulted by the whole tone of this chart entry and particularly by the insinuations that I am some kind of medication junkie. There is nothing serious enough there to bother with a formal complaint, but I just can’t let it pass. I plan to write him a letter letting him know what I think of his diagnostic approach and his lack of sympathy/empathy for those living with chronic pain. Any comments? John — John Martinez

John: This might be a misperception on my part, but it seems like one of the "problems" is the number of doctors who you had to go through to finally get adequate treatment.  From reading your prior posts, it appears that you tried to work your medical problems from within your health care plan.  But this, in turn, meant that you had to see alot of doctors. Everything you did appears to be right on target.  All I can say is that if you see a lnumber of docs, some of them are, almost by definition, going to be opiate-phobes.  And, if you went to them for treatment, it would not surprise me that they would put stuff like this in the progress/plan portion of their records.  The irony of all this, of course, is that you have been open and honest with them in reporting the medications you have been taking, and they apparently used this info to to construct some "profile" of you.  Tell the truth, get screwed.  Lie and avoid problems.  Pretty screwed up system, eh? However, I’m not certain it would be worth pursuing any of this.  Why? First, it seems like the doctor could just claim he or she was writing up their plans based on what they had seen from all results, exams, etc. The doctor would simply claim the offending material was their professional impression.  I doubt you can get the reports amended or the "offending" sections deleted. Second, I think you said in an earlier post that you have finally found someone who is adequately treating your pain, so it is not like you are still searching and these records are going to impede your search.  Sometimes, it is best to just move on and let the assholes receed into your distant memories! Bottom line is that, given you were in this health care plan and it appears that you used every means possible *within* the plan to get relief, you had to see several docs.  As we know on this board, there are alot of docs out there who think the pain is all in your head, or that you’re faking, etc.  If a physician is dead set against opiates, you can forget changing their minds. If I can ask a personal question, how many doctors have you seen in regards to your pain situation prior to finding your current pain management doctor?   As for a suggestion, I would, at the very least, request the files for those doctors that you went to see using your benefits *under your health care plan*.  Docs you went to outside of the plan are probably a non-issue, since only you and the doctor know about those visits, so it would not haunt you if that is a concern.  REMEMBER THO, you could get reamed in the future if you have to fill out some form asking about prior physicians seen and you do not report these other doctors and then someone gets hold of the information–so maybe IT IS a good idea to cover all bases.  That is a decision you have to make. The only reason the files from the health care plan doctors may be especially  important is they (the files) will "follow" you around for awhile. Keep in mind also that the times are changing.  If you take the time to read the prescribing literature for meds like Oxycontin, they address the labelling issue and point out that people suffering genuine pain may have to go to multiple doctors before they receive adequate treatment, and that the mere number of doctors seen is not sufficient grounds to label someone as "Med-seeking". Hope this is of some help.   – Jon

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Hey John I guess *my* comments have no place in polite company, I prefer a more *direct* approach! Jack this jerk up in a private fashion and *adjust* his attitude. Fear is a powerful motivator! (Ya wanna *see* my personal attention?) (The neanderthal is just gettin wound up from reading your history and previous posts.) It is a durn shame we can’t control the opinions of others as regards our medical necessities and requirments, Who, better understands our personal situation than *ME* the long time sufferer. While I have to admit there is a considerable number of folks who engage in med seeking behavior isn’t it possible that those with a history of chronic pain just might have developed an understanding of what is required or indicated? Do the words "Benefit of the Doubt" mean anything anymore? Does experience mean anything anymore? Is it automatically indicated that those with some knowledge of the various treatment options are *seeking* specific meds just to "get high*? AAAAARRRRRRRRRRGGGGGGGGGGGHHHHHHHHHHHHH! Puhlease, save us from the road to hell paved with good intentions. PHCM Pat – Hide quoted text — Show quoted text – snipped

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The fun never seems to end around here. I want to preface this by mentioning that my shoulder/back problems are presently diagnosed as myofascial pain syndrome, not orthopedic problems at all. I just got a copy of my chart from the office of an orthopedist I used to use until he ran out of ideas. One of the things that happened while I was with him was that I got another opinion from his partner, because we were contemplating another surgery on my shoulder, and my regular orthopedist was unsure if he should do it (or perhaps he had decided not to do it and got his partner to be the one to veto it [I am very cynical about docs these days]). In any case, I was appalled by some of the things the partner wrote. As part of the chart entry, he did a two-page history of my orthopedic care. In this history, he notes that there was some question from my PCP that I may have been using "substantial" amounts of analgesic medication (I was having a *substantial* amount of *pain*, though I really used very little of the analgesics) during the period that my chronic migraine started, which was about a month before the visit of the second opinion. (This whole issue with that PCP and his accusations is the subject of a formal complaint to my state regulatory agency.) Later in this section, he describes one of my office visits to the regular orthopedist, during which the doc and I jointly decided that I should stop taking Soma and Ibuprofen, mostly because they did not help me. He mentions that the issues of medication seeking behavior were discussed, but he fails to mention that the gist of the discussion was that my orthopedist did *not* believe I was exhibiting any such behaviors. This description of the visit stongly implies that I was having an issue with controlling my medication usage, which could not be further from the truth. (I don’t understand what this had to do with the evaluation he was performing, anyway.) More directly relevant is his statement in this section that the most recent injection in my shoulder joint did not help me very much. It helped me as much as could reasonably be expected for an injection of this type; the fact that it helped so much was the very reason we were contemplating surgery! His comments on his actual examination are even more interesting. He notes that I talked about having similar pain on the other side (left side), and he seemed to think I was making this up because I had not had surgery on that side. He neglected to mention that that is the side I usually use to carry my son (naturally, since the right side tends to hurt more), which is significant if a congenital problem (on both sides) is at the root of my pain. His recommendation reads that surgery not be done at time and that he would try to keep me off all analgesic medications, if possible, preferring long-acting NSAIDs (none of which have helped, to date). He said it should be explained to me that "he [me] is going to have symptoms intermittently and that these episodes of pain need to be dealt with but not simply covering them up with narcotic effect." In other words: Learn to live with the pain. BTW, intermittently, in my case, is all day, every day. He further recommends that if I don’t respond to the therapy he suggests, to consider a "…psychological evaluation to see if there are any secondary gain factors at work in the continuation of these symptoms." (For those not familiar w/ the term, secondary gain describes people, usually retirees, who seek medical attention primarily to get personal attention and sympathy, typically because they are lonely.) Apparently, this doc believes that he is so good, that if he can’t find the cause of my problem, it must be in my head. There is no mention that perhaps if no orthopedic cause is found for my problem, it’s not orthopedic in nature! Anyway, I feel insulted by the whole tone of this chart entry and particularly by the insinuations that I am some kind of medication junkie. There is nothing serious enough there to bother with a formal complaint, but I just can’t let it pass. I plan to write him a letter letting him know what I think of his diagnostic approach and his lack of sympathy/empathy for those living with chronic pain. Any comments? John — John Martinez "I have a plastic laminated ID card, therefore I am." Remove the nojunk to get my address or URL. Visit our humble home page at http://www.primenet.com/~nojunkmmart/index.html

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While I would be the first to agree that we can accomplish extraordinary things with this type of healing, no one would ask someone who just broke a leg or who just had surgery to deal with it in this fashion.  The difference with all of us here is that we have that type of pain, but since it never goes away, we’re supposed to not be able to seek narcotic relief?!  I don’t think so!!  Chronic pain is a royal pain in the butt, but doctor’s better quit worrying more about their own behinds than relieving our pain because we’re not going to tolerate it anymore!  The actions of this doc toward John were inexcusable. Not only does he not get relief from his pain, but he gets labeled a "druggie" to add insult to injury.  It just makes me want to scream!! Tracy

– Hide quoted text — Show quoted text -Dear John Try mind-body healing– any good hypnotherapist should be able to help you with your pain. It has been used for painless surgery without chemical anaesthesia– so can be helpful even if psychological factors are not operative. dayal — Dayal Mirchandani MD. Asthma/Heart http://www.geocities.com/HotSprings/Spa/6604 Anti Spam: Remove the X from the e-mail address. Auto Reply button will not work The fun never seems to end around here. I want to preface this by mentioning that my shoulder/back problems are presently diagnosed as myofascial pain syndrome, not orthopedic problems at all. I

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