Fed up with Doctors period
Question:
Oh, Amethyst, I’m so sorry. You DO need a doctor who understands the diff between preventive and abortive…and who cares, at least a little, about the latter. ALSO, one who realizes that (1) not all preventives work for everyone, or even most people; (2) for some people, no preventive works at all. ALSO ALSO, one who is not in the pocket of the Topamax Mafia. (I swear, those guys really have a sales thing going, which many docs fall for.) Sniff the next neuro out on these topics before you commit to seeing him/her. Again, so sorry. Best of luck –Julianne
– Hide quoted text — Show quoted text – oh a clarification… I started on last friday on 20 mg of Inderal a day, and he wants me up to 60mg yesterday… He also claims that it will help my migraine that I was calling about… I finally got rid of it with some darvocet that my neighbor gave me when he couldn’t stand to see me in so much pain… Amethyst/Aeryka
Response:
inderal is not a pain reliever… been on it a couple of times and have never been told that it was a pain reliever… ugh… for your health, you need to appeal to your ins. co. to get a different neuro NOW.
– Hide quoted text — Show quoted text – oh a clarification… I started on last friday on 20 mg of Inderal a day, and he wants me up to 60mg yesterday… He also claims that it will help my migraine that I was calling about… I finally got rid of it with some darvocet that my neighbor gave me when he couldn’t stand to see me in so much pain… Amethyst/Aeryka
Response:
Spinal Taps are dangerous, no? Can they really tell about migrianes? Been having bad migraines since ‘85, 2 MRIs, and 2 CATs since. No spinals have ever been ordered. I wonder why he thinks the risk of the tap outweighs exploring abortive medications.
– Hide quoted text — Show quoted text – Nope, not in that area, but in Santa Ana, California… and I am found out this morning, that my insurance won’t let me change neuro’s until after the spinal tap is done… I will tell you this, it felt good to give the person I was talking to a small piece of my mind… Aeryka typist Diane (((((((Amethyst))))))), do you live in the Austin MN area? it sounds like you’ve been going to our medical center. I hope you get some relief soon! Bear but first me remove OLD from this yahoo addy, and remove the blank spaces please check out my better half’s on-line projects www.amazon.com/shops/inland_canal_general_store www.cafeshops.com/everythinggoes www.keen.com/Dawn+777
Response:
Incompetence, guesswork and procrastination are normal in the medical profession. If you are female and these are hormonal migraines, then perhaps Danol may work for you. Otherwise, only Imigran is likely to work! Sympathetically Capitol
Response:
oh a clarification… I started on last friday on 20 mg of Inderal a day, and he wants me up to 60mg yesterday… He also claims that it will help my migraine that I was calling about… I finally got rid of it with some darvocet that my neighbor gave me when he couldn’t stand to see me in so much pain… Amethyst/Aeryka
Response:
Nope, not in that area, but in Santa Ana, California… and I am found out this morning, that my insurance won’t let me change neuro’s until after the spinal tap is done… I will tell you this, it felt good to give the person I was talking to a small piece of my mind… Aeryka typist Diane – Hide quoted text — Show quoted text – (((((((Amethyst))))))), do you live in the Austin MN area? it sounds like you’ve been going to our medical center. I hope you get some relief soon! Bear but first me remove OLD from this yahoo addy, and remove the blank spaces please check out my better half’s on-line projects www.amazon.com/shops/inland_canal_general_store www.cafeshops.com/everythinggoes www.keen.com/Dawn+777
Response:
Amethyst: I am sorry that you are going thought all this crap with your neuro. and not getting any relief from all the meds that you are taking. Also you are also allgergic to some of the meds that you neuro. is giving you and then when you call him he tells you that you should take more of the meds. It sound like your neuro has no compassion to your being allergic to the meds you are taking. I do hope that you get some kind of help soom for your migraine pain.
Sounds alot like the nuero doesn’t understand, or simply doesn’t want to acknowledge, that drug allergies can be fatal. For some reason, some doctors just don’t listen to their patients. If the doctor doesn’t even acknowledge drug allergies and take them seriously, if at all possible find a nuerologist who does. There’s no excuse for a doctor who doesn’t treat the patient as an individual who responds differntly to differnt treatments and instead treats them as some sort of carbon copy. Kami
Response:
Amethyst: I am sorry that you are going thought all this crap with your neuro. and not getting any relief from all the meds that you are taking. Also you are also allgergic to some of the meds that you neuro. is giving you and then when you call him he tells you that you should take more of the meds. It sound like your neuro has no compassion to your being allergic to the meds you are taking. I do hope that you get some kind of help soom for your migraine pain. Barbara Booth
Response:
(((((((Amethyst))))))), do you live in the Austin MN area? it sounds like you’ve been going to our medical center. I hope you get some relief soon! Bear but first me remove OLD from this yahoo addy, and remove the blank spaces please check out my better half’s on-line projects www.amazon.com/shops/inland_canal_general_store www.cafeshops.com/everythinggoes www.keen.com/Dawn+777
Response:
Okay, odd question to those out there in the newsgroup… I have listed my allergies to all the known medications in my file and on a piece of paper I bring with me to each appt, I also have listed my medical problems, besides the migraines… they are the following: My medical conditions Asthma, and hypoglycemia My medication allergies Pencillin and all derivatives All Tetracyclines All Erythromycins Sulfonamides Corticosteroids Zofran Thorazine Compazine Reglan Now with all those listed, and in front of the neuro, wouldn’t he be able to find something that I can take without having to tell him later, after I have looked it up, that I can’t take it because it interferes with my medical conditions or allergies? I pointed this out to him today and he told me that Inderal doesn’t effect anything I have or am allergic to… I am going to be calling my insurance company in the morning and launching a major complaint to them, and also reporting him to JCAHO for this… Amethyst
Response:
Amethyst, Am sorry to hear of the bad luckyour going through. I can totally relate though. Have seen my share of incompatant drs. too b4. All I can say is keep trying, dont give up. Topamax gave me no help either. Infact they’ve yet to be ableto find something I can take, that I wont have bad reactions to. Am fed up too, so I understand. Go to this group,please. And check out the changes we are trying to make. It is http://www.groups.yahoo.com/group/chronicpainstories You will find many who can relate. Plus you can help us make a difference in the way we are treated by drs. and what we can do. If we all pulltogether on this we can make a difference in the way we are all being treated in the medical field. migraine momma – Hide quoted text — Show quoted text -These are not hormonal migraines, thank god, but the ones I am getting this week and last week are due to the idiots next door doing some remodelling on the apartment complex… I just want to scream, I am taking an upwards of 4 Fioricet a day, and its barely touching the migraine… so I am just toughing it out… Amethyst Incompetence, guesswork and procrastination are normal in the medical profession. If you are female and these are hormonal migraines, then perhaps Danol may work for you. Otherwise, only Imigran is likely to work! Sympathetically Capitol
Response:
These are not hormonal migraines, thank god, but the ones I am getting this week and last week are due to the idiots next door doing some remodelling on the apartment complex… I just want to scream, I am taking an upwards of 4 Fioricet a day, and its barely touching the migraine… so I am just toughing it out… Amethyst
– Hide quoted text — Show quoted text – Incompetence, guesswork and procrastination are normal in the medical profession. If you are female and these are hormonal migraines, then perhaps Danol may work for you. Otherwise, only Imigran is likely to work! Sympathetically Capitol
Response:
Amethyst… Is the doc giving you samples? A pharmacist/computer should have caught the allergy with the topomax. I know the system at my pharmacy (former pharm tech) would have caught any derivative. Another thing that you can do before you take any of these new meds is call your pharmacy and talk to the pharmacist. They can put the meds in the computer and see if there is any interaction with them all. I thank God for my health practioner (not md, chiropractor, licensed health & nutrional practioner).. i haven’t had any hormonal migraines in months.. only one due to a food allergy. The only drawback is we have very little chiropractic coverage and that is what he bills his appts as. It is worth every penny though. He quickly straightened out a reaction i was having to Singulair (it was affecting my gallbladder/liver). i hope you are able to get a new doc and get some relief! Tracey – Hide quoted text — Show quoted text – Okay, odd question to those out there in the newsgroup… I have listed my allergies to all the known medications in my file and on a piece of paper I bring with me to each appt, I also have listed my medical problems, besides the migraines… they are the following: My medical conditions Asthma, and hypoglycemia My medication allergies Pencillin and all derivatives All Tetracyclines All Erythromycins Sulfonamides Corticosteroids Zofran Thorazine Compazine Reglan Now with all those listed, and in front of the neuro, wouldn’t he be able to find something that I can take without having to tell him later, after I have looked it up, that I can’t take it because it interferes with my medical conditions or allergies? I pointed this out to him today and he told me that Inderal doesn’t effect anything I have or am allergic to… I am going to be calling my insurance company in the morning and launching a major complaint to them, and also reporting him to JCAHO for this… Amethyst
Response:
your neuro should be more concerned with allergies: http://www.sjsupport.org/
– Hide quoted text — Show quoted text – Okay, odd question to those out there in the newsgroup… I have listed my allergies to all the known medications in my file and on a piece of paper I bring with me to each appt, I also have listed my medical problems, besides the migraines… they are the following: My medical conditions Asthma, and hypoglycemia My medication allergies Pencillin and all derivatives All Tetracyclines All Erythromycins Sulfonamides Corticosteroids Zofran Thorazine Compazine Reglan Now with all those listed, and in front of the neuro, wouldn’t he be able to find something that I can take without having to tell him later, after I have looked it up, that I can’t take it because it interferes with my medical conditions or allergies? I pointed this out to him today and he told me that Inderal doesn’t effect anything I have or am allergic to… I am going to be calling my insurance company in the morning and launching a major complaint to them, and also reporting him to JCAHO for this… Amethyst
Response:
Karen.. I emailed you – Hide quoted text — Show quoted text – Tracey, I’ve been on Singulair for almost a year. After the first month or so I started having pain about two inches below my right breast, continuous diarrhea that was bright yellow, and pain in my mid-back on the right side. At first, I thought it was a kidney stone, then gall stones. They did an ultrasound of my gall bladder and kidneys, but found nothing suspicious. Could you explain what your symptoms were? I am wondering if I should ask my doctor to switch me to something else. I used to use Advair when I was symptomatic, and before that albuterol inhaler. Karen in San Diego Amethyst… Is the doc giving you samples? A pharmacist/computer should have caught the allergy with the topomax. I know the system at my pharmacy (former pharm tech) would have caught any derivative. Another thing that you can do before you take any of these new meds is call your pharmacy and talk to the pharmacist. They can put the meds in the computer and see if there is any interaction with them all. I thank God for my health practioner (not md, chiropractor, licensed health & nutrional practioner).. i haven’t had any hormonal migraines in months.. only one due to a food allergy. The only drawback is we have very little chiropractic coverage and that is what he bills his appts as. It is worth every penny though. He quickly straightened out a reaction i was having to Singulair (it was affecting my gallbladder/liver). i hope you are able to get a new doc and get some relief! Tracey Okay, odd question to those out there in the newsgroup… I have listed my allergies to all the known medications in my file and on a piece of paper I bring with me to each appt, I also have listed my medical problems, besides the migraines… they are the following: My medical conditions Asthma, and hypoglycemia My medication allergies Pencillin and all derivatives All Tetracyclines All Erythromycins Sulfonamides Corticosteroids Zofran Thorazine Compazine Reglan Now with all those listed, and in front of the neuro, wouldn’t he be able to find something that I can take without having to tell him later, after I have looked it up, that I can’t take it because it interferes with my medical conditions or allergies? I pointed this out to him today and he told me that Inderal doesn’t effect anything I have or am allergic to… I am going to be calling my insurance company in the morning and launching a major complaint to them, and also reporting him to JCAHO for this… Amethyst
Response:
Have you tried Singulair (and I think there’s another asthma med, too), which has been touted as a helpful preventive med for some? I always like to start with what might be helpful for SOMETHING, since it’s a crapshoot whether it will be useful for migraine. –Julianne
– Hide quoted text — Show quoted text – Okay, odd question to those out there in the newsgroup… I have listed my allergies to all the known medications in my file and on a piece of paper I bring with me to each appt, I also have listed my medical problems, besides the migraines… they are the following: My medical conditions Asthma, and hypoglycemia My medication allergies Pencillin and all derivatives All Tetracyclines All Erythromycins Sulfonamides Corticosteroids Zofran Thorazine Compazine Reglan Now with all those listed, and in front of the neuro, wouldn’t he be able to find something that I can take without having to tell him later, after I have looked it up, that I can’t take it because it interferes with my medical conditions or allergies? I pointed this out to him today and he told me that Inderal doesn’t effect anything I have or am allergic to… I am going to be calling my insurance company in the morning and launching a major complaint to them, and also reporting him to JCAHO for this… Amethyst
Response:
I pointed this out to him today and he told me that Inderal doesn’t effect anything I have or am allergic to…
Unfortunately, not all doctors know or realize all the possible side-effects and/or allergic reactions that can take place with the drugs they prescribe. More than once a family member has had to take information she referenced from offical sources to show to the doctor who disbelieved the medicine caused her more medical problems than it solved. I’ve had to do so as well. Kami
Response:
inderal is the same as generic propanolol.
Propananol IME works only for a short period of time, then the dosage needs to be increased to a dangerous level. It is prescribed because it is cheap! Like I said, IME only Imigran actually works for most migraine sufferers. I believe that Imigran becomes available as a generic shortly. Regards Capitol
Response:
inderal is the same as generic propanolol. I don’t mean to taint you with the placebo effect, but you may want to read in the google archives about it. It’s good to be on the watch for depression, weight gain, etc. However, if it works, it may be worth the adverse effects. Erik – Hide quoted text — Show quoted text – oh a clarification… I started on last friday on 20 mg of Inderal a day, and he wants me up to 60mg yesterday… He also claims that it will help my migraine that I was calling about… I finally got rid of it with some darvocet that my neighbor gave me when he couldn’t stand to see me in so much pain… Amethyst/Aeryka
Response:
Darn, Amethyst I sure hope that things change for the better 4 ya. Praying 4 ya. mm – Hide quoted text — Show quoted text -Okay, odd question to those out there in the newsgroup… I have listed my allergies to all the known medications in my file and on a piece of paper I bring with me to each appt, I also have listed my medical problems, besides the migraines… they are the following: My medical conditions Asthma, and hypoglycemia My medication allergies Pencillin and all derivatives All Tetracyclines All Erythromycins Sulfonamides Corticosteroids Zofran Thorazine Compazine Reglan Now with all those listed, and in front of the neuro, wouldn’t he be able to find something that I can take without having to tell him later, after I have looked it up, that I can’t take it because it interferes with my medical conditions or allergies? I pointed this out to him today and he told me that Inderal doesn’t effect anything I have or am allergic to… I am going to be calling my insurance company in the morning and launching a major complaint to them, and also reporting him to JCAHO for this… Amethyst
Response:
Tracey, I’ve been on Singulair for almost a year. After the first month or so I started having pain about two inches below my right breast, continuous diarrhea that was bright yellow, and pain in my mid-back on the right side. At first, I thought it was a kidney stone, then gall stones. They did an ultrasound of my gall bladder and kidneys, but found nothing suspicious. Could you explain what your symptoms were? I am wondering if I should ask my doctor to switch me to something else. I used to use Advair when I was symptomatic, and before that albuterol inhaler. Karen in San Diego – Hide quoted text — Show quoted text – Amethyst… Is the doc giving you samples? A pharmacist/computer should have caught the allergy with the topomax. I know the system at my pharmacy (former pharm tech) would have caught any derivative. Another thing that you can do before you take any of these new meds is call your pharmacy and talk to the pharmacist. They can put the meds in the computer and see if there is any interaction with them all. I thank God for my health practioner (not md, chiropractor, licensed health & nutrional practioner).. i haven’t had any hormonal migraines in months.. only one due to a food allergy. The only drawback is we have very little chiropractic coverage and that is what he bills his appts as. It is worth every penny though. He quickly straightened out a reaction i was having to Singulair (it was affecting my gallbladder/liver). i hope you are able to get a new doc and get some relief! Tracey Okay, odd question to those out there in the newsgroup… I have listed my allergies to all the known medications in my file and on a piece of paper I bring with me to each appt, I also have listed my medical problems, besides the migraines… they are the following: My medical conditions Asthma, and hypoglycemia My medication allergies Pencillin and all derivatives All Tetracyclines All Erythromycins Sulfonamides Corticosteroids Zofran Thorazine Compazine Reglan Now with all those listed, and in front of the neuro, wouldn’t he be able to find something that I can take without having to tell him later, after I have looked it up, that I can’t take it because it interferes with my medical conditions or allergies? I pointed this out to him today and he told me that Inderal doesn’t effect anything I have or am allergic to… I am going to be calling my insurance company in the morning and launching a major complaint to them, and also reporting him to JCAHO for this… Amethyst
Response:
Sorry it has taken me so long to reply, but as to Singular and Advair, I have tried both in the past and they only cause my migraines to get worse… I only have mild asthma, and I haven’t had an attack in almost 3 years… The only thing I take is my inhaler, which I can’t remember the name of right at the moment, my brain is in reverse and refuses to go in the forward direction… Well I am off to do some housework while I can, as the Santana’s are coming back up, and they like to cause me pain… Amethyst
Response:
Amethyst: Tell me about those Santa Ana Winds. I live in San Diego and I also have mild asthma. I also have night asthma only during the winter months due to the cold air at night. For my night asthma I take 2 inhailers one is Azmacort and the other is Seravent. The last 2 days I have had a mild migraine headache myself. Also since this Santa Ana winds have kicked in I also have allergies and sinus problems as well. Barbara Booth
Response:
Okay, started seeing my neuro in Dec, he put me on Topamax, just two weeks into taking it, I break out in cysts all over my body… come to find out that its a sulfa drug, to which I am allergic to… okay, call my neuro to tell him that I have stopped taking it and he gets upset at me and tells me that I have to deal with it… I promptly hang up, because I was that upset with him… well get a migraine, I call in asking for something to stop the migraine, wait 3 hours til hubby gets home and he calls them back asking what’s going on… gets to talk with the doctor who completely forgets that I have stopped taking the Topamax and tells him to have me up the dose per day… hubby informs him that I have stopped taking the meds and I did call, then neuro gets upset all over again, but calls in a prescription for Ultram… I take it when I need to, and my migraine doesn’t go away, it just gets worse… end up in the ER at 6am and get an IV of Dilaudid and Zofran, which the neuro ordered, ends up I am allergic to Zofran… also my neuro tells the ER doctor that he is going to schedule me for a MRI and Cat Scan the next time he sees me… I went back to the neuro a week ago, and he puts me on Inderal, I have been having small migraines since I started, today has been the worse… he also stated that I HAVE to be on a preventative to stop my migraines… he writes the prescription for Inderal and sends me on my way, saying he will see me in 2-3 months… well I called him today and told him that I have a migraine that started at 4am, I have taken 2 Axerts, one at 4am, and one at 12pm… He tell me to up my Inderal to 3 per day, in fact, I can take one right now, and he will schedule a spinal tap to find out why I am having migraines that nothing will stop it… *insert scream here* He also wants me to call him in a few days to tell him how I am doing… Right now, I am barely able to see the screen, I am in tears, and I have no way of changing my neuro, since my insurance company says I have to go through the doctor who referred me, and he’s on a family emergency and no known date of return… I asked the neuro about a MRI and Cat Scan and he told me that neither would tell what is going on, only the spinal tap… I am sick and tired of this crap, he doesn’t listen to me, he sees me for a total of 10 mins and that’s it… I have a feeling I am going to the ER again tonight and I can’t afford it…
Categories:
